For the first time, doctors have treated a baby boy born with a rare genetic disorder with gene-editing treatment that was tailor-made for him. This has been hailed as an exciting case because of what it means for patients who otherwise would have no other options. We speak to Prof Dr Thong Meow Keong, consultant paediatrician & clinical geneticist, to help us break down what this means for the rare disorder community and how accessible would such a treatment be.

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