This episode is a return visit for Robbie Gillett, a talented poet who lives with MS. We talked about Robbie's initial struggles with his diagnosis and how it led him to writing poetry as a form of therapy and self-expression. With the support of his wife, who encouraged him to share his work, Robbie has used his poetry to raise awareness and provide hope to others.

Robbie talked about his upcoming projects including a show and book titled "I Don't Like Poetry," which challenges stereotypes and perceptions about poetry.

Robbie's message to newly diagnosed individuals is to reach out and connect with others in the MS community, emphasizing the support and understanding that can be found through shared experiences. His upcoming book release in September will further showcase his talent and dedication to raising awareness about MS and mental health.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:

Sign up for the 10 Weeks to Disrupt MS Program

Connect with Robbie on Instagram, Twitter, and Facebook
Buy Robbie's book, Thoughts of a Warrior: Beneath the Tracksuit
Watch The Painter And The Poet on YouTube
Listen to Robbie's music on Spotify

Listen to Robbie's previous appearances on the Move It Or Lose It podcast: Episode 085 Part One and Episode 085 Part Two

If you're interested in having Kathy speak at your event, learn more here

Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com

Recently I had a fantastic conversation with Kelli Gastis, an author and fellow MS warrior. Kelli shared her journey of being diagnosed with MS at 25 and how she navigated through various treatments, including natural remedies.

We talked about Kelli's busy life before her MS diagnosis, working in the fashion industry and teaching dance and aerobics. She shared her initial symptoms of tingling and the journey to diagnosis, highlighting the challenges and uncertainties she faced.

Eventually, Kelli transitioned from traditional medication to natural remedies, guided by a homeopathic doctor to explore different approaches to managing her health.

Now Kelli has written about her experiences in a book, "Fabulous in Flats," which is available on Amazon and has received rave reviews within the MS community.

In our discussion, Kelli emphasized the need for an open mind when looking at ways to manage MS. Her advice to newly diagnosed individuals was to try different approaches and not be afraid to explore alternative treatments.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:

Sign up for the 10 Weeks to Disrupt MS Program

Visit Kelli Gastis
Buy Fabulous in Flats: How I've Learned to Thrive While Living With an Autoimmune Illness by Kelli Gastis
Connect with Kelli on Facebook and Instagram

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com 

I always love speaking to people who are working to improve the lives of people living with chronic health conditions. So I recently had the pleasure of interviewing Claudio Semplicini, an Italian doctor who co-created Exoband, a device aimed at assisting individuals with walking difficulties due to various neurological conditions.

Exoband is a lightweight, easy-to-use device that stores and releases energy during the hip extension and flexion phases to aid walking. The device has been tested by over 1000 users worldwide and has shown effectiveness in a high proportion of patients with various conditions.

Dr. Semplicini shared his journey into neurology, highlighting the complexity and importance of the brain and the wide range of diseases neurology covers, from migraines to rare genetic disorders.

During the interview, we delved into the benefits of Exoband for patients with spinal cord impairment, lower limb weakness, balance issues, and gait limitations due to fatigue. Dr. Semplicini emphasized the potential of the device to improve mobility and quality of life for individuals with walking difficulties.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:

Sign up for the 10 Weeks to Disrupt MS Program

Visit Moveo
Connect with Moveo on Facebook, Instagram, and YouTube
Connect with Claudio Semplicini on LinkedIn

If you're interested in having Kathy speak at your event, learn more here

Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]
Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com 

I'm delighted to present my recent chat with my almost-namesake Cathy Chester and her husband Gary. Cathy and Gary began dating in 1985, the year before Cathy's diagnosis, which means that at the time of recording they have been together for nearly 40 years - incredible!

Cathy and Gary share valuable insights into the importance of communication and mutual respect in maintaining a happy and successful marriage, especially when facing the challenges of MS. They also emphasized the importance of empathy and understanding in their relationship. They acknowledge each other's needs and emotions, whether it's taking a break for self-care or providing support during difficult times.

As an award-winning writer and certified health advocate, Cathy is dedicated to helping other MSers feel less lonely, isolated and overwhelmed than she did when she was diagnosed. She is passionate about helping those with MS feel better about themselves and the world around them.

It was such an honor to be able to interview and meet them both. I hope that you'll be able to feel the love and support they give to each other.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:

Sign up for the 10 Weeks to Disrupt MS Program

Connect with Cathy on Instagram
Read Cathy's blog, An Empowered Spirit
Watch Cathy's Ted-like talk, Cathy Chester—I Wish I Knew
Read Katie Couric's profile of Cathy, An MS Advocate On Raising Awareness of Living With a Chronic Illness

If you're interested in having Kathy speak at your event, learn more here

Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com 

In this special episode for Pride Month, I had the pleasure of chatting with Antonio Perez. Antonio shared his experiences as a member of the LGBTQ+ community living with multiple sclerosis. We delved into topics ranging from his MS symptoms to his journey of self-discovery and coming out. Antonio's openness and authenticity shone through as he shared his personal stories and struggles.

Antonio discussed his MS symptoms, including recent issues due to the Texas heat. We also explored Antonio's journey of self-discovery, from realizing his attraction to boys in third grade to coming out to friends and family.

Antonio shared his experiences with dating and relationships, highlighting the challenges of navigating the dating scene as a gay man with MS. We discussed the impact of social media, particularly TikTok, on Antonio's life and how it has helped him connect with others in the LGBTQ+ and disability communities.

Antonio offered advice for people who might be hesitant to come out, emphasizing the importance of finding supportive communities and events like pride celebrations.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:

Sign up for the 10 Weeks to Disrupt MS Program

Connect with Antonio on TikTok, Facebook, and Instagram
Listen to Move It Or Lose It podcast Episode 093 - MS Warrior Antonio Perez

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings
https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15
https://www.releafpack.com 

Today I'm delighted to present a very special guest - my daughter Kaitlyn, plus my new granddaughter, Liliana. Together we delve into the topic of living with multiple sclerosis as a family, reflecting on the challenges and experiences we faced in the 90s and early 2000s.

Kaitlyn shared her memories of my MS diagnosis during her childhood, highlighting the confusion she felt. We discussed the difficulty of explaining an invisible illness to others, especially when symptoms fluctuate.

Kaitlyn also emphasized the value of open and honest communication within families when dealing with chronic illnesses. Sharing experiences and answering questions can help children understand and normalize the situation.

By sharing our experiences and supporting each other, we hope to inspire others to find hope and resilience in their own journeys with chronic illness.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:
Sign up for the 10 Weeks to Disrupt MS Program

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com 

Habits play a crucial role in shaping our health and well-being, as I learned when I spent time with the incredible Amy Behimer. As well as having MS, Amy is a podcaster, a National Board Certified Health and Wellness Coach, and a Doctor of Pharmacy.

Amy emphasizes the importance of habits in improving our overall health and how changing habits can lead to positive outcomes in our lives. She also introduces the concept of "disease-modifying habits" (DMHs) that focus on six key areas: mindset, food, movement, rest and relaxation, connection, and good stresses.

As you'll hear, habits are not just about the actions we take but also about how we tend to think and feel. By addressing these underlying aspects of habits, we can make significant changes in our lives. Amy mentions that habits have been proven to benefit our bodies, and by understanding the science behind habits, individuals can make informed decisions to improve their health.

We also explore the ripple effect of habits, highlighting how the habits we cultivate today can be passed down through generations, creating a cycle of well-being.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:
Sign up for the 10 Weeks to Disrupt MS Program
Listen to The Habit Hub for Autoimmune Health podcast
Visit Amy Behimer Coaching
Connect with Amy on Instagram 

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com 

In this episode, I had the pleasure of chatting with Amanda Phillips, the director and creator of BeWell, a company dedicated to improving the lives of individuals with autoimmune diseases through thoughtfully designed apparel and products. 

As you'll hear, Amanda's story began with her struggle to manage Crohn's disease during long car rides, leading her to devise a makeshift emergency toilet using an ice cream bucket. This experience sparked her creativity and led to the development of the IV hoodie, designed to provide warmth and easy access for infusion treatments. In our conversation, we also touch on the challenges of starting and running a business, especially in the niche market of adaptive clothing.

Amanda's commitment to the community is evident in her approach to product development, actively seeking feedback through a VIP Facebook group to ensure that the products meet the needs of her customers. She also highlighted upcoming products and the introduction of a patent-pending design aimed at providing even more versatility for medical access.

This episode not only sheds light on the unique challenges faced by those with autoimmune diseases but also highlights how innovation and entrepreneurship can lead to practical solutions that enhance daily living. Amanda's story is a testament to the power of personal experience in driving change and creating products that offer comfort, dignity, and functionality to those who need them most.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:
Sign up for the 10 Weeks to Disrupt MS Program
Visit BeWell
Contact BeWell at [email protected]
Connect with BeWell on Instagram 

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack
15% discount use code Disrupt15

https://www.releafpack.com 

Foot drop - a difficulty in lifting the front part of the foot - is one of the most common issues I see with the people I work with. It can be caused by muscle weakness caused by muscular dystrophy, spinal muscular atrophy or motor neurone disease, or damage to the brain or spinal cord caused by a stroke, cerebral palsy, Parkinson's disease, or multiple sclerosis.

There are many ways to manage foot drop - ranging from physiotherapy to electrical nerve stimulation - but my guest today is here to present what his company describes as the world's first truly adaptive shoes.

Dr. Tyler Susco of Cadense shares his journey from being an engineer to developing a split treadmill for gait therapy at MIT, which eventually led to the creation of an innovative shoe. The shoe features a variable friction surface that helps users move more comfortably and confidently.

The shoe underwent a pilot study, where participants experienced significant improvements in their gait mechanics and overall mobility. Feedback from beta testers, including individuals with MS and recovering from strokes, was overwhelmingly positive, with many expressing newfound confidence and mobility. The shoe's impact on users' lives inspired Dr. Susco and his team to continue their work.

Discover the story behind this revolutionary shoe designed to help individuals with foot problems due to stroke, MS, rheumatoid arthritis, and more. Listen to the episode for insights into the creation process and the impact on mobility, and learn about the research, trials, and get a glimpse into the future of mobility aids.

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:
Sign up for the 10 Weeks to Disrupt MS Program
Visit Cadense

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/ 

Cold bean bag Releafpack
 15% discount use code Disrupt15

https://www.releafpack.com 

Warning Explicit Language

Adam Powell - MSd with the Wrong MF'r - is back on the to podcast round up support for his upcoming MS Walk.  His 2024 Bike Run is Sunday May 5th with proceeds going towards Walk MS Milford which is on May 19th.  Last year at the MS Walk Milford he raised over 10K for the MS Society and this year he is looking to surpass that.  The links below are available for your support.

Contact Adam
Insta: @msd_with_the_wrong_mfr

May 5th 2024 - 2024 Bike Run
25/per Bike. 10/Rider Entrance Fee
Registration 9:30-11am
Kickstands up at 11am
Scooters Bar and Grill
6004 Torrey Rd.
Flint, MI  48507

Donate to Adam's Walk MS
https://events.nationalmssociety.org/index.cfm?fuseaction=donate.team&teamID=52790

DISCLAIMER
The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.

Links and resources:
Sign up for the 10 Weeks to Disrupt MS Program
Connect with Jamie on Instagram and TikTok

If you're interested in having Kathy speak at your event, learn more here
Find out more about the DMAT Fitness Training program

You can find Kathy Chester at:
[email protected]
[email protected]
[email protected]

Connect with @msdisrupted on Instagram, Facebook, TikTok

Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.

Koldtec - Cool Head Wrap
KOLD10

To save $10 off every item in-store.
2 items = $20 savings
3 items = $30 savings

https://www.koldtec.com/

Cold bean bag Releafpack.
15% discount use code Disrupt15

https://www.releafpack.com