
Sign up to save your podcasts
Or


Based on Podcast App listening data
You've just had your appointment with your neurologist or MS Specialist and you're on your way home, feeling like you weren't heard. Maybe there wasn't sufficient time. Or it might feel like your opinion simply isn't valued. Your frustration could even be the result of language issues and cultural barriers that make communication difficult. Whatever the reason, it doesn't have to be this way.
Dr. Luis Manrique-Trujillo joins me this week to share tips and strategies that will improve the quality of communication between you and every member of your MS care team. Dr. Manrique-Trujillo is a neurologist specializing in neuroimmunology and multiple sclerosis at MedStar Georgetown University Hospital in Washington, D.C.
We're also sharing some fascinating research that traces the gene variants that increase someone's risk of developing MS all the way back to the Bronze Age.
We'll tell you about a small study that may explain how the Epstein-Barr Virus triggers MS.
We'll tell you about a class-action lawsuit that accuses Pharmacy Benefit Managers of illegal collusion and price-fixing. (And we'll explain why this lawsuit could be a huge step toward lowering the cost of your prescription medications)
And we're sharing our plans for RealTalk MS in 2024.
We have a lot to talk about! Are you ready for RealTalk MS??!
My New Year's Resolutions for RealTalk MS :22
This Week: Improving communication between you and your neurologist 4:59
STUDY: Ancient DNA reveals how MS risk genes arose and spread across Europe 5:59
STUDY: EBV-specific T-cells may play a key role in developing MS 9:36
An important class-action lawsuit has been filed against Pharmacy Benefit Mangers 11:18
Dr. Luis Manrique-Trujillo shares strategies for improving communication between you and your neurologist 15:41
Share this episode 34:19
Have you downloaded the free RealTalk MS app? 34:40
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/333
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
STUDY: Elevated Genetic Risk for Multiple Sclerosis Emerged in Steppe Pastoralist Populations https://www.nature.com/articles/s41586-023-06618-z
STUDY: Expanded T Lymphocytes in the Cerebrospinal Fluid of Multiple Sclerosis Patients are Specific for Epstein-Barr-Virus-Infected B Cells https://pnas.org/doi/abs/10.1073/pnas.2315857121
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 333 Guest: Dr. Luis Manrique-Trujillo
Privacy Policy
If you remember your Economics 101 class, the introduction of generic and biosimilar drugs should cause prices to drop. Yet, when it comes to MS disease-modifying therapies that isn't always the case.
MS Navigator Robin LaRue joins me this week to discuss how to manage the sometimes crazy costs of MS prescription medications.
We're also sharing results from a study that show there is absolutely no association between consuming dairy and gluten products and MS disease activity.
We'll tell you about two different studies that suggest that non-pharmaceutical interventions may be effective in lessening MS fatigue.
We're sharing results from a trial that reveal an innovative approach to supporting MS caregivers.
And we'll tell you about 4.6 million euro in new funding from the International Progressive MS Alliance that will go toward research focused on developing new treatments for progressive MS.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Managing the cost of MS medications :22
STUDY: No association between consuming dairy and gluten products and MS disease activity 1:42
STUDY: SMS-messaging is shown to improve MS-related fatigue 4:50
STUDY: Talk therapy is shown to improve MS-related fatigue 8:36
STUDY: Remote coaching and online information improves the well-being of MS caregivers 10:43
International Progressive MS Alliance announces new research funding 13:32
MS Navigator Robin LaRue discusses how to manage the cost of MS prescription medications 15:57
Share this episode 27:48
Have you downloaded the free RealTalk MS app? 28:09
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/332
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
STUDY: Dairy and Gluten in Disease Activity in Multiple Sclerosis https://journals.sagepub.com/doi/10.1177/20552173231218107
STUDY: Text Messaging Intervention for Fatigue Self-Management in People with Stroke, Spinal Cord Injury, and Multiple Sclerosis: A Pilot Study https://sciencedirect.com/science/article/abs/pii/S1936657423001310?via%3Dihub
STUDY: Effectiveness of a Blended Booster Programme for the Long-Term Outcome of Cognitive Behavioural Therapy for MS-Related Fatigue: A Randomized Controlled Study https://journals.sagepub.com/doi/full/10.1177/13524585231213258
STUDY: Effect of 2-Arm Intervention on Emotional Outcomes in Informal Caregivers of Individuals with Multiple Sclerosis: A Randomized Pilot Study Trial https://meridian.allenpress.com/ijmsc/article/25/6/252/495534/Effect-of-2-Arm-Intervention-on-Emotional-Outcomes
International Progressive MS Alliance https://progressivemsalliance.org
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 332 Guest: Robin LaRue
Privacy Policy
This is the week that a lot of us make resolutions for the coming year. And I'm hoping that after you hear my conversation with Dr. Claire Riley, many of you will resolve to become donors to the National Multiple Sclerosis Brain Bank.
Resolving to donate brain and tissue to the National MS Brain Bank is a new year's resolution that goes far beyond the standard eat better and exercise more promises that so many of us make to ourselves every year. It's deeply meaningful, profoundly personal, and, as Dr. Riley describes it, it's a heroic step in choosing to play an important role in curing MS.
We're also sharing the details about a partial hold that the FDA has placed on another clinical trial for an experimental MS disease-modifying therapy.
And we'll share some potentially disturbing news about how artificial intelligence is being leveraged to deny patients medically necessary care.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Becoming a donor to the National MS Brain Bank :23
FDA puts a partial hold on Phase 3 clinical trial investigating Fenebrutinib 1:23
Are health insurers using AI for all the wrong reasons? 4:49
Dr. Claire Riley discusses why you should consider being a donor to the National MS Brain Bank 8:09
Share this episode 28:40
Have you downloaded the free RealTalk MS app? 29:01
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/331
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
The National Multiple Sclerosis Brain Bank https://msbraindonation.org
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 331 Guests: Dr. Claire Riley
Privacy Policy
This week, I'm revisiting the proposal from the International Advisory Committee on Clinical Trials in MS that recommended adopting a new framework that leverages what scientists are continuing to learn about MS and redefines how we talk about MS, how we research MS, how we diagnose MS, and how we treat MS. This proposed framework holds the promise of taking MS care to the next level.
This new framework was first proposed in a paper published in November 2022, and last January, I spoke with the lead author of that paper, Professor Tanja Kuhlmann. We discussed why an international panel of distinguished MS experts was recommending changing something that has been in place for decades.
The following week, I reached out to the National MS Society's Chief Advocacy, Services, and Science Officer, Dr. Tim Coetzee, and we talked about how this new framework for describing MS would impact people living with MS.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Revisiting the proposed framework for describing MS :22
Prof. Tanja Kuhlmann discusses why this new framework is necessary 1:46
Dr. Tim Coetzee talks about how this new framework will impact people living with MS 14:49
Share this episode 36:25
Have you downloaded the free RealTalk MS app? 36:46
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/330
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 330 Guests: Prof. Tanja Kuhlmann and Dr. Tim Coetzee
Privacy Policy
The holiday season provides me with an opportunity to indulge in what's become a RealTalk MS tradition. I reserve the last two episodes of the year to revisit the most compelling,and important conversations that I've had over the past year. This week, I'm revisiting the conversations I had at the Pathways To Cures Global Summit that took place in New York last May.
The National MS Society brought together the best and brightest minds in MS research, the CEOs of major MS Societies, representatives from the pharmaceutical industry, and people affected by MS to update the scientific foundation of the Pathways To Cures research roadmap and set the global MS research agenda for the next 3-5 years.
I had the opportunity to speak with several of the top MS experts in the world at this meeting and, collectively, these are the conversations that have resonated with me all year long.
We have a lot to talk about! Are you ready for RealTalk MS??!
Happy Holidays! :22
This Week: Revisiting the Pathways to Cures Global Summit :54
My conversation with a distinguished group of CEOs representing 5 major MS Societies 2:55
Dr. Tim Coetzee discusses the current state of MS care and the work ahead 9:11
Kathy Smith shares her perspective on the Pathways to Cures Global Summit 13:54
Dr. Anne-Katrin Probstel talks about stopping MS 20:26
Dr. Naila Makhami discusses detecting MS early 31:36
Dr. Daniel Ontaneda suggests how people living with MS should be thinking about the Pathways to Cures global research initiative 35:53
Dr. Mitzi Joi Williams discusses the importance of ensuring that the Pathways to Cures initiative doesn't leave anyone behind 41:11
Share this episode 47:21
Have you downloaded the free RealTalk MS app? 47:42
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/329
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Learn more about Pathways To Cures https://www.nationalmssociety.org/pathways-to-cures
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 329 Guests: Cyndi Zagieboylo, Nick Moberly, Klaus Hom, Rohan Greenland, Dr. Pamela Valentine, Dr. Tim Coetzee, Kathy Smith, Dr. Anna-Katrin Probstel, Dr. Naila Makhami, Dr. Daniel Ontaneda, Dr. Mitzi Joi Williams
Privacy Policy
This special episode of RealTalk MS is sponsored by EMD Serono and is only intended for a U.S. audience. EMD Serono is the healthcare business of Merck, KGaA, Darmstadt, Germany, in the United States and Canada.
In this special episode of RealTalk MS, we're exploring what the invisible symptoms of MS are, and how to best empower people living with MS to talk about them with their healthcare team.
Professor Klaus Schmierer is a Professor of Neurology at the Blizard Institute, Queen Mary's Univerrsity of London and a Consultant Neurologist at the Royal London Hospital, which is part of Barts Health NHS Trust in the U.K. Professor Schmierer has a keen interest in MS and focuses his research on the underlying mechanisms of the disease and how to improve diagnosis with imaging tools, such as MRI.
Jane Shanahan is a patient advocate who was diagnosed with MS in 2016. Jane lives with her husband and two children. She has developed an interest in better understanding MS, as well as educating her family, friends, colleagues, and others about the disease.
Both Professor Schmierer and Jane are active members of the MS in the 21st Century initiative. MS21 is a Merck KGaA, Darmstadt, Germany, initiative involving healthcare professionals and patient advocates. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com.
Cognitive dysfunction is a common symptom of multiple sclerosis, affecting more than half of the people living with MS. While cognitive issues like changes in memory, difficulty maintaining attention, slower information processing speed and executive function may not be among the most disabling symptoms of MS, they may be among the most disconcerting symptoms.
Whether it's your short-term memory, the ability to find your way to a familiar destination that you've gone to hundreds of times, or your ability to follow conversations with friends or business colleagues, these are the kinds of real-world situations that can bring someone to a hard stop, recognizing that they're changing in profound ways that aren't outwardly apparent. And that's a scary feeling.
Fortunately, researchers are making real progress in developing ways for people living with MS to improve their cognition. This week, Dr. Nancy Chiaravalloti joins me to talk about what researchers are learning and what types of cognitive rehabilitation are available today.
Dr. Chiaravalloti is the Director of the Center for Neuropsychology and Neuroscience Research and the Center for Traumatic Brain Injury Research at Kessler Foundation. Dr. Chiaravalloti's research is focused on ways to stimulate new learning, memory, and processing speed.
We're also sharing some promising results from a preclinical study of an investigational Epstein-Barr Virus vaccine (And we'll explain why this is so important to the MS community!).
Dr. Nuriel Moghavem will take us through a day in the life of an MS Fellow.
We'll share the disappointing results of the Phase 3 clinical trial for Evobrutinib.
And we'll tell you about super-small biological robots that seem capable of doing some amazing things -- including encouraging the growth of healthy nerve cells to replace damaged nerve cells.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Cognitive Rehabilition :22
Promising news from a preclinical study of an investigational EBV vaccine 2:08
A day in the life of an MS Fellow with Dr. Nuriel Moghavem 4:21
Evobrutinib Phase 3 clinical trial has failed to meet its end points 17:19
Biological robots assemble into a "superbot" and encourage the growth of healthy nerve cells 18:28
Dr. Nancy Chiaravalloti discusses breakthrough treatment for cognitive dysfunction in MS 21:19
Share this episode 31:48
Have you downloaded the free RealTalk MS app? 32:08
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/328
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
STUDY: Motile Living Biobots Self-Construct from Adult Human Somatic Progenitor Seed Cells https://onlinelibrary.wiley.com/doi/10.1002/advs.202303575
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 328 Guests: Dr. Nuriel Moghavem and Dr. Nancy Chiaravalloti
Privacy Policy
A growing number of people living with MS are turning to cannabis for symptom management. But which MS symptoms have responded to being treated with cannabis? Where should someone buy medical cannabis? And is using medical cannabis even legal?
Dr. Michelle Cameron returns to the podcast to discuss the risks and benefits of using cannabis for symptom management. Dr. Cameron is a neurologist and physical therapist, as well as a professor in the Department of Neurology at Oregon Health & Science University.
We're also sharing some long overdue good news from United Airlines for passengers who use wheelchairs.
We'll tell you about the first adaptive clinical trial for people living with progressive MS in Australia.
We'll give you the details of the FDA's clearance of an artificial intelligence platform designed to analyze MRI scans to detect and monitor MS disease activity.
And we're sharing promising results from a Phase 1 clinical trial that focused on using neural stem cells to stop disease progression among people living with secondary progressive MS.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Cannabis and MS :22
United promises friendlier skies for wheelchair users 1:04
PLATYPUS adaptive clinical trial to begin in Australia 3:47
FDA approves artificial intelligence platform for detecting MS disease activity in MRI scans 5:34
Neural stem cell Phase 1 clinical trial shows encouraging progress 6:47
Dr. Michelle Cameron discusses the risks and benefits of using cannabis to manage MS symptoms 9:07
Share this episode 24:01
Have you downloaded the free RealTalk MS app? 24:22
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/327
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
STUDY: Phase 1 Clinical Trial of Intracerebroventricular Transplantation of Allogenic Neural Stem Cells in People with Progressive Multiple Sclerosis https://www.sciencedirect.com/science/article/pii/S1934590923003934
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 327 Guest: Dr. Michelle Cameron
Privacy Policy
Chris Holland had a successful career working as a paralegal when he was diagnosed with MS in 2004. And, while everyone reacts differently to being diagnosed with MS, no one could have predicted what happened next, as Chris lost everything battling demons he never imagined he would ever face.
But it would be a mistake betting against Chris Holland's resilience. Bouncing back, Chris decided to pursue his lifelong dream of becoming a chef. Today, Chris is a three-time Food Network Chopped champion and the owner and executive chef at Kantina, in Sparkill, New York.
This week, Chris joins me to share a story with a happy ending that almost wasn't.
November is National Family Caregivers Month, which seems to be the perfect time for iConquer MS to expand its community to include MS caregivers. We're sharing all the details of the newly launched iConquer MS Caregivers initiative.
It's impossible to discuss caregiving without mentioning the lifelong contributions made by former First Lady Rosalynn Carter. This week, we're remembering Mrs. Carter and reflecting on her legacy.
And we'll tell you how Infusion Day actually became Spa Day in Dawson City, Yukon.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Chris Holland shares his remarkable story of resilience :22
November is National Family Caregivers Month 1:22
Remembering Former First Lady Rosalynn Carter 1:52
If you're caring for a loved one with MS, iConquer MS has set out a welcome mat 3:07
Infusion Day is now Spa Day in Dawson City, Yukon 7:13
Chris Holland talks about how he barely made it all the way back 9:34
Share this episode 28:24
Have you downloaded the free RealTalk MS app? 28:44
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/326
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
iConquer MS Caregivers https://iconquerms.org/caregivers
PAPER: Addressing the Needs of Multiple Sclerosis Caregivers from Diagnosis Onward: The Development of a Comprehensive Caregiver Protocol https://meridian.allenpress.com/ijmsc/article/25/6/273/496788/Addressing-the-Needs-of-Multiple-Sclerosis
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 326 Guest: Chris Holland
Privacy Policy
According to the CDC, 36 million falls are reported each year, resulting in 3 million adults being transported to the Emergency Room and 32,000 adults dying from their falls. Studies have shown that, in any six-month period, more than 50% of the people living with MS fall at least once, and 30% fall multiple times.
As falls at home are common, occupational therapist Tracy Carrasco joins me to share tips and strategies for making your home safe and accessible.
We're also sharing a research roundup featuring results from a few different clinical trials that are focused on the impact of diet on MS. And that includes the Swank diet, the Wahls diet, the Mediterranean diet, and a simple low-fat diet.
We'll tell you about a novel study that explored the economic impact of an Epstein-Barr Virus vaccine on the cost of MS care in Australia.
If you're living with MS, we have your invitation to participate in the Patient Reported Outcomes for Multiple Sclerosis (PROMS) initiative survey.
And we'll tell you how you can catch the video replay of the International Progressive MS Alliance global webcast on research and treatment for cognitive challenges in progressive MS.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Some of the things I'm thankful for :22
Research Roundup: The impact of diet on MS 2:40
Survey results show how an EBV vaccine could impact the cost of MS care in Australia 9:03
If you're living with MS, here's your invitation to participate in the PROMS initiative online survey 12:22
How to catch the video replay of the International Progressive MS Alliance global webcast about research and treatment for cognitive challenges in progressive MS 13:38
Tracy Carrasco shares tips for making your home safe and accessible 15:25
Share this episode 27:26
Have you downloaded the free RealTalk MS app? 27:46
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/325
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
STUDY: A Low-Fat Diet Improves Fatigue in Multiple Sclerosis: Results from a Randomized Controlled Trial https://journals.sagepub.com/doi/10.1177/13524585231208330
STUDY: Diet-Induced Changes in Functional Disability are Mediated by Fatigue in Relapsing-Remitting Multiple Sclerosis: A Secondary Analysis of the WAVES Randomized Parallel-Arm Trial https://journals.sagepub.com/doi/full/10.1177/20552173231209147
STUDY: Exploring the Cost-Effectiveness of EBV Vaccination to Prevent Multiple Sclerosisin an Australian Setting https://jnnp.bmj.com/content/early/2023/11/02/jnnp-2023-332161
PARTICIPATE: The PROMS Initiative Survey https://proms-initiative.org/survey-proms
VIDEO: Cognitive Challenges in Progressive MS https://youtube.com/watch?v=bN26GrRZMts
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 325 Guest: Tracy Carrasco
Privacy PolicyFrom the publisher's feed
Ranked by our users in the last 21 days

37,770 Listeners

12,840 Listeners

69,554 Listeners

16 Listeners

9,114 Listeners

49 Listeners

128 Listeners

8,152 Listeners

41,356 Listeners

115 Listeners

2,050 Listeners

18,937 Listeners

10,772 Listeners

3,761 Listeners

188 Listeners