My Spoonie Sisters

Ever felt overwhelmed by a health condition misdiagnosis? In this heartfelt episode, join me, Gracefully Jen, as I recount my personal journey with psoriasis, starting from the first sores that appeared on my ankle back in 2016. Initially mistaken for a skin infection, my condition went through a series of misdiagnoses until a visit to my rheumatologist revealed the surprising truth: a rare form of psoriasis called pustular psoriasis, caused by my TNF inhibitor treatment. Listen as I share the emotional highs and lows of navigating this challenging diagnosis and the steps I took to find an effective treatment for both my joint and skin health.

This episode is not just my story but a beacon of hope and support for others facing similar challenges. From the confusion and frustration of initial misdiagnoses at urgent care to the moment of clarity with my rheumatologist, I walk you through the entire journey. If you or someone you know is living with psoriasis, this episode is packed with valuable insights and encouragement. Don't forget to check the show notes for more information on the new podcast I was interviewed for, and show them some love as well! Let’s raise awareness and support each other in our health journeys.

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• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Curious about how to navigate life with rheumatoid arthritis while maintaining a positive outlook? Join us as we reconnect with Cheryl Crow with Jen Weaver,  spirited advocates and fellow Spoonies, who share her heartfelt journies. Jen opens up about the severe allergic reactions she's faced with TNF inhibitors leading to pustular psoriasis, offering a candid look at her daily routines and the importance of personalized treatment plans. Her story is one of resilience, community, and finding unexpected blessings amid the challenges of chronic illness.

Ever wondered how social media can lead to life-changing opportunities? Discover how our online connections brought us to the Rheumatology Research Foundation, where we took on the pivotal roles of Rheum Champions at the Rheumatology Investigators Meeting in Denver. Learn about the Foundation’s mission to address workforce shortages and the critical role of patient and caregiver voices in shaping the future of rheumatology research. From grant updates to the purpose of the investigators' meeting, we provide an insider’s look at the exciting advancements in the field.

Finally, gain valuable insights and practical tips for living with arthritis, whether you’re newly diagnosed or a long-time warrior. From highlighting favorite arthritis gadgets like the Kitchen Mama can opener and Grace and Abel compression gloves, to sharing personal entertainment picks and exploring support groups, we cover it all. Plus, hear about our new roles as moderators on the Cabana app and the importance of community support. Tune in for an episode filled with heartfelt stories, expert advice, and a touch of inspiration to help you navigate your journey with arthritis.

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https://podcasts.apple.com/us/podcast/arthritis-life/id1519637317?i=1000662917607

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Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

What if you were diagnosed with a chronic illness at the age of five? In this heartfelt episode, we sit down with Elizabeth, who opens up about her lifelong battle with lupus. From the early signs of hair loss and severe fatigue to the relentless support of her mother and medical team, Elizabeth’s story is one of resilience and hope. She takes us through the evolution of her treatment—from the initial, intensive regimens to a more stable and manageable routine that now involves just three low-dose medications. Elizabeth shares the struggles of growing up under the shadow of lupus and the impact of medications like prednisone. Her journey is a testament to the power of family support and medical advancements.

We also discuss practical tools and resources for those battling chronic conditions. Learn about a unique starter kit designed to naturally boost energy levels and the supportive online communities that can make a world of difference. Elizabeth emphasizes the importance of a robust support system, sharing insights on how to build and maintain one. Finally, don't miss the chance to connect with Elizabeth on social media, especially Instagram, where she offers daily inspiration and advice. Check the show notes for all the links you need to join her vibrant community.

• Website: https://www.revelinghealth.com/
  • Energy Reset Starter Kit is on the website
• Website for 5 Day Pain Free Challenge: https://www.painfreechallenge.ca/
  • Next one runs from July 22-26, 2024.
• Links to all socials:
  • Instagram: https://www.instagram.com/revelinghealth/
  • Facebook: https://www.facebook.com/
  • LinkedIn: https://www.linkedin.com/company/98442935/
  • Pinterest: https://pin.it/5ASvRFGmY

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Keep your spoons close and support system closer.

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Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Ever wondered how small lifestyle changes can significantly impact chronic illness management? Join us for an enlightening conversation with Patrick, a dedicated Florida-based pharmacist who specializes in reducing medication burdens for those with chronic illnesses and autoimmune diseases. Patrick shares his holistic approach to healthcare, which includes a meticulous review of medication lists, medical histories, and lab results to identify nutrient depletions and lifestyle adjustments. He also discusses his role as a healthcare advocate, providing invaluable support by accompanying clients to doctor appointments and organizing their healthcare information for optimal outcomes. Additionally, Patrick gives us a sneak peek into his podcast, Men's Health Unscripted, which provides men with relatable and non-judgmental health information.

In a heartfelt exploration of his personal journey, Patrick recounts how his close relationship with his grandparents exposed him to systemic healthcare issues, inspiring his career in pharmacy. From his diverse background in baseball and pathology labs to his experiences in cancer research, Patrick's path has been anything but ordinary. Now, he leverages these experiences to focus on improving healthcare communication and efficiency, particularly for patients grappling with multiple medications. One memorable success story involves a simple switch from nightly ice cream to fruit, leading to remarkable health improvements for a patient. This chapter underscores the transformative power of minor lifestyle changes and the critical importance of understanding medication purposes and the potential benefits of deprescribing.

Patrick sheds light on the complexities of healthcare, especially how insurance constraints often limit the time and care providers can offer. He emphasizes the significant role of healthcare advocates in bridging gaps between appointments and ensuring continuous care. Turning the focus to men's health, Patrick shares alarming statistics like the rising male suicide rate and the connection between erectile dysfunction and heart disease. He advocates for open conversations and strong support systems, urging men to build deeper friendships and confide in trusted individuals. To wrap up, Patrick offers practical advice on transforming stressful doctor visits into self-care opportunities, encouraging listeners to reward themselves and stay connected to support networks. Don't miss this insightful episode filled with actionable tips and heartfelt stories.

Ig: your_pharmacist_your_advocate

Web: www.tampahealthadvocate.com

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Could your mindset be the key to overcoming chronic illness? This episode uncovers the transformative journey of Robbie, an autoimmune empowerment coach who turned his battle with Crohn's disease into a mission to uplift others. From a star gymnast to a certified personal trainer, Robbie has now dedicated his life to autoimmune-specific coaching. Learn about his passion-driven initiatives like the Chronic Empowerment Movement and Spoonie Redefined, which inspire positivity and resilience within the chronic illness community.

Join us as we explore the complexities of managing autoimmune conditions beyond the realm of medical treatments. Discover why mental resilience and a positive outlook are essential allies in the fight against chronic illness. Through compelling success stories and actionable strategies, Robbie explains how intentional actions and mindset shifts can significantly enhance health outcomes. Hear about his clients' journeys, who have found renewed hope and vitality through a focused mindset and nutritional strategies.

Get the inside scoop on the upcoming Thrive and Revive Challenge—a six-week fitness program tailored to individual needs starting July 15th. Learn how you can participate, access an empowering community, and upgrade for personalized coaching. Don’t miss our plans to document this journey live on Instagram, ensuring you stay motivated and inspired. This episode promises a wealth of insights and heartfelt stories that will leave you feeling empowered and ready to tackle any challenge.

6-Week Challenge Waiver (jotform.com)

Robbie Kocks | CPT Autoimmune Empowerment Coach (@autoimmune_coach_robbie) • Instagram photos and videos

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Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

Let's Get Started - Rare Patient Voice

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Website:
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GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

What if the power to overcome a life-threatening illness lies within your mindset? Join us for an enlightening episode featuring mindset coach Sharon Banyas Hefetz, who bravely shares her journey of battling an aggressive form of multiple myeloma. Diagnosed at just 45, Sharon's story is not just one of medical treatments but of the incredible strength of positivity and self-advocacy. Discover how she navigated a rigorous treatment plan and achieved remission in a mere six weeks, all while highlighting the importance of self-care and mental resilience. Her experience is a powerful reminder that our mindset can play a crucial role in our healing processes.

In this episode, we also dive into practical tools for mindfulness and wellness that Sharon swears by. From practicing gratitude for the little things to making conscious positive choices, and the profound impact of meditation and hydration, Sharon provides actionable tips that can help improve your mental health and daily life. Whether you struggle with traditional meditation techniques or aim to stay hydrated before your morning coffee, this conversation offers valuable insights into creating a balanced and mindful lifestyle. Sharon's transition from entrepreneurship to coaching further emphasizes the role of mindset and goal-setting in achieving success.

Lastly, we tackle the emotional and psychological hurdles many women face regarding self-care commitments. Sharon underscores the importance of creating a protective "bubble" to foster healing and set boundaries. She shares strategies for managing stress and anxiety, emphasizing the power of internal dialogue and positive thinking. Learn how to rewire your brain to combat negativity bias and lead a more appreciative life. To stay connected with Sharon and access her resources, check out Sharon Hefetz Consulting and her Instagram handle, Banyas Hefetz, where you'll also find her insightful inner dialogue ebook. It's an episode packed with heartfelt stories and actionable advice you won't want to miss.

https://linktr.ee/sharonhefetzcoach



The Happy and Balanced Mom Course
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Living a Happy & Balanced Mom Life
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Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Can you imagine going from running marathons to fighting for a diagnosis that doctors initially dismissed as stress? Kristine has lived this journey, and she shares it with us in a gripping conversation about her struggle with chronic illness and rare diagnoses. From the first strange tweak in her foot to the emotional toll of being invalidated by medical professionals, Kristine's story is one of resilience and the critical importance of having an advocate in the healthcare system. Her mother-in-law, a doctor, provided the support Kristine needed to document her symptoms meticulously, finally making the medical community listen.

Her experience shows that sometimes, the most significant support we can offer is not trying to fix things but just listening and connecting through shared invisible struggles.

We also explore Rare's offerings, from custom t-shirts and stickers to the innovative treatment-accessible sweatshirt. Kristine highlights the importance of size inclusivity and comfort, ensuring that everyone can find something meaningful in her brand. Beyond clothing, Rare's mission extends to mental health support through moderated groups on the Cabana platform, particularly for underserved communities. Kristine's insights into creating judgment-free spaces for those battling chronic illnesses underline the episode's overarching message: turning personal challenges into a beacon of hope and connection for others.

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Grab your FREE Cabana membership here: Cabana and Rare Disease Community Collaboration (Page 1 of 5) (office.com)

You're Always Fine Pod: You're always fine (yourealwaysfinepod.com)

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Ever wondered if there's more to managing chronic illness than just medication? Discover the transformative journey of Josie, a fervent advocate for natural treatments for autoimmune diseases, as she shares her powerful story. From childhood ailments to grappling with rheumatoid arthritis and Hashimoto's, Josie's quest for healing led her to a holistic center in Denver, where she found that emotional well-being was key to her recovery. Hear how she unraveled the emotional roots of her conditions and began a path toward genuine healing.

Why do we often expect a magical pill to cure chronic illnesses? Join us as we challenge this conventional mindset by shedding light on the grim reality that 70% of deaths in the US stem from chronic illnesses. With Josie's experiences as our guide, we delve into the limitations of both Western and alternative medicine in addressing the root causes. This episode is a call to broaden our approach to health, emphasizing the critical role of emotional and mental well-being in tackling chronic conditions head-on.

Healing from trauma and chronic illness isn't just about revisiting the past—it's about forging a healthier future. Explore practical strategies to regain emotional balance and self-empowerment as Josie shares how she transitioned from emotional overwhelm to a state of inner peace. Learn how to turn off the body's fight-or-flight response and foster self-confidence through guided education and mentorship. This episode is essential for anyone aiming to take control of their emotional health and, in turn, find physical harmony.

Email: [email protected]

Website: www.thehashimotosfix.com

YouTube: https://www.youtube.com/channel/UCnKqF94WFoie2jwH1rF6pMw

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

When Jessica Mitchell, a health coach driven by a deeply personal narrative, steps into our podcast venue, the air fills with an undeniable energy of transformation and hope. Her sister's untimely passing ignited a fire in Jessica to champion the cause of lifestyle disease prevention, and she's here sharing her wisdom on how to forge a path towards sustainable health. The conversation we engage in goes beyond the typical chatter about diets and workouts; we pierce the heart of what it truly means to nurture the self holistically. Nutrition is at the forefront, with Jessica and I dissecting how a diet abundant in plants and whole foods isn't just about what's on your plate, but how what you eat can profoundly shape your life.

Jessica isn't just another voice in the health and wellness chorus; she's a maestro leading a symphony where everyday activities harmonize with our bodies' needs. Discover how dancing in your living room or tending to your garden can be acts of joyous self-care that keep lifestyle diseases at bay. We also dive deep into the sacred stillness of sleep and the gentle reprieve it offers from the day's chaos, sharing practical tips on how to enhance its restorative powers. And it doesn't stop with the physical; we unlock the secrets of stress management, exploring breathwork, journaling, and the intriguing Emotional Freedom Techniques (EFT) tapping, which Jessica adeptly integrates into her health coaching toolkit.

Join us as we wrap up this episode with heartfelt gratitude for the stories and insights Jessica Mitchell brought to our virtual table. Our dialogue reaches out to all those seeking solidarity on their health journeys, reminding us that true well-being is a tapestry woven from the threads of nutrition, movement, sleep, stress management, and emotional resilience. If you're looking to tap into a community where accountability is the norm and mutual support is as nourishing as a home-cooked meal, our Lifestyle Reset community awaits. Let's continue this conversation, and together, create lives that resonate with health and happiness.

IG iam_jessicamitchell

FB IAmJessicaMitchell

www.iamjessicamitchell.com

Lifestyle Reset Community

https://iamjessicamitchell.com/lifestyle-reset-membership-register

Send us Fan Mail

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Keep your spoons close and support system closer.

Support the show

Discount Codes:

• https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen20)
• GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Website:

• https://myspooniesisters.com/

Do you ever feel like you're drowning in the midst of life's challenges? In this heartfelt mini-episode, I, Gracefully Jen, reflect on the importance of recognizing when our Spoonie Sisters are struggling and how vital it is to be that supportive lifeline for one another. We all wear masks to navigate our daily lives, but it's crucial to see beyond those facades and extend a helping hand, especially when the burdens become too much to bear.

This episode also highlights the "Cards 2 Warriors" program, where a simple card can offer immense encouragement to those fighting their battles. Join our community efforts to uplift and support each other, ensuring no one feels alone in their struggles. Let's remember to check on our friends and ensure everyone is coming up for air in these turbulent waters we call life. Until next time, keep your spoon close and your hearts open.

https://www.instagram.com/cards2warriors?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw==

https://www.instagram.com/gracefully_jen?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw==

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Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)

Website:
https://myspooniesisters.com/