RealTalk MS

A quick scan of the news on any given day should remind all of us that natural disasters can strike anywhere at any time. Whether it's massive snowstorms, earthquakes, wildfires, hurricanes or floods, no one is immune when Mother Nature chooses to act up. That's why being prepared for a natural disaster is important for everyone. And if you're living with MS, it's especially important for you to have your family's emergency preparedness plan in place.

Senior Medical Advisor to National Disaster Operations at the American Red Cross, Mary Casey-Lockyer, joins me to talk about the things that people living with MS should include in their emergency preparedness plan.

We're also talking with Dr. Aaron Kesselheim, a researcher at Harvard's Brigham and Women's Hospital. And if you're on Lemtrada, Dr. Kesselheim could use your help.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Disaster Preparedness :22

If you're on Lemtrada, Dr. Aaron Kesselheim could use your help 1:43

Mary Casey-Lockery discusses disaster preparedness for people living with MS 10:49

Share this episode 31:22

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Just copy this link & paste it into your text or email: https://realtalkms.com/274

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 274 Guest: Dr. Aaron Kesselheim and Mary Casey-Lockyer

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Spasticity is one of the most common symptoms of MS, impacting up to 80% of the people living with MS. It can feel like mild muscle tightness that you wish would just go away or it can be so painful and debilitating that it keeps you from moving. Dr. Michelle Cameron joins me in this episode to discuss what spasticity is and how to best manage it.

Dr. Cameron is a neurologist and physical therapist, a professor in the Department of Neurology at Oregon Health & Science University, Interim Chief of Neurology at the VA Portland Healthcare System, and Co-Director of the VA MS Center of Excellence West.

We're also talking about a new framework for thinking and talking about MS that's been proposed by an international panel of MS experts.

We'll tell you about a study that looked at polypharmacy and MS (Of course, we'll also tell you what polypharmacy is and why you should be aware of it!)

We'll share the details around the discovery of human antibodies that have been shown to prevent Epstein-Barr infection (And we'll explain why this could be incredibly important)

If you're an MS caregiver, or you know one, I'm asking for just 5 minutes of your time.

We're celebrating National Caregivers Month by breaking down the details of the National Family Caregiving Strategy that was recently submitted to Congress.

And we're celebrating the indomitable quality of the human spirit by sharing the story of Eric Domingo Roldan and his mom, Sylvia.

We have a lot to talk about! Are you ready for RealTalk MS??!

Thanksgiving is two days away! :22

This Week: Managing Spasticity 1:02

Experts propose a new framework for thinking about and talking about MS 2:07

Polypharmacy and MS 5:55

Researchers identify antibodies that prevent Epstein-Barr Virus infection 9:02

If you're an MS caregiver, or you know one, can I have 5 minutes of your time? 11:30

The 2022 National Family Caregivig Strategy 13:55

Eric Domingo Roldan and his mom, Sylvia, make it into the Guinness Book of World Records 16:34

Dr. Michelle Cameron discusses spasticity and MS 18:40

Share this episode 33:55

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Multiple Sclerosis Progression: Time for a New Mechanism-Driven Frameworkhttps://www.thelancet.com/journals/laneur/article/PIIS1474-4422(22)00289-7/fulltext

Tremlett's MS Research Explained: Polypharmacy and Multiple Sclerosis: A Population-Based Study https://tremlettsmsresearchexplained.wordpress.com/2022/10/27/polypharmacy-and-multiple-sclerosis-a-population-based-study/

STUDY: Polypharmacy and Multiple Sclerosis: A Population-Based Study https://journals.sagepub.com/doi/full/10.1177/13524585221122207

RealTalk MS Episode 229: Evidence Shows MS Is Triggered by the Epstein-Barr Virus with Dr. Kassandra Munger and Dr. AJ Joshi https://realtalkms.com/229

RealTalk MS Episode 231: Evidence Shows EBV Triggers MS: Understanding the Impact of this Breakthrough Research with Dr. Bruce Bebo https://realtalkms.com/231

STUDY: Epstein-Barr Virus gH/gL Has Multiple Sites of Vulnerability for Virus Neutralization and Fusion Inhibition https://cell.com/immunity/fulltext/S1074-7613(22)00544-1

Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver

2022 National Strategy to Support Family Caregivers https://acl.gov/sites/default/files/RAISE_SGRG/NatlStrategyToSupportFamilyCaregivers.pdf

Eric Domingo Roldan's Instagram Handle @eeRiicbcn

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 273 Guest: Dr. Michelle Cameron

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

This week's episode of RealTalk MS was recorded in front of a LIVE audience at the National MS Society's 2022 Leadership Conference.

Joining me in this special episode are Lori Turley, who was diagnosed with MS in 2021, and whose commitment to fundraising and advocacy is already producing dividends, and Dr. Bradley Zuchero, an MS Society-funded research fellow whose lab has discovered the biological mechanism that produces myelin in our central nervous system.

In addition to my questions, our audience has questions for my guests, as well!

We have a lot to talk about! Are you ready for RealTalk MS??!

We're LIVE from the National MS Society's 2022 Leadership Conference in Dallas, Texas :23

MS Society volunteer Lori Turley talks about her fundraising and advocacy efforts, and why they're important 1:38

MS Society-funded research fellow, Dr. Bradley Zuchero, talks about his lab's discovery of the mechanism that brain cells use to produce myelin 13:20

Our live audience has questions for Dr. Zuchero and Lori 22:11

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/272

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 272 Guest: Lori Turley and Dr. Bradley Zuchero

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Joining me to talk about the therapeutic effects of acupuncture in treating MS symptoms are Jennifer Mohr-Boscaino and Ken Bandler. Jennifer is a licensed acupuncturist and the founder of Precious Health Acupuncture in New York, and Ken is a public relations executive who lives with MS and receives acupuncture treatment for his MS symptoms.

We're also talking about how a large MS clinical trial has been able to increase minority participation, and how other MS research studies may be able to learn from this example.

We'll tell you about a study that showed the benefit of COVID-19 mRNA vaccinations and boosters for people living with MS who are on b-cell depleting therapies, like Ocrevus.

And if you're an MS caregiver, or you know one, I'm asking for a favor that will cost you just 5 minutes of your time.

We have a lot to talk about! Are you ready for RealTalk MS??!

Next Week: RealTalk MS recorded LIVE at this week's National MS Society 2022 Leadership Conference :22

Today: It's Election Day in the U.S. Please vote! :41

Your Question Answered: How Big is the ECTRIMS Congress? 1:30

This Week: Acupuncture and MS 3:01

Pragmatic trials may increase minority participation in MS research 4:03

Research supports COVID-19 mRNA vaccination and booster for people with MS on Ocrevus 7:10

If you're an MS caregiver, or you know one, please help me out 10:26

Jennifer Mohr-Boscaino and Ken Bandler discuss the benefits of acupuncture for managing some MS symptoms 14:04

Share this episode 29:02

Download the RealTalk MS app for your iOS or Android device 29:22

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/271

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver

National MS Society: Your Right to Vote and Polling Place Accessibility https://nationalmssociety.org/Get-Involved/Advocate-for-Change/Take-Action/Voter-Info

DELIVER-MS Study https://deliver-ms.com

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 271 Guest: Steffany Stern and Judy Wilson

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

As has become an annual ECTRIMS tradition on RealTalk MS, the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, and I took up our vantage point on the steps right outside of the convention center to discuss the research that captured Dr. Bebo's attention.

We have a lot to talk about! Are you ready for RealTalk MS??!

Greetings from the 2022 ECTRIMS Congress! :22

If you're listening in the U.S., don't forget to vote next Tuesday 1:26

Dr. Bruce Bebo shares the research that captured his attention at ECTRIMS 3:25

Share this episode 20:43

Download the RealTalk MS app for your iOS or Android device 21:03

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Just copy this link & paste it into your text or email: https://realtalkms.com/270

ADD YOUR VOICE TO THE CONVERSATION

I've always thought of the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver

National MS Society: Your Right to Vote and Polling Place Accessibility https://nationalmssociety.org/Get-Involved/Advocate-for-Change/Take-Action/Voter-Info

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 270 Guest: Dr. Bruce Bebo

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

The National MS Society's Vice-President of Advocacy, Steffany Stern, and MS activist Judy Wilson, join me in this episode to explain how this new law benefits people who are living with MS, who, among everyone living with MS, will see some of those benefits first, and when you will begin to see those benefits.

We're also talking about a study that showed people with progressive MS are four times more likely to experience serious infection requiring hospitalization, compared to people with relapsing-remitting MS.

We'll tell you about a machine-learning algorithm that can predict MS patient outcomes when it comes to symptoms like fatigue, depression, and sleep disturbance.

And we'll share some very sobering survey results from the MS Society in the U.K.

We have a lot to talk about! Are you ready for RealTalk MS??!

Greetings from Amsterdam! ECTRIMS kicks off this week! :22

This Week: How the Inflation Reduction Act Will Help You 1:02

People with primary progressive MS are 4 times more likely to experience serious infection 2:12

An app plus artificial intelligence predicts MS patient outcomes 5:03

The MS Society in the U.K. releases sobering survey results 9:33

MS Society V.P. of Advocacy Steffany Stern and MS activist Judy Wilson break down the specific benefits of the Inflation Reduction Act 12:17

Share this episode 33:36

Download the RealTalk MS app for your iOS or Android device 33:56

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/269

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver

National MS Society: Become an MS Activist https://nationalmssociety.org/advocacy

STUDY: Serious Infection in Patients with Relapsing and Progressive Forms of Multiple Sclerosis: A German Claims Data Study https://msard-journal.com/article/S2211-0348(22)00749-0/fulltext

STUDY: Predicting Multiple Sclerosis Outcomes During COVID-19 Stay-at-Home Period: Observational Using Passively Sensed Behaviors and Digital Phenotyping https://mental.jmir.org/2022/8/e38495

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 269 Guest: Steffany Stern and Judy Wilson

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Health insurance policies change. Physician networks change. Drug formularies often change. Deductibles change. And if you're living with MS, you can't afford to go through open enrollment assuming that the health insurance policy you have this year will be the best coverage for you next year.

Nicole Vasquez returns to the podcast to discuss the things you should carefully consider during open enrollment. Nicole is one of the National MS Society's MS Navigators and she'll be sharing information and resources that you can use to make the best health insurance decisions for yourself and your family.

Can you spare 5 minutes? I have a quick favor to ask each of you.

I'll also tell you about the Supreme Court decision that, for now, clears the way for Gilenya generics.

You'll hear about a new cell therapy being developed that will use nanotechnology to eliminate Epstein-Barr Virus (and I'll remind you why that would be a massive step forward in ending MS).

And we'll tell you about a University of Illinois research team that leveraged artificial intelligence to predict MS by observing how people walk.

We have a lot to talk about! Are you ready for RealTalk MS??!

Sharing some listener feedback :22

This Week: Open enrollment 3:06

Will you do me a quick favor? 5:06

Supreme Court clears the way for Gilenya generics 7:25

Cell therapy will use nano-technology to eliminate EBV 8:25

Research team uses AI to identify people living with MS 10:55

MS Navigator Nicole Vasquez gets you ready for open enrollment 13:57

Share this episode 32:32

Download the RealTalk MS app for your iOS or Android device 32:52

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/269

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver

STUDY: A Vision-Based Framework for Predicting Multiple Sclerosis and Parkinson's Disease Gait Dysfunctions -- A Deep-Learning Approach https://ieeexplore.ieee.org/document/9896159

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 268 Guest: Nicole Vasquez

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Dr. Lisa Doggett joins me to brief us on all things related to vaccines and MS. Dr. Doggett is a family doctor as well as the Senior Medical Director at HGS AxisPoint Health. She was a 2021-2022 American Academy of Family Physicians Vaccine Science Fellow, and Dr. Doggett has lived with MS since being diagnosed in 2009.

I'm also sharing my major take-away from the 2022 National Conference on Caregiving Research.

And, speaking of caregiving, we'll review the results of a study that measured the risk of family caregivers experiencing future illness and disability.

You're going to want to hear the results of a study that measured the effects of a keto diet on people living with MS.

And we'll tell you what researchers learned when they analyzed the effect of autologous hematopoietic stem cell transplantation (aHSCT) on tissue damage in the central nervous system (And we'll explain why that may be really important!).

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Vaccines and MS :22

Caregiving as a social determinant of health 1:37

Family caregivers carry a significantly higher risk of future illness and disability 5:52

The effects of a ketogenic diet on people living with MS 8:57

The impact of autologous hematopoietic stem cell therapy (aHSCT) on tissue damage in the central nervous system 11:49

Dr. Lisa Doggett discusses which vaccines are important for people living with MS, and which vaccines should be avoided 17:30

Share this episode 33:23

Download the RealTalk MS app for your iOS or Android device 33:44

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/267

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

The National Strategy to Support Family Caregivers https://acl.gov/CaregiverStrategy

STUDY: Caregiving and Allostatic Load Predict Future Illness and Disability: A Population-Based Study https://www.sciencedirect.com/science/article/pii/S2666354621000983

STUDY: Phase II Study of Ketogenic Diets in Relapsing Multiple Sclerosis: Safety, Tolerability, and Potential Clinical Benefits https://pubmed.ncbi.nlm.nih.gov/35418509

STUDY: Biomarkers of Demyelination and Axonal Damage are Decreased After Autologous Hematopoietic Stem Cell Transplantation for Multiple Sclerosis https://www.msard-journal.com/article/S2211-0348(22)00715-5/fulltext

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 267 Guest: Dr. Lisa Doggett

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

A lot of you have reached out to me, sharing your thoughts about Selma Blair competing on Dancing with the Stars. Collectively, your opinions illustrate the vast diversity of opinion regarding Selma's latest adventure. In this week's episode, I'm sharing some of my thoughts.

I've always said that MS doesn't affect individuals -- it affects families. This week, we're talking about a study that focused on anxiety, depression, and stress communication between people living with MS and their partners.

We'll also tell you about a study that makes the case for using artificial intelligence to accurately predict EDSS scores for people living with MS.

And we'll tell you about a drug that's been studied in clinical trials for cancer that may also show promise as a remyelination therapy.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Selma Blair on DWTS, I'm back from the 2022 Caregiving Research Conference, and simple adjustments & minor modifications that can make life with MS easier :22

Researchers analyzed anxiety, depression, and stress communication in couples affected by MS 3:28

Can artificial intelligence predict an individual's EDSS score as accurately as their neurologist? 7:37

Repurposing a drug that's been studied in clinical trials for cancer may be a step forward in remyelination for people living with MS 12:27

Dr. Kathy Zackowski returns to the podcast with a boatload of simple adjustments and minor modifications that can make managing your everyday tasks a lot easier 15:38

Share this episode 36:55

Download the RealTalk MS app for your iOS or Android device 37:16

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/266

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

STUDY: Psychosocial Impact of Multiple Sclerosis on Couples: Relationship Between Anxiety, Depression, and Stress Communication of Both Partners https://journals.sagepub.com/doi/10.1177/21501319221119142

STUDY: Validation of a Machine-Learning Approach to Estimate Expanded Disability Status Scale Scores for Multiple Sclerosis https://journals.sagepub.com/doi/10.1177/20552173221108635

STUDY: Inhibition of Chk2 Promotes Neuroprotection, Axon Regeneration, and Functional Recovery After CNS Injury https://science.org/doi/10.1126/sciadv.abq2611

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 266 Guest: Dr. Kathy Zackowski

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Living with MS comes with its own set of sometimes significant challenges. But being in the dark, unaware of the noteworthy and remarkable advances being made in MS research is one challenge that we're learning to overcome.

Sharon Roman is a patient-partner and writer for the British Medical Journal Group. Sharon lives with MS and she also writes a blog called Tremlett's MS Research Explained. The blog features plain-English posts detailing the research being done by Professor Helen Tremlett and her team. Professor Tremlett is the Canada Research Chair in Neuroepidemiology and Multiple Sclerosis at the University of British Columbia.

Sharon joins me to talk about Professor Tremlett's pioneering research on the prodromal phase of MS, and to discuss why it's important to make MS research accessible and understandable to everyone in the MS community.

We're also sharing study results that show the key to reducing MS fatigue could be a trip to the gym.

We'll tell you about a study that measured improvements in physical disability, fatigue, and health-related quality of life among people with MS after they received stem cell therapy.

We'll tell you about the significant differences in the gut microbiome of people living with MS and what that might mean for potential new treatments.

We'll tell you about a study that discovered an interesting difference in immune cells among people living with MS. And we'll explain the riddle this poses for scientists.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: The importance of making MS research accessible to people affected by MS :22

A study shows that high-intensity resistance training improves MS fatigue 2:44

A study measures the long-lasting benefits of aHSCT for people living with MS 6:31

A study identifies differences in specific bacteria levels in the gut microbiome of people living with MS 9:59

A study reveals differences in immune cells among people living with MS 13:22

Sharon Roman discusses the importance of making MS research accessible to people affected by MS 18:43

Share this episode 32:04

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Tremlett's MS Research Explained https://tremlettsmsresearchexplained.wordpress.com

STUDY: High-Intensity Resistance Training in People with Multiple Sclerosis Experiencing Fatigue: A Randomised Controlled Study https://msard-journal.com/article/S2211-0348(22)00613-7/fulltext

STUDY: Impact of Autologous HSCT on the Quality of Life and Fatigue in Patients with Relapsing Multiple Sclerosis https://www.nature.com/articles/s41598-022-19748-7

National MS Society: aHSCT and MShttps://nationalmssociety.org/Treating-MS/aHSCT

STUDY: Gut Microbiome of Multiple Sclerosis Patients and Paired Household Controls Reveal Associations with Disease Risk and Course https://cell.com/cell/fulltext/S0092-8674(22)01115-1

STUDY: Broader Epstein-Barr Virus-Specific T Cell Receptor Repertoire in Patients with Multiple Sclerosis https://rupress.org/jem/article/219/11/e20220650/231431/Broader-Epstein-Barr-virus-specific-T-cell

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RealTalk MS Episode 265 Guest: Sharon Roman

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS