In Sixteen Years of Endometriosis

In Sixteen Years of Endometriosis

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In Sixteen Years of Endometriosis episodes

  • 56: Endometriosis is NOT the Endometrium. Part 1
    Updated 4/2023. Amy and Brittany talk about
    —some ways that endo and the endometrium differ
    —why this is so important to know in terms of treatment options
    🔗RESOURCES🔗
    For clickable links to the resources below, go to www.insixteenyears.com/episode56
    🔗Bulun SE, Yilmaz BD, Sison C, et al. Endometriosis. Endocr Rev. 2019;40(4):1048-1079. doi:10.1210/er.2018-00242
    🔗Aude Béliard, M.D., Ph.D., Agnès Noël, Ph.D., Jean-Michel Foidart, M.D., Ph.D. Reduction of apoptosis and proliferation in endometriosis. Jul 1, 2004. DOI:https://doi.org/10.1016/j.fertnstert.2003.11.048
    🔗Ali-Akbar Delbandi, M.Sc., Mahmoud Mahmoudi, Ph.D., Adel Shervin, M.D., Mojtaba Sankian, Ph.D., Somayeh Kazemnejad, Ph.D., Amir-Hassan Zarnani, Ph.D. Eutopic and ectopic stromal cells from patients with endometriosis exhibit differential invasive, adhesive, and proliferative behavior. May 29, 2013. DOI:https://doi.org/10.1016/j.fertnstert.2013.04.041
    🔗Howard M Gebel, Ph.D., Donald P Braun, Ph.D., Anat Tambur, D.M.D., Ph.D., David Frame, Ph.D., Nasir Rana, M.D., W.Paul Dmowski, M.D., Ph.D. Spontaneous Apoptosis of Endometrial Tissue is Impaired in Women with Endometriosis. Jun 1, 1998. DOI:https://doi.org/10.1016/S0015-0282(98)00073-9
    🔗Hilary O. D. Critchley, Jacqueline A. Maybin, Gregory M. Armstrong, and Alistair R. W. Williams. Physiology of the Endometrium and Regulation of Menstruation. 29 Apr 2020 DOI:https://doi.org/10.1152/physrev.00031.2019
    🔗The Standard of Care is not Sufficient – Article on Nancy’s Nook by Dr. Jeff Arrington
    🔗Endometriosis FAQs – These are from ACOG’s website with definition of endo incorrect as well as misleading information on treatment
    🔗Petitioning ACOG to Change the Standards of Care for Endometriosis Patients – Information on the petition to ACOG
    🔗The Problem with the ACOG Website – From Casey Berna’s website, this is a rewritten version of ACOG’s FAQs with correct information
    🔗Q&A with Dr. Redwine: Is Endometriosis Genetic? If so, why won’t it always recur post-operatively? 
    🔗Nosebleeds – Article by Wendy Bingham from ExtraPelvic Not Rare
    ☀️CONNECT WITH AMY☀️
    Instagram @in16yearsofendo
    Website: www.insixteenyears.com
    Like my show? Please rate it or leave a review!
    Support me by buying me a coffee: https://ko-fi.com/insixteenyears
    ⚠️DISCLAIMER⚠️
    The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
    1 hr 17 min
  • 55: Endometriosis and Estrogen
    Updated 1/2024. Amy and Brittany talk about
    —some of the roles that estrogen can play in endometriosis
    —why mouse endometriosis models are problematic
    —myths that everyone with endometriosis is estrogen dominant or that medical or natural menopause will treat the disease
    🔗RESOURCES🔗
    For clickable links to the resources below, go to www.insixteenyears.com/episode55
    🔗Bulun SE, Monsavais D, Pavone ME, et al. Role of estrogen receptor-β in endometriosis. Semin Reprod Med. 2012;30(1):39-45. doi:10.1055/s-0031-1299596
    🔗Serdar E Bulun, Bahar D Yilmaz, Christia Sison, Kaoru Miyazaki, Lia Bernardi, Shimeng Liu, Amanda Kohlmeier, Ping Yin, Magdy Milad, JianJun Wei, Endometriosis, Endocrine Reviews, Volume 40, Issue 4, August 2019, Pages 1048–1079, https://doi.org/10.1210/er.2018-00242
    🔗Endometriosis in Males – By Wendy Bingham from ExtraPelvic Not Rare
    🔗Helpful table about hormonal balance symptoms – A list of the functions of estrogen in the body and symptoms of high or low estrogen
    🔗Endometriosis persisting after hysterectomy and bilateral salpingo-oophorectomy: Removing the disease, not organs, is key to long-term relief – Article from Endopaedia.info
    🔗Reason Why Hormone Therapy Alone Cannot Cure Endometriosis Uncovered – Quick summary of a research article on hormone receptors
    ☀️CONNECT WITH AMY☀️
    Instagram @in16yearsofendo
    Website: www.insixteenyears.com
    Like my show? Please rate it or leave a review!
    Support me by buying me a coffee: https://ko-fi.com/insixteenyears
    ⚠️DISCLAIMER⚠️
    The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
    1 hr 15 min
  • 54: Do You Hate Your Personal “Endometriosis Diet”?
    Updated 1/2024. Amy and Brittany each following what’s typically considered a restrictive diet. We talk about some of the language and mindset shifts that have helped us
    —to stop hating the dietary choices we follow
    —feel empowered
    —have a more pleasant experience with eating
    ☀️CONNECT WITH AMY☀️
    Instagram @in16yearsofendo
    Website: www.insixteenyears.com
    Like my show? Please rate it or leave a review!
    Support me by buying me a coffee: https://ko-fi.com/insixteenyears
    ⚠️DISCLAIMER⚠️
    The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
    1 hr 13 min
  • Ep53: You Are Not A Burden
    Updated 2/2023. Amy and Brittany talk about feeling like a burden. We talk about:
    —how we find ourselves apologizing often and feeling guilty when we ask for help
    —why we might feel this way
    —why we are NOT a burden and how to learn to appreciate our value
    ☀️CONNECT WITH AMY☀️
    Instagram @in16yearsofendo
    Website: www.insixteenyears.com
    Like my show? Please rate it or leave a review!
    Support me by buying me a coffee: https://ko-fi.com/insixteenyears
    ⚠️DISCLAIMER⚠️
    The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
    1 hr 20 min
  • 52: How Sleep Affects Our Health and Pain Levels
    Updated 2/2023. Amy and Brittany talk about sleep:
    —how hard it can be to sleep, especially if we have health problems
    —why sleep is so important
    🔗RESOURCES🔗
    For clickable links to the resources below, go to www.insixteenyears.com/episode52
    🔗Insomnia Until it Hurts. The role of sleep deprivation in chronic pain, especially muscle pain
    🔗Bennett RM, Jones J, Turk DC, Russell IJ, Matallana L. An internet survey of 2,596 people with fibromyalgia. BMC Musculoskelet Disord. 2007;8:27. Published 2007 Mar 9. doi:10.1186/1471-2474-8-27
    🔗Cognitive Behavioral Therapy for Insomnia (CBT-I)
    🔗Qaseem A, Kansagara D, Forciea MA, Cooke M, Denberg TD; Clinical Guidelines Committee of the American College of Physicians. Management of Chronic Insomnia Disorder in Adults: A Clinical Practice Guideline From the American College of Physicians. Ann Intern Med. 2016 Jul 19;165(2):125-33. doi: 10.7326/M15-2175. Epub 2016 May 3. PMID: 27136449.
    🔗Waters F, Chiu V, Atkinson A, Blom JD. Severe Sleep Deprivation Causes Hallucinations and a Gradual Progression Toward Psychosis With Increasing Time Awake. Front Psychiatry. 2018;9:303. Published 2018 Jul 10. doi:10.3389/fpsyt.2018.00303
    ☀️CONNECT WITH AMY☀️
    Instagram @in16yearsofendo
    Website: www.insixteenyears.com
    Like my show? Please rate it or leave a review!
    Support me by buying me a coffee: https://ko-fi.com/insixteenyears
    ⚠️DISCLAIMER⚠️
    The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
    59 min
  • 51: Practicing Gratitude to Help Our Mental Health
    Updated 2/2023. Amy and Brittany talk about gratitude:
    —how it can change the way we feel about our lives
    —how it can be hard to practice when we are suffering from endo challenges
    —how books, movies, and connecting with each other can help us find gratitude, inspiration, and strength
    ☀️CONNECT WITH AMY☀️
    Instagram @in16yearsofendo
    Website: www.insixteenyears.com
    Like my show? Please rate it or leave a review!
    Support me by buying me a coffee: https://ko-fi.com/insixteenyears
    ⚠️DISCLAIMER⚠️
    The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
    1 hr 10 min
  • 50: Medicine’s Sex and Gender Bias. Part 4
    Updated 4/2023. Part 4 - But Doctor, It’s Not Psychosomatic!
    Amy and Brittany talk about:
    —‘medically unexplained symptoms’
    —mental health referrals and stereotypes around being distressed about symptoms
    —results from a 2018 review which looked into how gender bias and gender norms have affected medical treatment
    🔗RESOURCES🔗
    For clickable links to the resources below, go to www.insixteenyears.com/episode50
    🔗Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick by Maya Dusenbery
    🔗Anke Samulowitz, Ida Gremyr, Erik Eriksson, Gunnel Hensing, ““Brave Men” and “Emotional Women”: A Theory-Guided Literature Review on Gender Bias in Health Care and Gendered Norms towards Patients with Chronic Pain”, Pain Research and Management, vol. 2018, Article ID 6358624, 14 pages, 2018. https://doi.org/10.1155/2018/6358624
    🔗Bias In Medicine: Last Week Tonight with John Oliver (HBO) – Youtube video
    🔗Bransfield RC, Friedman KJ. Differentiating Psychosomatic, Somatopsychic, Multisystem Illnesses, and Medical Uncertainty. Healthcare (Basel). 2019;7(4):114. Published 2019 Oct 8. doi:10.3390/healthcare7040114
    ☀️CONNECT WITH AMY☀️
    Instagram @in16yearsofendo
    Website: www.insixteenyears.com
    Like my show? Please rate it or leave a review!
    Support me by buying me a coffee: https://ko-fi.com/insixteenyears
    ⚠️DISCLAIMER⚠️
    The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
    1 hr 5 min
  • Ep49: Practicing Self-Compassion After an Endo Horror Story
    Updated 2/2023. Amy and Brittany discuss one of Amy's worst flares in public. We talk about:
    —how Amy was mortified by what had happened
    —how her lack of self-compassion worsened an already traumatic and unbearable situation
    —why self-compassion is important and how to practice it
    ☀️CONNECT WITH AMY☀️
    Instagram @in16yearsofendo
    Website: www.insixteenyears.com
    Like my show? Please rate it or leave a review!
    Support me by buying me a coffee: https://ko-fi.com/insixteenyears
    ⚠️DISCLAIMER⚠️
    The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
    53 min
  • 48: Medicine’s Sex and Gender Bias. Part 3
    Updated 4/2023. Part 3 - Why Is Pain Dismissed in Women and People Assigned Female at Birth?
    Amy and Brittany talk about:
    —assumptions and stereotypes specifically related to women, people AFAB, and illness
    —a brief overview of the history of hysteria and some ways illness in which women were viewed culturally in the past 150 years
    —a 2018 theory-guided literature review which looked into how gender bias and gender norms have affected medical treatment
    🔗RESOURCES🔗
    For clickable links to the resources below, go to www.insixteenyears.com/episode48
    🔗Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick Book by Maya Dusenbery
    🔗Medical Bondage: Race, Gender, and the Origins of American Gynecology Book by Deirdre Cooper Owens
    🔗For Her Own Good: Two Centuries of the Experts Advice to Women Book by Barbara Ehrenreich
    🔗The Makings of a Modern Epidemic: Endometriosis, Gender and Politics Book by Kate Seear
    🔗Lecture Notes: Freud, “Aetiology of Hysteria” (1896) – Lecture notes from University of Washington Professor Richard T. Gray (Winter Quarter, 2016)
    🔗Briggs, Laura. “The Race of Hysteria: ‘Overcivilization’ and the ‘Savage’ Woman in Late Nineteenth-Century Obstetrics and Gynecology.” American Quarterly, vol. 52, no. 2, 2000, pp. 246–273. JSTOR, www.jstor.org/stable/30041838. Accessed 14 Oct. 2020.
    🔗Anke Samulowitz, Ida Gremyr, Erik Eriksson, Gunnel Hensing, ““Brave Men” and “Emotional Women”: A Theory-Guided Literature Review on Gender Bias in Health Care and Gendered Norms towards Patients with Chronic Pain”, Pain Research and Management, vol. 2018, Article ID 6358624, 14 pages, 2018. https://doi.org/10.1155/2018/6358624
    ☀️CONNECT WITH AMY☀️
    Instagram @in16yearsofendo
    Website: www.insixteenyears.com
    Like my show? Please rate it or leave a review!
    Support me by buying me a coffee: https://ko-fi.com/insixteenyears
    ⚠️DISCLAIMER⚠️
    The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
    1 hr 19 min
  • 47: The Limitations of the Endometriosis Staging System
    Updated 2/2023. Amy and Brittany talk about the rASRM staging system, which classifies endometriosis into stage 1-4. We discuss:
    —how this staging system has many limitations
    —two other classification systems: the EFI and the Enzian system
    🔗RESOURCES🔗
    For clickable links to the resources below, go to www.insixteenyears.com/episode47
    🔗The Stages of Endometriosis explained by Dr. Cook – Video
    🔗Extrapelvic Not Rare – by Wendy Bingham
    🔗Stages of Endometriosis – Article on endometriosis.net.
    🔗The rASRM score and the Enzian classification for endometriosis: their strengths and weaknesses. Dietmar Haas, Omar Shebl, Andreas Shamiyeh, Peter Oppelt. First published: 13 October 2012. https://doi.org/10.1111/aogs.12026.
    🔗How to improve the current ASRM classification of endometriosis? 
    🔗MR Imaging in Deep Pelvic Endometriosis: A Pictorial Essay – Antônio Coutinho, Jr, Leonardo Kayat Bittencourt , Cíntia E. Pires, Flávia Junqueira, Cláudio Márcio Amaral de Oliveira Lima, Elisa Coutinho, Marisa A. Domingues, Romeu C. Domingues, Edson Marchiori. Published Online:Mar 7 2011. https://doi.org/10.1148/rg.312105144
    ☀️CONNECT WITH AMY☀️
    Instagram @in16yearsofendo
    Website: www.insixteenyears.com
    Like my show? Please rate it or leave a review!
    Support me by buying me a coffee: https://ko-fi.com/insixteenyears
    ⚠️DISCLAIMER⚠️
    The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
    1 hr 5 min

About In Sixteen Years of Endometriosis

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Laugh, cry, and shout with us as we talk all things endometriosis! We hope our podcast will support and empower you. Our podcast has 2 types of episodes: (1) Chats between Amy and Brittany, 2 best…

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