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In this episode I talk with Andrew Botieri, a Scleroderma survivor. He is in the small percentile of men who are diagnosed with Scleroderma. Andrew talks about his near death experience and about how keeping a positive attitude is key to staying ahead of a chronic illness. Andrew has written a book called "A Celebration of Life: A Story of Hope, A Miracle and the Power of Attitude", in which he goes into detail about his near death experience and recovery. To find the book you can to my website mogilsmobcast.com or his andrewbotieri.com
In this episode I talk with Dr. Alison Danby, a Naturopathic Doctor, Certified Functional Medicine Practitioner, and Certified Neuro-Linguistic Practitioner. We discuss her autoimmune disease Hashimoto, what it means to be a functional practitioner. What she offers at her clinic to help people with autoimmune disease and lastly, some possible causation of autoimmune diseases.
In this episode I talk with Dr. Aly Cohen, Rheumatologist, integrative medical specialist and environmental health expert. She has so much information to share from all of her areas of expertise. We discuss everything from her integrative approach to working with autoimmune patients, to her wellness approach with her patients and the use of chemical products. There is a ton of important information in this podcast and I hope you learn as much as I did!
In this episode I talk with Lori Pierce, a long time Scleroderma patient. She tells her story of battling with Scleroderma and the many hurdles she has overcome. One of the hurdles she mastered was yoga. She discusses how she championed it by becoming a Scleroderma yoga instructor and shares her knowledge through her and her partner's website: Yoga for Scleroderma. A free website we all can enjoy!
In this episode I have a beautiful conversation with a scleroderma warrior, Claudia Sultan. Her journey reveals how much of a warrior she is. She is the small percent who qualify for stem cell transplant and describes how it saved her life. She has chronicled her journey in her book, A Life with Uncertainty. A link to her book can be found on my website, Mogilsmobcast.
As a part of living with a chronic illness one change many of us take is lifestyle. One lifestyle I changed was how I eat. I talked with Angelina Chilcoat, an occupational and certified hand therapist, about how to navigate in the kitchen when you have a chronic illness. Many Scleroderma patients suffer from Sclerodactyly, which causes the fingers to curl inwards and become difficult to use and also deal with joint pain and tiredness. Angelina and I talk about energy conservation and how it applies in the kitchen.
If you'd like to ask a question or get more information, you can find Angelina Chilcoat on Facebook.
Dr. Beldner has extensive knowledge of Scleroderma which he discusses in the podcast. We talk about Raynaud's in detail and hand surgery. He is available for consultation in person or via telemedicine. To contact call:212-434-4263
In this episode I have a heartfelt conversation with my grown children about what it is like growing up with a mom with a chronic illness.
In this episode I will be telling my roller coaster journey ride with Scleroderma of over 20 years.
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