MS Diary | Now, THIS is heartbreak. 

All my life, I've feared asking ugly questions. In my head, there was no point. People lie for a variety of reasons. (Nope, I'll blog about it but I'm not doing it here.)

For years, I've felt my wife leaving, checking out. For years, she denied it but I FELT it. I have Primary Progressive Multiple Sclerosis. I'm disabled AF. My physical appearance declines as the disabilities mount. My potential declines as the limitations multiply. 

Those are facts. Hard facts. People change. People have a right to change their minds. ESPECIALLY, when new information is out. My wife has decided to move on. She'd rather walk through life with someone who walks. She'd wants to face challenges with someone stands, wade in waters with someone who can swim. 🤜🏾🤛🏾♿️

I'm none of these things. On top of that, there's not a shred of hope that I'll ever do those things. I've grown so much since my diagnosis. Her decision makes perfect sense. My decision is to not drag shit out. 

She shouldn't “waste” any more time. Neither will I. I move forward as well. 

Abandoned. Disabled. Divorced.

2024 is the 8th year of my MS diagnosis. It's a really emotional time for me. The reality of Primary Progressive Multiple Sclerosis has altered my perspective, accelerated my goals, reordered my priorities and damaged my relationships. 

I admit, I have not solved this wheelchair life. I'm nowhere near solving it. But…

I'm closer now than I was 8 years ago.

MS Diary | My Grade 3 wheelchair was denied

This is absolutely HORRIBLE news. It's very much expected but HORRIBLE. I know my next action is starting an appeal. Hopefully, my first submission fixes this. If not, I gotta consult a lawyer. *fingers crossed* 

Wish the little, disabled homie luck.

MS Diary | Roadhouse is TODAY

Look, I'll admit, I NEED this. I WANT this. 

Save the date and let's enjoy some drinks. 

Together as Wheelchair Users. 

Virtually, so we can do it with as little help as possible.

5th mindset OVER bullshit Roadhouse 

When? Friday, 8/16, 6p - 8p CST

Where? Private Zoom

DM me

MS Diary | How I feel w/out accommodations

Ooooo. This is getting rough on day 4. My accommodations give me a 30min break every 2hrs, 2hr lunch, 6hr/workday, can't work 3 consecutive days, extra time for reporting.

I'm trying to do this until Dec. 7th so I can make money for medical equipment. Damn the medicines, pills, fusions, shots, etc. I'm doing this for a wheelchair, disability bars and financial investment in my damn self. 

MS Diary | Gas pockets ruin energy 

Yesterday started beautiful. I bragged on well I felt through video. I told a fellow MS Outlaw that I was doing GREAT.

THEEEEEN, a gas pocket grew full size, in a split second, and introduced itself to my spirit, disabilities, limitations and energy. I am HURTING. 

What's the solution? Well, moderate exercise and some anti-gas/bloating medicines.

MS Diary | Spoil your yourself

National Filet Mignon Day. *fist bump* National Prosecco Day too. *cheers*

Today, we spoil ourselves because we sacrifice accommodations, modifications, medicines for everyone else. We forgive before we're ready. We accept bullshit nobody else would because we're terrified of being dependent and alone.

Steak, wine, movie, water. You deserve it all.

MS Diary | Remove dem mf's!

This is a mob public announcement. We clean our bodies, despite the disabilities. We clean our living areas, despise the limitations. We manage our chronic illness, despite the financial hardships.

It's time we clean our friends list and adjust some algorithms.

mindset OVER bullshit Interview: Sasha

*salutes* Yoo! First, I super duper appreciate anyone taking the time to check out what I do. Seriously, this podcast, interviews, gratitude journals, speeches are my passion. 

🤜🏽🤛🏽

Now, about these interviews. I’m introducing Tribespeople to individuals with stories that distract us from the bullshit of abandonment, chronic illness and physical limitations.

♿️

I’m showcasing the resilience and pure success of people that OVER-come negativity, hardship, everything aligned with generational trauma and family curses.

💪🏽

We are here. We been here. We ain’t going nowhere.

🦏

WE thrive and share the way up and out.

👑

Opening with a check-in

*Break!* ♿️

 4.21min - Stories of our MS 

                 diagnosis 

*BREAK* 🤫

14.14min - Zodiac, diet    

                  changes and the 

                  cost of medicines

*BREAK* 🥃

24.17min - Flexeril, MS progression, 

*BREAK* 💪🏿

33.12min - Dealing with MS exhaustion, 5 Love Languages, telling your kids about your 

*BREAK* 🫡

42.31min - When you must cook 2 meals because you eat differently, 

*BREAK* ❤️

52.21min - Sasha answers books or movies, her Mom has MS, her priorities when choosing doctors 

*BREAK* 🥂

.

66.16min - Social Media goals, her healthcare decisions

*BREAK* 🙏🏾

74.26min - Wrap up

MS Diary | Happiness Happens Day