Part 2
Jake Haendel, the only known survivor of stage four Locked-In Syndrome, joins the Nurses Uncorked Podcast to share an unbelievable story of survival, addiction, and a miracle recovery. Acute Toxic Progressive Leukoencephalopathy (ATPL) is a complex rare neurological condition that attacks the white matter of the brain. Sometimes referred to as a pseudo-coma, it has been described as your body becoming a prison. Jake discusses the awkward moments he overheard while in a locked-in state, the significance of nurses' interactions, and his journey to regaining communication. The conversation emphasizes the need for healthcare professionals to maintain awareness of their patients' potential perceptions and the impact of their words and actions. In this conversation, he shares his profound experiences with isolation, trauma, and recovery, emphasizing the importance of humor, positivity, and resilience. Additionally, Jake introduces his accessibility app, Ahoi, designed to help disabled individuals navigate public accessibility. The discussion concludes with insights into his podcast, Blink, where he plans to share his full story and the challenges he faces during his recovery.
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Chapters:
03:07 Jake Haendel Introduction
04:40 Understanding Locked-In Syndrome
06:15 A Pivotal Moment in Recovery
10:30 Learning to Blink
11:47 First Message Communicated
14:45 The Journey of Recovery
17:20 The Power of Humor in Recovery
22:12 Future Recovery and Uncertainty
24:50 Pain Tolerance and Coping Mechanisms
25:35 Driving Towards Independence
29:20 Reflections on Addiction and Recovery
36:15 The Impact of Choices on Life's Path
41:30 Creating Accessibility Solutions with Ahoi
48:45 Witnessing Trauma While Locked-In
59:30 Navigating Recovery and Support Systems
1:00:20 The Complexities of Hospice Care
1:07:45 Reflections on Life and Mortality
1:13:20 The Enema Award
1:16:17 Follow Jake's Journey
Help support Jake Haendel's recovery:
https://www.gofundme.com/f/jacob-haendels-recovery-fund
Connect with Jake Haendel:
Instagram: @miraclman31. https://www.instagram.com/miraclman31/#
Tiktok: @miraclman31. https://www.tiktok.com/@miraclman31
YouTube: @miraclman31. https://www.youtube.com/@miraclman31
Blink | Jake Haendel Story Podcast:
https://www.blinkthepodcast.com/
https://podcasts.apple.com/us/podcast/blink-jake-haendels-story/id1779813806
https://open.spotify.com/episode/1f8xqkipaynS2uqYJp1lUM?si=J9Cxj91_SJ6tZ06FQBKplQ
Instagram: @blinkthepodcast https://www.instagram.com/blinkthepodcast/?igsh=MW11dGRoeXhjamozbw%3D%3D&utm_source=qr#
Ahoi App:
https://apps.apple.com/us/app/ahoi/id1629306597
Sources:
CBS Sunday Morning Interview: https://www.youtube.com/watch?v=tFVpFyj0570
https://www.sciencedirect.com/science/article/abs/pii/S0022510X22002829
https://pmc.ncbi.nlm.nih.gov/articles/PMC7028629/
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