In this special episode for Pride Month, I had the pleasure of chatting with Antonio Perez. Antonio shared his experiences as a member of the LGBTQ+ community living with multiple sclerosis. We delved into topics ranging from his MS symptoms to his journey of self-discovery and coming out. Antonio's openness and authenticity shone through as he shared his personal stories and struggles.

Antonio discussed his MS symptoms, including recent issues due to the Texas heat. We also explored Antonio's journey of self-discovery, from realizing his attraction to boys in third grade to coming out to friends and family.

Antonio shared his experiences with dating and relationships, highlighting the challenges of navigating the dating scene as a gay man with MS. We discussed the impact of social media, particularly TikTok, on Antonio's life and how it has helped him connect with others in the LGBTQ+ and disability communities.

Antonio offered advice for people who might be hesitant to come out, emphasizing the importance of finding supportive communities and events like pride celebrations.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:

Sign up for the 10 Weeks to Disrupt MS Program

Connect with Antonio on TikTok, Facebook, and Instagram
Listen to Move It Or Lose It podcast Episode 093 - MS Warrior Antonio Perez

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings
https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15
https://www.releafpack.com 

Today I'm delighted to present a very special guest - my daughter Kaitlyn, plus my new granddaughter, Liliana. Together we delve into the topic of living with multiple sclerosis as a family, reflecting on the challenges and experiences we faced in the 90s and early 2000s.

Kaitlyn shared her memories of my MS diagnosis during her childhood, highlighting the confusion she felt. We discussed the difficulty of explaining an invisible illness to others, especially when symptoms fluctuate.

Kaitlyn also emphasized the value of open and honest communication within families when dealing with chronic illnesses. Sharing experiences and answering questions can help children understand and normalize the situation.

By sharing our experiences and supporting each other, we hope to inspire others to find hope and resilience in their own journeys with chronic illness.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:
Sign up for the 10 Weeks to Disrupt MS Program

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com 

Habits play a crucial role in shaping our health and well-being, as I learned when I spent time with the incredible Amy Behimer. As well as having MS, Amy is a podcaster, a National Board Certified Health and Wellness Coach, and a Doctor of Pharmacy.

Amy emphasizes the importance of habits in improving our overall health and how changing habits can lead to positive outcomes in our lives. She also introduces the concept of "disease-modifying habits" (DMHs) that focus on six key areas: mindset, food, movement, rest and relaxation, connection, and good stresses.

As you'll hear, habits are not just about the actions we take but also about how we tend to think and feel. By addressing these underlying aspects of habits, we can make significant changes in our lives. Amy mentions that habits have been proven to benefit our bodies, and by understanding the science behind habits, individuals can make informed decisions to improve their health.

We also explore the ripple effect of habits, highlighting how the habits we cultivate today can be passed down through generations, creating a cycle of well-being.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:
Sign up for the 10 Weeks to Disrupt MS Program
Listen to The Habit Hub for Autoimmune Health podcast
Visit Amy Behimer Coaching
Connect with Amy on Instagram 

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com 

In this episode, I had the pleasure of chatting with Amanda Phillips, the director and creator of BeWell, a company dedicated to improving the lives of individuals with autoimmune diseases through thoughtfully designed apparel and products. 

As you'll hear, Amanda's story began with her struggle to manage Crohn's disease during long car rides, leading her to devise a makeshift emergency toilet using an ice cream bucket. This experience sparked her creativity and led to the development of the IV hoodie, designed to provide warmth and easy access for infusion treatments. In our conversation, we also touch on the challenges of starting and running a business, especially in the niche market of adaptive clothing.

Amanda's commitment to the community is evident in her approach to product development, actively seeking feedback through a VIP Facebook group to ensure that the products meet the needs of her customers. She also highlighted upcoming products and the introduction of a patent-pending design aimed at providing even more versatility for medical access.

This episode not only sheds light on the unique challenges faced by those with autoimmune diseases but also highlights how innovation and entrepreneurship can lead to practical solutions that enhance daily living. Amanda's story is a testament to the power of personal experience in driving change and creating products that offer comfort, dignity, and functionality to those who need them most.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:
Sign up for the 10 Weeks to Disrupt MS Program
Visit BeWell
Contact BeWell at [email protected]
Connect with BeWell on Instagram 

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com 

Foot drop - a difficulty in lifting the front part of the foot - is one of the most common issues I see with the people I work with. It can be caused by muscle weakness caused by muscular dystrophy, spinal muscular atrophy or motor neurone disease, or damage to the brain or spinal cord caused by a stroke, cerebral palsy, Parkinson's disease, or multiple sclerosis.

There are many ways to manage foot drop - ranging from physiotherapy to electrical nerve stimulation - but my guest today is here to present what his company describes as the world's first truly adaptive shoes.

Dr. Tyler Susco of Cadense shares his journey from being an engineer to developing a split treadmill for gait therapy at MIT, which eventually led to the creation of an innovative shoe. The shoe features a variable friction surface that helps users move more comfortably and confidently.

The shoe underwent a pilot study, where participants experienced significant improvements in their gait mechanics and overall mobility. Feedback from beta testers, including individuals with MS and recovering from strokes, was overwhelmingly positive, with many expressing newfound confidence and mobility. The shoe's impact on users' lives inspired Dr. Susco and his team to continue their work.

Discover the story behind this revolutionary shoe designed to help individuals with foot problems due to stroke, MS, rheumatoid arthritis, and more. Listen to the episode for insights into the creation process and the impact on mobility, and learn about the research, trials, and get a glimpse into the future of mobility aids.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:
Sign up for the 10 Weeks to Disrupt MS Program
Visit Cadense

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/ 

Cold bean bag Releafpack
 15% discount use code Disrupt15

https://www.releafpack.com 

Warning Explicit Language

Adam Powell - MSd with the Wrong MF'r - is back on the to podcast round up support for his upcoming MS Walk.  His 2024 Bike Run is Sunday May 5th with proceeds going towards Walk MS Milford which is on May 19th.  Last year at the MS Walk Milford he raised over 10K for the MS Society and this year he is looking to surpass that.  The links below are available for your support.

Contact Adam
Insta: @msd_with_the_wrong_mfr

May 5th 2024 - 2024 Bike Run
25/per Bike. 10/Rider Entrance Fee
Registration 9:30-11am
Kickstands up at 11am
Scooters Bar and Grill
6004 Torrey Rd.
Flint, MI  48507

Donate to Adam's Walk MS
https://events.nationalmssociety.org/index.cfm?fuseaction=donate.team&teamID=52790

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:
Sign up for the 10 Weeks to Disrupt MS Program
Connect with Jamie on Instagram and TikTok

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack.
15% discount use code Disrupt15

https://www.releafpack.com  

In this episode, I had a wonderful conversation with my close friend Jamie, whose handle on Instagram and TikTok is LoveWarriorHugs. Jamie was diagnosed with epilepsy at 18 and later with MS at 24, and we discussed life before diagnosis, the impact of her conditions on her daily life, and the importance of advocacy and support systems.

Jamie emphasized the significance of finding a good doctor and being proactive in managing her health through medications and physical therapy. We also talked about the importance of reframing bad days, acknowledging limitations, and prioritizing self-care to navigate the ups and downs of living with chronic illnesses.

Jamie's energy and positivity shine through despite the additional challenges she faces, including refractory epilepsy and trigeminal neuralgia. Her commitment to advocacy, positive outlook, and unwavering support for others in similar situations are truly inspiring.

Jamie's message to newly diagnosed individuals resonated deeply - "Never stop."

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:
Sign up for the 10 Weeks to Disrupt MS Program
Connect with Jamie on Instagram and TikTok

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack.
15% discount use code Disrupt15

https://www.releafpack.com 

As well as featuring stories of individuals who are living with MS on the podcast, I also like to shine a light on organizations that are working to offer support to our community. One of my favorites is Can Do MS, a national nonprofit organization that provides education, resources, and support for people with MS and their support partners.

In this episode, I had the pleasure of speaking with Julia Kender, who joined Can Do MS as a Digital Content Specialist. She told me how her background in journalism and social media helped her to transition smoothly into her role at Can Do MS.

Julia passionately believes in the importance of personal stories in raising awareness about MS. She discussed the challenges of providing clear answers to complex questions from individuals with MS, highlighting the importance of seeking help and support.

We talked about the unique programs offered by CanDo MS, including dedicated initiatives for care partners and upcoming projects focusing on men with MS. Julia expressed her excitement for new faces and short-form video content to be featured on social media, aiming to provide diverse perspectives and support for the MS community.

If you or someone you know could benefit from their resources, don't hesitate to reach out to Can Do MS for support.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:
Sign up for the 10 Weeks to Disrupt MS Program
Visit Can Do MS
Connect with Can Do MS on Instagram, Facebook, and X (Twitter)
Follow the Can Do MS YouTube channel

If you're interested in having Kathy speak at your event, learn more here

Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack.

15% discount use code Disrupt15
https://www.releafpack.com 

Anthony (AJ) McGinty's MS journey began when he experienced symptoms of fuzzy vision when he was traveling for work, leading to a full diagnosis six years ago. Like so many of us, before being diagnosed, he had no experience or knowledge of MS. As you'll hear, he and I share a lot of the same views about the importance of exercise and staying active when you have MS.

In this episode, Anthony shares his personal journey of being diagnosed with MS and how he initially struggled to adjust to having a chronic illness at a relatively young age. Despite initial denial and shock, AJ now says that his life has actually improved post-diagnosis. He got married, became a parent, and discovered new career opportunities. This optimistic perspective on life in the presence of MS reflects his belief that the condition does not have to define your entire existence.

AJ's advice for newly diagnosed people is to stay positive, avoid negative stories online, and seek support from the MS community. He emphasizes the importance of staying active and finding ways to adapt to the changes MS brings. His commitment to supporting others with MS is evident from his advocacy work, including his involvement in the upcoming Tap MS Out fundraiser on March 30th.

Anthony's biggest triumphs, including becoming a black belt in jiu-jitsu and winning pro grappling matches, highlight his strength and perseverance in the face of adversity. His positive outlook and determination to stay active and healthy for his family are truly inspiring.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:

Sign up for the 10 Weeks to Disrupt MS Program

Connect with AJ on Instagram
Follow AJ's YouTube channel
Read My MS Story by AJ McGinty on MS4MS
More information and a donation page for the Tap MS Out event (March 30th 2024)

If you're interested in having Kathy speak at your event, learn more here

Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack.
15% discount use code Disrupt15

https://www.releafpack.com 

In a special two-part episode, we're taking a unique turn where I am the guest! My friend and marketing guru Amanda Thompson delves into the heart of what this podcast is all about and what the future holds for MS Disrupted.

This time around we delve into my journey of public speaking, from sharing my experiences as a pastor's wife to speaking at events for women and youth groups. My speaking career began unexpectedly at AA meetings, where I shared what it was like growing up with an alcoholic parent, leading me to discover my passion for helping young adults and teenagers.

Later, we reflect on the advice I would offer to fellow MS warriors, whether newly diagnosed or long-time sufferers. I emphasize the importance of reframing the narrative around MS, finding beauty in the middle of challenges, and embracing the changes that come with the disease.

By shifting your perspective and focusing on the positives, you can navigate the complexities of MS with resilience and grace, finding fulfillment in unexpected places.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:
Sign up for the 10 Weeks to Disrupt MS Program!

Connect with Amanda Thompson on Instagram

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the heat and migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com