Our Skin: A Personal Discovery Podcast

Andrea Wool is the founder of Autoimmune Strong, a community for those with autoimmune disorders seeking exercise that heals rather than harms. Andrea shares her experience with chronic pain, fatigue, and her quest to find a sustainable, gentle approach to fitness. Diagnosed with fibromyalgia and multiple autoimmune diseases, she turned her struggles into a mission, helping others transform their relationship with exercise and health. Stepping back into history, we trace the evolution of our understanding of autoimmune conditions through the work of three pivotal doctors.

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Reena Ruparelia has lived with psoriasis since she was in high school. But she didn’t start sharing about her experience until 20 years later. Stigma played a role in her hesitancy to speak out, but a major factor was the difficulty in finding a doctor who really listened, and a treatment that worked. Until patients find treatment, it can feel like their life is on hold–but Reena has a message of hope for anyone still looking. Reena’s story ties in perfectly to the history in this episode, which goes step by step through the evolution of psoriasis treatment, from ancient times to our modern medicines today. 

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When Jen Weaver was diagnosed with psoriasis in 2017 (after five years handling rheumatoid arthritis), she was 36 years old and had three busy kids. Her plaques were very visible–she said they covered her “from head to toe”--and very painful. Psoriasis meant a step into a world where people noticed her auto-immune condition for the first time, and the reaction was far from comforting. So Jen found her people, and now runs a community and resource bank called “My Spoonie Sisters” (Why spoons? Listen to find out!). In our step into history, we trace the origins of the stigma against psoriasis and the key figures in dispelling that stigma. History, and Jen, show us that education busts stigma. 

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Activist and Hollywood producer Holly Dillon was diagnosed with psoriasis when she was just 14 years old and, at 20, was told by a doctor that there was no help for her–that her body had “failed.” Devastated but not deterred, Holly launched Get Your Skin Out, a visual campaign and online community of people sharing about their skin disorders, and looking beautiful doing it. As we step back in skin history, we examine the lives of Benjamin Franklin and Elizabeth Siddal, suspected psoriasis patients, who wrote extensively about how their symptoms affected them. We see they faced many of the same challenges people do today.

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In this episode of Our Skin, we're joined by world-class athlete Mandy Marquardt of the USA Cycling National Team to discuss her experience as an Olympic hopeful living with psoriasis.

Mandy shares how being diagnosed with psoriasis threw her for a loop, even as she continued to train at an elite level. Mandy also opens up about the importance of her support network and the role it played in helping her navigate this unexpected challenge.

But that sense of community wasn’t always available to people with chronic disorders. After Mandy’s inspiring story, host Holly Frey takes us through the little-known and emotional history of the isolation faced by those with psoriasis in the past and what we all can learn from the history of our skin.

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Welcome to Our Skin, a Personal Discovery Podcast. Each week, host Holly Frey showcases a personal story from someone who lives–and thrives!--while managing psoriasis. Being diagnosed with a chronic skin condition can throw anyone off track, but Our Skin guests have a message of hope: a diagnosis can be an opportunity to discover new things about ourselves, our grit, and our power. 

In addition to these tales of hope, Frey and her guests plunge into the jaw-dropping, bizarre, and occasionally poisonous chronicles of our approach to skin conditions – unveiling a history that's far from straightforward! They explore everything from ancient remedies like snake oil to modern dermatology breakthroughs. 

Whether you’re looking for inspiration on your own skincare journey or are curious about the sometimes strange history of how we treat our skin, you’ll find genuine, empathetic, transformative conversations here on Our Skin.

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