Welcome to a bonus ACTRIMS Forum 2021 episode of RealTalk MS.  ACTRIMS is an acronym that stands for the Americas Committee for Treatment and Research in Multiple Sclerosis and this year, the ACTRIMS Forum is a virtual meeting, bringing together over 1700 MS research scientists and clinicians to share the latest MS research news and insights.     We'll take you inside the proceedings at ACTRIMS and share highlights from some of the most compelling presentations.    And I'm sitting down to talk with this year's recipient of the Barancik Prize, Dr. Dwight Bergles. The Barancik Prize is awarded for innovation in MS research and Dr. Bergles is being recognized for his pioneering remyelination research.   We have a lot to talk about! Are you ready for RealTalk MS??!

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National MS Society COVID-19 Vaccine Guidance for People Living with MS

National MS Society: Timing MS Medications with COVID-19 mRNA Vaccines

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RealTalk MS ACTRIMS 2021 Bonus Episode Guests: Dr. Dwight Bergles

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, ACTRIMS, RealTalkMS

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If you spend more than a minute on social media it can seem like there's more misinformation about the COVID-19 vaccines than there is legitimate, fact-based information.  And I've heard it said that if you repeat a lie enough, it becomes the truth. So we're doing some major COVID-19 vaccine myth-busting with Dr. Scott Newsome.     Dr. Newsome is an Associate Professor of Neurology and Director of Neurosciences Consultation and Infusion Center at Johns Hopkins Medicine. He also serves as the Co-Director of the Multiple Sclerosis Experimental Therapeutics Program at Johns Hopkins, and President of the Board of Governors of the Consortium of MS Centers. Dr. Newsome is also a member of the expert Task Force convened by the National MS Society to develop a COVID-19 vaccine guidance for people living with MS.   We're also inviting you to participate in the RealTalk MS Listener Survey (and be entered into a drawing for a $100 Amazon Gift Card!).   And we're giving you a heads-up to watch for a bonus episode of RealTalk MS later this week when we cover the ACTRIMS FORUM 2021.   We have a lot to talk about! Are you ready for RealTalk MS??!

The RealTalk MS Listener Survey :22

Why we have to talk about the COVID-19 Vaccine Again!  1:07

Bonus Episode coming later this week -- ACTRIMS 2021  3:21

Dr. Scott Newsome debunks myths & rumors about the COVID-19 vaccines  4:05

Share this episode  32:25

Take the RealTalk MS Listener Survey  32:45

WalkMS 2021 is here!  33:12

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LINKS

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RealTalk MS Listener Survey (You'll be entered to win a $100 Amazon Gift Card!)

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National MS Society COVID-19 Vaccine Guidance for People Living with MS

National MS Society: Timing MS Medications with COVID-19 mRNA Vaccines

WalkMS 2021

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RealTalk MS Episode 182 Guests: Dr. Scott Newsome

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, COVID19, RealTalkMS

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A fulfilling sexual relationship with your partner can have a positive impact on your physical and mental health in a variety of ways. But studies suggest that about 80% of the people living with MS are affected by some kind of sexual dysfunction. We're devoting this entire episode of RealTalk MS to talking about sex and MS with my guest, Dr. Linda Mona.     Dr. Mona is a licensed clinical psychologist and founder of Inclusivity Clinical Consulting Services.  She's been recognized by the American Psychological Association, the Academy of Spinal Cord Injury Professions, Paralyzed Veterans of America, and the Society for the Scientific Study of Sexuality for her work focusing on people living with disabilities.   We have a lot to talk about! Are you ready for RealTalk MS??!

Sex and MS with Dr. Linda Mona :18

Share this episode  28:42

Leave a rating and review for RealTalk MS  29:03

WalkMS 2021 is here!  30:14

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LINKS

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National MS Society COVID-19 Vaccine Guidance for People Living with MS

National MS Society: Timing MS Medications with COVID-19 mRNA Vaccines

WalkMS 2021

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RealTalk MS Episode 181 Guests: Dr. Linda Mona

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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The National MS Society has updated their COVID-19 vaccine guidance for people living with MS, providing detailed recommendations for timing your disease-modifying therapy with the two COVID-19 vaccines that are approved in the U.S. If you're on a disease-modifying therapy and you've been wondering about your DMT and the COVID-19 vaccines, this episode is for you.     My guest this week is Dr. Jaime Imitola, the Director of the Division of Multiple Sclerosis and Translational Neuroimmunology at UConn Health, a noted expert in his field, and a member of the task force that the MS Society convened to create the COVID-19 vaccine guidance. We're talking about the new updates to the vaccine guidance,  answering some of the questions that you've sent my way, and we'll get into how this task force went about creating this very important guidance for people living with MS. We're also talking about the FDA approval of intramuscular injections for Plegridy (and how that came about!) We'll tell you about BRAINTEASER, a European Union initiative that will leverage artificial intelligence in an effort to treat people living with ALS and MS by providing predictive care instead of reactive care. And we'll explain how the newly announced Gladstone-UCSF Center for Neurovascular Brain Immunology is opening a new front in the war on MS.   We have a lot to talk about! Are you ready for RealTalk MS??!

Facts are facts! :22

National MS Society issues guidance for timing MS medications and COVID-19 mRNA vaccines 4:35

The latest reason to download the RealTalk MS app  5:26

FDA approves Intramuscular injection for Plegridy  6:15

BRAINTEASER launches  7:24

The Gladstone-UCSF Center for Neurovascular Brain Immunology  9:55

My interview with Dr. Jaime Imitola  12:26

Share this episode  28:12

WalkMS 2021 is here!  28:32

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LINKS

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National MS Society COVID-19 Vaccine Guidance for People Living with MS

National MS Society: Timing MS Medications with COVID-19 mRNA Vaccines

WalkMS 2021

 

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RealTalk MS Episode 180 Guests: Dr. Jaime Imitola

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, COVID19, RealTalkMS

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Research has shown that, for people living with MS, regular exercise and physical activity can improve their quality of life while helping to manage MS symptoms.   But research has also shown that people living with MS tend to be less active than people in the general population. In response, the National MS Society convened a group of experts to develop fact-based guidance for promoting exercise and lifestyle physical activity for all people with MS, regardless of their ability level.   Joining me to talk about these exercise recommendations along with some of the real benefits that exercise produces for people living with MS is Dr. Nora Fritz, a board-certified Neurologic Physical Therapist and an Assistant Professor in the Physical Therapy Program in the Department of Health Care Sciences and Department of Neurology at Wayne State University School of Medicine, where she’s also the Director of the Neuroimaging and Neurorehabilitation Laboratory.   

Judy Boon was diagnosed with MS in 2007. Judy is a true MS Warrior who has fully integrated fitness activities and exercise into her everyday lifestyle. Judy is also joining me to talk about how exercise has impacted her MS journey.

We're also talking about a University of Washington study that measured the willingness to receive a COVID-19 vaccine among people living with MS.    We'll tell you about a study from Italy that measured the long-term benefits of autologous hematopoietic stem cell transplantation (aHSCT).   And we're talking about an important survey that measured the perspectives and preferences regarding MS research among racial and ethnic groups.    We have a lot to talk about! Are you ready for RealTalk MS??!

Study measures COVID-19 vaccine willingness among people living with MS  2:23

Study shows long-term benefits of analogous Hematopoietic Stem Cell Transplantation  6:32

Study measures perspectives and preferences for MS research among racial and ethnic groups  9:15

Study shows a cancer treatment may protect the blood-brain barrier and reduce neuroinflammation  9:05

My interview with Dr. Nora Fritz  12:45

My interview with Judy Boone  25:14

Share this episode  34:47

Walk MS 2021 is coming!  35:07

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LINKS

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Give RealTalk MS a Rating and Review

National MS Society COVID-19 Vaccine Guidance for People Living with MS

What You Need to Know About Coronavirus (COVID-19)

RealTalk MS Episode 177: Dr. Nancy Sicotte Answers Your Questions about the COVID-19 Vaccine and MS

STUDY: Willingness to Obtain COVID-19 Vaccination in Adults with Multiple Sclerosis in the United States

STUDY: Long-Term Clinical Outcomes of Hematopoietic Stem Cell Transplantation in Multiple Sclerosis

Autologous Hematopoietic Stem Cell Transplant in Multiple Sclerosis: Recommendations of the National Multiple Sclerosis Society

STUDY: Perceptions and Preferences Regarding Multiple Sclerosis Research Among Racial and Ethnic Groups

iConquerMS

Walk MS 2021

National MS Society COVID-19 Response Fund

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RealTalk MS Episode 179 Guests: Dr. Nora Fritz and Judy Boone

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Paleo...Wahls...Swank...Mediterranean...intermittent fasting. Is there such a thing as "The MS Diet"? Joining me to offer an expert opinion about diet and MS is Dr. Ilana Katz Sand, the Associate Director of the Corinne Goldsmith Dickinson Center for MS and Co-Director of the Center’s Wellness Program.     Dr. Katz Sand's recent and current research studies include a clinical trial of dietary interventions for MS and exploring the role of the gut microbiome in MS. Dr. Katz Sand is also a member of the National MS Society's Wellness Research Work Group where, over the past year, she's led the work of the Nutrition Wellness Subgroup.

We're also looking at how a recent announcement about a new MS vaccine caught fire on social media. And we'll tell you what that news was really all about!

We'll tell you about a study in Sweden that showed a cancer treatment may protect the blood-brain barrier and reduce neuroinflammation in MS.   And we're talking about a Columbia University study that shows why, if you're living with MS, "ya gotta have friends"!   We have a lot to talk about! Are you ready for RealTalk MS??!

Thanks for your feedback!  :22

And thank you for this very nice (and totally unexpected) surprise!  1:22

Did you hear about the new MS vaccine?  3:31

Study shows a cancer treatment may protect the blood-brain barrier and reduce neuroinflammation  9:05

Study shows social support is linked to mental health, quality of life, and motor function in people with MS  11:29

My interview with Dr. Ilana Katz Sand  14:23

Share this episode  31:32

Donate to the National MS Society COVID-19 Response Fund  31:52

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LINKS

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National MS Society COVID-19 Vaccine Guidance for People Living with MS

What You Need to Know About Coronavirus (COVID-19)

Meet the MS Society's 2020 Inspiration Award Winners   STUDY: A Noninflammatory mRNA Vaccine for Treatment of Experimental Autoimmune Encephalomyelitis   STUDY: Blocking PDGF-CC Signaling Ameliorates Multiple Sclerosis-Like Neuroinflammation by Inhibiting Disruption of the Blood-Brain Barrier   STUDY: Social Support is Linked to Mental Health, Quality of Life, and Motor Function in Multiple Sclerosis   Friends, Written by Buzzy Linhart and Performed by Bette Midler   National MS Society COVID-19 Response Fund

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RealTalk MS Episode 178 Guests: Dr. Ilana Katz Sand

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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As Chair of the National MS Society's National Medical Advisory Committee, Dr. Nancy Sicotte led the expert task force that the MS Society convened to develop the COVID-19 vaccine guidance for people living with MS. Dr. Sicotte is returning to RealTalk MS to answer your questions about the vaccine and MS.      Dr. Sicotte is a Professor and Chair of the Department of Neurology at Cedars-Sinai Medical Center in Los Angeles, where she's also the Director of the Multiple Sclerosis and Neuroimmunology Program.      Diane Kramer was diagnosed with MS in 2010. As a healthcare worker, Diane has already received the COVID-19 vaccine. Diane is also joining me to share her experience with the vaccine.   We have a lot to talk about! Are you ready for RealTalk MS??!

Dr. Nancy Sicotte answers your questions about the MS Society's COVID-19 vaccine guidance for people living with MS  1:47

Diane Kramer shares her experience with the COVID-19 vaccine  19:51

Share this episode  27:24

Donate to the National MS Society COVID-19 Response Fund  27:44

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

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LINKS

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National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

COVID-19 Vaccine Guidance for People Living with MS

National MS Society COVID-19 Response Fund

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RealTalk MS Episode 177 Guests: Dr. Nancy Sicotte and Diane Kramer

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist,  COVID19, CovidVaccine, RealTalkMS

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The National MS Society has issued its initial COVID-19 vaccine guidance for people living with MS and we're covering every detail of this anxiously awaited and important announcement.   We're also taking a look back with Dr. Barbara Giesser at some of the things that made life better for people living with MS in 2020.   We have a lot to talk about! Are you ready for RealTalk MS??!

National MS Society releases COVID-19 vaccine guidance for people living with MS  1:44

Some of the things that made life better for people living with MS in 2020 with Dr. Barbara Giesser  13:46

Share this episode  26:19

Donate to the National MS Society COVID-19 Response Fund  26:39

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

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LINKS

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National MS Society's Ask An MS Expert Video Replay

National MS Society COVID-19 Vaccine Guidance for People Living with MS

What You Need to Know About Coronavirus (COVID-19)

National MS Society COVID-19 Response Fund

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RealTalk MS Episode 176 Guests: Dr. Barbara Giesser

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, COVID19, RealTalkMS

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Research creates the future for people affected by MS. And clinical research can't happen without your participation. Joining me as my guest is Sara Loud, the CEO of iConquerMS, the people-powered-research network that puts you at the center of MS research.   We're also celebrating a whole list of MS advocacy wins that will translate into making life better for people living with MS in the United States.   We'll tell you about a study that clearly demonstrates why it's essential to start disease-modifying therapy once someone receives an MS diagnosis.   We're sharing the results of a study about MS-related pain. And we'll tell you about a new set of Amazon Alexa features that make being a long-distance care partner easier.   We have a lot to talk about! Are you ready for RealTalk MS??!

Celebrating MS advocacy wins  :26

Effects of disease-modifying therapy on disability among people living with relapsing-remitting MS over 15 years  4:33

Study reveals new information about MS pain  6:01

Amazon Alexa has new features especially for care partners  9:11

My interview with Sara Loud  11:58

Share this episode  28:39

Donate to the National MS Society COVID-19 Response Fund  28:59

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

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LINKS

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National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

National MS Society: Advocate for Change   STUDY: Effect of Disease-Modifying Therapy on Disability in Multiple Sclerosis Over 15 Years   STUDY: Characterizing Chronic Pain Phenotypes in Multiple Sclerosis: A Nationwide Study   RealTalk MS Episode 170: Special MS Pain Episode   For More Information About iConquerMS: Website: iConquerMS.org Sara Loud's Email: [email protected]   National MS Society COVID-19 Response Fund

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RealTalk MS Episode 175 Guests: Sara Loud

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist,  iConquerMS, RealTalkMS

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In this episode of RealTalk MS, we're re-visiting my conversation with Dr. Bruce Bebo, the Executive Vice-President of Research at the National MS Society, about some of the most interesting research announcements made during the MSVirtual2020 conference.

This is one of my favorite conversations of the entire year, and you've made it this year's most downloaded and listened to RealTalk MS episode.

We have a lot to talk about! Are you ready for RealTalk MS??!

Happy New Year!  :23

My interview with Dr. Bruce Bebo  :39

Share this episode  27:04

Have you downloaded the FREE RealTalk MS app?  27:24

SHARE THIS EPISODE OF REALTALK MS

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

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National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

National MS Society COVID-19 Response Fund

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RealTalk MS Episode 174 Guests: Dr. Bruce Bebo

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist,  COVID19, MSVirtual2020, RealTalkMS

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