RealTalk MS

Welcome to the 300th episode of RealTalk MS! Yikes!

In last week's episode of the podcast, Dr. Bruce Bebo walked us through the latest research on the prevalence of MS in the United States, and the data serves as a clear reminder that anyone can get MS.

However, not everyone with MS receives the same quality of care. My guest today is clinician-researcher Dr. Lilyana Amezcua, and we're discussing her work in exploring healthcare disparities among minority populations.

In addition to celebrating our 300th episode, we're also celebrating World MS Day! We'll let you know where you can join the virtual festivities.

And, as our RealTalk MS Listener Survey ends, we're announcing the winner of a $100 Amazon Gift Card.

Can Do MS is hosting a day-long in-person and virtual More About MS program this Friday, June 2. We'll give you the details and tell you how you can register for this free event.

And the International Progressive MS Alliance has announced a large-scale research program focused on developing solutions to some of the most challenging symptoms that people living with progressive MS face. We're sharing the details.

We have a lot to talk about! Are you ready for RealTalk MS??!

Welcome to our 300th episode! :25

It's World MS Day! 1:55

Congratulations to the winner of a $100 Amazon gift card! 2:56

Details and registration info for the Can Do MS More About MS Program 3:43

The International Progressive MS Alliance announces a large-scale research program 5:17

Dr. Lilyana Amezcua discusses healthcare disparities among minority communities 7:51

Share this episode 32:12

Thanks for listening, and here's to the next 300!! 32:32

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/300

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

World MS Day on the Web https://worldmsday.org

World MS Day on Facebook https://facebook.com/worldmsday

REGISTER for the Can Do MS More About MS Program https://cando-ms.org/more-about-ms-registration

Prioritizing Progressive MS Rehabilitation Research: A Call from the International Progressive MS Alliance https://journals.sagepub.com/doi/pdf/10.1177/1352458521999970

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 300 Guests: Dr. Lilyana Amezcua

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Evidence shows that MS can affect members of minority communities differently. But how does that impact the total number of people who are living with MS? For multiple reasons, it's a tricky problem to solve. Yet, it's important that the numbers reflect everyone living with MS and no one is left behind.

This week, the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, is on hand to walk us through the just-published results of a study that provides a more granular estimate of the prevalence of MS in the United States, analyzing it by race, ethnicity, age, sex, and geographic region.

We're also reminding you that this is the final week for you to spend a quick couple of minutes taking the RealTalk MS listener survey...and, maybe, win a $100 Amazon gift card.

On June 14th and 15th, the National MS Society is hosting the virtual 2023 Black MS Experience Summit. And we're sharing all the registration info.

Can Do MS is hosting a day-long in-person and virtual More About MS program on June 2. We'll tell you how you can register for this free event.

We'll give you the details about the latest advocacy win for people living with MS.

And we'll tell you about the new MS Society in the UAE.

We're sharing the results of a study that analyzed the benefits of virtual reality therapy for improving balance among people living with MS.

And we'll tell you about the somewhat puzzling results of a study of the incidence of MS in the U.K.

We have a lot to talk about! Are you ready for RealTalk MS??!

Next Week: Episode 300 (Yikes!) :22

FINAL WEEK: Take the RealTalk MS listener survey...you might win a $100 Amazon gift card! 1:36

This Week: A deep dive into the prevalence of MS in the United States 2:31

Registration info for the 2023 Black MS Experience Summit 3:12

Registration info for the Can Do MS More About MS Program 4:12

An advocacy win! 6:13

An MS Society in the UAE 10:40

STUDY: Virtual reality therapy is shown to improve balance for people living with MS 12:34

STUDY: The incidence of MS in the U.K. has not changed for almost two decades 16:25

Dr. Bruce Bebo walks us through anewly-published study that takes a granular look at the prevalence of MS in the United States 21:09

Share this episode 34:05

Please remember to take our listener survey! 34:26

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/299

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Take the RealTalk MS Listener Survey https://realtalkms.com/survey

STUDY: Population-Based Estimates for the Prevalence of Multiple Sclerosis in the United States by Race, Ethnicity, Age, Sex, and Geographic Region https://jamanetwork.com/journals/jamaneurology/fullarticle/2805038

REGISTER for the National MS Society's 2023 Black MS Experience Summit https://nmss.6connex.com/event/BlackMSExperienceSummit/login

REGISTER for the Can Do MS More About MS Program https://cando-ms.org/more-about-ms-registration

Advocate For Change -- Become an MS Activist https://nationalmssociety.org/advocacy

The National MS Society in the UAE https://www.nationalmssociety.ae

STUDY: Virtual Reality-Based Therapy Improves Balance and Reduces Fear of Falling in Patients with Multiple Sclerosis: A Systematic Review and Meta-Analysis of Randomized Controlled Studies https://jneuroehgrehab.biomedical.com/articles/10.1186/s12984-023-01174-z

STUDY: Incidence, Prevalence, and Co-Occurrence of Autoimmune Disorders Over Time and by Age, Sex, and Socioeconomic Status: A Population-Based Cohort Study of 22 Million Individuals in the U.K. https://thelancet.com/journals/lancet/article/PIIS0140-6736(23)00457-9/fulltext

Take the RealTalk MS Listener Survey https://realtalkms.com/survey

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 299 Guests: Dr. Bruce Bebo

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Don't miss the second installment of our Pathways To Cures Global Summit coverage. For this unprecedented event, the National MS Society brought together the best and brightest minds in MS research, the CEOs of major MS Societies, representatives from the pharmaceutical industry, and people affected by MS to update the scientific foundation of the Pathways To Cures research roadmap and set the global MS research agenda for the next 3-5 years.

In Part 2 of our coverage, we're taking you back inside this historic meeting, where you'll hear from more of the top MS experts in the world who participated in this remarkable event.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: We wrap up our coverage of the Pathways To Cures Global Summit :22

We've learned more about the prevalence of MS in the United States 1:22

Dr. Anne Helme discusses the wide variance in MS treatment 5:13

Dr. Paula Zaratin talks about the importance of research governance 11:01

Dr. Peter Calabresi discusses the uncertainty of living with MS 18:19

Dr. Daniel Ontaneda suggests how people living with MS should be thinking about the Pathways To Cures global research initiative 24:57

Dr. Mitzi Joi Williams discusses the importance of ensuring that the Pathways To Cures initiative doesn't leave anyone behind 30:15

Summing up the Pathways To Cures Global Summit 35:16

Share this episode 36:05

Please remember to take our listener survey! 36:25

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/298

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Take the RealTalk MS Listener Survey https://realtalkms.com/survey

RealTalk MS Episode 297: From the Pathways To Cures Global Summit (Part 1) https://realtalkms.com/297

RealTalk MS Episode 125: From the Pathways To Cures Think Tank https://realtalkms.com/125

RealTalk MS Episode 238: The Pathways To Cures Research Roadmap https://realtalkms.com/238

Pathways To Cures https://nationalmssociety.org/pathways-to-cures

RealTalk MS Episode 81: The Prevalence of MS with National MS Society CEO Cyndi Zagieboylo, Dr. Bruce Bebo, and Dr. Ruth Ann Marrie https://realtalkms.com/81

Take the RealTalk MS Listener Survey https://realtalkms.com/survey

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 298 Guests: Dr. Anne Helme, Dr. Paula Zaratin, Dr. Peter Calabresi, Dr. Daniel Ontaneda, and Dr. Mitzi Joi Williams

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

This past week, the National MS Society hosted the Pathways To Cures Global Summit, bringing together the best and brightest minds in MS research, the CEOs of major MS Societies, representatives from the pharmaceutical industry, and people affected by MS to update the scientific foundation of the Pathways To Cures research roadmap and set the global MS research agenda for the next 3-5 years.

In Part 1 of our coverage, we're taking you inside this historic meeting, where you'll hear from some of the top MS experts in the world who participated in this remarkable event.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: The Pathways To Cures Global Summit :22

My conversation with a distinguished group of CEOs representing 5 major MS Societies 3:04

Tim Coetzee discusses the current state of MS care and the work ahead 9:20

Kathy Smith offers her perspective on the Pathways To Cures Global Summit 14:32

Dr. Anne-Katrin Probstel talks about stopping MS 22:52

Dr. Naila Makhani discusses detecting MS early 33:54

Share this episode 39:17

Please remember to take our listener survey! 39:38

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/297

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Take the RealTalk MS Listener Survey https://realtalkms.com/survey

RealTalk MS Episode 125: From the Pathways To Cures Think Tank https://realtalkms.com/125

RealTalk MS Episode 238: The Pathways To Cures Research Roadmap https://realtalkms.com/238

Pathways To Cures https://nationalmssociety.org/pathways-to-cures

Take the RealTalk MS Listener Survey https://realtalkms.com/survey

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 297 Guests: Cyndi Zagieboylo, Dr. Pam Valentine, Prof. Des Graham, Nick Moberly, Klaus Holm, Tim Coetzee, Kathy Smith, Dr. Anne-Katrin Probstel, and Dr. Naila Makhani

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

This week, we're in New York, attending the Pathways To Cures Global Summit. The National MS Society is convening the world -- bringing together the best and brightest minds in MS research, the CEOs of major MS Societies, representatives from the pharmaceutical industry and people affected by MS -- to update the scientific foundation of the Pathways To Cures research roadmap and set the global MS research agenda for the next 3-5 years. Don't miss next week's episode of RealTalk MS, when you'll hear from many of the experts on hand for this historic meeting.

In this week's episode, we're talking about exacerbations, flares, attacks -- these are just some of the words we use when we're describing an MS relapse. Relapses impact over 85% of the people living with MS. And today, we're reviewing the things you need to know when it comes to MS relapses with Dr. Sam Hooshmand, the Director of the Multiple Sclerosis Clinic at the Milwaukee Veterans Affairs Medical Center, and Assistant Professor of Neurology at the Medical College of Wisconsin.

We're also extending an invitation for you to spend a quick couple of minutes taking the RealTalk MS listener survey...and we're adding some motivation to that invitation by giving you an opportunity to win a $100 Amazon gift card.

We'll introduce you to a remarkable MS research scientist and the Chair of the National MS Society's Scientific Advisory Committee, Dr. Tika Benveniste.

We're sharing the outcome of a study that compared the benefits of yoga and physical therapy for people living with MS.

And we'll tell you about a first-of-its-kind collaboration between Cariloop and Walgreens that's designed to support MS caregivers.

We have a lot to talk about! Are you ready for RealTalk MS??!

Greetings from the Pathways to Cures Global Summit :22

Take the RealTalk MS listener survey...you might win a $100 Amazon gift card! 2:09

This Week: Everything you should know about MS relapses 2:49

Meet the Chair of the National MS Society's Scientific Advisory Committee, Dr. Tika Benveniste 3:35

Study compares the benefits of yoga and physical therapy for people living with MS 16:53

Cariloop and Walgreens announce collaboration to support MS caregivers 21:19

Dr. Sam Hooshmand reviews everything you should know about MS relapses 24:13

Share this episode 34:09

Please remember to take our listener survey! 34:30

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/296

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Take the RealTalk MS Listener Survey https://realtalkms.com/survey

RealTalk MS Episode 125: From the Pathways To Cures Think Tank https://realtalkms.com/125

RealTalk MS Episode 238: The Pathways To Cures Research Roadmap https://realtalkms.com/238

RealTalk MS Special Podcast Series: Barancik Prize Conversations Part 1 https://realtalkms.com/barancik1

RealTalk MS Special Podcast Series: Barancik Prize Conversations Part 2 https://realtalkms.com/barancik2

STUDY: Yoga vs Physical Therapy in Multiple Sclerosis: Results of a Randomized Controlled Trial and the Training Protocol https://journals.sagepub.com/doi/full/10.1177/09727531231161994

Take the RealTalk MS Listener Survey https://realtalkms.com/survey

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 296 Guests: Dr. Tika Benveniste and Dr. Sam Hooshmand

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

In this week's episode, we're talking about a set of MS symptoms that can range in intensity from mildly annoying to completely debilitating. These symptoms include numbness, tingling, pain, that "electric shock" feeling you might experience traveling down the back of your neck, and the infamous MS hug.

Joining me to walk us through how to best manage these sensory symptoms is Dr. Jeffrey Hernandez. Dr. Hernandez is a doctorally prepared nurse practitioner who specializes in multiple sclerosis.

We're also extending an invitation for you to spend a quick couple of minutes taking the RealTalk MS listener survey...and we're adding some motivation to that invitation by giving you an opportunity to win a $100 Amazon gift card.

And we're inviting you to get up close and personal with some of the most brilliant MS researchers in the world in Parts 1 and 2 of our two-part special podcast series, Barancik Prize Conversations.

We'll share an amazing essay about living with progressive MS that was written by author and artist, Elizabeth Jameson, and published in the San Francisco Chronicle.

You'll hear my recent conversation with one of the leading experts in the world on autologous hematopoietic stem cell therapy (aHSCT), Dr. Jeffrey Cohen.

And we'll tell you about how you can participate in the Targeted Exercise for African-Americans with Multiple Sclerosis (TEAAMS) study.

We have a lot to talk aboJut! Are you ready for RealTalk MS??!

Take the RealTalk MS listener survey...you might win a $100 Amazon gift card! :34

This Week: Managing MS Sensory Symptoms 1:13

Don't miss Parts 1 and 2 of our special series, Barancik Conversations 2:08

Elizabeth Jameson's essay in the San Francisco Chronicle 4:26

Dr. Jeffrey Cohen discusses innovation in MS research and autologous hematopoietic stem cell transplantation (aHSCT) 13:23

How you can participate in the Targeted Exerecise for African-Americans with Multiple Sclerosis (TEAAMS) study 25:34

Dr. Jeffrey Hernandez talks about managing numbness, tingling, pain, and other MS sensory symptoms 28:48

Share this episode 41:59

Please remember to take our listener survey! 42:20

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/295

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Take the RealTalk MS Listener Survey https://realtalkms.com/survey

RealTalk MS Special Podcast Series: Barancik Prize Conversations Part 1 https://realtalkms.com/barancik1

RealTalk MS Special Podcast Series: Barancik Prize Conversations Part 2 https://realtalkms.com/barancik2

Project TEAAMS Information and Registration https://projectteamms.ahs.uic.edu PHONE: (833) 727-1887

Take the RealTalk MS Listener Survey https://realtalkms.com/survey

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 295 Guests: Dr. Jeffrey Cohen and Dr. Jeffrey Hernandez

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Welcome to Part 2 of a special two-part RealTalk MS series highlighting conversations with past recipients of the Barancik Prize for Innovation in MS Research.

The Barancik Prize is awarded at the annual meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis, a meeting better known as the ACTRIMS Forum. Several past Barancik Prize winners gathered at the 2023 ACTRIMS Forum to celebrate the 10th anniversary of the Barancik Prize, and I took that opportunity to chat with this remarkable group of MS research all-stars.

Part 2 of Barancik Prize Conversations features the 2018, 2020, and 2022 Barancik Prize winners.

Dr. Katerina Akassolgou, of the Gladstone Institute of Neurological Disease, was awarded the Barancik Prize in 2018 for her work understanding the role of fibrin-related nerve damage in MS and designing potential therapies to prevent neurodegeneration.

Dr. Dwight Bergles, of Johns Hopkins University, received the Barancik Prize in 2020 in recognition of his pioneering research in understanding the brain cells involved in myelin repair.

Dr. Ruth Ann Marrie, of the University of Manitoba, is the 2022 recipient of the Barancik Prize in recognition of her groundbreaking contributions to our understanding of MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

About the Barancik Prize Conversations :18

Dr. Katerina Akassoglou 2:03

Dr. Dwight Bergles 10:00

Dr. Ruth Ann Marrie 20:58

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/barancik2

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Bonus Episode: Barancik Prize Conversations -- Part 2 Guests: Dr. Katerina Akassoglou, Dr. Dwight Bergles, and Dr. Ruth Ann Marrie

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

We're also extending an invitation for you to spend a quick couple of minutes taking the RealTalk MS listener survey...and we're adding some motivation to that invitation by giving you an opportunity to win a $100 Amazon gift card.

And we're inviting you to get up close and personal with some of the most brilliant MS researchers in the world in Part 1 of our two-part special podcast series, Barancik Prize Conversations.

While we're talking about brilliant MS researchers, we're also revealing this year's recipient of the John Dystel Prize for MS Research.

We'll share some of the details surrounding the partial hold that the FDA has imposed on three different Phase 3 clinical trials for a new category of MS disease-modifying therapy.

We'll tell you about a small clinical trial that demonstrated the benefit of telerehabilitation in improving MS-related bladder problems.

And we'll tell you about an upcoming clinical trial for the first MS disease-modifying therapy to be formulated as a nasal spray.

We have a lot to talk about! Are you ready for RealTalk MS??!

Take the RealTalk MS listener survey...you might win a $100 Amazon gift card! :22

This Week: Disclosing your MS in the workplace 1:15

Don't miss Part 1 of our special series, Barancik Conversations 2:07

And the winner of the John Dystel Prize for MS Research is... 4:05

The FDA has put a temporary hold on three Phase 3 clinical trials for a new category of MS disease-modifying therapy 5:42

STUDY: Telerehabilitation shown to be successful in managing MS-related bladder problems 8:39

Tiziana Life Scences announces Phase 2 clinical trial for Foralumab, the first MS disease-modifying therapy to be formulated as a nasal spray 12:05

Christina Forster reviews the things you'll want to consider when you're thinking about disclosing your MS to your employer 14:11

Share this episode 30:01

Please remember to take our listener survey! 30:21

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/292

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Take the RealTalk MS Listener Survey https://realtalkms.com/survey

RealTalk MS Special Podcast Series: Barancik Prize Conversations Part 1 https://realtalkms.com/barancik1

STUDY: Effects of Pelvic Floor Muscle Training Applied with Telerehabilitation in Patients with Multiple Sclerosis Having Lower Urinary Tract Symptoms: A Randomized Controlled Study https://tandfonline.com/doi/abs/10.1080/07399332.2023.2190593

Take the RealTalk MS Listener Survey https://realtalkms.com/survey

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 294 Guests: Christina Forster

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Welcome to Part 1 of a special two-part RealTalk MS series highlighting conversations with past recipients of the Barancik Prize for Innovation in MS Research.

The Barancik Prize is awarded at the annual meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis, a meeting better known as the ACTRIMS Forum. Several past Barancik Prize winners gathered at the 2023 ACTRIMS Forum to celebrate the 10th anniversary of the Barancik Prize, and I took that opportunity to chat with this remarkable group of MS research all-stars.

Part 1 of Barancik Prize Conversations features the 2014 and 2016 Barancik Prize winners.

Dr. Philip De Jager, of Columbia University, was awarded the Barancik Prize in 2014 for applying powerful analytic approaches to better understanding how genes and the environment interact, with the goal of developing personalized treatments for MS and, ultimately, disease prevention.

Dr. Daniel Reich, of the NIH Institute of Neurological Disorders and Stroke, received the Barancik Prize in 2016 for innovating approaches to imaging MS disease activity, creating new pathways to better treatments.

We have a lot to talk about! Are you ready for RealTalk MS??!

About the Barancik Prize Conversations :18

Dr. Philip De Jager 2:03

Dr. Daniel Reich 19:49

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/barancik1

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Bonus Episode: Barancik Prize Conversations -- Part 1 Guests: Dr. Philip De Jager and Dr. Daniel Reich

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

You've told me that the subject of diet and MS is one of your top three interests. And a quick scan of social media platforms reveals that a lot of people living with MS agree!

This week, Dr. Ilana Katz Sand, the Associate Director of the Corinne Goldsmith Dickinson Center for Multiple Sclerosis at Mount Sinai, joins me with an update on what the latest research is revealing about the impact of diet on MS, and to answer that eternal question -- Is there an MS diet?

We're also talking about the launch of OCTOPUS, a groundbreaking clinical trial for progressive MS.

We'll talk with Dr. Erin Longbrake, the principal investigator in CELLO, a national clinical trial that's focused on potentially neutralizing MS before symptoms even develop.

And if you're living with MS and you're looking for one more reason to stop smoking, we're sharing some recently published sobering evidence.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: An update on the impact of Diet on MS :22

OCTOPUS, a groundbreaking clinical trial for progressive MS launches 1:17

Principal investigator Dr. Erin Longbrake discusses the importance of the CELLO study 4:06

STUDY: People with MS who continue to smoke may be facing multiple negative outcomes over time 10:33

Dr. Ilana Katz Sand updates us on the latest research and evidence of how diet impacts MS 16:03

Share this episode 38:58

Have you downloaded the free RealTalk MS app? 39:19

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/293

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Register Your Interest in Participating in OCTOPUS https://ukmsregister.org/octopus

Details about participating in the CELLO Study https://cellostudy.org

STUDY: Influence of Oral Tobacco Versus Smoking on Multiple Sclerosis Disease Activity and Progression https://jnnp.bmj.com/content/early/2023/03/30/jnnp-2022-330848

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 293 Guests: Dr. Erin Longbrake and Dr. Ilana Katz Sand

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS