In Sixteen Years of Endometriosis

By Amy CorfeliAlternative Health Health & Fitness

In Sixteen Years of Endometriosis episodes

June 24, 2021 66: Our Relationship with Food. Part 2
Updated 1/2024. CW: Eating for comfort. Amy and Brittany examine their relationship with food. We talk about:
—the general and common practice of “eating our feelings” and using food to soothe our feelings instead of actually being with them
—the importance of learning to be with our feelings
—some tips for paying attention to food cravings to see if there is actually an “emotional craving” behind them
***Note: We don’t want this convo to play into diet culture and make us feel ashamed or guilty for eating for reasons besides hunger. Instead, we are just trying to better understand ourselves and have more awareness and mindfulness. As we (Brittany and Amy) get sick from most of the food we eat - especially from the salty and sweet snacks our emotions tend to crave - we personally don't want to be turning to food for bad day we have, because frequently flaring affects our mental health.
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
50 min
June 10, 2021 65: Our Relationship with Food. Part 1
Updated 1/2024. CW: fear of food, reluctance to eat, being obsessive and controlling with food.
Amy and Brittany talk about:
—how for many with endo, eating can be a struggle as it may lead to digestive symptoms, constipation, diarrhea, nausea, pain, fatigue, and other horrible symptoms.
—how for Amy, eating is one of her biggest challenges and the source of many flares, and that led to her having a very unhealthy relationship with food.
—how we’ve personally been able to let go of the fear around eating and have a much better relationship with food.
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
1 hr 16 min
May 27, 2021 64: Talking about Gender and Inclusivity with Lori Johansson
Amy and Brittany speak with Lori Johansson about:
—gender and gender identity
—ways to be more inclusive in our endometriosis advocacy.
🎤WHO IS LORI JOHANSSON?🎤
Lori is a nonbinary endo advocate with both endo and adeno, and as part of their position at public university, they facilitate a community engaged learning course that incorporates discussion around social identities, intersectionality, and counter narratives. Lori is dedicated to spreading awareness of endometriosis and creating supportive and inclusive spaces for those impacted by this disease.
☀️CONNECT WITH LORI☀️
Instagram @lori.johansson.art
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
1 hr 11 min
May 13, 2021 63: Endometriosis and Relationships
Updated 9/2023. Amy and Brittany talk about:
—keys to relationship success (especially romantic relationships) and what Amy learned from her divorce.
—how we are ALL worthy of love
—how having endo doesn’t doom a relationship, even if we can’t be intimate with our partner, we need to be taken care of at times, or we have other situations we may find ourselves in.
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
1 hr 18 min
April 29, 2021 Ep62: Estrogen Metabolism
Updated 12/2022. We give an overview of estrogen in the bodies of people assigned female at birth, including the different types of estrogen and where they are made in the body. Then we talk in depth about the process of estrogen metabolism, the role of the liver and the gut, and some tips to we can do to help this process.
This episode is not about endometriosis or managing endometriosis symptoms, but rather it's to share what Amy has been learning as she works with her naturopath to improve her estrogen metabolism as part of a protocol to help her histamine symptoms.
CONNECT WITH US! INSTAGRAM: @in16yearsofendo
WEBSITE AND RESOURCES: insixteenyears.com
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SOURCES: Clickable links at insixteenyears.com/episode62
--Is the Dutch Test worth the money? - Review by Abby Langer
--Putting the Puzzle Pieces of Phase 1, 2 and 3 Estrogen Detoxification Together – Video by Precision Analytical
--Estrogen Tutorial – Video by Precision Analytical
--Estrogen Metabolism: Start to Finish – Video presented by Dr. Tara Scott from Revitalize
--What Causes Hormone Imbalance? – by Chris Kresser
--RHR: The Right and Wrong Way to Treat Hormone Imbalance – by Chris Kresser
--The Gut–Hormone Connection: How Gut Microbes Influence Estrogen Levels – by Chris Kresser
--How to Fix Your Period without Birth Control – by Laura Beth Schoenfeld, RD
--What is Estrogen Dominance + What to Do About It – by Dr. Jolene Brighten
--Samavat H, Kurzer MS. Estrogen metabolism and breast cancer. Cancer Lett. 2015;356(2 Pt A):231-243. doi:10.1016/j.canlet.2014.04.018
--Estrogen Dominance – by Melissa Velasco. Great multiple part series here! Also, check out her Eighty-Six the Endo Weekly Planner!
--Finding the Best DNA Test: Should I Genotype or Sequence?
--23 and me DNA test
--Dirty Genes – by Ben Lynch
1 hr 19 min
April 14, 2021 61: Is Finding Peace with Endometriosis Possible?
Updated 4/2023. Amy and Brittany talk about our own journeys of searching for peace.
—Is it possible to find peace with the pain, the symptoms, and the countless ways endo devastates our lives?
—Where we are in terms of acceptance and what benefits it has brought us.
—While there is no ‘correct way’ to find peace, we give some ideas on how a person could start, especially if the idea of acceptance currently seems out of reach.
Amy's book “Finding Peace with a Devastating Disease”. https://insixteenyears.com/where-to-find-my-book/
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
1 hr 19 min
April 01, 2021 60: Extra Pelvic Endometriosis (Part 2) with Wendy Bingham
Amy speaks with Wendy Bingham DPT about
—what different cases of endometriosis in animals could mean for the origin of the disease
—the association between endometriosis and cardiovascular disease.
🎤WHO IS WENDY BINGHAM DPT?🎤
Wendy is the founder of the non-profit ExtraPelvic Not Rare, which is dedicated to starting conversation about extrapelvic endometriosis, while providing correct, up-to-date information about the signs and symptoms, diagnostics, and appropriate treatment referrals.
☀️CONNECT WITH WENDY☀️
www.extrapelvicnotrare.org
Instagram @extrapelvicnotrare
Facebook ExtraPelvic Not Rare Endo Support and Education Group
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
48 min
March 18, 2021 59: Extra Pelvic Endometriosis (Part 1) with Wendy Bingham DPT of ExtraPelvic Not Rare
Amy speaks with Wendy Bingham DPT about:
—why the definition of endometriosis desperately needs an overhaul and the proposed definitions from the scientific community for it.
—the problems with the current definition of extrapelvic endo.
—the ICD (International Classification of Diseases) codes and why these negatively affect our ability to truly know the statistics of extrapelvic endo
🎤WHO IS WENDY BINGHAM DPT?🎤
Wendy is the founder of the non-profit ExtraPelvic Not Rare, which is dedicated to starting conversation about extrapelvic endometriosis, while providing correct, up-to-date information about the signs and symptoms, diagnostics, and appropriate treatment referrals.
☀️CONNECT WITH WENDY☀️
www.extrapelvicnotrare.org
Instagram @extrapelvicnotrare
Facebook ExtraPelvic Not Rare Endo Support and Education Group
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
1 hr 26 min
March 03, 2021 58: Insights into Endo with Heather Guidone, CEC Program Director
Amy speaks with Heather Guidone about:
—excision surgery
—the standard of care
—obstacles to treatment, and what endo actually does in the body.
🎤WHO IS HEATHER GUIDONE?🎤
Heather Guidone is a Board Certified Patient Advocate, and Program Director of the Center for Endometriosis Care in Atlanta, GA. Heather is responsible for the CEC’s comprehensive multidisciplinary care program, clinical research facilitation, disease education and legislative/public policy endeavors to promote better care for endometriosis and pelvic pain gynepathologies. She also coordinates the CEC's MIGS/Endometriosis Surgical Fellowship Program.
Heather has focused on 'bench to beltway to bedside' efforts in endometriosis education, research, policy reform, patient-centered care and more for nearly thirty years, but most importantly, she has also personally struggled with advanced endometriosis, adenomyosis and infertility herself and brings a unique perspective her professional works.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode58
🔗The Palgrave Handbook of Critical Menstruation Studies – “Multi-disciplinary, genre-spanning and critical examination of the cultural, psychological, political and social aspects of menstruation.” Editors: Chris Bobel, Inga T. Winkler, Breanne Fahs, Katie Ann Hasson, Elizabeth Arveda Kissling, Tomi-Ann Roberts.
🔗Center for Endometriosis Care – “Led by internationally renowned endometriosis expert Ken Sinervo, MD, MSc, FRCSC, ACGE, the CEC is a global leader in the care and treatment of the disease."
☀️CONNECT WITH HEATHER☀️
www.centerforendo.com
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
55 min
February 18, 2021 57: Endometriosis is NOT the Endometrium. Part 2
Updated 1/2023. Amy and Brittany talk about:
—how endometriosis is different from the endometrium in terms of its estrogen and progesterone receptors.
—how the receptors directly affect the biological processes of the endometriotic tissue, causing it to act differently than the endometrium does
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode57
🔗Is endometriosis an autotransplant? – A chart of differences between endo and the endometrium from Endopaedia.info
🔗Marquardt RM, Kim TH, Shin JH, Jeong JW. Progesterone and Estrogen Signaling in the Endometrium: What Goes Wrong in Endometriosis? Int J Mol Sci. 2019;20(15):3822. Published 2019 Aug 5. doi:10.3390/ijms20153822 – There is also a chart of differences of endo and the endometrium here.
🔗Bulun SE, Yilmaz BD, Sison C, et al. Endometriosis. Endocr Rev. 2019;40(4):1048-1079. doi:10.1210/er.2018-00242
🔗David Redwine, MD – Dr. Redwine’s talk on HOX genes.
🔗Bulun SE, Monsavais D, Pavone ME, et al. Role of estrogen receptor-β in endometriosis. Semin Reprod Med. 2012;30(1):39-45. doi:10.1055/s-0031-1299596
🔗Progesterone Resistance in Endometriosis – Article on Nancy’s Nook.
🔗Bulun SE, Cheng YH, Pavone ME, et al. 17Beta-hydroxysteroid dehydrogenase-2 deficiency and progesterone resistance in endometriosis. Semin Reprod Med. 2010;28(1):44-50. doi:10.1055/s-0029-1242992
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
1 hr 22 min

About In Sixteen Years of Endometriosis

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Laugh, cry, and shout with us as we talk all things endometriosis! We hope our podcast will support and empower you. Our podcast has 2 types of episodes: (1) Chats between Amy and Brittany, 2 best…