Endo Battery

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• Is traditional endometriosis diagnosis failing patients? 

   - Dr. Ramiro Cabrera, a specialist from Mexico, shares how his sister’s battle with stage 4 endometriosis inspired his mission to revolutionize care using mapping and excision surgery.  

• Why pre-surgical mapping matters:

   - Learn how the outdated US staging system falls short and discover the NCM protocol, a groundbreaking technique offering precise pre-surgical visualization.  
   - Dr. Cabrera highlights **Dr. Luciana Chamie’s** work and the need for OBGYNs to better understand endometriosis.  

• Global challenges in care: 

   - Explore how financial incentives drive ablation procedures, often harming patient outcomes.  
   - Countries like El Salvador lead with new standards in care, showcasing the importance of proper diagnostics and timely interventions.  

• Key Topics:

   - Excision surgery, mapping, global care disparities, and the push for improved treatment options.  

Website endobattery.com

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Imagine being nine years old and feeling a constant, unexplainable pain that no one seems to take seriously. That's exactly what Arleigh Cole experienced, and in this powerful episode of Endo Battery, she shares her incredible journey from those early days of fatigue and bowel issues to becoming a fierce advocate for endometriosis and adenomyosis awareness. Join me, Alanna, as we uncover Arleigh's story of enduring two surgeries, a hysterectomy, and the harsh realities of inadequate medical care. This episode shines a light on the importance of proper diagnosis, specialized treatment, and the unwavering support of a community that truly understands.

Arleigh and I dive deep into the emotional and physical challenges of living with an invisible disease. We discuss the cycles of false hope, the frustration of societal disbelief, and the profound sense of isolation that often accompanies such conditions. By sharing her personal battles and triumphs, Arleigh emphasizes the healing power of validation and community support. We also touch on the difficult transition through menopause and the impact of being constantly unseen and unheard, while highlighting the strength and resilience that comes from shared experiences.

We also explore the systemic issues plaguing women's health, from the impact of endometriosis on pregnancy and motherhood to the disparities in healthcare access and treatment. This episode tackles the misconceptions, misdiagnoses, and emotional toll of chronic fatigue and pain, and underscores the urgency of educating young women about their bodies. Through personal anecdotes and broader societal insights, Arleigh and I stress the importance of advocacy, education, and continued research to support women facing these challenges. Tune in to be inspired by Arleigh's transformation into a powerful advocate and to learn how you can contribute to raising awareness and driving change.

Thank you to our sponsor for this episode, Well-Being Pelvic Physical Therapy  

Website endobattery.com

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-  Could endometriosis be the hidden cause of your unexplained pain? 
- We dive deep into the misunderstood conditions linked to endo, including my personal struggle with anterior cutaneous nerve entrapment syndrome (ACNES).  
- Discover the intriguing connection between endometriosis and rheumatoid arthritis (RA) and what recent research reveals about their relationship.  
-  Highlighting the unique medical challenges transgender and non-binary individuals face with endometriosis—empathy and inclusivity are vital!  
-  Learn about the complexities ovarian endometriomas add to endometriosis staging and the tough surgical choices they bring.  
-  Hear about Allison Bentempo’s research on symptom invalidation and the crucial disconnect between patients and clinicians.  
- An Australian study uncovers how adenomyosis, bowel endometriosis, and adhesions contribute to endo recurrence.  
-  Empower yourself with knowledge and join the conversation that could change your endometriosis journey 
Anterior Cutaneous Nerve Entrapment Syndrome: An Underestimated Diagnosis

Association between endometriosis and arthritis: results from NHANES 1999-2006, genetic correlation analysis, and Mendelian randomization study.


Transgender and non-binary people's experience of endometriosis. J Health Psychol. 2024 Aug 10:13591053241266249.


Association between Ovarian Endometriomas and Stage of Endometriosis. J Clin Med. 2024 Aug 2;13(15):4530.


 Conceptualizing Symptom Invalidation as Experienced by Patients With Endometriosis. Qual Health Res. 2024 Aug 8:10497323241253418.
@allysonbontempophd on IG


Predicting disease recurrence in patients with endometriosis: an observational study. BMC Med. 2024 Aug 7;22(1):320.

Website endobattery.com

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Can intuitive eating revolutionize your relationship with food when living with endometriosis? Join us as we explore this transformative topic with registered dietitian Sarah Rae, who brings her expertise to the table. Together, we discuss how listening to your body's hunger and fullness cues can lead to healthier eating habits and improved well-being. Sarah shares her insights on overcoming societal pressures, rejecting harmful diet culture, and understanding the importance of body acceptance. Learn how intuitive eating can be a game-changer, especially for those managing the unique dietary needs that come with endometriosis.

We dive into the specifics of balancing cravings and making healthy choices post-hysterectomy, navigating the tricky waters of portion sizes, and maintaining a balanced plate. Sarah sheds light on the critical role of hormone balance in nutrition and offers practical advice such as consuming cruciferous vegetables and managing stress for better hormone health. Discover why intuitive eating might be more beneficial than following strict diets and how to establish a neutral relationship with food that prioritizes nourishment over restriction.

Finally, we explore the importance of a multidisciplinary approach to managing endometriosis through nutrition and the tools available to support this journey. From cycle tracking and food journaling to understanding the limitations and benefits of elimination diets, Sarah provides actionable steps to help you tune into your body. We emphasize the importance of working with dietitians and mental health providers, offering evidence-based care tips and resources to enhance your quality of life. Don’t miss this episode packed with valuable insights for anyone looking to improve their relationship with food while managing endometriosis.


Links
sarahraerdn.com
intuitiveeating.org
icarebetter.com
Find Food Freedom Podcast
https://a.co/d/9TlWhSe
https://a.co/d/71lMskt

Articles
Barnard ND, Holtz DN, Schmidt N, Kolipaka S, Hata E, Sutton M, Znayenko-Miller T, Hazen ND, Cobb C, Kahleova H. Nutrition in the prevention and treatment of endometriosis: A review. Front Nutr. 2023 Feb 17;10:1089891. doi: 10.3389/fnut.2023.1089891. PMID: 36875844; PMCID: PMC9983692.

Influence of diet on the risk of developing endometriosis. Joanna Jurkiewicz-Przondziono, Magdalena Lemm, Anna Kwiatkowska-Pamuła, Ewa Ziółko, Mariusz K. Wójtowicz. DOI: 10.5603/GP.a2017.0017. Ginekol Pol 2017;88(2):96-102.

Marcinkowska, A.; Górnicka, M. The Role of Dietary Fats in the Development and Treatment of Endometriosis. Life 2023, 13, 654. https://doi.org/10.3390/ life13030654

Barnard, N.D., Holtz, D.N., Schmidt, N., Kolipaka, S., Hata, E., Sutton, M., Znayenko-Miller, T., Hazen, N.D., Cobb, C., & Kahleova, H. (2023). Diet associations in endometriosis: a critical narrative assessment with special reference to gluten. Frontiers in Nutrition, 10. https://doi.org/10.3389/fnut.2023.1166929

Social Media (Intuitive Eating)

@endonutrition.pnw

@find.food.freedom

@diet.culture.rebel

@ameeistalking

Website endobattery.com

Send us a text with a question or thought on this episode

What if the key to managing your endometriosis symptoms lies not in restrictive diets but in a compassionate, evidence-based approach to nutrition? Join us on Endo Battery as we welcome Sarah Rae, a registered dietitian with personal experience in endometriosis and adenomyosis, who navigated a challenging healthcare journey filled with painful periods, hormonal treatments, and a path to motherhood that led to a hysterectomy. Sarah's story highlights the importance of proper excision surgery and her passion for empowering others through personalized nutrition strategies, steering clear of the restrictive fads often found on social media.

Ever wondered about the difference between a nutritionist and a registered dietitian? We break down the rigorous training and accreditation required to become a registered dietitian, emphasizing the crucial role they play in providing evidence-based, personalized advice, especially for managing conditions like endometriosis. Sarah and I discuss the potential hazards of following unverified and restrictive diets, which can do more harm than good, and the importance of consulting with endo-informed professionals to maintain a balanced and healthy relationship with food.

From debunking myths about endometriosis nutrition to offering practical tips for balanced meals, this episode covers it all. We explore the misconceptions surrounding gluten and endometriosis, the importance of intuitive eating, and the role of genetics in managing symptoms. Tune in as we equip you with the knowledge and tools to improve your well-being, embrace your genetic makeup, and foster a positive relationship with food, all while navigating the complexities of endometriosis.

Links
sarahraerdn.com
intuitiveeating.org
icarebetter.com
Find Food Freedom Podcast
https://a.co/d/9TlWhSe
https://a.co/d/71lMskt

Articles
Barnard ND, Holtz DN, Schmidt N, Kolipaka S, Hata E, Sutton M, Znayenko-Miller T, Hazen ND, Cobb C, Kahleova H. Nutrition in the prevention and treatment of endometriosis: A review. Front Nutr. 2023 Feb 17;10:1089891. doi: 10.3389/fnut.2023.1089891. PMID: 36875844; PMCID: PMC9983692.

Influence of diet on the risk of developing endometriosis. Joanna Jurkiewicz-Przondziono, Magdalena Lemm, Anna Kwiatkowska-Pamuła, Ewa Ziółko, Mariusz K. Wójtowicz. DOI: 10.5603/GP.a2017.0017. Ginekol Pol 2017;88(2):96-102.

Marcinkowska, A.; Górnicka, M. The Role of Dietary Fats in the Development and Treatment of Endometriosis. Life 2023, 13, 654. https://doi.org/10.3390/ life13030654

Barnard, N.D., Holtz, D.N., Schmidt, N., Kolipaka, S., Hata, E., Sutton, M., Znayenko-Miller, T., Hazen, N.D., Cobb, C., & Kahleova, H. (2023). Diet associations in endometriosis: a critical narrative assessment with special reference to gluten. Frontiers in Nutrition, 10. https://doi.org/10.3389/fnut.2023.1166929

Social Media (Intuitive Eating)

@endonutrition.pnw

@find.food.freedom

@diet.culture.rebel

@ameeistalking

Website endobattery.com

Send us a text with a question or thought on this episode

Explore all the facinating and insightful research that's helping us understand Endometriosis and all it's nuances. 
This episode we cover the following studies:

1.)The causal relationship of depression, anxiety, and neuroticism with endometriosis: A bidirectional 2-sample Mendelian randomization study. Medicine (Baltimore). 2024 Jul 12;103(28):e38823. 

2.) Mental illness and sleep disorders among women with gynecological problems. J Psychosom Obstet Gynaecol. 2024 Dec;45(1):2354330. 

3.)The impact of surgical treatment for deep endometriosis: metabolic profile, quality of life and psychological aspects. Rev Bras Ginecol Obstet. 2024 Jun 27;46:e-rbgo42.

4.)Association between COVID-19 vaccination and menstruation: a state of the science review. BMJ Sex Reprod Health. 2024 Jul 12;50(3):212-225. 

5.)Vesical Endometriosis in a male patient on treatment for papillary urothelial carcinoma. J West Afr Coll Surg. 2024 Jul-Sep;14(3):345-347.

6.)Lack of care pathway and poor symptom recognition are hindering care, report warns. BMJ. 2024 Jul 11;386:q1548. 

Website endobattery.com

Send us a text with a question or thought on this episode

Can removing ovaries in young women with endometriosis do more harm than good? Join us asa we discuss the critical long-term implications of surgical decisions with Dr. Cindy Mosbrucker. We tackle the often-overlooked consequences of oophorectomy (removal of ovaries), such as accelerated aging, bone brittleness, and cognitive decline. Dr. Mosbrucker emphasizes the necessity of comprehensive patient discussions and appropriate hormone replacement therapy to mitigate these effects. We also examine the disparity in medical approaches between genders, questioning how differently men's health issues would be handled.

Discover the truth about hormone replacement therapy (HRT) that many women have been missing. Dr. Mosbrucker guides us through the flawed conclusions of the early 2000s Women's Health Initiative study, which led to a widespread cessation of HRT and subsequent health issues. We dissect how this study's design flaws misled women and explore more recent research showing the benefits of estrogen-only HRT, including a lower risk of breast cancer. Tune in to gain a deeper understanding of how medical research and study designs impact health decisions, and empower yourself with knowledge that’s crucial for navigating this complex landscape.

Website endobattery.com

Send us a text with a question or thought on this episode

Ever wondered how a childhood dream of becoming a veterinarian could evolve into a distinguished career in urogynecology? This week, we welcome Dr. Cindy Mosbrucker, a leading expert in minimally invasive excision of endometriosis. Her journey is nothing short of extraordinary—from hands-on experiences to impactful mentorships, and even a pivotal training encounter with the renowned Dr. David Redwine. Dr. Mosbrucker’s story is a testament to the power of perseverance and passion in transforming the landscape of women's health.

We also delve into the groundbreaking work of Dr. David Redwine, a pioneer in excision surgery for endometriosis. Despite facing fierce criticism, Dr. Redwine's innovative approach and dedication to patient outcomes have revolutionized our understanding of the condition. His humor and humanity shine through, making his contributions not just scientifically significant but also deeply personal and humane. This episode highlights the emotional and professional challenges specialists face and underscores the importance of better patient education and collaboration within the medical community.

Our discussion extends to the complexities of training and identifying skilled endometriosis surgeons. We explore the limitations of MIGS fellowships and the critical need for specialized education and experience in endometriosis care. Additionally, we touch on the slow but promising advancements in endometriosis research, focusing on genetics and immunotherapy. The episode is a comprehensive look at the multifaceted journey of improving patient care, from surgical expertise to addressing the psychological aspects of chronic pain. Join us for an insightful conversation that promises to inform, challenge, and inspire.

Website endobattery.com

Send us a text with a question or thought on this episode

Get ready to uncover the transformative power of functional medicine in addressing endometriosis and adenomyosis with our special guest, Dr. Bri Wyatt. Renowned for her expertise as a physical therapist and pelvic floor specialist, Dr. Wyatt shares her personal journey through chronic pain and how it steered her towards integrating functional medicine into her practice. Learn the importance of individualized care, the role of functional medicine in symptom management, and why a one-size-fits-all approach simply doesn't work for such complex conditions.

We delve deep into the essentials of patient history, covering everything from stress levels to environmental factors like mold exposure. Dr. Wyatt emphasizes the comprehensive approach needed to truly understand and treat endometriosis, illustrating how incremental lifestyle changes can lead to significant improvements. Discover the challenges and rewards of adopting functional medicine within the constraints of a PT license, and the critical need for patient cooperation in achieving better health outcomes.

Our discussion doesn't stop there. We also explore the nuanced world of diet and supplements, emphasizing that what works for one patient may not work for another. Dr. Wyatt shares invaluable insights on post-surgical and post-menopausal health, stressing the importance of nutrition, stress management, and protein intake. Hear firsthand how the synergy between functional medicine, Western medicine, and pelvic floor therapy can optimize patient outcomes, empowering people to take control of their health and navigate the challenging journey of endometriosis treatment.

Website endobattery.com

Send us a text with a question or thought on this episode

Ever wondered how endometriosis impacts not just personal lives but also the workplace and broader economy? Join us on Endobattery Fast Charged as we unpack the hidden toll this condition takes on productivity, both at home and on the job. Discover shocking studies that reveal how endometriosis-related absenteeism and presenteeism lead to lost productivity and heightened stress.

Links
The Effect of Endometriosis Symptoms on Absenteeism and Presenteeism in the Workplace and at Home. J Manag Care Spec Pharm. 2017 Jul;23(7):745-754.

 Endometriosis and the workplace: Lessons from Australia's response to COVID-19. Aust N Z J Obstet Gynaecol. 2022 Feb;62(1):164-167. 

Disability from endometriosis in the United States Army. J Reprod Med. 1988 Jan;33(1):49-52.

Longitudinal Assessment of the Impact of Endometriosis on Patients' Salary Growth and Risk of Leaving the Workforce. Adv Ther. 2020 May;37(5):2144-2158.

Endometriosis Is Undervalued: A Call to Action. Front Glob Womens Health. 2022 May 10;3:902371

Endometriosis and Disability: Analysis of Federal Court Appeals of Social Security Disability Insurance and Supplemental Security Income Claims by Individuals Suffering From Endometriosis. Womens Health Issues. 2024 May-Jun;34(3):221-231.

Health needs of women with disabilities across the lifespan

Physicians' Perceptions Of People With Disability And Their Health Care

Website endobattery.com