In this episode, we're joined by three advocates who have worked to raise the personal needs allowance (PNA) and improve the quality of life for nursing home residents in their states.

The PNA is a small portion of income that Medicaid nursing home residents can keep each month to cover personal expenses such as clothing, snacks, cell phone bills, and other essentials that make life more comfortable.

The federal minimum PNA has not been raised since 1987 and remains just $30 a month, less than one dollar a day. While states can set higher amounts, they currently range from $30 to $200 a month, leaving most residents with only $2 to $3 per day for discretionary spending.

Join us as we hear from Bill Lamb, a lifelong advocate in North Carolina, along with resident advocates Ray DiFrancesco of New Jersey, and Jeanette Martinez of Connecticut, as they share their experiences raising the PNA in their states and their advice for others working toward the same goal.

When award-winning filmmaker Susie Singer Carter placed her mother, who was living with dementia, in a five-star nursing home in Los Angeles, she never expected to be dealing with substandard care, inadequate staffing, and chemical restraints. Horrified by what was happening, Susie connected with former federal prosecutor Rick Mountcastle, whose prosecution of Purdue Pharma was featured in the miniseries, Dopesick. Susie and Rick have collaborated on a new documentary, No Country for Old People, to raise awareness about failures in our long-term care system and spur action to promote quality and accountability. On the eve of the release of the documentary, join a conversation with Susie and Rick about what they've learned in this process and what you can do to help change the system.

Guests: Guest: Susie Singer Carter, Writer and Director, and Rick Mountcastle, Former Federal Prosecutor

Nearly 40 years ago, after repeated reports, articles, and studies highlighting dismal conditions in nursing homes, Congress passed the comprehensive Nursing Home Reform Act, raising the standard of care and expectations for residents of nursing homes across the country. While we are still advocating for the promise of the law to be experienced by all residents, the importance of implementing the provisions is as necessary today as they were when the law was passed. Listen to our discussion about the passage of the Nursing Home Reform Act, its critical provisions, and what additional advocacy is needed to realize its full promise for all residents.

Guest: Toby Edelman, Senior Policy Attorney, Center for Medicare Advocacy

When a loved one enters long-term care, family members often find themselves stepping into a new and unexpected role: advocate. In this episode, Andrea DuBrow and Heather Tunis share their personal journeys from concerned family members to dedicated advocates for their loved ones in long-term care settings.

Join us as we explore the vital role of family councils, the power of effective leadership, and the importance of advocacy in ensuring quality care. We also discuss strategies for building respectful and productive partnerships with staff and management, offering essential tips to help family members navigate the challenges of advocacy with confidence and purpose.

Whether you're just beginning your advocacy journey or looking to strengthen your approach, this conversation provides invaluable guidance and information.

Guests: Andrea DuBrow, Former Caregiver, Consumer Voice Leadership Council Member, Social Worker, Public Health Educator and Advocate; Heather Tunis, Family Care Manager, Management Consultant/Executive Coach, Long-Term Care Family Advocate

Consumer Voice’s Public Policy Director, Sam Brooks, talks with Dr. Norma Coe, a professor of Medical Ethics and Health Policy at Perleman School of Medicine, whose research on the minimum staffing rule in nursing homes found that the rule would save 13,000 resident lives annually. Sam and Dr. Coe will discuss the rule, its impact on residents, and the current barriers to its implementation.

Guest: Dr. Norma Coe, Professor of Medical Ethics and Health Policy at Perleman School of Medicine

Currently, the reconciliation process is underway in Congress. At stake are hundreds of billions of dollars in cuts to Medicaid, which would permanently alter the Medicaid program and have long-lasting and devastating impacts on tens of millions of Americans nationwide. In this episode, Consumer Voice’s Public Policy Director, Sam Brooks, will discuss the reconciliation process with Nicole Jorwic and Gelila Selassie and what it will mean for Medicaid recipients, including nursing home residents and other consumers of long-term care supports and services. Additionally, this episode includes a call to action and lays out what you can do to help stop these catastrophic cuts to this essential healthcare program.

Although federal law and regulation prohibit the use of third party guarantees, some nursing homes may still attempt to get you to sign documents making you financially responsible for a nursing home stay. Join us for a conversation with experts Anna Anderson and Eric Carlson as they guide you through what you can do if a nursing home tries to hold you financially liable for someone else's nursing home stay.

Guest: Eric Carlson, Director, Long-Term Services and Supports Advocacy, Justice in Aging; Anna Anderson, Staff Attorney, National Consumer Law Center

During this time of year nursing homes can expect to see an increase in people visiting their loved ones. This increase puts everyone at a higher risk of catching a cold or respiratory illnesses. Join us for a conversation as we dive into the latest CDC guidance on respiratory illnesses, including COVID-19, for nursing home residents. We are joined by Dr. Erika Wallender from the CDC, and Lori Walsh, Consumer Voice Policy and Program Specialist, to discuss practical steps in reducing infection risks and best practices for staying safe during this upcoming respiratory season. We also remind residents and their families of their rights and protections while navigating life in a nursing home.

Election season is an exciting time that offers a renewed opportunity to shape public policy. For many long-term care residents, voting is a patriotic duty that has been respected and exercised over the course of their lifetime. Residents of long-term care have the same right to vote as everyone else. Join us for a conversation with Gwen Orlowski, Executive Director of Disability Rights New Jersey to discuss how residents and their families can ensure their voices are heard in the upcoming elections.

Guardianship is a tool intended to support individuals who have lost the capacity to make decisions for themselves. However, guardianship is an extreme step and can have a devastating impact on a person's well-being. In this episode, we will discuss guardianship over residents of long-term care facilities, less restrictive alternatives, and strategies for supporting residents under guardianship.

Guests: Alison Hirschel, Director of the Michigan Elder Justice Initiative, and Emily Miller, Managing Attorney of the Crime Victims Legal Assistance Project of the Michigan Advocacy Program