Starting a family is a big step for anyone. And when you're living with MS and you're on MS medications along with other symptom management medications, planning a family creates a lot of questions about what's safe and what's not.

Dr. Annette Langer-Gould, a clinician-scientist and MS specialist in the Kaiser-Permanente health system, joins me to answer questions about how to safely and successfully navigate conception, pregnancy, and the postpartum period with MS.

We'll also get a briefing from Principal Investigator Dr. Jiwon Oh on the long-term extension study of Tolebrutinib, an investigational MS medication that's part of a whole new category of MS medications. 

And we're sharing details of the 2022 Black MS Experience Summit, taking place June 15-16. Find out how and where to register for this free event!

We have a lot to talk about! Are you ready for RealTalk MS??!

I'm heading to the Consortium of MS Centers Annual Meeting   :22

Dr. Jiwon Oh discusses the long-term extension study of Tolebrutinib  1:02

The Black MS Experience Summit is happening June 15-16  11:01

Can-Do MS is hosting a webinar on "Bowel and Bladder: How to Find Confidence and Control"  12:03

Dr. Annette Langer-Gould discusses pregnancy and MS  13:01

Share this episode  31:00

Download the RealTalk MS app for your iOS or Android device   31:20

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/248

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

The National MS Society Presents the Black MS Experience Summit https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Black-MS-Experience

Can Do MS Webinar Information and Registration https://cando-ms.org/webinar

iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers

iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 248 Guests: Dr. Jiwon Oh and Dr. Annette Langer-Gould

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Think about how much faster, easier, cheaper, and less invasive it would be if MS could be diagnosed by a simple blood test. 

Scientists have identified biomarkers that can be used to diagnose MS and even predict MS before someone experiences any symptoms. Biomarkers may even be used to predict MS progression before it occurs. 

Joining me to discuss how biomarkers may change the way MS is diagnosed and treated is Dr. Tanuja Chitnis, a Professor of Neurology at Harvard Medical School, as well as the Director of the CLIMB Study and the Translational Neuroimmunology Research Center at Brigham and Women's Hospital. 

We're also talking about a recent breakthrough in myelin repair.

We're sharing all the details about how you can participate in World MS Day on May 30th.

We'll tell you about a report commissioned by the National Academy of Medicine that takes a close look at the challenges of identifying credible health information in social media. 

And if you're an MS caregiver, healthcare professional, or researcher, we'll give you the details of an important survey that you can participate in.

We have a lot to talk about! Are you ready for RealTalk MS??!

Biomarkers can change everything   :22

May 30th is World MS Day  1:53

Lab-made molecule is shown to promote myelin repair in preclinical models of MS  3:23

National Academy of Medicine weighs in on the challenges of finding credible sources of health information in social media    5:03

An important survey for MS caregivers, healthcare professionals, and researchers  11:34

Dr. Tanuja Chitnis discusses biomarkers that may fundamentally change how MS is diagnosed and treated  13:38

Share this episode  28:23

Download the RealTalk MS app for your iOS or Android device   28:43

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email:  https://realtalkms.com/247

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Report: Identifying Credible Sources of Health Information in Social Media: Principles and Attributes https://nam.edu/identifying-credible-sources-of-health-information-in-social-media-principles-and-attributes

World MS Day https://worldmsday.org

iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers

iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 247 Guests: Dr. Tanuja Chitnis

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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When my wife was diagnosed with MS in 1997, the annual cost of her MS medication was $9,000. Today, the annual cost of that same medication is $110,000.

We cannot allow the insanity associated with the cost of MS medications to continue.

Joining me to discuss the impact of the outrageously high cost of MS medications -- and what each of us can do about it -- is the National MS Society's Vice-President of Advocacy, Steffany Stern.

We're also talking about a Phase 1 clinical trial for an investigational Epstein-Barr Virus vaccine (and why that matters to everyone living with MS).

We'll tell you about a study that may have identified a biomarker for MS-related fatigue.

We're also sharing the results of a study that identified which stress-reducing activities can help reduce MS-related depression and fatigue.

And we'll tell you about a study that identified the economic benefits of starting MS medications early.

We have a lot to talk about! Are you ready for RealTalk MS??!

The (HIGH!) Cost of MS Medications   :22

NIH Announces Phase I Clinical Trial of Investigational EBV Vaccine 4:21

Study identifies a potential biomarker for MS fatigue  6:04

Study identifies stress-reducing activities that lower MS-related depression and fatigue    8:37

Study shows the economic benefits of starting MS medications early  11:25

Steffany Stern discusses the impact of the cost of MS medications   14:16

Share this episode  32:10

Download the RealTalk MS app for your iOS or Android device   32:30

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/246

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society: You Can Help Bring MS Medications Into Reach https://nationalmssociety.org/Treating-MS/Medications/Make-MS-Medications-Accessible/Take-Action

RealTalk MS Ep.229: Evidence Shows MS Is Triggered by the Epstein-Barr Virus with Dr. Kassandra Munger and Dr. AJ Joshi https://realtalkms.com/229

RealTalk MS Episode 231: Evidence Shows EBV Triggers MS: Understanding this Breakthrough Research with Dr. Bruce Bebo https://realtalkms.com/231

Cerebrospinal Fluid Amyloid Precursor Protein as a Potential Biomarker for Fatigue in Multiple Sclerosis: A Pilot Study https://sciencedirect.com/science/article/pii/S2211034822003583

SURVEY: Undertaking Specific Stress-Reducing Activities are Associated with Reduced Fatigue and Depression, And Increased Mastery, in People with Multiple Sclerosis https://sciencedirect.com/science/article/pii/S2211034822003169

Early vs Late Treatment Initiation in Multiple Sclerosis and Its Impact on Cost of Illness: A Register-Based Prospective Cohort Study in Sweden https://pubmed.ncbi.nlm.nih.gov/35496759

iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers

iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 246 Guests: Steffany Stern

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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For some, the journey to their MS diagnosis is relatively quick and straightforward. For others, it can be lengthy and convoluted, sometimes  taking years.

Joining me to talk about some of the twists and turns that can pop up on the road to being diagnosed with MS is Dr. Michael Robers, a neurologist in the Multiple Sclerosis Program and an assistant professor in the Department of Neurology at Barrow Neurological Institute.

We're also talking about a study that measured MS prevalence among Black, White, Hispanic, and Asian people.

We'll share results of a survey that looked at cannabis use among Canadians living with MS.

We're also sharing results of a survey that looked at where Americans living with MS get their information about cannabis.

If you're an MS caregiver, healthcare professional, or researcher, we'll give you the details about an important survey that you can participate in.

And we're even taking a moment for a special thank you!

We have a lot to talk about! Are you ready for RealTalk MS??!

A quick look at the numbers and a heartfelt thank you!   :22

A date that each person remembers 2:59

Study looks at MS prevalence among different racial and ethnic groups  4:36

Survey results show cannabis use among Canadians with MS    7:41

Where do you get your information?  10:07

Survey results show where Americans with MS get their information and guidance about cannabis  11:20

An important survey for MS caregivers, healthcare professionals, and researchers  14:37

Dr. Michael Robers discusses the journey to an MS diagnosis  17:03

Share this episode  31:20

Download the RealTalk MS app for your iOS or Android device   31:41

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/245

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

STUDY: Racial and Ethnic Disparities in Multiple Sclerosis Prevalence https://n.neurology.org/content/98/18/e1818

SURVEY: Medical Cannabis Used in Canadians with Multiple Sclerosis https://www.msard-journal.com/article/S2211-0348(22)00153-5/fulltext

SURVEY: Sources of Cannabis Information and Medical Guidance for Neurologic Use: NARCOMS Survey of People Living with Multiple Sclerosis https://cp.neurology.org/content/12/2/102

iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers

iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 245 Guests: Dr. Michael Robers

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Planning for your financial future is good advice for everyone. But when you're living with MS, financial planning is an important part of the game plan for living your best life.

Joining me to talk about the things you'll want to keep in mind as you develop your personal financial roadmap is Dick Bell, a professional financial advisor who has worked with more than 600 clients who are living with MS.

We're also talking about how Russia's invasion of Ukraine is impacting MS clinical research.

We'll tell you about a study that's focusing on a novel approach to promoting remyelination.

We're sharing the results of a study that identified a biomarker that may predict future MS disease progression. 

And we'll share survey results that show all the ways that MS can impact life.

We have a lot to talk about! Are you ready for RealTalk MS??!

How Russia's invasion of Ukraine is impacting MS clinical research   1:35

A study in the U.K. will test a novel approach to promoting remyelination:  3:27

Study identifies a biomarker that may predict future MS disease activity  7:26

FDA awards Breakthrough Device Designation to a technology that may speed MS diagnosis and predict future disease activity   9:56

Survey results show all the ways MS impacts your life  11:20

Financial advisor Dick Bell discusses your long-term financial strategy for living with MS  15:39

Share this episode  28:05

Download the RealTalk MS app for your iOS or Android device   28:25

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/244

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

CCMR Two: A Phase IIa, Randomised, Double-Blind, Placebo-Controlled Trial of the Ability of Metformin and Clemastine to Promote Remyelination in People with Relapsing-Remitting Multiple Sclerosis Already on Disease-Modifying Therapy https://clinicaltrials.gov/ct2/show/NCT05131828

STUDY: Prognostic Value of Serum Filament Light Chain for Disease Activity and Worsening in Patients with Relapsing Multiple Sclerosis: Results from the Phase 3 ASCLEPIOS I and II Trials https://frontiersin.org/articles/10.3389/fimmu.2022.852563/full

iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers

iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 244 Guests: Dick Bell

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Living with MS is expensive. And if you're curious about how expensive living with MS is, why it's so expensive, and what can be done about it, then you're going to be interested in the results of a study that was commissioned by the National MS Society.

Joining me to talk about what this study revealed and what it means to individuals and families affected by MS are Dr. Bruce Bebo, the Executive Vice-President of Research at the National MS Society, and the MS Society's Executive Vice-President of Advocacy and Healthcare Access, Bari Talente.

We're also talking about a study that reveals a connection between MS severity and geography.

Have you ever wondered why some people develop severe MS while others don't? We're sharing the details of a study that's hoping to answer that question.

And if you're a caregiver for someone who's living with MS, or you're a healthcare provider who interacts with MS caregivers, or you're a researcher interested in MS caregivers, we'll explain why iConquer MS would like just a few minutes of your time.

We have a lot to talk about! Are you ready for RealTalk MS??!

Measuring the financial impact of MS  :22

A study shows MS severity correlates to geographic latitude  1:47

A new study will try to understand why some people develop severe MS while others don't  4:13

iConquer MS is expanding to include MS caregivers but first they need your help  7:26

Dr. Bruce Bebo and Bari Talente break down the results of a study that focused on the cost of living with MS   9:56

Share this episode  29:04

Download the RealTalk MS app for your iOS or Android device   29:25

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/243

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

STUDY: Economic Burden of Multiple Sclerosis in the United States: Estimate of Direct and Indirect Costs https://n.neurology.org/content/early/2022/04/13/WNL.0000000000200150

STUDY: Association of Latitude and Exposure to Ultraviolet B Radiation With Severity of Multiple Sclerosis: An International Registry Study https://n.neurology.org/content/early/2022/04/11/WNL.0000000000200545

University at Buffalo Multiple Sclerosis Research Challenge: Contribute to the CASA-MS Study https://crowdfunding.buffalo.edu/project/29733

iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers

iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 243 Guests: Dr. Bruce Bebo and Bari Talente

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Privacy Policy

Mask mandates have mostly ended, and bars, restaurants, public buildings, and other businesses no longer require proof of vaccination. It looks like the COVID-19 pandemic is over. Except for the fact that we're seeing cases of the latest COVID subvariant continue to rise in cities across the country and around the world. So, how do we navigate this post-pandemic world? And if you happen to be immunocompromised, how do you stay safe?

Joining me as she has throughout the pandemic, with an update including the steps you can take to stay safe as the world re-opens is Dr. Nancy Sicotte. Dr. Sicotte is a professor and Chair of the Department of Neurology at Cedars-Sinai Medical Center in Los Angeles. Dr. Sicotte also Chairs the National MS Society’s National Medical Advisory Committee and she leads the MS Society's COVID-19 Advisory Group.

We're also talking about a workshop that brought together a group of global experts to weigh in on autologous hematopoietic stem cell transplantation (aHSCT) as a viable treatment for MS.

We're sharing the details about an upcoming clinical trial that will test a myelin-restoring treatment for people with relapsing-remitting MS.

Evidence from multiple studies shows that members of the Black and Hispanic communities who live with MS can experience a more severe disease course and a higher disability burden. We'll share the details of a presentation from the Academy of American Neurology annual meeting that sheds new light on what may be driving these disparities. 

And we'll tell you how you can register to participate in the National African-Americans with MS Registry.

We have a lot to talk about! Are you ready for RealTalk MS??!

Welcome to the Next Normal!  :22

ECTRIMS hosts an Autologous Hematopoietic Stem Cell Transplantation (aHSCT) workshop  1:45

FDA Approves clinical trial for a myelin-restoring treatment  6:04

New data may explain racial and ethnic disparities in MS disease severity and treatment  7:45

The National African Americans with MS Registry  10:13

Dr. Nancy Sicotte explains what people with MS need to know to stay safe as they re-enter a post-pandemic world   11:52

Share this episode  32:31

Download the RealTalk MS app for your iOS or Android device   32:51

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/242

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

ECTRIMS Focused Workshop: Autologous Hematopoietic Stem Cell Transplantation For Treatment of MS and Related Diseases https://ectrims.eu/ongoing-educational-programmes/focused-workshops

National MS Society Recommendations for aHSCT-Bone Marrow Transplant for MS https://nationalmssociety.org/About-the-Society/News/National-MS-Society-Releases-Recommendations-for-a

National African Americans with MS Registry https://www.naamsr.org

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 242 Guests: Dr. Nancy Sicotte

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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I spent last week attending the American Academy of Neurology (AAN) Annual Meeting and in this week's episode of RealTalk MS, I'm sharing an overview of what I saw and what I heard.

Each year at the AAN meeting, the American Academy of Neurology and the National MS Society award the John Dystel Prize for MS Research. Joining me on today's podcast is this year's recipient of the Dystel Prize, Professor Xavier Montalban.

We're also talking about how the COVID-19 pandemic has affected MS research and clinical care.

We're sharing encouraging news about two potential disease-modifying therapies.

And we'll share some of the over-arching themes that kept popping up in a number of different meetings, presentations, and conversations during the AAN annual meeting.

We have a lot to talk about! Are you ready for RealTalk MS??!

The impact of the pandemic on MS research and clinical care   :53

Results of Phase 2 extension study show Evobrutinib effective in reducing relapse rates in relapsing forms of MS   4:53

Results of Ublituximab Phase 3 post-hoc analyses announced    7:16

Dr. Stephen Hauser receives the Scientific Breakthrough Award  9:25

The importance of making complex science easy to understand for people affected by MS  10:29

The importance of increasing clinical trial participation among members of minority communities  12:48

The importance of caring for the caregiver  14:04

John Dystel Prize for MS Research awarded to Prof. Xavier Montalban  15:40

My conversation with John Dystel Prize recipient Professor Xavier Montalban  16:25

Share this episode  24:51

Have you downloaded the RealTalk MS app?   25:12

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/241

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

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RealTalk MS Episode 241 Guests: Professor Xavier Montalban

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Research has shown that hypnosis is an effective treatment for managing chronic pain, including pain associated with MS. 

My guest, Dr. Mark Jensen, is a Professor and Vice-Chair of the Department of Rehabilitation Medicine at the University of Washington. Dr. Jensen has devoted his career to developing effective treatments for pain and is an expert on hypnotic interventions.

We're also talking about a research team that may have learned how to successfully penetrate the blood-brain barrier (and why that could be great news for people living with MS!).

We'll share the results of a 10-year study in France that showed very positive outcomes for people living with highly active relapsing-remitting MS.

We'll tell you about 66 research projects that have just been funded by the MS Society of Canada.

And we'll share results from a survey that identify pandemic-specific depression and anxiety among people living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

Researchers may have found a way through the blood- brain barrier   1:17

10-year study reveals surprising results   4:19

MS Society of Canada announces funding for 66 research projects    8:07

Researchers identify pandemic-related depression among people living with MS  9:11

Dr. Mark Jensen discusses treating MS-related chronic pain with hypnosis  12:43

Share this episode  30:58

Have you downloaded the RealTalk MS app?   31:19

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/240

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

STUDY: Endothelial Unc5B Controls Blood-Brain Barrier Integrity https://www.nature.com/articles/s41467-022-28785-9

STUDY: Ten-Year Follow-Up After Mitoxantrone Induction For Early Highly Active Relapsing-Remitting Multiple Sclerosis: An Observational Study of 100 Consecutive Patients https://sciencedirect.com/science/articles/abs/pii/5003578722000431

MS Society of Canada Research Funding Announcement https://mssociety.ca/information-for-researchers/funding-announcements

National MS Society MS Navigator Contact Info Phone: (800) 344-4867 Email: [email protected]

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

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Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 240 Guests: Dr. Mark Jensen

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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A decade ago, the International Progressive MS Alliance didn't exist. Today, it can be credited with changing the global conversation about progressive MS research, elevating the progressive MS research agenda and moving the work forward. A few weeks ago, the Alliance announced the details of an ambitious strategic plan that will guide their work over the next 3 years. 

Joining me to talk about the new goals that were set by the Alliance, and what that means for people affected by progressive MS, is the Chair of the Alliance's Scientific Steering Committee, Dr. Robert Fox.

The MS International Federation conducted a survey and we're wondering whether the responses have raised a larger question?

We're also talking about a study that showed how an online mindfulness program significantly improved depression for people living with MS.

We're sharing study results that show your nose knows when your DMT is working well for you.

We'll also share the details about an exciting undertaking at the University of Colorado that may lead to treating people so that they completely avoid the symptoms of MS.

And we'll tell you about a small trial that demonstrated the effectiveness of an experimental stem cell therapy as a potential treatment for progressive MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

International Progressive MS Alliance unveils a new 3-year strategic plan  :22

Survey results raise a larger question -- How do we share MS research news with people affected by MS???  1:04

Online mindfulness provides significant improvement for managing depression among people with MS    16:14

Using your nose to determine the efficacy of your disease-modifying therapy  8:33

NeuroGenesis cell therapy shows promise as a potential treatment for progressive MS  14:14

Dr. Robert Fox discusses what's next for the International Progressive MS Alliance  17:28

Share this episode  28:07

Have you downloaded the RealTalk MS app?   28:27

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/239

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

International Progressive MS Alliance https://progressivemsalliance.org

STUDY: A Randomized Controlled Trial of a Web-Based Mindfulness Programme for People With MS With and Without a History of Recurrent Depression https://journals.sagepub.com/doi/10.1177/13524585211068002

STUDY: Olfactory Threshold Predicts Treatment Response in Relapsing Multiple Sclerosis https://journals.sagepub.com/doi/10.1177/1354285221079744

STUDY: Effects of Mesenchymal Stem Cell Transplantation on Cerebrospinal Fluid Biomarkers in Progressive MS https://academic.oup.com/stcltm/article/11/1/55/6528889

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

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Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 239 Guests: Dr. Robert Fox

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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