RealTalk MS

We're celebrating the 5th anniversary of RealTalk MS and we're kicking it off with my exclusive conversation with CNN national correspondent and anchor, John King. John was diagnosed with MS in 2008. However, John didn't disclose his diagnosis until 2021 -- in an unplanned moment on national television.

John shares his MS journey from the day he was diagnosed through his unplanned disclosure. And he also shares a message for anyone who is newly diagnosed with MS.

Then, we're doing something completely different! You won't want to miss the second half of this special 5th anniversary episode when listener Dawnia Baynes takes over RealTalk MS -- and interviews Jon!

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: We're celebrating our 5th anniversary! :22

My exclusive conversation with CNN's John King 4:22

Welcome to the Dawnia Baynes Takeover! 23:10

Share this episode 38:08

Download the RealTalk MS app for your iOS or Android device 38:28

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/264

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 264 Guests: John King and Dawnia Baynes

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

In addition to its physical symptoms, MS can also affect your emotional well-being. Depression, persistent anxiety, and extreme irritability are common. And, just like the physical symptoms of MS, they require treatment. But people living with MS tend to focus on their physical health and, too often, end up neglecting their mental health.

Dr. Dawn Ehde joins me to talk about maintaining and strengthening your emotional well-being when you're living with MS, and she'll introduce you to a new resource that you're going to want to know about.

This Thursday, the National MS Society is hosting the virtual Hispanic/Latinx MS Experience Summit. The event is free and the sessions will be available in both English and Spanish. We're sharing the details and we'll tell you how and where to register.

We'll tell you about a study that compared how low-efficacy and high-efficacy disease-modifying medications impacted brain atrophy and disease activity.

We'll share study results that showed how choosing to be on disease-modifying medications affected mortality.

And we'll tell you about a study that focused on how MS impacts your ability to show up at work.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Managing your mental health :22

The Hispanic/Latinx MS Experience Summit takes place this Thursday, Sept 15. Here's how to register 2:20

A study compares low-efficacy and high-efficacy disease-modifying medications 3:40

A study assesses the association between being on a disease-modifying medication and surviving 7:39

A study shows that that people with MS miss work more than twice as much as healthy people 9:56

Dr. Dawn Ehde discusses how you can maintain and strengthen your emotional well-being and she introduces a new resource that you're going to want to know about 14:40

Share this episode 31:06

Download the RealTalk MS app for your iOS or Android device 31:27

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/263

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

What to Expect from Mental Health Care: A Guide for People with MS https://www.nationalmssociety.org/getmedia/a4fa7de4-2196-4b6d-9dd5-e804ecfdb119/CD_pubs_mentalHealthGuidance_0422_FINAL.pdf

National MS Society Hispanic/Latinx MS Experience Summit https://nmss.6connex.com/event/HispanicandLatinx/Login

STUDY: High-Efficacy Therapy Reduces Subcortical Grey Matter in Japanese Patients with Relapsing-Onset Multiple Sclerosis: A 2-Year Cohort Study https://www.sciencedirect.com/science/article/abs/pii/S2211034822005855

STUDY: Disease-Modifying Drugs for Multiple Sclerosis and Association with Survival https://nn.neurology.org/content/9/5/e200005

RealTalk MS Episode 211: The Ins and Outs of Employment with MS with Dr. Phillip Rumrill https://realtalkms.com/211

STUDY: Work Productivity Loss Among Adults Aged 18-64 Years with Multiple Sclerosis in the United States: A Propensity Score Matched Study https://www.sciencedirect.com/science/article/abs/pii/S1551741122002091?via%3Dihub

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 263 Guest: Dr. Dawn Ehde

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

The conversation between a doctor and patient is evolving from a time when that conversation was often limited to the doctor prescribing a particular disease-modifying medication and the patient silently nodding their head in agreement to something much more closely resembling a real conversation.

Shared decision-making offers the patient an opportunity to discuss their treatment goals, explain their risk tolerance, and talk about their comfort level with side effects.

But not every neurologist, nurse practitioner, or MS specialist has made the transition to shared decision-making. Some haven't even heard of it. And some patients worry that shared decision-making means they have more work to do in preparing for an appointment with their healthcare provider.

Dr. Marijean Buhse joins me to walk us through how shared decision-making works for people living with MS -- and what to do if it isn't working for you.

We'll also tell you where you can catch the video replay of an MS Society webcast that explains how and when the new drug pricing law will impact the cost of your MS medications if you're on Medicare.

We'll share the registration details for next week's Hispanic/Latinx MS Experience Summit

We'll tell you about a new research collaboration between iConquer MS, the National MS Society, and Quest Diagnostics

We'll share study results that point to a novel pathway to myelin repair.

We'll share study results that indicate the rate of MS in a country may have less to do with latitude and sun exposure and more to do with healthcare spending.

And we're giving a shout-out to A&W Canada and the MS Society of Canada for raising $1.8 million during the Burgers to Beat MS event.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: How shared decision-making shapes your MS treatment plan :22

You can catch the replay of the MS Society's webcast or read the one-page "explainer" about how and when the new drug pricing law will impact your MS medications if you're on Medicare 2:47

The Hispanic/Latinx MS Experience Summit takes place on Sept 15. Here's how to register 3:41

iConquer MS teams up with the National MS Society and Quest Diagnostics for a study that will track the long-term effects of COVID-19 vaccines on b-cells and T-cells among people on anti-cd20 medications 5:14

A research team at Oregon Science & Health University are exploring a unique pathway to remyelination, with promising early results 7:41

A study shows that the rate of MS in different countries may have less to do with latitude and more to do with healthcare spending 11:57

Burgers to Beat MS beats its goal and raises $1.8 million dollars 15:06

Dr. Marijean Buhse discusses how shared decision-making works and what to do if it isn't working for you 16:45

Share this episode 30:38

Download the RealTalk MS app for your iOS or Android device 30:59

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/262

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

WEBCAST REPLAY: What Does the New Drug Pricing Law Mean for You? https://www.youtube.com/watch?v=xQ0HueOmo0U

National MS Society Explainer: What Does the New Drug Pricing Legislation Mean for People with MS? https://www.nationalmssociety.org/getmedia/6fa7aae3-0543-4884-b783-359b0df683aa/IRA-Drug-Pricing-Timeline.pdf

National MS Society Hispanic/Latinx MS Experience Summit https://nmss.6connex.com/event/HispanicandLatinx/Login

STUDY: A Modified Flavonoid Accelerates Oligodendrocyte Maturation and Functional Remyelinationhttps://onlinelibrary.wiley.com/doi/10.1002/glia.23715

STUDY: Association of Multiple Sclerosis Prevalence With Sociodemographic, Health Systems, and Lifestyle Factors on a National and Regional Level https://n.neurology.org/content/early/2022/08/24/WNL.0000000000200962

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 262 Guest: Dr. Marijean Buhse

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

When you're living with MS, even the most mundane daily tasks can sometimes be challenging. There are days when opening a door, taking things out of a drawer or a cupboard, or picking something up from the floor can all seem out of reach. Those just happen to be some of the many tasks that a service dog can help you with. This week, attorney Trevor Hardy joins me to talk about the impact that his service dog, Tristan, has had on his life.

We're also reviewing what you need to know about monkeypox and MS.

We'll share the results from a Phase 3 clinical trial for Ublituximab, an investigational anti-cd20 therapy for MS.

We'll talk with Dr. Roberto-Alfonso Dunn about the results of a study that he recently headed up at Tisch Multiple Sclerosis Research Center.

And we'll share results from a study that attempted to identify specific factors at the time of diagnosis that could be predictive of future physical and mental health-related quality of life.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Study results and service dogs :23

Monkeypox and MS: What you need to know 1:13

Results from the Phase 3 clinical trial for Ublituximab 6:03

Study results offer potentially encouraging news for people with MS on b-cell depleting therapies 8:58

Clues at the time of diagnosis are shown to be predictive of future physical and mental health-related quality of life 17:20

Trevor Hardy discusses how his service dog, Tristan, has changed his life 24:33

Share this episode 36:22

Download the RealTalk MS app for your iOS or Android device 36:42

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/261

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Monkeypox and MS: What You Need to Know https://www.nationalmssociety.org/About-the-Society/News/Monkeypox

CDC: Monkeypox Vaccines https://www.cdc.gov/poxvirus/monkeypox/vaccines.html

STUDY: Ublituximab versus Teriflunomide in Relapsing Multiple Sclerosis https://www.nejm.org/doi/full/10.1056/NEJMoa22019094

STUDY: Physical and Mental Health-Related Quality of Life Trajectories Among People with Multiple Sclerosishttps://n.neurology.org/content/early/2022/08/10/WNL.000000000200931

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 261 Guest: Dr. Roberto-Alfonso Dunn and Trevor Hardy

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Women are roughly 3 times more likely to develop MS compared to men. But when men develop MS, they're more likely to experience a more aggressive disease course. Men are more likely to experience motor problems, loss of coordination and balance, and cognitive difficulties.

When they experience a relapse, men are more likely to see their exacerbated symptoms continue, even during times of remission. Given these evidence-based observations, it seems sadly ironic that, as they develop MS symptoms, men are less likely to seek medical care or even a diagnosis.

Dr. Robert Shin returns to the podcast to demystify some of the riddles surrounding men and MS. Dr. Shin is a Professor in the Department of Neurology at MedStar Georgetown University Hospital, and the Director of the Georgetown Multiple Sclerosis and Neuroimmunology Center.

We're also sharing the registration details for the National MS Society's webcast, What Does the New Drug Pricing Law Mean to You?. The webcast takes place this Thursday, and you won't want to miss it.

We'll tell you about a study that may have identified an imaging biomarker that can predict future MS progression. (And we'll explain why that can make a huge difference in your MS treatment plan)

We'll share some discouraging news about the availability of Evusheld in the U.K.

We'll point you toward Elizabeth Jameson's Washington Post editorial that explains how learning to swear can be therapeutic for someone living with progressive MS.

And we'll share results from a Cleveland Clinic study that shows how a man's own definition of masculinity can get in the way of his MS treatment.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: MS and Men :22

Find out how and when the Inflation Reduction Act will impact the cost of your prescription drugs 1:41

Study demonstrates that thinning of retinal layers predicts future MS disability 2:35

U.K. opts not to buy Evusheld 5:17

Elizabeth Jameson learns the value of a well-intentioned F-bomb 6:35

Study shows how masculine ideals drive healthcare decisions for men with MS 8:39

Dr. Robert Shin discusses the specifics associated with Men and MS 12:52

Share this episode 30:56

Download the RealTalk MS app for your iOS or Android device 31:16

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/260

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Registration for National MS Society Webcast: What Does the New Drug Pricing Law Mean to You? https://nmss.zoom.us/webinar/register/WN_auRCXBi2TGCgzHeV1CWMkw

STUDY: Retinal Thinning After Optic Neuritis is Associated with Future Relapse Remission in Relapsing Multiple Sclerosis https://neurology.org/content/early/2022/08/01/WNL.0000000000200970

Elizabeth Jameson in the Washington Post: How I Learned that Swearing Can Be Good for the Soul https://wapo.st/3vpRJeo

STUDY: Effects of Conformity to Masculine Norms and Coping on Health Behaviors in Men with Multiple Sclerosishttps://doi.org/10.7224/1537-2073.2020-116

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 260 Guest: Dr. Robert Shin

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

More than half of the people living with MS report significant disruptions in their sleep and difficulty maintaining a consistent sleep schedule. Sleep-related problems can lead to additional health issues, not to mention an overall decline in quality of life and well-being.

The Director of the Sleep, Health, and Wellness Lab at the University of Kansas Medical Center Department of Physical Therapy and Rehabilitation Science, Dr. Katie Siengsukon, returns to the podcast to talk about how sleep affects MS and what you can do about it.

We're also sharing all the ways the Inflation Reduction Act will benefit people living with MS. And we're celebrating the MS Activists who helped push this legislation through Congress!

We have some good news to share about Mark Cuban's CostPlus Drug Company.

We'll give you a quick review of where to find the show notes for each episode of RealTalk MS (and why you might want to do that!)

We're sharing results from a study that demonstrated an important benefit for people with primary progressive MS who were treated with diseaes-modifying therapies.

We'll tell you about two scientists who identified a combination of genes that increase a woman's risk of developing MS by 20 times.

And we'll remind you that Burgers to Beat MS is happening this Thursday!

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: How Sleep impacts MS :22

All the ways the Inflation Reduction Act will benefit people living with MS 1:18

Mark Cuban's CostPlus Drug Company now carries the generic for Tecfidera 5:02

Where to find the show notes for every episode of RealTalk MS 9:53

Study results show that DMT use reduces the risk of wheelchair dependence for people with primary progressive MS 12:23

Researchers identify genetic mutations that increase the risk of a woman developing MS by 20 times 14:02

Burgers to Beat MS is happening Thursday! 17:48

Dr. Katie Siengsukon discusses how sleep impacts MS 19:42

Share this episode 35:48

Download the RealTalk MS app for your iOS or Android device 36:09

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/258

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Become an MS Activist https://nationalmssociety.org/advocacy

Mark Cuban's CostPlus Drug Company https://costplusdrugs.com

STUDY: Disease-Modifying Treatments and Time to Loss of Ambulatory Function in Patients with Primary Progressive Multiple Sclerosis https://jamanetwork.com/journals/jamaneurology/article-abstract/2794292

STUDY: X-Linked Genetic Risk Factors that Promote Autoimmunity and Dampen Remyelination are Associated with Multiple Sclerosis Susceptibility https://sciencedirect.com/science/article/pii/S2211034822005739

Burgers to Beat MS https://BurgersToBeatMS.ca

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 259 Guest: Dr. Katie Siengsukon

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

One of the realities of living with MS is that you're often dealing with invisible symptoms. And because symptoms like numbness and tingling, fatigue, depression, vision issues, and pain aren't apparent to others, it can be hard for people around you to understand what MS is all about and, specifically, what you might be struggling with.

Kathy Costello returns to the podcast to discuss how to best manage the invisible symptoms of MS and how you can constructively shut down those conversations that begin with, "But you look so healthy!".

We're also sharing the results of a study that focused on the results of 50 different studies about the effects of autologous hematopoietic stem cell therapy (aHSCT) on people with MS.

We'll tell you about the National MS Society's $19 million dollar investment in 40 new MS research projects.

It's August, so we have to talk about Burgers to Beat MS!

And we'll give you the details about how you can participate in testing a new product that combines technology and music to improve gait problems for people living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

Living with the invisible symptoms of MS :22

A study of 50 studies about the effectiveness of aHSCT in treating MS 1:36

National MS Society invests $19 million in 40 new MS research projects 4:45

It's that time of year again...it's Burgers to Beat MS! 7:03

MedRhythms is asking for your help 8:15

Kathy Costello discusses the invisible symptoms of MS 9:57

Share this episode 32:04

Download the RealTalk MS app for your iOS or Android device 32:25

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/258

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Can Do MS https://cando-ms.org

aHSCT in MS https://www.nationalmssociety.org/Treating-MS/aHSCT#section-0

Autologous Hematopoietic Stem Cell Transplantation in Multiple Sclerosis: A Systemic Review and Meta-Analysis https://link.springer.com/article/10.1007/s40120-022-00389-x

National MS Society Invests $19 Million to Launch 40 New MS Research Projects to Drive Pathways to Cures https://nms2cdn.azureedge.net/cmssite/nationalmssociety/media/msnationalfiles/research/new-research-summer-2022.pdf

Burgers to Beat MS https://BurgersToBeatMS.ca

For More Information about MedRhythms Volunteer Testing Program Email: [email protected]

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 258 Guest: Kathy Costello

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Dating can be tricky for anyone. And it doesn't get any easier if you happen to be living with MS. In addition to all the typical dating considerations, you also have to think about things like if, how, and when to disclose your MS.

You want to make sure your dating activities are physically doable. That might mean no long walks on the beach when the temperature is soaring. It might mean no hikes up steep mountain trails. And it might even mean having to postpone your date because your symptoms are acting up.

But like so many other things in life, with a little planning and adaptation, a person living with MS can enjoy a fulfilling dating life.

I'm devoting this entire episode of RealTalk MS to a conversation about dating with MS. Alaya McKinney and Akeem McMichael, two millennials who are each out there in the dating world, join me to share their real-world experiences and strategies for dating while living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

Alaya McKinney and Akeem McMichael talk about dating with MS :22

Share this episode 29:04

Download the RealTalk MS app for your iOS or Android device 29:25

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/257

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 257 Guest: Alaya McKinney and Akeem McMichael

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Imagine that, using your smartphone, you log into a Zoom call from home. You connect with your MS specialist and, while you're chatting, an artificial intelligence-based system is analyzing biometric measurements that will enable your doctor to deliver or fine-tune an MS treatment plan that's been personalized to meet your exact needs.

That's the vision driving NeuraLight, an early-stage company that's, first, aiming to re-write clinical trial design and accelerate new drug development. Joining me to give us an exclusive briefing on NeuraLight's game-changing mission is the co-founder and CEO of NeuraLight, Micha Breakstone.

We're also sharing the results of a pilot study that looked at the impact of intermittent fasting on people living with MS.

We'll tell you about a study that explored how social support affected the quality of sleep among people living with MS during the COVID-19 pandemic.

We've talked a lot about neurofilament light chain in past episodes of RealTalk MS. In this episode, we'll tell you about Labcorp's 2,000 patient service centers that now offer a blood test to measure neurofilament light chain levels. (And we'll tell you why that's a very good thing!)

We'll also share the results of a study that shows how experts may be underestimating the economic burden of living with MS in Canada.

And if you think you might be interested in participating in a study designed to measure the impact of different diets on MS, we'll give you the details about how you can get involved.

We have a lot to talk about! Are you ready for RealTalk MS??!

NeuraLight's vision of the future :22

Intermittent fasting produces immune and metabolic changes in people with MS 1:28

Study shows social support is a predictor of sleep quality in people with MS during the COVID-19 pandemic 4:30

Labcorp announces availability of neurofilament light chain blood test 6:39

CanProCo research shows the economic burden of living with MS in Canada may be underestimated 8:58

Dr. Terry Wahls is recruiting for a study of how 3 different diets impact MS 12:16

Micha Breakstone gives us an exclusive briefing about how NeuraLight may change everything (for the better!) when it comes to MS drug development and MS care 15:28

Share this episode 34:17

Download the RealTalk MS app for your iOS or Android device 34:38

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/256

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

NeuraLight https://neuralight.ai

STUDY: Intermittent Calorie Restriction Alters T-Cell Subsets and Metabolic Markers in People with Multiple Sclerosis https://www.thelancet.com/journals/ebiom/article/PIIS2352-3964(22)00305-X/fulltext

STUDY: Social Support Predicts Sleep Quality in People with Multiple Sclerosis During the COVID-19 Pandemic https://www.msard-journal.com/article/S2211-0348(22)00481-3/fulltext#%20

STUDY: Productivity Loss Among People with Early Multiple Sclerosis: A Canadian Study https://journals.sagepub.com/doi/10.1177/1352458521069070

Screening Survey for Efficacy of Diet on Quality of Life in Multiple Sclerosis Study https://recap.icts.uiowa.edu/surveys/?s=JX73EYRJNPF9MHRR

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 256 Guest: Micha Breakstone

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

In last week's episode, we looked at talking with kids about MS. This week, we'll visit the opposite end of the spectrum as Dr. John Corboy discusses some of the things you'll want to think about as you age with MS.

Dr. Corboy is a professor of neurology at the University of Colorado School of Medicine, and the Director of the Rocky Mountain Multiple Sclerosis Center at the University of Colorado. Dr. Corboy is also the Principal Investigator in a recently completed clinical trial that focused on the effects of stopping MS disease-modifying medications in older people living with MS.

We're also sharing the details of a new legislative proposal designed to help manage the skyrocketing cost of prescription drugs.

We'll invite you to be among the first people to review a just-published paper that focuses on how identifying the prodromal phase of MS may lead to disease prevention.

We'll share the evidence from a study that shows how lifestyle choices like choosing not to smoke, engaging in physical activity, and eating a healthy diet can actually impact MS disease progression.

And we'll share some shocking news about how much MS disease-modifying medication is wasted.

We have a lot to talk about! Are you ready for RealTalk MS??!

Aging and MS :22

Revised legislative proposals to better manage the high cost of MS prescription medications 1:28

An important paper focused on how identifying the prodromal phase of MS can lead to disease progression 3:54

Lifestyle factors in MS disability progression 5:53

The shocking reality of DMT waste 9:09

Dr. John Corboy discusses aging and MS and the impact of stopping MS disease-modifying medications in older adults living with MS 13:33

Share this episode 33:17

Download the RealTalk MS app for your iOS or Android device 33:37

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/255

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

RealTalk MS Episode 246: The High Cost of MS Medications with Steffany Stern https://realtalkms.com/246

National MS Society Applauds Revised Legislative Proposals to Lower the Cost of Prescription Drugs for People Affected by MS https://nationalmssociety.org/About-the-Society/News/The-National-Multiple-Sclerosis-Society-Applauds-R

National MS Society Advocacy https://nationalmssociety.org/advocacy

From the Prodromal Stage of Multiple Sclerosis to Disease Prevention https://www.nature.com/articles/s41582-022-00686-x

STUDY: Lifestyle Factors in Multiple Sclerosis Disability Progression and Silent Brain Damage: A Cross-Sectional Study https://www.msard-journal.com/article/s2211-0348(22)00522-3/fulltext#%20

STUDY: Hiding in Plain Sight: The Magnitude of Unused Disease Modifying Therapies in Multiple Sclerosis and Strategies for Reducing the Economic Burden of Care https://pubmed.ncbi.nlm.nih.gov/35661567/

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 255 Guest: Dr. John Corboy

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS