New Books in Disability Studies

In her new book, After the War: Returned Soldiers and the Mental and Physical Scars of World War I (UWA Publishing, 2017), Leigh Straw, a Senior Lecturer in Aboriginal Studies and History at the University of Notre Dame, explores the history of repatriation and return of WWI soldiers to Western Australia. The soldiers’ physical and mental scars, including tuberculosis and what we today call PTSD, did not end with the armistice, as soldiers and their families struggled with the consequences of wartime trauma well into the 1920s.

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Drawing on an ethnography of Down’s syndrome screening in two UK clinics, Gareth M. Thomas‘ Down’s Syndrome and Reproductive Politics: Care, Choice, and Disability in the Prenatal Clinic (Routledge, 2017) explores how and why we are so invested in this practice and what effects this has on those involved. Informed by theoretical approaches that privilege the mundane and micro practices, discourses, materials, and rituals of everyday life, Downs Syndrome Screening and Reproductive Politics describes the banal world of the clinic and, in particular, the professionals contained within it who are responsible for delivering this programme. In so doing, it illustrates how Downs syndrome screening is downgraded and subsequently stabilised as a routine part of a pregnancy. Further, the book captures how this routinisation is deepened by a systematic, but subtle, framing of Downs syndrome as a negative pregnancy outcome. By unpacking the complex relationships between professionals, parents, technology, policy, and clinical practice, Thomas identifies how and why screening is successfully routinised and how it is embroiled in both new and familiar debates surrounding pregnancy, ethics, choice, diagnosis, care, disability, and parenthood.

Nivedita Kar is a student at the University of Southern California, having graduated from UCLA with a double major in Anthropology and Statistics and a masters degree from Northwestern University in biostatistics and epidemiology. She is immersed in the realm of academia and medicine, she hopes to be one of the rare few who aim to bridge the gap between clinical literacy and statistical methods.

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We are all familiar with the idea that some persons are disabled. But what is disability? What makes it such that a condition–physical, cognitive, psychological–is a disability, rather than, say, a disease or illness? Is disability always and intrinsically bad? Are disabilities things to be cured? Might disabilities be merely ways of being different? And what role should the testimony and experiences of disabled persons play in addressing these questions?

 In The Minority Body: A Theory of Disability (Oxford University Press, 2016) Elizabeth Barnes argues that, at least for a range of physical conditions characterized as disabilities, disabilities are merely ways in which bodies can be different, not ways of their being intrinsically badly off. She argues that this view of disability as mere difference has important implications for broader moral and social issues concerning disabled persons; she also argues that her view is better able to respect the experiences and testimony of disabled persons.

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In A Special Hell: Institutional Life in Alberta’s Eugenic Years (University of Toronto Press, 2015), Claudia Malacrida explores the practices of the Michener Center in Red Deer, Northern Alberta, to uncover a close relationship between the institutionalization of persons with disabilities and eugenics. Canadian province of Alberta was infamous for its eugenics program, which lasted until the 1970s with a significant number of people being involuntary sterilized. Malacrida has opened many important questions including the normalization of eugenics, gender aspect of eugenics, social exclusion, dehumanization, violence, and loss of identity of the inmates. During this interview we have talked about ideological underpinnings of eugenics program, horror practices of the Michener Center, and about struggles of the inmates to cope with daily violence and neglect.

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What exactly is ADHD, and is it time to update our ideas about it? In her new book, Your Innovator Brain: The Truth About ADHD (Balboa Press, 2016), Carol Gignoux turns our ideas about Attention Deficit Hyperactivity Disorder on their head and introduces a strengths-based rather than deficits-based perspective on this brain type.

In her forty-plus years coaching individuals with ADHD, Gignoux has witnessed how ADHD stigma stymies these individuals’ creativity and self-esteem. They often adopt views of themselves predominated by what they can’t do rather than what they can. But these “innovators,” as she calls them, have unique capacities for creative problem-solving and productive risk-taking that others often envy. Look no further than Steve Jobs, Pablo Picasso, and Jonas Salk–innovators whose unique brain type helped them make extraordinary contributions to modern society. To make best use of their gifts, innovators need help with their very real limitations and greater understanding and appreciation for their assets. As she explains in our interview, Gignoux has made it her mission to help innovators find such understanding and support. In her book, she advances a paradigm shift in our conceptions of ADHD and outlines specific strategies for dealing with day-to-day challenges. This celebratory and useful first book from a decades-long advocate is a long-awaited update to our long-standing ideas about these unique individuals.

I spoke with Gignoux about her book and her coaching experiences with individuals and their loved ones. I hope you enjoy the interview.

Eugenio Duarte, Ph.D. is a licensed psychologist and psychoanalyst practicing in New York City. He treats individuals and couples, with specialties in LGBTQ issues, eating and body image problems, and working with cultural minorities.

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John Kinder brings to life the challenges and problems faced by the disabled veteran in American history from the Civil War to the current day in his evocative book, Paying with Their Bodies: American War and the Problem of the Disabled Veteran (University of Chicago Press, 2015). Considered by many...

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Popular culture has been transformed in its attitudes towards disability, as representations across media forms continues to respond to the contemporary politics of disability. In Disability and Popular Culture: Focusing Passion, Creating Community and Expressing Defiance (Ashgate, 2015), Katie Ellis, a Senior Research Fellow at Curtin University, uses critical perspectives from disability studies to both challenge and celebrate the place of disability in popular culture. The book thinks through ideas of beauty, the role of children’s toys, representations in television and music, as well as science fiction and sport. Alongside the range of sites of disability and popular culture, the book closes with a case study of social media and the limits of inspirational images. The book is essential reading for cultural studies scholars, but raises important questions for a general readership.

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Andrea Louise Campbell is the author of Trapped in America’s Safety Net: One Family’s Struggle (University of Chicago Press, 2014). Campbell is professor of political science at the Massachusetts Institute of Technology.

Trapped in America’s Safety Net sheds light on the reality of means-tested programs in the United States. Following an accident that left her sister-in-law paralyzed, Campbell sees the vast array of federal and California state assistance programs up close. The book highlights the peculiar aspects of these programs, including the burden of asset tests that compel disabled Americans – and others receiving benefits – to liquidate assets and prevents them from saving for the future. The book is at once deeply personal, but also a great overview of how social policy actually works and often fails.

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David Wright‘s 2011 book Downs: The History of a Disability (Oxford University Press, 2011), offers readers a history that stretches far beyond the strictly defined genetic disorder that is its namesake. Wright shows us how the condition that came to be known as Down’s syndrome has as much to do with the social history of what was called ‘idiocy’ in Early Modern times and reform movements to integrate the disabled beginning in the 1960s as it does with the rise of asylums or the disputed discovery of “trisomie vingt-et-un.” Even the legacy of the condition’s name is a telling narrative about the modernization of medicine, from the use of the term ‘mongoloid’ to justify the (progressive for the time) anthropological theory of racial reversion to debates over whether to rename the disease in honor of John Langdon Down or place it within a more rigid taxonomy of congenital mental disorders. On their own, all of these stories are compelling windows into different dimensions of medicine, and as a whole they comprise a book that shows readers just how contested the process of ‘medicalizing’ a condition has always been.

The book’s chapters progress both chronologically and thematically. We begin with the legal definition of idiocy in the English Common Law as a way for the state to regulate the inheritance of property, and a glance at different contemporary philosophical understandings of mental handicap. Then, Wright discusses John Langdon Down’s work at the Earlswood Asylum and the influence of both education reforms and genetic studies on the definition of mental handicap. Proceeding through Jérôme Lejeune’s disputed discovery of trisomy 21 and the role of genetic screening in abortion debates, the book concludes by discussing how social movements in the late twentieth century have profoundly affected the ethical and political dimensions of Down’s syndrome. Winner of the British Society for the History of Science’s 2013 Dingle Prize, awarded biennially to a book exemplifying critical focus and a novel perspective while remaining accessible to the public, Downs is a great read for specialists and non-specialists alike.

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Dale Maharidge‘s Bringing Mulligan Home: The Other Side of the Good War (PublicAffairs, 2013) is something of a departure from our regular offerings. Normally our authors are established academics specializing in the field of military history. Dale Maharidge, however, is an award-winning journalist who, prior to Bringing Mulligan Home, has had only limited exposure to the subject of the Pacific Theater in World War II. What he does bring however is a personal stake in the topic – his father Steve Maharidge served in the Sixth Marine Division, and took part in the assaults on Guam and Okinawa. As a child and then as a young man, Dale was both enthralled and frightened by his father’s regular accounts of the war – enthralled as a son learning more about his father’s experiences in combat; frightened by the storm of emotions and anger that often accompanied his stories. Inspired to learn more about his father’s service, Dale came to understand how Post-Traumatic Stress and Traumatic Brain Injury shaped his father’s post-war life, as well as that of the dozen other Marines he interviewed who served alongside him.

Though written in a journalistic style, Dale Maharidge reserves the bulk of the text for the personal testimony of his twelve interview subjects. The account they weave spares no word or emotion as it offers a harsh testimony of the power and violence of the Pacific War. The collected narratives present a visceral account of combat that rivals Eugene Sledge’s classic With the Old Breed, while also bearing witness to John Dower’s conclusions in his groundbreaking monograph, War Without Mercy. While the book does occasionally lag, caught up in inconsistencies and missed conclusions, in the larger perspective these flaws are minor. Bringing Mulligan Home captures the ugly, nightmarish side of the Pacific War, but never at the expense of the humanity of his father, or his compatriots (well, there is one exception – but more on that in the interview).

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