My Spoonie Sisters

What if embracing your vulnerabilities could become your greatest strength? Join us for an enlightening conversation with Jake Mayers, a Lyme coach who has turned his chronic illness journey into a pathway for helping others. From dealing with dyslexia as a child to confronting the harsh realities of a Lyme disease diagnosis at 15, Jake's story is one of resilience and creativity. He shares how he balanced the fatigue and neurological symptoms of his illness with his passions for drumming and filmmaking, and the pivotal shift he made towards prioritizing self-care and rest.

Jake emphasizes the crucial role of tuning into your body’s signals and trusting your intuition, especially when traditional medical advice falls short. His anecdotes reveal the transformative power of self-advocacy and persistence in seeking the right diagnosis and treatments. We'll highlight practical techniques like mindfulness, tai chi, and qigong to help calm both mind and body, and discuss the emotional challenges of hiding an illness versus the empowerment of sharing your journey.

The episode concludes with a powerful discussion on the importance of community support. Jake introduces us to valuable resources like Spoonie Sisters and Cabana, and the concept of "Best Friend Advice" (BFA) to foster self-compassion. Listen as Jake’s insights offer practical strategies for managing chronic illness while finding strength in vulnerability and community. Whether you’re navigating your own health challenges or supporting someone who is, this episode provides a rich tapestry of advice and inspiration.

Instagram: https://www.instagram.com/jakemayerscoaching/

Complimentary Consultation: https://calendly.com/jakemayerscoaching/lyme-support-consultation

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Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Could you imagine enduring years of chronic pain, only to discover it was more than just "growing pains"? Meet Kait, our remarkable guest who shared her compelling journey from a passionate marathon runner to navigating a labyrinth of medical challenges. From femoral acetabular impingement to labral tears, Kait opens up about her painful experiences that began at the young age of 13 and escalated through her college years. In a candid conversation, she recounts her difficult first surgery, marked by complications and a surgeon's lack of empathy, and how self-advocacy led her to a successful second surgery with a more compassionate professional. Kait's story highlights the importance of finding the right healthcare provider and advocating for oneself.

Our discussion takes a deeper turn as Kait reveals her struggle with miserable malalignment syndrome, a rare condition that significantly impacted her life. Thanks to the support of online communities and thorough research, she eventually found the right diagnosis and treatment options, ranging from braces and injections to extensive surgeries. Kait speaks about the added complexity of hypermobility and the potential diagnosis of Ehlers-Danlos syndrome (EDS), stressing the importance of understanding one’s body and seeking proper medical advice. Her journey underscores the necessity of community support and the role it played in her path to better health.

But it's not all about struggles and surgeries. Kait shares how she finds joy amidst adversity, from traveling and enjoying soccer games to the therapeutic benefits of equine therapy. Her love for cooking healthy meals and the simple pleasures of being a morning person brings a refreshing light to the conversation. We explore how equine therapy has aided in her healing and enriched her career in occupational therapy. Kate’s experience is a testament to resilience, the power of supportive healthcare, and finding happiness even in the face of life's greatest challenges. Join us for an inspiring episode that reminds us of the incredible strength of the human spirit.

https://www.instagram.com/alignedk8?igsh=cTduNXpzcGp2aDI1

https://linktr.ee/alignedk8

https://podcasts.apple.com/us/podcast/major-pain/id1562947550?i=1000651266944

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Walking into my first rheumatology appointment back in 2011 was overwhelming, but looking back, the right preparation made all the difference. This episode is your guide to navigating the often confusing world of autoinflammatory arthritis. We discuss the crucial elements of your first rheumatology visit, from bringing a detailed medical history to understanding the importance of a thorough physical examination. Discover how patience is key in the complex journey of finding the right treatment, and learn essential management strategies for long-term conditions like rheumatoid arthritis.

We also equip you with five critical questions to ask your rheumatologist to ensure clarity on your diagnosis, treatment options, and lifestyle changes that can support your health journey. You'll gain insights into monitoring your progress and understanding potential side effects of medications, including disease-modifying drugs and biologics. With this comprehensive overview, you'll be prepared to weigh the benefits and risks of your treatment plan confidently. As your Spoonie Sisters, we're here to support you every step of the way, ensuring you never feel lost or confused on your journey toward better health.

Send us Fan Mail

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

What if a childhood filled with unexplained symptoms could finally find clarity years later? In this emotional and powerful episode, we journey with Jodi as she takes us through the highs and lows of her lupus diagnosis. From the age of four, Jodi's life was a whirlwind of mysterious rashes, fatigue, and pain. It wasn't until she was 13, with the help of the dedicated rheumatology team at SickKids in Toronto, that her family’s relentless quest for answers finally bore fruit. Jodi shares how her parents' fierce advocacy and the support of persistent healthcare professionals made all the difference, turning confusion into understanding and hope.

In an inspiring discussion, we explore the creation of "Fabulupus," a groundbreaking book written by two young adults with lupus. This crucial resource aims to help young people navigate the complexities of living with chronic health conditions. We delve into the practical advice the book offers on relationships, education, and workplace rights. Jodi and I exchange thoughts on the importance of personal stories in guiding others, and we provide tips for aspiring authors looking to make an impact in the chronic illness community. The chapter underscores the power of support groups and connecting with relevant organizations to foster a sense of belonging and shared experience.

Our conversation also highlights strategies for managing lupus day-to-day. Jodi emphasizes the significance of mindfulness, self-care, and building relationships with consistent healthcare providers. From breathing exercises to using practical gadgets like automatic can openers and sit-to-stand desks, we discuss tools that can simplify life with lupus. We wrap up by reflecting on how living with a chronic condition shapes one's perspective, encouraging listeners to embrace their unique journeys with grace and self-compassion. Join us for an episode filled with heartfelt stories, valuable insights, and a celebration of resilience.

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Imagine enduring years of unexplained fatigue, tendonitis, and carpal tunnel, only to find out these symptoms were just the tip of the iceberg. Join us as Stasha shares her enlightening journey to a rheumatoid arthritis diagnosis, revealing the red flags she overlooked and how a rheumatologist finally brought clarity to her persistent health issues. Discover her tips for managing RA, from biologics and physical therapy to lifestyle changes like staying hydrated and incorporating natural anti-inflammatories such as green tea, peppermint, and cannabis. It's a story of self-advocacy and finding the right medical support to lead a healthier life.

In another chapter, we recount our recent meetup in Colorado, where self-advocacy and effective travel management took center stage. As part of the Impact Action Council and Rheum Champion Stasha was excited to attend the Rheumatology Research Foundation Investigators meeting. Stasha and I discuss the significance of connecting with caring specialists and the invaluable experiences gained at conferences filled with intelligent and compassionate professionals. You'll hear about the joy of creating and sharing content that resonates with our health journeys. Finally, we emphasize the importance of embracing small victories, like managing household tasks, to improve overall well-being. Join us as we celebrate incremental progress and self-compassion, and learn how to connect with Stasha for ongoing support and insights.

http://www.tenaciousme.org/
You can find Stasha on Facebook and Instagram @tenaciousinme

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

How do you turn a life of chronic pain and addiction into one of resilience and inspiration? On this episode of "My Spoonie Sisters," we welcome Andrea Vincent, a beacon of hope in the chronic pain community. Andrea opens up about her journey from high school misdiagnoses to her battles with osteoarthritis, hypermobility syndrome, and fibromyalgia. Her story takes a powerful turn when she discusses her struggle with alcohol as a coping mechanism and her triumphant path to sobriety in 2012. Motivated by the desire to be a better role model for her family, Andrea’s relentless spirit led her to create the "Growth, Resilience, and Grit" journal, a transformative tool designed to help others navigate their own health challenges.

We delve into the transformative power of self-care and gratitude in managing chronic pain, exploring how simple daily routines can make a significant difference. Andrea shares invaluable insights on the evolution of chronic pain management strategies, emphasizing mindfulness, meditation, and holistic practices such as acupuncture and massage. The heart of our discussion revolves around her innovative chronic pain journal, which empowers individuals to track their symptoms, treatments, and medications, ensuring clear communication with healthcare providers and avoiding the pitfalls of self-medication.

The episode culminates with the successful launch of Andrea's chronic pain journal, which has garnered praise from both the community and medical professionals. We also highlight exciting upcoming projects, including a collaboration with the Portland Chronic Pain Project for an art show and plans for digital distribution. Andrea’s personal anecdotes, such as her love for coffee and preference for mountain retreats, add a warm, relatable touch to her inspiring story. Don't miss this episode packed with practical tips and heartfelt stories that will leave you feeling empowered and motivated.

www.grgmindbody.com

FB; Growth, Resilience & Grit - https://www.facebook.com/grgjournal

IG: @grgmindbody.com

TT:@grgmindbody.com

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Are you curious about how patient participation can revolutionize medical research? Join us as we sit down with Emily, a dedicated bio-enthusiast and biotech professional, to uncover her journey from cell biology student to trailblazer at the biotech startup Immu. Emily shares her mission to make complex scientific concepts approachable, fueled by her passion for CRISPR technology and personal experiences that shaped her career. You’ll gain exclusive insights on finding reliable research studies and clinical trials and practical advice on leveraging platforms like clinicaltrials.gov and withpower.com.

Navigate the intricate world of patient research consent forms with Emily’s expert guidance on ensuring fair compensation and understanding key elements such as incidental findings and data transparency. We also explore the power of patient communities, especially for those using medical devices or participating in research, and how these communities foster a sense of control and empowerment. Listen in to discover how being a part of research can transform patient experiences, offering hope and a profound sense of agency and belonging.

https://www.emilyharari.com/
https://www.instagram.com/thepatientscientist?igsh=NHgzejRzb2FreHE2

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Have you ever wondered how a small act of kindness can make a colossal difference in someone's life? Join us for an uplifting conversation with Dawn, the inspiring founder of "Cards to Warriors," who transitioned from a radiation therapist to an advocate for patients and caregivers. Dawn shares her heartfelt journey and the touching story behind this incredible initiative that spreads joy and support through "Happy Mail" to those battling illness. Discover the various ways to get involved, from receiving uplifting mail to joining the card crew and sending encouraging messages, and learn why staying connected and spreading positivity is so vital in challenging times.

Delve into the inner workings and challenges of the Cards to Warriors program in our second segment. Find out how participants can opt-in monthly, send and receive cards, and even find pen pals to share their journey with. Dawn sheds light on the special "yikes button" for emergencies, ensuring no one is left without a card, and discusses the importance of financial contributions to keep the program running. Hear about the evolution of the program, from its early days as ChronicWarriorsOrg to its current form, and the technical hurdles they've overcome to maintain privacy and security for participants.

Finally, we issue an exciting challenge: join the card crew and start spreading joy! Learn about the simple steps to sign up, maintain confidentiality, and create meaningful connections through personalized information. Dawn shares inspiring examples of various groups involved, from pre-med clubs to high schools, and emphasizes the importance of respecting preferences to make the card exchange special for everyone. Listen in to understand how your small act of kindness can foster friendships, strengthen community bonds, and bring immense joy to those who need it most.

Cards2Warriors.org

Cards2Warriors.org/happy-mail  (direct link to sign up)

Cards2Warriors.org/get-involved (to volunteer and send cards)

IG: @cards2warriors

FB:  @cards2warriors

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Have you ever wondered how one navigates life with multiple chronic illnesses? Meet Alexa Sutherland, who has been fighting against juvenile rheumatoid arthritis since she was just 15 months old and later fibromyalgia, ankylosing spondylitis, and the more recent Grave's disease diagnosis. Her journey is a testament to resilience and the power of community. Alexa shares her story, highlighting both the struggles and the support she's found, particularly through memorable connections formed at significant moments, like a poignant meeting in Colorado. Her advocacy on social media shines a light on the often unseen challenges of invisible disabilities, emphasizing the importance of camaraderie among those with similar battles.

Join us as we unpack the complexities of managing multiple chronic illnesses such as Graves' disease, fibromyalgia, RA, and AS. Alexa and I delve into the world of evolving medications and the emotional turmoil that new diagnoses can bring. We'll also touch on the excitement and nerves surrounding my upcoming speaking opportunity in DC, sharing insights and the sometimes-comical confusion that comes with engaging in high-level scientific discussions. This episode promises to provide a heartfelt look at chronic illness management, the hope brought by medical advancements, and the unyielding strength within the chronic illness community.

Blog www.glowlexa.com

IG: https://www.instagram.com/glowlexa/

TT: https://www.tiktok.com/@alexasutherland13

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Can you imagine the frustration of battling a chronic illness and not finding the right treatment? On our milestone 100th episode, we reconnect with the remarkable Alison, who was diagnosed with rheumatoid arthritis at the age of 28. Her journey from struggling with an unhelpful specialist to meeting the incredible Dr. Tony is nothing short of inspiring. Despite the bittersweet news of Tony's upcoming retirement, Alison's story is a testament to the impact a dedicated and compassionate doctor can have on a patient's life.

Hair loss can be a devastating side effect of chronic illness, and we tackle this sensitive topic with Alison. She opens up about how hair extensions and toppers have helped her regain confidence. We discuss the life-changing effects of Humira on her condition, and offer practical beauty tips for taming those pesky baby hairs. And because it's not all serious, we share our favorite coffee indulgences and quirky local coffee shop experiences, proving that sometimes, it's the small joys that make the biggest difference.

Our episode underscores the essential role of community in navigating chronic illness. We stress the power of connecting with others who truly understand your challenges, and how sharing stories and support can be more beneficial than any medical advice. The importance of living fully, finding joy in each moment, and persistently seeking the right medical support is highlighted. Whether it's through a supportive network or a beloved doctor like Tony, inspiration and resilience are within reach. Tune in to celebrate our 100th episode and be uplifted by stories of hope and determination.

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/