In Sixteen Years of Endometriosis

By Amy and BrittanyAlternative Health Health & Fitness

In Sixteen Years of Endometriosis episodes

October 27, 2023 115: Dr. David Redwine, World-Renowned Excision Surgeon. Part 3
Amy speaks with Dr. David Redwine about:
—“Sins of the endometriosis literature.”
—The recent research that came out with Horvath's pan-tissue clock and the origin of endometriosis.
—Claims on the Lupron website is that it’s “used for the reduction of endometriotic lesions.”
—Microscopic endometriosis.
—The ESHRE updated endometriosis guidelines around diagnosis of endo.
🎤WHO IS DR. DAVID REDWINE?🎤
Until his retirement in 2012, Dr. David Redwine headed the world-renowned and award-winning Oregon Institute of Endometriosis at St. Charles Medical Center, Bend, Oregon, treating thousands of people with endometriosis via excision surgery from all across the US, Canada, and beyond. His research is on the website endopaedia.info and has been vital to the endometriosis community, helping empower and educate both patients and physicians alike. He has presented his theory of origin of endo, Mulleriosis, around the world.
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
51 min
October 12, 2023 114: Endo Coaches, Naturopaths, Functional Medicine, and Wellness Culture with Kate Boyce
Amy speaks with Kate Boyce (she/her) on:
—common red flags to look out for in wellness culture.
—how many people regret having spent thousands of dollars on naturopathy, coaches, and functional medicine that didn’t help them, that they could have instead spent on excision surgery, a registered dietitian, pelvic floor therapy, SIBO treatment with a gastroenterologist, or other types of doctors/treatment.
🎤WHO IS KATE BOYCE?🎤
Kate is a board certified patient advocate and endometriosis patient herself. She is the co-founder of the Instagram and webpage EndoGirlsBlog, which provides accurate information to people with endometriosis.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode114
🔗Hormones/HRT
🔗Wellness Culture
🔗Naturopathy and Functional Medicine
🔗The "Endo Diet"
☀️CONNECT WITH KATE☀️
Instagram @endogirlsblog
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
1 hr 21 min
September 26, 2023 113: Endometriosis and Hormone Receptors with Dr. Dulemba
Amy speaks with Dr. John Dulemba about:
—how for the past 20 years, he’s been testing the hormone receptors of endometriosis lesions.
—his findings and thoughts on endometriosis and hormones.
🎤WHO IS DR. DULEMBA?🎤
Dr Dulemba is an excision surgeon who has been in private practice in Denton, Texas, since 1986.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode113
🔗Information on HRT
🔗Marquardt RM, Kim TH, Shin JH, Jeong JW. Progesterone and Estrogen Signaling in the Endometrium: What Goes Wrong in Endometriosis? Int J Mol Sci. 2019;20(15):3822. Published 2019 Aug 5. doi:10.3390/ijms20153822 – There is also a chart of differences of endo and the endometrium here.
🔗Bulun SE, Monsavais D, Pavone ME, et al. Role of estrogen receptor-β in endometriosis. Semin Reprod Med. 2012;30(1):39-45. doi:10.1055/s-0031-1299596
🔗Progesterone Resistance in Endometriosis – Article on Nancy’s Nook.
🔗Bulun SE, Cheng YH, Pavone ME, et al. 17Beta-hydroxysteroid dehydrogenase-2 deficiency and progesterone resistance in endometriosis. Semin Reprod Med. 2010;28(1):44-50. doi:10.1055/s-0029-1242992
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
47 min
September 07, 2023 112: Why Representation Matters within the Endo Community, with Julia Mandeville of Barbados
Amy speaks with Julia Mandeville about:
—her research
—how a lack of representation affects Black endometriosis patients
—her hopes for the future of endometriosis care in the Caribbean.
🎤WHO IS JULIA MANDEVILLE?🎤
Julia is the co-founder of the Barbados Association of Endometriosis & P.C.O.S. She is currently a doctoral student and as part of her role as a graduate researcher, she is the project coordinator of several research studies investigating barriers to diagnosis for Black people with endometriosis and PCOS. She has focused much of her research and public health intervention efforts on investigating endometriosis in underserved populations, Black women in particular because the disease is not well studied in this population.
In 2023, Julia was among the first group of recipients of the Mentoring for Anti-Racism and Inclusive Excellence (MARIE) program. With her MARIE grant, she seeks to further understand the specific barriers Black women with endometriosis encounter in terms of structural racism, systemic discrimination, and internalization of the Strong Black Woman schema.
☀️CONNECT WITH JULIA☀️
Instagram @endoandpcosbb
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
1 hr 2 min
August 24, 2023 111: The Grief of Chronic Illness
Amy and Brittany talk about the grief that can accompany having a chronic illness.
—some reasons why we might grieve due to chronic illness
—what we personally grieve
—how our grief has impacted our lives.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode111
🔗Grieving Chronic Illness and Injury — Infinite Losses
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
1 hr 16 min
August 11, 2023 110: Endo Standard of Care with Arti Shah of Kenya
Amy speaks with Arti Shah about:
—her personal experiences with cultural and social barriers to care
—exciting initiatives that are improving body literacy and access to excision.
🎤WHO IS ARTI SHAH?🎤
Arti Shah (she/her) a content creator and a dedicated endometriosis advocate actively engaged in the endometriosis space in Kenya and beyond. Her conviction and commitment is to positively impact the narrative of living with endometriosis through self-advocacy, play therapy and personal engagement. Arti advocates so that the next generation doesn’t have to battle this debilitating condition as we have and can have a better quality of life from an early age.
Arti is the host of A Ray of Sunshine, a podcast that has insights from endometriosis medical experts and advocates from all over the world, and debunks misinformation about endometriosis.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode110
🔗A Ray of Sunshine - Arti’s podcast "involves insights from endometriosis medical experts and advocates from all over the world, and debunks misinformation about endometriosis.”
🔗The Palgrave Handbook of Critical Menstruation Studies
☀️Connect with Arti☀️
Instagram @artiphotography
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
48 min
July 26, 2023 109: Adhesions with Excision Surgeon Dr. John Dulemba
Amy speaks with Dr. John Dulemba about:
—all things adhesions, such as what they are, how they form, and who gets them
—his rationale behind the second look surgery for adhesions that he does just a few days after his original excision surgery.
🎤WHO IS DR. DULEMBA?🎤
Dr. Dulemba is an excision surgeon who has been in private practice in Denton, Texas, since 1986. He’s performed over 7300 endometriosis surgeries, so he has a lot of insight on endometriosis.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode109
🔗Adhesions - article by Dr. Ken Sinervo, CEC
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
1 hr 15 min
July 12, 2023 Ep108: Advocacy Mistakes We’ve Made and Tips for Endo Advocacy
Amy and Brittany have had this podcast for over 4 years! Recently, Amy listened to our episodes 1-50 to update them where necessary. Based on that, we talk about:
—how much our advocacy has changed and how much we’ve grown over these years.
—some of our mistakes we've made in our advocacy
—what we wish we’d known when we began advocating.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode108
🔗Ellis K, Munro D, Clarke J. Endometriosis Is Undervalued: A Call to Action. Front Glob Womens Health. 2022 May 10;3:902371. doi: 10.3389/fgwh.2022.902371. PMID: 35620300; PMCID: PMC9127440.
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
1 hr 15 min
June 28, 2023 107: How to Find an Excision Surgeon with Kate Boyce, BCPA
Amy speaks with Kate Boyce about:
—how excision surgery is operator dependent, meaning that it depends on the surgeon’s skills.
—how there are very few excision surgeons in the world with the top level skill, and many regular OBGYNs with no extra surgical training, and then surgeons at different skill levels in between those.
—what to look for in a surgeon, so that we can know what questions to ask and how to determine if our surgeon has the necessary skills to excise our endo.
🎤WHO IS KATE BOYCE?🎤
Kate Boyce (she/her) is the co-founder of the Instagram and webpage EndoGirlsBlog, which provides accurate information to people with endometriosis. Kate is a board certified patient advocate and endometriosis patient herself.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode107
🔗How to Find a Specialist
🔗Analogy for the Hierarchy of Endometriosis Surgeons – IG post from EndoGirlsBlog to help understand the range of skills and experience different surgeons can have for endometriosis
🔗Treatment - learn about the differences between ablation and excision
☀️CONNECT WITH KATE☀️
Instagram @endogirlsblog
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
1 hr 14 min
June 14, 2023 106: Robotic Surgery for Endo with Excision Surgeon Dr. Dulemba
Amy speaks with Dr. John Dulemba about robotic surgey:
—its safety
—its advantages
—its disadvantages.
🎤WHO IS DR. DULEMBA?🎤
Dr. Dulemba is an excision surgeon who has been in private practice in Denton, Texas, since 1986. He’s performed over 5000 standard laparoscopic endometriosis cases and over 2300 robotic endometriosis cases! He's been performing robotic surgery since 2007, and now all his surgeries are done via robotics. Dr. Dulemba has published papers addressing pelvic pain, laparoscopy, endometriosis, and robotic surgery.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode106
🔗Robotic Surgery. Summary and review from my website
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
1 hr 17 min

About In Sixteen Years of Endometriosis

From the publisher's feed

Laugh, cry, and shout with us as we talk all things endometriosis! We hope our podcast will support and empower you. Our podcast has 2 types of episodes: (1) Chats between Amy and Brittany, 2 best…