• Students from Westboro Academy discuss what privacy means to them [00:52]
• Cynthia Khoo is a technology and human rights lawyer explains the privacy risks of facial recognition technology [3:37]
• Robert Fabes of The Ottawa Mission shares insights on the barriers people experiencing homelessness face and how to provide access to essential services while respecting their privacy and dignity [8:07] 
• Dr. Devin Singh of Toronto’s Hospital for Sick Children speaks about balancing the benefits and risks of the use of Artificial Intelligence technologies in health care [11:33]
• Priya Shastri, Director of Programs at WomanAct, provides insights from the front lines on information sharing, building trusting relationships with victims and survivors, and taking a collaborative, trauma informed approach to combatting Intimate Partner Violence [14:42]
• Commissioner Kosseim speaks with Shaun Sanderson, a mediator at the IPC, about how mediation works, what parties should do to prepare, and what they can expect to get out of the process. [17:07]
• Commissioner Kosseim shines a light on the innovative projects submitted by Ontario’s public institutions as part of the IPC’s Transparency Challenge 2.0. [21:24]
• Jeff Ward, CEO of Animikii, discusses the longstanding connection between technology and culture, and how incorporating Indigenous values and principles into the development of new technologies can empower communities. [29:25] 
• Anthony Carabache, a staff officer in the Professional Development Department at the Ontario English Catholic Teachers’ Association, sheds light on the opportunities and challenges for educators adopting technology in the classroom. [32:35]
• Commissioner Patricia Kosseim delves into significant health privacy cases of 2024 with her colleagues from the IPC. [36:20]

Resources:

• Digital Privacy Charter for Ontario Schools
• Privacy Pursuit! Lesson Plans (free IPC lesson plans to teach kids about privacy)
• Facial Recognition and Mugshot Databases: Guidance for Police in Ontario
• Sharing Information in Situations Involving Intimate Partner Violence: Guidance for Professionals (IPC guidance)
• Code of Procedure for Appeals under the Freedom of Information and Protection of Privacy Act and the Municipal Freedom of Information and Protection of Privacy Act (IPC resource)
• IPC Transparency Showcase
• Niiwin data platform (Animikii)
• Privacy and Access in Public Sector Contracting with Third Party Service Providers
• Responding to a Health Privacy Breach: Guidelines for the Health Sector

Info Matters is a podcast about people, privacy, and access to information hosted by Patricia Kosseim, Information and Privacy Commissioner of Ontario. We dive into conversations with people from all walks of life and hear stories about the access and privacy issues that matter most to them. 

If you enjoyed the podcast, leave us a rating or a review. 

Have an access to information or privacy topic you want to learn more about? Interested in being a guest on the show? Post @IPCinfoprivacy or email us at [email protected]. 

--

• Des élèves de l’Académie Westboro nous disent ce que la vie privée signifie pour eux [00:52]
• Cynthia Khoo, avocate spécialisée en technologie et en droits de la personne, explique les risques de la technologie de reconnaissance faciale pour la vie privée [3:37]
• Robert Fabes de la Mission d’Ottawa nous parle des obstacles auxquels font face les personnes en situation d’itinérance et explique comment leur donner accès à des services essentiels tout en respectant leur vie privée et leur dignité [8:07]
• Le Dr Devin Singh du Hospital for Sick Children de Toronto explique comment mettre en balance les avantages et les risques des technologies de l’intelligence artificielle dans les soins de santé [11:33]
• Priya Shastri, directrice des programmes chez WomanAct, donne son point de vue sur l’échange de renseignements, l’établissement de relations de confiance avec les victimes et les survivants, et l’adoption d’une approche collaborative, tenant compte des traumatismes, pour lutter contre la violence conjugale [14:42]
• La commissaire Kosseim s’entretient avec Shaun Sanderson, médiatrice au CIPVP, sur le fonctionnement de la médiation, sur ce que les parties doivent faire pour se préparer et sur ce qu’elles peuvent attendre du processus [17:07]
• La commissaire Kosseim traite des projets novateurs que des institutions publiques ontariennes ont présentés dans le cadre du Défi de la transparence 2.0 du CIPVP [21:24]
• Jeff Ward, PDG d’Animikii, évoque le lien qui existe depuis longtemps entre la technologie et la culture, et explique comment l’intégration des valeurs et des principes autochtones dans le développement de nouvelles technologies peut permettre aux communautés de se prendre en charge[29:25] 
• Anthony Carabache, du service de perfectionnement professionnel de l’Ontario English Catholic Teachers’ Association, jette un éclairage sur les avantages et les écueils des technologies pour les pédagogues qui les utilisent en classe [32:35]
• La commissaire Patricia Kosseim traite de dossiers marquants de 2024 en matière de protection de la vie privée dans le secteur de la santé avec ses collègues du CIPVP [36:20]

Ressources

• Charte de la protection de la vie privée numérique pour les écoles ontariennes
• Plans de leçons Ta vie privée : c’est à toi! (plans de leçons gratuits du CIPVP pour enseigner la vie privée aux enfants)
• La reconnaissance faciale et les bases de données de photos signalétiques : document d’orientation à l’intention des services de police de l’Ontario
• Communication de renseignements en situation de violence conjugale : lignes directrices à l’intention des professionnels (document d’orientation du CIPVP)
• Code de procédure pour les appels interjetés en vertu de la Loi sur l’accès à l’information et la protection de la vie privée et la Loi sur l’accès à l’information municipale et la protection de la vie privée(ressource du CIPVP)
• Vitrine de la transparence du CIPVP
• Plateforme de données Niiwin (Animikii)
• La protection de la vie privée et l’accès à l’information dans les contrats du secteur public avec des fournisseurs externes
• Lignes directrices sur les interventions en cas d’atteinte à la vie privée dans le secteur de la santé

L’info, ça compte est un balado sur les gens, la protection de la vie privée et l’accès à l’information animé par Patricia Kosseim, commissaire à l’information et à la protection de la vie privée de l’Ontario. Avec des invités de tous les milieux, nous parlons des questions qui les intéressent le plus sur la protection de la vie privée et l’accès à l’information. 

Si vous avez aimé cet épisode, laissez-nous une note ou un commentaire.

Vous aimeriez en savoir plus sur un sujet lié à l’accès à l’information ou à la protection de la vie privée? Vous aimeriez être invité à notre balado? Envoyez-nous un message à @cipvp_ontario ou un courriel à [email protected]. 

The information, opinions, and recommendations presented in this podcast are for general information only. It should not be relied upon as a substitute for legal advice. Unless specifically stated otherwise, the IPC does not endorse, approve, recommend, or certify any information, product, process, service, or organization presented or mentioned in this podcast, and information from this podcast should not be used or reproduced in any way to imply such approval or endorsement. None of the information, opinions and recommendations presented in this podcast bind the IPC’s Tribunal that may be called upon to independently investigate and decide upon an individual complaint or appeal based on the specific facts and unique circumstances of a given case.

In this episode, Commissioner Patricia Kosseim delves into significant health privacy cases of 2024 with her colleagues from the IPC. The conversation highlights challenges, practical takeaways, and lessons learned from recent cases and investigations under Ontario's Personal Health Information Protection Act. Whether you're a health care provider, privacy professional, or legal expert, this episode is packed with actionable insights you won’t want to miss.

Episode Highlights:

Ransomware attack on a medical imaging clinic and its implications for privacy and operations [2:28]

LifeLabs cyber attack: joint investigations and key legal outcomes [8:55]

Unauthorized access to patient files: training gaps and remedies [16:39]

Abandoned health records: risks, regulatory actions, and preventative steps [26:02]

Obligations under PHIPA when abandoned records are discovered [31:41]

Key Lessons:

• Proactive approaches to data breaches, including secure backups and notification protocols
• Monitoring dormant accounts and implementing least-privilege access policies
• Importance of privacy training for all staff, including physicians, on an annual basis
• Clear policies on patient privacy and deemed uses of personal health information 
• Succession planning to ensure records aren’t abandoned in events like closures or retirements

Resources:

• PHIPA Decision 249
• PHIPA Decision 260
• PHIPA Decision 221
• PHIPA Decision 230
• LifeLabs 2020 Investigation Report
• How to Protect Against Ransomware
• Responding to a Health Privacy Breach: Guidelines for the Health Sector
• Succession Planning to Help Prevent Abandoned Records
• Stamping out snooping once and for all (blog)
• Artificial intelligence in health care: Balancing innovation with privacy (Info Matters podcast episode with Dr. Devin Singh)
• Unmasking digital threats: How to guard against cyber crime (Info Matters podcast episode with Jason Besner, Director of Partnerships at the Canadian Centre for Cyber Security)
• From the bedside to the board: Building a culture of privacy and security in health institutions (Info Matters podcast episode with The Ottawa Hospital’s Chief Information Officer, Shafique Shamji, and Chief Privacy Officer, Nyranne Martin)
• IPC Strategic Priorities 2021-2025

Info Matters is a podcast about people, privacy, and access to information hosted by Patricia Kosseim, Information and Privacy Commissioner of Ontario. We dive into conversations with people from all walks of life and hear stories about the access and privacy issues that matter most to them. 

If you enjoyed the podcast, leave us a rating or a review. 

Have an access to information or privacy topic you want to learn more about? Interested in being a guest on the show? Post @IPCinfoprivacy or email us at [email protected]. 

The information, opinions, and recommendations presented in this podcast are for general information only. It should not be relied upon as a substitute for legal advice. Unless specifically stated otherwise, the IPC does not endorse, approve, recommend, or certify any information, product, process, service, or organization presented or mentioned in this podcast, and information from this podcast should not be used or reproduced in any way to imply such approval or endorsement. None of the information, opinions and recommendations presented in this podcast bind the IPC’s Tribunal that may be called upon to independently investigate and decide upon an individual complaint or appeal based on the specific facts and unique circumstances of a given case.

Anthony Carabache is a staff officer in the Professional Development Department at Ontario English Catholic Teachers Association.

• Journey from educational assistant to becoming a resource teacher focused on integrating technology in the classroom. [2:22]
• Examples of artificial intelligence being used by teachers and students [6:05]
• Privatization in public education through third-party tools and applications [9:06] 
• Deceptive design and privacy concerns related to software used by students [12:00]
• Procurement guidelines to protect privacy when dealing with third party vendors [14:22]
• Teaching students to understand the value of their privacy [10:49]
• Ongoing impact of the pandemic on students' social literacy [19:06]
• The IPC’s Digital Charter for Ontario Schools and lesson plans [24:59] 

Resources:

• Canadian privacy regulators pass resolution to address privacy-related harms resulting from deceptive design patterns (November 2024, IPC news release)
• Privacy and Access in Public Sector Contracting with Third Party Service Providers
• Ontario curriculum expectations for digital citizenship
• Digital Privacy Charter for Ontario Schools
• Privacy Pursuit! Lesson Plans (free IPC lesson plans to teach kids about privacy)
• Teaching kids about privacy (Info Matters episode with Daniel Solove)
• Teenage confidential: Teens, technology, and privacy (Info Matters episode with Matthew Johnson)
• From high school to university: a young person’s perspective on digital privacy (Info Matters episode with Keith Baybayon)
• Ontario joins Canadian privacy regulators in passing resolutions on the privacy of young people and workers (October 2023, IPC news release)
• Resolution on children’s digital rights (Adopted resolution of the Global Privacy Assembly, October 2021 – IPC co-sponsor)
• Resources for children and youth (IPC resources)
• IPC Youth Advisory Council
• IPC Strategic Priorities 2021-2025

Info Matters is a podcast about people, privacy, and access to information hosted by Patricia Kosseim, Information and Privacy Commissioner of Ontario. We dive into conversations with people from all walks of life and hear stories about the access and privacy issues that matter most to them. 

If you enjoyed the podcast, leave us a rating or a review. 

Have an access to information or privacy topic you want to learn more about? Interested in being a guest on the show? Post @IPCinfoprivacy or email us at [email protected]. 
 

The information, opinions, and recommendations presented in this podcast are for general information only. It should not be relied upon as a substitute for legal advice. Unless specifically stated otherwise, the IPC does not endorse, approve, recommend, or certify any information, product, process, service, or organization presented or mentioned in this podcast, and information from this podcast should not be used or reproduced in any way to imply such approval or endorsement. None of the information, opinions and recommendations presented in this podcast bind the IPC’s Tribunal that may be called upon to independently investigate and decide upon an individual complaint or appeal based on the specific facts and unique circumstances of a given case.

Jeff Ward, is the CEO of Animikii and a member of the Global Partnership on Artificial Intelligence working group on responsible AI. His areas of expertise encompass the development of technology solutions tailored for Indigenous communities and organizations and the integration of traditional Indigenous values and culture into modern business practices. 

• The “move slow and empower people” philosophy [2:00]
• Animikii’s day to day work and the development of the Niiwin platform that can be used to support Indigenous data sovereignty [5:07]
• Incorporating Indigenous values and traditions into business practices — the seven sacred teachings [6:09] 
• Indigenous people have always been data experts [9:08]
• #Data Back, shares Animikii’s perspectives on Indigenous data sovereignty and principles like OCAP and FAIR [10:32]
• Frameworks for Indigenous data governance [10:49]
• Working with the Survivors’ Secretariat, focusing on data related to the Mohawk Institute Residential School [13:09]
• The extractive nature of artificial intelligence and its environmental impact [16:26]
• The Global Partnership on Artificial Intelligence (GPAI) working group [20:00]
• How the principles of Indigenous data sovereignty can inform conversations about data ethics and governance in a digital world [23:14] 

Resources:

• Truth and Reconciliation Commission reports and calls to action
• United Nations Declaration on the Rights of Indigenous Peoples
• Niiwin data platform (Animikii)
• National Inquiry into Missing and Murdered Indigenous Women and Girls calls for justice
• #DataBack e-book (Animikii)
• The First Nations Principles of OCAP (First Nations Information Governance Centre)
• The FAIR Guiding Principles for scientific data management and stewardship (Scientific Data, 2016)
• CARE Principles for Indigenous Data Governance (Global Indigenous Data Alliance)
• The Survivors’ Secretariat
• Federal, provincial, territorial information and privacy commissioners and ombuds wrap up successful annual meeting (IPC news release)
• Jeff Ward (Linkedin)
• First Nations data sovereignty (Info Matters season one episode)

Info Matters is a podcast about people, privacy, and access to information hosted by Patricia Kosseim, Information and Privacy Commissioner of Ontario. We dive into conversations with people from all walks of life and hear stories about the access and privacy issues that matter most to them. 

If you enjoyed the podcast, leave us a rating or a review.

Have an access to information or privacy topic you want to learn more about? Interested in being a guest on the show? Post @IPCinfoprivacy or email us at [email protected]. 

The information, opinions, and recommendations presented in this podcast are for general information only. It should not be relied upon as a substitute for legal advice. Unless specifically stated otherwise, the IPC does not endorse, approve, recommend, or certify any information, product, process, service, or organization presented or mentioned in this podcast, and information from this podcast should not be used or reproduced in any way to imply such approval or endorsement. None of the information, opinions and recommendations presented in this podcast bind the IPC’s Tribunal that may be called upon to independently investigate and decide upon an individual complaint or appeal based on the specific facts and unique circumstances of a given case.

Guests and Transparency Showcase exhibits

Council of Ontario Universities
Steve Orsini, President and CEO
Josh Lovell, Director, Policy and Planning 

Town of Innisfil
Mike Melinyshyn, Chief Financial Officer, Director of Corporate Services and Innovation
Damien Mainprize, Business Performance Specialist

Ontario Ministry of the Environment, Conservation and Parks
Andrea Roberts, Director, Information Management Strategy Branch

Council of Ontario Universities

• What motivated the Council of Ontario Universities to create an open data platform? [2:43]
• Data that is publicly available on the platform and how it can benefit students, policymakers and educators [4:48]
• What goes into keeping the data up to date [7:01]
• How sharing data has led to new partnerships and real-world impacts [9:05]
• How the open data platform could evolve in the future [11:12]

Town of Innisfil

• About the Helpful Places initiative [13:53]
• Participating in the first cohort of the project with other cities from around the world [15:18]
• Using sensors to improve waste management efficiency in real time [16:03]
• Using QR codes and DTPR signage to let residents know about what data was being collected and why [18:56]
• The impact of transparency on public engagement and trust within the community [23:24]

Ontario Ministry of the Environment, Conservation and Parks

• The story behind high volumes of freedom of information requests [26:43]
• A two-stage approach to providing environmental property information records faster, using a new digital tool [28:32]
• Feeback from users of the system [30:55]
• Lessons learned from leveraging the FOI system in a new, innovative way [33:40]

Resources:

• IPC Transparency Showcase
• IPC Transparency Challenge
• Ontario Universities Open Data Platform
• Helpful Places
• Digital Trust for Places and Routines (DTPR)
• IPC Annual Reports and Statistics
• Environmental Property Information Program
• Environmental Property Information (EPI) search tool

Info Matters is a podcast about people, privacy, and access to information hosted by Patricia Kosseim, Information and Privacy Commissioner of Ontario. We dive into conversations with people from all walks of life and hear stories about the access and privacy issues that matter most to them. 

If you enjoyed the podcast, leave us a rating or a review. 

Have an access to information or privacy topic you want to learn more about? Interested in being a guest on the show? Post to @IPCinfoprivacy or email us at [email protected]. 

The information, opinions, and recommendations presented in this podcast are for general information only. It should not be relied upon as a substitute for legal advice. Unless specifically stated otherwise, the IPC does not endorse, approve, recommend, or certify any information, product, process, service, or organization presented or mentioned in this podcast, and information from this podcast should not be used or reproduced in any way to imply such approval or endorsement. None of the information, opinions and recommendations presented in this podcast bind the IPC’s Tribunal that may be called upon to independently investigate and decide upon an individual complaint or appeal based on the specific facts and unique circumstances of a given case.

Dr. Devin Singh is an emergency physician and lead of clinical AI and machine learning in Paediatric Emergency Medicine at The Hospital for Sick Children (SickKids). He is also co-founder and CEO of Hero AI.

• Combining medicine and machine learning [2:21]
• A patient death as a spark for thinking differently about health care delivery [3:27] 
• Demystifying the integration of AI into pediatric emergency medicine [5:03]
• Real world applications of AI at SickKids [7:31]
• Privacy and ethical considerations when implementing AI [9:04] 
• Mitigating bias in data, ensuring representative data models [11:26]
• Transparency and obtaining informed consent from patients [14:05]
• Human oversight of AI systems and predictions [16:05]
• Respecting patient autonomy and decision making [20:10]
• Guarding against cybersecurity risks [23:02]
• How doctors use AI scribe technology [25:34]
• Predictions about the future of AI in health care [29:16]

Resources:

• AI scribe (OntarioMD pilot project)
• Privacy and humanity on the brink (blog by Commissioner Kosseim)
• IPC Strategic Priorities 2021-2025
• Trust in Digital Health(IPC resources)

Info Matters is a podcast about people, privacy, and access to information hosted by Patricia Kosseim, Information and Privacy Commissioner of Ontario. We dive into conversations with people from all walks of life and hear stories about the access and privacy issues that matter most to them. 

If you enjoyed the podcast, leave us a rating or a review. 

Have an access to information or privacy topic you want to learn more about? Interested in being a guest on the show? Send us a tweet @IPCinfoprivacy or email us at [email protected]. 

The information, opinions, and recommendations presented in this podcast are for general information only. It should not be relied upon as a substitute for legal advice. Unless specifically stated otherwise, the IPC does not endorse, approve, recommend, or certify any information, product, process, service, or organization presented or mentioned in this podcast, and information from this podcast should not be used or reproduced in any way to imply such approval or endorsement. None of the information, opinions and recommendations presented in this podcast bind the IPC’s Tribunal that may be called upon to independently investigate and decide upon an individual complaint or appeal based on the specific facts and unique circumstances of a given case.

Robert Fabes is a registered psychotherapist. His focus is on meaning-based existential mental health and addictions counselling. In addition to counselling clients in his private practice, he’s an addictions and trauma counsellor at The Ottawa Mission.

• Misconceptions about homelessness [5:06]
• Privacy concerns for people experiencing homelessness [6:18]
• Artificial intelligence tools to predict and prevent homelessness [9:10] 
• Barriers people experiencing homelessness face when trying to obtain or replace government-issued ID [13:20] 
• ID tied to access to services, self worth, and dignity [15:33]
• The ID Project at The Ottawa Mission [17:25]
• Social stigma about homelessness and privacy [21:41]
• Consulting with, and advocating for, the privacy rights of marginalized
  groups [23:18]
• Moving toward digital ID systems, ensuring no one is left behind [26:25]

Resources:

• ‘Explainable AI’ predicts homelessness in Ontario city (Cities Today)
• IPC Response to the Ontario government’s public consultation on a “Policy framework for Ontario’s digital identity program”
• Digital ID in Ontario (Government of Ontario)
• Nothing About Us Without Us: Seven Principles for Leadership & Inclusion of People with Lived Experience of Homelessness (Lived Experience Advisory Council)
• IPC Strategic Priorities 2021-2025
• Privacy and Transparency in a Modern Government(IPC resources)

Info Matters is a podcast about people, privacy, and access to information hosted by Patricia Kosseim, Information and Privacy Commissioner of Ontario. We dive into conversations with people from all walks of life and hear stories about the access and privacy issues that matter most to them. 

If you enjoyed the podcast, leave us a rating or a review. 

Have an access to information or privacy topic you want to learn more about? Interested in being a guest on the show? Send us a tweet @IPCinfoprivacy or email us at [email protected].

The information, opinions, and recommendations presented in this podcast are for general information only. It should not be relied upon as a substitute for legal advice. Unless specifically stated otherwise, the IPC does not endorse, approve, recommend, or certify any information, product, process, service, or organization presented or mentioned in this podcast, and information from this podcast should not be used or reproduced in any way to imply such approval or endorsement. None of the information, opinions and recommendations presented in this podcast bind the IPC’s Tribunal that may be called upon to independently investigate and decide upon an individual complaint or appeal based on the specific facts and unique circumstances of a given case.

Cynthia Khoo is a technology and human rights lawyer and most recently, a senior associate at the Center on Privacy and Technology at Georgetown Law, in Washington, D.C. She is a research fellow at the University of Toronto’s Citizen Lab. 

• How facial recognition technology works [4:09]
• Use of facial recognition technology by government agencies [8:02]
• Use of facial recognition technologies in the private sector [10:15] 
• Stalkerware and facial recognition technology [15:07] 
• Impact of biased algorithms on historically marginalized groups [17:40]
• Public anonymity as an essential privacy right [22:00]
• Facial recognition and mugshot databases, guidance for police in Ontario [25:22]
• The option to roll back facial recognition systems [29:30]
• Guardrails and protections in contracts with third party vendors [32:12]

Resources:

• Your Face Belongs to Us, Kashmir Hill
• Gender Shades, Joy Buolamwini
• Wrongfully Accused by an Algorithm (Kashmir Hill, The New York Times, August 3, 2020)
• Another Arrest, and Jail Time, Due to a Bad Facial Recognition Match (Kashmir Hill, The New York Times, January 6, 2021)
• Facial Recognition and Mugshot Databases: Guidance for Police in Ontario (IPC guidance)
• R. v. Bykovets (Supreme Court of Canada decision)
• IPC Strategic Priorities 2021-2025
• Next-Generation Law Enforcement(IPC resources)

Info Matters is a podcast about people, privacy, and access to information hosted by Patricia Kosseim, Information and Privacy Commissioner of Ontario. We dive into conversations with people from all walks of life and hear stories about the access and privacy issues that matter most to them. 

If you enjoyed the podcast, leave us a rating or a review. 

Have an access to information or privacy topic you want to learn more about? Interested in being a guest on the show? Send us a tweet @IPCinfoprivacy or email us at [email protected]. 

The information, opinions, and recommendations presented in this podcast are for general information only. It should not be relied upon as a substitute for legal advice. Unless specifically stated otherwise, the IPC does not endorse, approve, recommend, or certify any information, product, process, service, or organization presented or mentioned in this podcast, and information from this podcast should not be used or reproduced in any way to imply such approval or endorsement. None of the information, opinions and recommendations presented in this podcast bind the IPC’s Tribunal that may be called upon to independently investigate and decide upon an individual complaint or appeal based on the specific facts and unique circumstances of a given case.