In this episode of Zebra Talks, host Dr. Libby Hinsley discusses the challenges and experiences of living with hypermobility syndromes with guest Lauren Brown. Diagnosed with hypermobile Ehlers-Danlos Syndrome and POTS, Lauren shares her long and complicated journey through a diagnostic maze, frequent medical gaslighting, and the significant impact of finding knowledgeable and empathetic healthcare providers.

 

Despite her struggles, Lauren started a YouTube channel, POTS Zebra, to raise awareness and support others facing similar conditions. This episode highlights the importance of community, persistence, and self-advocacy in managing chronic illnesses.

 

Highlights of this episode include: 

 

00:00 Introduction to Zebra Talks

00:35 Meet Lauren Brown: A Journey with EDS and POTS

01:44 Early Signs and Misdiagnoses

04:13 High School Struggles and a Breakthrough

06:29 College and Beyond: Continued Challenges

12:45 A Lifesaving Diagnosis

13:46 Ongoing Health Battles and Advocacy

19:11 Finding the Right Doctor

19:45 Sharing the Journey

22:02 Medical Gaslighting and Bias

23:11 The Importance of Diagnosis

27:19 Building a Support Network

30:10 Starting a YouTube Channel

33:11 Resources and Support

36:02 Final Thoughts and Community