RealTalk MS

We've been using the same MS clinical course descriptors (relapsing-remitting, secondary progressive, and primary progressive) for almost three decades. As research has provided so much additional information and insight, is it time to update the way we describe, diagnose, and treat MS?

The International Advisory Committee on Clinical Trials in Multiple Sclerosis has established a working group to explore this question. And, as a means of eliciting feedback from stakeholders around the world, a global survey was launched.

The National MS Society's Chief Advocacy, Services, and Science Officer, Dr. Tim Coetzee, joins me to share the results of this survey, which may represent a first step toward delivering next-generation MS care.

We're just two days away from the Hispanic/Latinx MS Experience Summit! We'll tell you why you don't want to miss this free online event, and we'll even tell you how to register.

We're sharing the results of a study that provides strong evidence for adopting hematopoietic stem cell transplantation (aHSCT) as a standard treatment option for people living with relapsing-remitting MS.

And we're sharing evidence from a Phase 3 clinical trial that demonstrates how cognitive behavioral therapy delivered over the internet significantly reduces depressive symptoms and improves the quality of life for people with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: When it comes to adopting a new framework for describing MS, the survey says... :22

The Hispanic-Latinx MS Experience Summit is just two days away! 2:02

Swedish study shows that autologous hematopoietic stem cell transplantation (aHSCT) is an effective treatment for adults with relapsing-remitting MS 3:41

Phase 3 clinical trial shows that cognitive behavioral therapy delivered over the internet significantly reduces depressive symptoms among people liviing with MS 6:07

Dr. Tim Coetzee shares the results of a global survey that asked whether it's time to update the way we describe, diagnose, and treat MS 9:36

Share this episode 27:21

Have you downloaded the free RealTalk MS app? 27:42

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/319

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Do the Current MS Clinical Course Descriptors Need to Change and If So, How?: A Survey of the MS Community https://journals.sagepub.com/doi/10.1177/13524585231196786

RealTalk MS Episode 280: How the Proposed Framework for Diagnosing and Treating MS Will Affect You with Dr. Tim Coetzee https://realtalkms.com/280

Register for the Hispanic/Latinx MS Experience Summit https://nationalmssociety.org/Resources-Support/Library-Education-Programs/Hispanic-Latinx-MS-Experience-Summit

STUDY: Heaematopoietic Stem Cell Transplantation for Treating Multiple Sclerosis in Sweden: An Observational Cohort Study https://jnnp.bmj.com/content/early/2023/08/14/jnnp-2023-331864

National MS Society Recommendations for aHSCT-Bone Marrow Transplant for MS https://www.nationalmssociety.org/About-the-Society/News/National-MS-Society-Releases-Recommendations-for-a

STUDY: Internet-Derived Cognitive Behavioural Therapy Programme to Reduce Depressive Symptoms in Patients with Multiple Sclerosis: A Multicentre, Randomised, Controlled Phase 3 Trial https://sciencedirect.com/science/article/pii/S2589750023001097

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 319 Guest: Dr. Tim Coetzee

In this episode of RealTalk MS, we're talking about what you should be talking about with your neurologist or MS Specialist. Shared decision-making is a key component of patient-centered health care. It's a process in which clinicians and patients work together to make evidence-based decisions on tests, treatments, and care plans that balance risks and expected outcomes with patient preferences and values.

But is shared decision-making actually occurring? Or are people living with MS still being handed a bunch of pamphlets published by different pharmaceutical companies and being asked to read them and let their doc know which disease-modifying therapy they'd like to start? How do we bridge the gap between the promise of shared decision-making and what, for too many people living with MS, is still an unfortunate reality?

Dr. Lilyana Amezcua joins me to share her thoughts on how to start the kinds of conversations you should be having with your neurologist or MS specialist.

Dr. Amezcua is an Associate Professor of Neurology, a diversity, equity, and inclusion champion, and the fellowship program director at the University of Southern California Keck School of Medicine.

The National MS Society is hosting the second annual Hispanic/Latinx MS Experience Summit next week. We're sharing all the details, and we'll tell you how you can register for this free virtual event.

We'll fill you in on the European Medicine Agency's approval of the first biosimilar for treating MS.

And we're sharing the results of an important study that focused on how COVID mRNA vaccines affect people living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Getting shared decision-making right :22

The Hispanic/Latinx MS Experience Summit is happening Oct. 12th! 2:10

EMA approves the first biosimilar to treat MS 3:54

Study focuses on the affect of COVID mRNA vaccines on people living with MS 4:39

Dr. Lilyana Amezcua discusses how to make shared decision-making work for you and your neurologist 8:57

Share this episode 34:35

Have you downloaded the free RealTalk MS app? 34:55

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/318

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Register for the Hispanic/Latinx MS Experience Summit https://nationalmssociety.org/Resources-Support/Library-Education-Programs/Hispanic-Latinx-MS-Experience-Summit

RealTalk MS Episode 315: Understanding Generic and Biosimilar Drugs for MS with Dr. Jiwon Oh https://realtalkms.com/315

STUDY: mRNA Covid-19 Vaccination Does Not Exacerbate Symptoms or Trigger Neural Antibody Response in Multiple Sclerosis https://nn.neurology.org/content/10/6/e200163

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 318 Guest: Dr. Lilyana Amezcua

RealTalk MS is now 6 years old! We've covered a lot of ground in more than 300 episodes over the past 6 years. And I'm marking our 6-year anniversary by highlighting the most impactful conversations we've had in each of the past 6 years.

We have a lot to talk about! Are you ready for RealTalk MS??!

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/317

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS Episode 2: The Congressional Threat to Your Healthcare https://realtalkms.com/2

RealTalk MS Episode 21: MS Advocacy: What It Is and Why It's So Important https://realtalkms.com/21

RealTalk MS Episode 81: The Prevalence of MS with National MS Society CEO Cyndi Zagieboylo, Dr. Bruce Bebo, and Dr. Ruth Ann Marrie https://realtalkms.com/81

RealTalk MS Episode 125: The Pathways to Cures Think Tank https://realtalkms.com/125

RealTalk MS Episode 208: COVID-19 Vaccine Update: The Third Dose and MS with Dr. Nancy Sicotte and Victoria Holmes https://realtalkms.com/208

RealTalk MS Episode 229: Evidence Shows MS Is Triggered by the Epstein-Barr Virus with Dr. Kassandra Munger and Dr. AJ Joshi https://realtalkms.com/229

RealTalk MS Episode 231: Evidence Shows EBV Triggers MS -- Understanding the Impact of this Breakthrough Research with Dr. Bruce Bebo https://realtalkms.com/231

RealTalk MS Episode 279: A New Framework for Researching, Diagnosing, and Treating MS with Professor Tanja Kuhlmann https://realtalkms.com/279

RealTalk MS Episode 280: How the Proposed Framework for Diagnosing and Treating MS Will Affect You with Dr. Tim Coetzee https://realtalkms.com/280

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 317

It's not unusual to see sex and intimacy become unintended and unnecessary collateral damage in the day-to-day-challenges of living with MS. But it doesn't have to be that way.

Madelyn Esposito, LPC, NCC, CST, joins me to discuss some of the common sexual problems faced by people living with MS, ways to maintain intimacy in your relationships, and tips for maintaining a healthy sex life.

Kristine Werner-Ozug and Cheryl Weeks-Frey take you inside the workings of the MS Society's Community Review of MS Research Committee.

We're also sharing important survey results that support updating the way that we describe MS, research MS, and treat MS.

We'll give you the details of a novel inverse vaccine that's been shown to stop the autoimmune response associated with MS.

And we're congratulating Dr Rhonda Voskuhl for being named the first recipient of the Rachel Horne Prize for Women's Research in MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Let's talk about sex and MS :22

Next Week: It's our 6th anniversary! 1:38

Kristine Werner-Ozug and Cheryl Weeks-Frey share their experiences as members of the National MS Society's Community Review of MS Research Committee 2:22

Survey results support updating the MS clinical course descriptors 9:43

An inverse vaccine stops the animal model of MS 13:43

Dr. Rhonda Voskuhl is the first winner of the Rachel Horne Prize for Women's Research in MS 16:40

Sex therapist Madelyn Esposito shares tips for maintaining intimacy and enjoying a healthy sex life when you're living with MS 18:31

Share this episode 29:28

Have you downloaded the free RealTalk MS app? 29:48

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/316

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS Episode 280: How the Proposed Framework for Diagnosing and Treating MS Will Affect You with Dr. Tim Coetzee https://realtalkms.com/280

Do the Current MS Clinical Course Descriptors Need to Change and If So, How? A Survey of the MS Community https://journals.sagepub.com/doi/10.1177/13524585231196786

STUDY: Synthetically Glycosolated Antigens for the Antigen-Specific Suppression of Established Immune Responses https://nature.com/articles/s41551-023-01086-2

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 316 Guests: Kristine Werner-Ozug, Cheryl Weeks-Frey, and Madelyn Esposito

Just a couple of weeks ago, the FDA approved the first biosimilar medication for treating MS. As generics and now, biosimilars, become more available, it seems like the right time for us to get clear on the similarities and differences between generics, biosimilars, and the name-brand drugs that they mimic.

Dr. Jiwon Oh joins me to explain everything you need to know to be an informed medical consumer when it comes to generic and biosimilar disease-modifying therapies. Dr. Oh is a neurologist, scientist, and the Medical Director of the Barlo Multiple Sclerosis Program at St. Michael's Hospital in Ontario.

We'll also tell you about a simple blood test that can measure MS disease activity.

Izzy Abbas, the Co-Chairperson of the Paralyzed Veterans of America MS Committee will explain how the PVA supports veterans who are living with MS.

We're sharing the details of a large study that determined routine vaccinations don't cause MS relapses.

And if you're in New York and you're ready to laugh for a good cause, we have the details about the StandUp2MS comedy club benefit at Gotham Comedy Club. It's less than a week away!

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Generic and biosimilar drugs for MS :22

A simple blood test that can assess MS disease activity 1:51

Izzy Abbas explains how the Paralyzed Veterans of America supports veterans living with MS 7:19

The StandUp2MS comedy club benefit is less than a week away! 17:28

Study results show that routine vaccinations don't cause MS relapses 18:37

Dr. Jiwon Oh explains the differences and similarities between generics, biosimilars, and the name-brand drugs that they mimic 21:19

Share this episode 37:40

Have you downloaded the free RealTalk MS app? 38:00

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/315

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

STUDY: Clinical Validation of a Multi-Protein, Serum-Based Assay for Disease Activity Assessments in Multiple Sclerosis https://www.sciencedirect.com/science/article/pii/S1521661623004515

Paralyzed Veterans of America https://pva.org

Standup2MS Comedy Club Benefit https://standup2ms.org/comedy-club-benefit

STUDY: Vaccines and the Risk of Hospitalization for Multiple Sclerosis Flare-Ups https://jamanetwork.com/journals/jamaneurology/article-abstract/2809144

National MS Society: Detailed information on vaccinations for people living with MS https://www.nationalmssociety.org/Living-Well-With-MS/Diet-Exercise-Healthy-Behaviors/Vaccinations#section-1

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 315 Guest: Izzy Abbas, Dr. Jiwon Oh

When you're living with MS, managing your pelvic floor health may not be among the first things you think about. But pelvic floor dysfunction, and the problems that arise from it, like bladder and bowel issues, can seriously impact your health, well-being, and quality of life.

Jill Ehrmantraut, a physical therapist and women's health clinical specialist with advanced training in pelvic rehabilitation, joins me to explain what pelvic floor rehab is all about, why it's important, and how you can get started on the path to improving your pelvic floor health.

We'll also tell you about the first 10 drugs that will be subject to price negotiations between Medicare and the companies that manufacture these drugs. (And we'll tell you how that's going to benefit tens of thousands of people living with MS)

We'll share the details of how you can weigh in on setting future research priorities for studying women's health in MS.

We'll let you know how you can participate in the Patient Community Day at ECTRIMS, the largest MS research conference in the world.

If you're in New York and you're ready to laugh for a good cause, we have the details about the upcoming StandUp2MS comedy club benefit at Gotham Comedy Club.

And we're sharing U.S. News & World Report's ranking of the best hospitals in the U.S. for neurology and neurosurgery.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Pelvic floor rehab can be a difference-maker in living your best life with MS :22

CMS announces the first 10 prescription drugs for which Medicare will negotiate prices 1:19

You can help set future research priorities for studying women's health in MS 3:00

The largest MS research conference in the world is hosting a Patient Community Day 4:17

The StandUp2MS comedy club benefit is less than two weeks away! 5:45

U.S. News & World Report has issued its ranking of the top hospitals in the U.S. for neurology and neurosurgery 6:58

Jill Ehrmantraut explains what pelvic floor health and why it's especially important when you're living with MS 9:52

Share this episode 22:37

Have you downloaded the free RealTalk MS app? 22:57

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/314

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

SURVEY: Research Priorities in Women's Health in Multiple Sclerosis https://ais.swmed.edu/redcap/surveys/?s=8XJPD3PLCJ483KRL

MSMilan Patient Community Day Information and Registration https://ectrims.edu/msmilan2023-msmilan-patient-community-day/

Standup2MS Comedy Club Benefit https://standup2ms.org/comedy-club-benefit

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 314 Guest: Jill Ehrmantraut

Fire, flood, record-setting heat, tropical storm, earthquake -- we've seen it all in the past several weeks! Natural disasters can present a whole series of unique challenges for people affected by MS.

Last year, I had an opportunity to talk about disaster preparedness for people affected by MS with Mary Casey-Lockyer, the Senior Medical Advisor to Disaster Operations at the American Red Cross. As extreme weather events become a more frequent and regular occurrence in our everyday weather patterns, I thought it made sense to revisit my conversation with Mary. Mary has just recently retired from her position at the Red Cross, but I think you'll find her tips and strategies as worthwhile and valuable today as they were a year ago.

We'll also tell you about Tyruko, the first biosimilar to receive FDA approval for treating MS (and we'll make sure you know exactly what biosimilars are and where they fit in the spectrum of pharmaceutical treatments).

We'll share the results of an important clinical trial that may cause experts to re-think when MS begins and when it should be treated.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Revisiting disaster preparedness for people affected by MS :22

The FDA has approved the first biosimilar for treating MS 1:38

Results from a clinical trial show that treating RIS with Aubagio significantly reduces the likelihood of developing MS 4:34

Mary Casey-Lockyer discusses how someone living with MS should prepare for a natural disaster 7:39

Share this episode 28:13

Have you downloaded the free RealTalk MS app? 28:33

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/313

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

STUDY: Teriflunomide and Time to Clinical Multiple Sclerosis in Patients with Radiologically Isolated Syndrome https://jamanetwork.com/journals/jamaneurology/articles-abstract/2808741

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 313 Guest: Mary Casey-Lockyer

Contrary to what was once believed to be true, we now know that exercise and physical activity can deliver several important benefits for people living with MS, and actually improve your quality of life. Experts recommend exercise and physical activity for everyone living with MS, at every level of ability.

Dr. Gretchen Hawley joins me this week to talk about what kinds of exercises you can and should be doing -- at your level of ability.

We'll also tell you about an experimental Epstein-Barr Virus vaccine that was shown to induce a durable immune response in mice. (And we'll remind you why experts believe that an EBV vaccine could eliminate most of the MS in the world!)

And we'll give you the details of the National MS Society's latest $19.4 million investment in research focused on stopping MS in its tracks, restoring lost function, and ending MS forever.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Dr. Gretchen Hawley adapts MS-specific exercise for every level of ability :22

An experimental EBV vaccine induces a durable immune response in mice 1:59

The National MS Society invests $19.4 million in research to drive Pathways to Cures 4:38

Dr. Gretchen Hawley discusses adapting MS-specific exercises for every level of ability 7:38

Share this episode 28:38

Have you downloaded the free RealTalk MS app? 28:59

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/312

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

The MSing Link Online Wellness Program for Multiple Sclerosis https://www.doctorgretchenhawley.com/TheMSingLink

The MSing Link: The Essential Guide to Improve Walking, Strength, & Balance for People with Multiple Sclerosis https://www.amazon.com/Msing-Link-Essential-Strength-Sclerosis/dp/B0C9SQHJDM

STUDY: Lymph Node Targeted Multi-Epitope Subunit Vaccine Promotes Effective Immunity to EBV in HLA-Expressing Mice https://nature.com/articles/s41467-023-39770-1

National MS Society Commits $19.4 Million for Research to Drive Pathways to Cures https://nms2cdn.azureedge.net/cmssite/nationalmssociety/media/msnationalfiles/research/newresearchjune2023.pdf

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 312 Guest: Dr. Gretchen Hawley

Rehabilitation can help people regain, keep, or improve the physical or cognitive abilities they need to successfully navigate their daily lives, which makes it an important aspect of managing MS. In this episode of RealTalk MS, we're focusing on a concept that may not be as familiar to you -- prehabilitation, a proactive approach to maintaining your mobility and independence longer.

Returning to RealTalk MS to discuss the value and benefits of prehabilitation is the National MS Society's Associate Vice-President for Research, Dr. Kathy Zackowski.

This week, you'll also meet Matt Knaggs. Matt was diagnosed with MS in 2020, and in a short amount of time, Matt has literally covered a lot of ground, including running a 12-hour ultra-marathon and launching a Facebook group with a unique perspective.

And we'll remind you that this Thursday, August 17th, is Burgers to Beat MS day at A&W locations throughout Canada.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Prehabilitation can make a difference in your future well-being :22

This Thursday is Burgers to Beat MS day in Canada! 1:20

Matt Knaggs talks about running the distance because of MS 2:32

Dr. Kathy Zackowski explains how prehabilitation can be a difference-maker in your future well-being 19:36

Share this episode 38:54

Have you downloaded the free RealTalk MS app? 39:15

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/311

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Burgers to Beat MS https://BurgersToBeatMS.ca

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 311 Guests: Matt Knaggs and Dr. Kathy Zackowski

Dr. Stephen Hauser's research as a physician-scientist has revolutionized our understanding of the genetics, immunology, and treatment of MS. It was Dr. Hauser's research that led to the development of a b-cell therapy for MS, which has been shown to be highly effective in treating all forms of MS and the only treatment approved for treating progressive MS.

Dr. Hauser joins me this week, to discuss some of the pivotal moments in his remarkable career.

Dr. Hauser's memoir, The Face Laughs While the Brain Cries: The Education of a Doctor, goes well beyond the expected autobiography and offers us an opportunity to silently observe the process of scientific discovery. If you're curious about how we know what we know about multiple sclerosis, but you aren't ready to make your way through the dry prose of a scientific journal, this is the book for you.

The World Health Organization has added three disease-modifying therapies for MS to its Essential Medicines List. We'll share the details and tell you why this groundbreaking decision is so important.

We're sharing the results from a clinical trial that provide evidence that starting a disease-modifying therapy early slows MS progression.

And we'll remind you that August 17th is Burgers to Beat MS day at A&W locations throughout Canada.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Dr. Stephen Hauser reflects on his remarkable career :22

The World Health Organization has added three disease-modifying therapies for MS to its Essential Medicines List 1:57

Study results show that starting a disease-modifying therapy early slows MS progression 4:12

August 17th is Burgers to Beat MS day in Canada! 7:01

Dr. Stephen Hauser discusses his remarkable career as a physician-scientist whose discoveries have had an enormous impact on people affected by MS 8:23

Share this episode 29:23

Have you downloaded the free RealTalk MS app? 29:44

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/310

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

The Face Laughs While the Brain Cries: The Education of a Doctor by Dr. Stephen Hauser https://amazon.com/Face-Laughs-While-Brain-Cries/dp/1250283892

MSIF: WHO's Decision Brings Hope to People with MS Worldwide https://msif.org/news/2023/07/25/whos-decision-brings-hope-to-people-with-ms-worldwide

STUDY: Association of Very Early Treatment Initiation with the Risk of Long-Term Disability in Patients With a First Demyelinating Event https://n.neurology.org/content/early/2023/07/19/WNL.0000000000207664

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 310 Guest: Dr. Stephen Hauser