KathleenSue’s voicemail, Karolina’s email and Sara’s text messages all telling their story, their experiences of having Long Covid. Please send me your story so I can publish your story, too! Voicemail, email or text message! It is so powerful to hear one another’s stories. Facebook group: https://www.facebook.com/groups/418306020831350

Email: [email protected]

Phone: 1-650-382-2217 (for VM >1 min otherwise, can use voice messaging available through Spotify)

Not every day is a bad day — sometimes there are good days, too! Also, sometimes music really helps! Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350

Email: [email protected]

Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

Update on attempts to find a cheaper set-up for living/lower monthly bills while preparing to take a significant income cut due to disability retirement. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350

Email: [email protected]

Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

Update after 4 calls to insurance company over 2 days for a total of about 2.5 hours of my life I will never get back, that has turned my brain to mush. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350

Email: [email protected]

Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

Perhaps the ugliest part of Long Covid — the lack of support and awareness in our time of greatest need. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350

Email: [email protected]

Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

Disclaimer: these are the medications I am taking, recommended by my medical providers. Please do not take this as medical advice. Anything that piques your interest, please talk to your medical provider first before trying any new medications/supplements. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350

Email: [email protected]

Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

Discussed worldwide studies you can look up on clinicalstudies.gov and reach out to the investigators if there is a study going on near you. You can also try reaching out here for the RECOVER-VITAL study: https://recovercovid.org/contact-us. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350

Email: [email protected]

Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

Hit with another crash after trying to spend just a little time on a project after getting through a several day long flare-up. Lesson learned: if you push against LC, it will push back way harder! As backwards as it may sound, relaxing is the way to fight LC. I am not used to truly relaxing. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350

Email: [email protected]

Phone: 1-650-382-2217 (for VM >1 min otherwise use voice messaging available through Spotify)

I use scripts from my uncle’s book to make a Long Covid-focused healing meditation. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350

Email: [email protected]

Phone: 1-650-382-2217 (for VM >1 min otherwise use voice messaging available through Spotify)

Just coming out of a nasty Post-Exertional Malaise (PEM) Episode, I made a list of all the things I usually do during a flare-up. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350

Email: [email protected]

Phone: 1-650-382-2217 (for VM >1 min otherwise use voice messaging available through Spotify)