Brain  Life

Journalist Richard Engel on Parenting a Child with Rett Syndrome


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In this episode Dr. Audrey Nath speaks with Richard Engel, Chief Foreign Correspondent for NBC News, whose son Henry passed away from Rett syndrome, a rare childhood genetic developmental disorder. Richard shares Henry's legacy and his family's experience with the condition. Next Dr. Nath speaks with Dr. Huda Zoghbi professor at Baylor College of Medicine and the director of the Jan and Dan Duncan Neurological Research Institute at Texas Children's Hospital. Dr. Zoghbi explains how she discovered the gene that causes Rett syndrome and discusses possibilities for future treatment of the condition.

Additional Resources:

https://www.brainandlife.org/disorders-a-z/disorders/rett-syndrome

https://www.rettsyndrome.org/

Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206, or email us at [email protected].

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Brain  LifeBy American Academy of Neurology

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