The Rare Life

It’s All My Fault (Rebroadcast)


Listen Later

Finding out I’m a genetic carrier for my son’s syndrome of CDPX1 was a very tough pill to swallow; and it has a whole slew of implications for my life.

It means I caused all of my son’s hugely challenging and life-threatening birth defects. And it also means that each of our children have a 50/50 chance of inheriting the unlucky genes.

Listen to find out what it was like to receive this life-changing news and what we’ve decided to do about it.

This is a rebroadcast of Ep. 22 of Season 2.

Links:

The episode that released right after this one Ep. 23: Jenny’s Story.

Follow me on Instagram.

Follow the Facebook page.

Join the Facebook group Parents of Children with Rare Conditions.

Donate to the podcast via Buy Me a Coffee.

Check out our appointment day merch.

Check out our sponsor BetterHelp for online licensed therapy.

...more
View all episodesView all episodes
Download on the App Store

The Rare LifeBy Madeline Cheney

  • 5
  • 5
  • 5
  • 5
  • 5

5

149 ratings


More shows like The Rare Life

View all
This American Life by This American Life

This American Life

91,248 Listeners

Radiolab by WNYC Studios

Radiolab

43,843 Listeners

Hidden Brain by Hidden Brain, Shankar Vedantam

Hidden Brain

43,648 Listeners

My Favorite Murder with Karen Kilgariff and Georgia Hardstark by Exactly Right and iHeartPodcasts

My Favorite Murder with Karen Kilgariff and Georgia Hardstark

172,048 Listeners

Up First from NPR by NPR

Up First from NPR

56,998 Listeners

Where Should We Begin? with Esther Perel by Esther Perel Global Media

Where Should We Begin? with Esther Perel

14,961 Listeners

Armchair Expert with Dax Shepard by Armchair Umbrella

Armchair Expert with Dax Shepard

69,606 Listeners

Call Her Daddy by Alex Cooper

Call Her Daddy

165,385 Listeners

Once Upon A Gene by Effie Parks

Once Upon A Gene

277 Listeners

Chasing Life by CNN Podcasts

Chasing Life

8,218 Listeners

WHAT WENT WRONG by Sad Boom Media

WHAT WENT WRONG

3,555 Listeners

All There Is with Anderson Cooper by CNN Podcasts

All There Is with Anderson Cooper

10,594 Listeners

Smart Money Happy Hour with Rachel Cruze and George Kamel by Ramsey Network

Smart Money Happy Hour with Rachel Cruze and George Kamel

3,251 Listeners

Raising Disabled by Deonna Wade and Rhandyl Vinyard

Raising Disabled

71 Listeners

Good Hang with Amy Poehler by The Ringer

Good Hang with Amy Poehler

12,484 Listeners