New Books in Disability Studies

Heide Hausse's book The Malleable Body: Surgeons, Artisans, and Amputees in Early Modern Germany (Manchester University Press, 2023) uses amputation and prostheses to tell a new story about medicine and embodied knowledge-making in early modern Europe. It draws on the writings of craft surgeons and learned physicians to follow the heated debates that arose from changing practices of removing limbs, uncovering tense moments in which decisions to operate were made. Importantly, it teases out surgeons' ideas about the body embedded in their technical instructions. This unique study also explores the material culture of mechanical hands that amputees commissioned locksmiths, clockmakers, and other artisans to create, revealing their roles in developing a new prosthetic technology. Over two centuries of surgical and artisanal interventions emerged a growing perception, fundamental to biomedicine today, that humans could alter the body - that it was malleable.

Jana Byars is an independent scholar located in Amsterdam.

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Eileen V. Wallis' book California and the Politics of Disability, 1850–1970 (Palgrave Macmillan, 2023) explores the political, legal, medical, and social battles that led to the widespread institutionalization of Californians with disabilities from the gold rush to the 1970s. By the early twentieth century, most American states had specialized facilities dedicated to both the care and the control of individuals with disabilities. Institutions reflect the lived historical experience of many Americans with disabilities in this era. Yet we know relatively little about how such state institutions fit into specific regional, state, or local contexts west of the Mississippi River; how those contexts shaped how institutions evolved over time; or how regional institutions fit into the USA's contentious history of care and control of Americans with mental and developmental disabilities. 

This book examines how medical, social, and political arguments that individuals with disabilities needed to be institutionalized became enshrined in state law in California through the creation of a "bureaucracy of disability." Using Los Angeles County as a case study, the book also considers how the friction between state and county policy in turn influenced the treatment of individuals within such facilities. Furthermore, the book tracks how the mission and methods of such institutions evolved over time, culminating in the 1960s with the birth of the disability rights movement and the complete rewriting of California's laws on the treatment and rights of Californians with disabilities. This book is a must-read for those interested in the history of California and the American West and for anyone interested in how the intersections of disability, politics, and activism shaped our historical understanding of life for Americans with disabilities.

Shu Wan is currently matriculated as a doctoral student in history at the University at Buffalo. As a digital and disability historian, he serves in the editorial team of Digital Humanities Quarterly and Nursing Clio. On Twitter: @slissw.

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Yoshiko Okuyama's book Tōjisha Manga: Japan’s Graphic Memoirs of Brain and Mental Health (Palgrave Macmillan, 2022) defines tōjisha manga as Japan’s autobiographical comics in which the author recounts the experience of a mental or neurological condition in a unique medium of text and image. Yoshiko Okuyama argues that tōjisha manga illuminate otherwise “faceless” individuals and humanize their invisible tribulations because the first-person narrative makes their lived experience more authentic and relatable to the reader. Part I introduces the evolution of the term tōjisha, the tōjisha movements, and other relevant social phenomena and concepts. Part II analyzes five representative titles to demonstrate the humanizing power of tōjisha manga, drawing on interviews with the authors of these manga and examining how psychological or brain-related symptoms are artistically depicted in approximately 40 drawings. This book is highly recommended to not only scholars of disability studies and comic studies but also global fans of manga who are interested in the graphic memoirs of serious social issues.

Shu Wan is currently matriculated as a doctoral student in history at the University at Buffalo. As a digital and disability historian, he serves in the editorial team of Digital Humanities Quarterly and Nursing Clio. On Twitter: @slissw.

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In Cheap Talk: Disability and the Politics of Communication (U Michigan Press, 2022), Joshua St. Pierre flips the script on communication disability, positioning the unruly, disabled speaker at the center of analysis to challenge the belief that more communication is unquestionably good. Working with Gilles Deleuze's suggestion that "[w]e don't suffer these days from any lack of communication, but rather from all the forces making us say things when we've nothing much to say," St. Pierre brings together the unlikely trio of the dysfluent speaker, the talking head, and the troll to show how speech is made cheap--and produced and repaired within human bodies--to meet the inhuman needs of capital. The book explores how technologies, like social media and the field of speech-language pathology, create smooth sites of contact that are exclusionary for disabled speakers and looks to the political possibilities of disabled voices to "de-face" the power of speech now entwined with capital.

Shu Wan is currently matriculated as a doctoral student in history at the University at Buffalo.

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The pressures Asian Americans feel to be socially and economically exceptional include an unspoken mandate to always be healthy. Nowhere is this more evident than in the expectation for Asian Americans to enter the field of medicine, principally as providers of care rather than those who require care. Pedagogies of Woundedness: Illness, Memoir, and the Ends of the Model Minority (Temple UP, 2021) explores what happens when those considered model minorities critically engage with illness and medicine whether as patients or physicians.

James Kyung-Jin Lee considers how popular culture often positions Asian Americans as medical authorities and what that racial characterization means. Addressing the recent trend of writing about sickness, disability, and death, Lee shows how this investment in Asian American health via the model minority is itself a response to older racial forms that characterize Asian American bodies as diseased. Moreover, he pays attention to what happens when academics get sick and how illness becomes both methodology and an archive for scholars.

Pedagogies of Woundedness also explores the limits of biomedical “care,” the rise of physician chaplaincy, and the impact of COVID. Throughout his book and these case studies, Lee shows the social, ethical, and political consequences of these common (mis)conceptions that often define Asian Americans in regard to health and illness.

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When children are born with disabilities or become disabled in childhood, parents often experience bewilderment: they find themselves unexpectedly in another world, without a roadmap, without community, and without narratives to make sense of their experiences.

Amanda Apgar's book The Disabled Child: Memoirs of a Normal Future (U Michigan Press, 2023) tracks the narratives that have emerged from the community of parent-memoirists who, since the 1980s, have written in resistance of their children's exclusion from culture. Though the disabilities represented in the genre are diverse, the memoirs share a number of remarkable similarities; they are generally written by white, heterosexual, middle or upper-middle class, ablebodied parents, and they depict narratives in which the disabled child overcomes barriers to a normal childhood and adulthood. Apgar demonstrates that in the process of telling these stories, which recuperate their children as productive members of society, parental memoirists write their children into dominant cultural narratives about gender, race, and class. By reinforcing and buying into these norms, Apgar argues, "special needs" parental memoirs reinforce ableism at the same time that they're writing against it.

Shu Wan is currently matriculated as a doctoral student in history at the University at Buffalo. As a digital and disability historian, he serves in the editorial team of Digital Humanities Quarterly and Nursing Clio. On Twitter: @slissw.

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In 1896 the British physician William Pringle Morgan published an account of “Percy,” a “bright and intelligent boy, quick at games, and in no way inferior to others of his age.” Yet, in spite of his intelligence, Percy had great difficulty learning to read. Percy was one of the first children to be described as having word-blindness, better known today as dyslexia. 

In Dyslexia: A History (McGill-Queen's UP, 2022), Philip Kirby and Margaret Snowling chart a journey that begins with Victorian medicine and continues to dyslexia’s current status as the most globally recognized specific learning difficulty. In an engaging narrative style, Kirby and Snowling tell the story of dyslexia, examining its origins and revealing the many scientists, teachers, and campaigners who put it on the map. Through this history they explain current debates over the diagnosis of dyslexia and its impact on learning.For those who have lived experience of dyslexia, professionals who have supported them, and scholars of social history, education, psychology, and childhood studies, Dyslexia reflects on the place of literacy in society – whom it has benefited, and whom it has left behind.

Philip Kirby is lecturer in social science, King’s College London. Margaret J. Snowling is professor of psychology, University of Oxford, and president of St John’s College.

Shu Wan is currently matriculated as a doctoral student in history at the University at Buffalo. As a digital and disability historian, he serves in the editorial team of Digital Humanities Quarterly and Nursing Clio. On Twitter: @slissw.

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The routinization of non-invasive prenatal genetic testing (NIPT) raises urgent questions about disability rights and reproductive justice. Supporters defend NIPT on the grounds that genetic information about the fetus helps would-be parents make better family planning choices. Prenatal Genetic Testing, Abortion, and Disability Justice challenges that assessment by exploring how NIPT can actually constrain pregnant women's options. Prospective parents must

balance a complicated array of factors, including the familial, social, and financial support they can reasonably expect to receive if they choose to carry a disabled fetus to term and raise after birth, causing many pregnant women to “choose” termination.

Focusing on the US, the book explores the intent and effects of prenatal screening in connection to women's bodily autonomy and disability rights, addressing themes at the intersection of genetic medicine, policymaking, critical disabilities studies, and political theory. Knight and Miller shift debates about reprogenetics from bioethics to political practice, as well as thoroughly critiquing the neoliberal state and the eugenic technologies that support it. Providing concrete suggestions for reforming medical practice, welfare policy, and cultural norms surrounding disability, this book highlights sites of necessary reform to envision how prospective parents can make truly free choices about prenatal genetic testing and selection abortion.

Amber Knight, Associate Professor of Political Science and Public Administration, University of North Carolina at Charlotte. Joshua Miller, Assistant Teaching Professor of Political Science and Public Administration, University of North Carolina at Charlotte.

Shu Wan is currently matriculated as a doctoral student in history at the University at Buffalo. As a digital and disability historian, he serves in the editorial team of Digital Humanities Quarterly and Nursing Clio. On Twitter: @slissw.

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Colonising Disability: Impairment and Otherness Across Britain and Its Empire, c. 1800-1914 (Cambridge UP, 2022) explores the construction and treatment of disability across Britain and its empire from the nineteenth to the early twentieth century. Drawing on a wide range of sources, Esme Cleall explores how disability increasingly became associated with 'difference' and argues that it did so through intersecting with other categories of otherness such as race. Philanthropic, legal, literary, religious, medical, educational, eugenistic and parliamentary texts are examined to unpick representations of disability that, overtime, became pervasive with significant ramifications for disabled people. Cleall also uses multiple examples to show how disabled people navigated a wide range of experiences from 'freak shows' in Britain, to missions in India, to immigration systems in Australia, including exploring how they mobilised to resist discrimination and constitute their own identities. By assessing the intersection between disability and race, Dr Cleall opens up questions about 'normalcy' and the making of the imperial self.

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The word "glitch" implies an incidental error, as easy to patch up as it is to identify. But what if racism, sexism, and ableism aren't just bugs in mostly functional machinery--what if they're coded into the system itself? In the vein of heavy hitters such as Safiya Umoja Noble, Cathy O'Neil, and Ruha Benjamin, Meredith Broussard demonstrates in More than a Glitch: Confronting Race, Gender, and Ability Bias in Tech (MIT Press, 2023) how neutrality in tech is a myth and why algorithms need to be held accountable.

Broussard, a data scientist and one of the few Black female researchers in artificial intelligence, masterfully synthesizes concepts from computer science and sociology. She explores a range of examples: from facial recognition technology trained only to recognize lighter skin tones, to mortgage-approval algorithms that encourage discriminatory lending, to the dangerous feedback loops that arise when medical diagnostic algorithms are trained on insufficiently diverse data. Even when such technologies are designed with good intentions, Broussard shows, fallible humans develop programs that can result in devastating consequences.

Broussard argues that the solution isn't to make omnipresent tech more inclusive, but to root out the algorithms that target certain demographics as "other" to begin with. With sweeping implications for fields ranging from jurisprudence to medicine, the ground-breaking insights of More Than a Glitch are essential reading for anyone invested in building a more equitable future.

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