RealTalk MS

Planning for your financial future is good advice for everyone. But when you're living with MS, financial planning is an important part of the game plan for living your best life.

Joining me to talk about the things you'll want to keep in mind as you develop your personal financial roadmap is Dick Bell, a professional financial advisor who has worked with more than 600 clients who are living with MS.

We're also talking about how Russia's invasion of Ukraine is impacting MS clinical research.

We'll tell you about a study that's focusing on a novel approach to promoting remyelination.

We're sharing the results of a study that identified a biomarker that may predict future MS disease progression.

And we'll share survey results that show all the ways that MS can impact life.

We have a lot to talk about! Are you ready for RealTalk MS??!

How Russia's invasion of Ukraine is impacting MS clinical research 1:35

A study in the U.K. will test a novel approach to promoting remyelination: 3:27

Study identifies a biomarker that may predict future MS disease activity 7:26

FDA awards Breakthrough Device Designation to a technology that may speed MS diagnosis and predict future disease activity 9:56

Survey results show all the ways MS impacts your life 11:20

Financial advisor Dick Bell discusses your long-term financial strategy for living with MS 15:39

Share this episode 28:05

Download the RealTalk MS app for your iOS or Android device 28:25

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Just copy this link & paste it into your text or email: https://realtalkms.com/244

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

CCMR Two: A Phase IIa, Randomised, Double-Blind, Placebo-Controlled Trial of the Ability of Metformin and Clemastine to Promote Remyelination in People with Relapsing-Remitting Multiple Sclerosis Already on Disease-Modifying Therapy https://clinicaltrials.gov/ct2/show/NCT05131828

STUDY: Prognostic Value of Serum Filament Light Chain for Disease Activity and Worsening in Patients with Relapsing Multiple Sclerosis: Results from the Phase 3 ASCLEPIOS I and II Trials https://frontiersin.org/articles/10.3389/fimmu.2022.852563/full

iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers

iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 244 Guests: Dick Bell

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Living with MS is expensive. And if you're curious about how expensive living with MS is, why it's so expensive, and what can be done about it, then you're going to be interested in the results of a study that was commissioned by the National MS Society.

Joining me to talk about what this study revealed and what it means to individuals and families affected by MS are Dr. Bruce Bebo, the Executive Vice-President of Research at the National MS Society, and the MS Society's Executive Vice-President of Advocacy and Healthcare Access, Bari Talente.

We're also talking about a study that reveals a connection between MS severity and geography.

Have you ever wondered why some people develop severe MS while others don't? We're sharing the details of a study that's hoping to answer that question.

And if you're a caregiver for someone who's living with MS, or you're a healthcare provider who interacts with MS caregivers, or you're a researcher interested in MS caregivers, we'll explain why iConquer MS would like just a few minutes of your time.

We have a lot to talk about! Are you ready for RealTalk MS??!

Measuring the financial impact of MS :22

A study shows MS severity correlates to geographic latitude 1:47

A new study will try to understand why some people develop severe MS while others don't 4:13

iConquer MS is expanding to include MS caregivers but first they need your help 7:26

Dr. Bruce Bebo and Bari Talente break down the results of a study that focused on the cost of living with MS 9:56

Share this episode 29:04

Download the RealTalk MS app for your iOS or Android device 29:25

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Just copy this link & paste it into your text or email: https://realtalkms.com/243

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

STUDY: Economic Burden of Multiple Sclerosis in the United States: Estimate of Direct and Indirect Costs https://n.neurology.org/content/early/2022/04/13/WNL.0000000000200150

STUDY: Association of Latitude and Exposure to Ultraviolet B Radiation With Severity of Multiple Sclerosis: An International Registry Study https://n.neurology.org/content/early/2022/04/11/WNL.0000000000200545

University at Buffalo Multiple Sclerosis Research Challenge: Contribute to the CASA-MS Study https://crowdfunding.buffalo.edu/project/29733

iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers

iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 243 Guests: Dr. Bruce Bebo and Bari Talente

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Mask mandates have mostly ended, and bars, restaurants, public buildings, and other businesses no longer require proof of vaccination. It looks like the COVID-19 pandemic is over. Except for the fact that we're seeing cases of the latest COVID subvariant continue to rise in cities across the country and around the world. So, how do we navigate this post-pandemic world? And if you happen to be immunocompromised, how do you stay safe?

Joining me as she has throughout the pandemic, with an update including the steps you can take to stay safe as the world re-opens is Dr. Nancy Sicotte. Dr. Sicotte is a professor and Chair of the Department of Neurology at Cedars-Sinai Medical Center in Los Angeles. Dr. Sicotte also Chairs the National MS Society's National Medical Advisory Committee and she leads the MS Society's COVID-19 Advisory Group.

We're also talking about a workshop that brought together a group of global experts to weigh in on autologous hematopoietic stem cell transplantation (aHSCT) as a viable treatment for MS.

We're sharing the details about an upcoming clinical trial that will test a myelin-restoring treatment for people with relapsing-remitting MS.

Evidence from multiple studies shows that members of the Black and Hispanic communities who live with MS can experience a more severe disease course and a higher disability burden. We'll share the details of a presentation from the Academy of American Neurology annual meeting that sheds new light on what may be driving these disparities.

And we'll tell you how you can register to participate in the National African-Americans with MS Registry.

We have a lot to talk about! Are you ready for RealTalk MS??!

Welcome to the Next Normal! :22

ECTRIMS hosts an Autologous Hematopoietic Stem Cell Transplantation (aHSCT) workshop 1:45

FDA Approves clinical trial for a myelin-restoring treatment 6:04

New data may explain racial and ethnic disparities in MS disease severity and treatment 7:45

The National African Americans with MS Registry 10:13

Dr. Nancy Sicotte explains what people with MS need to know to stay safe as they re-enter a post-pandemic world 11:52

Share this episode 32:31

Download the RealTalk MS app for your iOS or Android device 32:51

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/242

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

ECTRIMS Focused Workshop: Autologous Hematopoietic Stem Cell Transplantation For Treatment of MS and Related Diseases https://ectrims.eu/ongoing-educational-programmes/focused-workshops

National MS Society Recommendations for aHSCT-Bone Marrow Transplant for MS https://nationalmssociety.org/About-the-Society/News/National-MS-Society-Releases-Recommendations-for-a

National African Americans with MS Registry https://www.naamsr.org

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 242 Guests: Dr. Nancy Sicotte

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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I spent last week attending the American Academy of Neurology (AAN) Annual Meeting and in this week's episode of RealTalk MS, I'm sharing an overview of what I saw and what I heard.

Each year at the AAN meeting, the American Academy of Neurology and the National MS Society award the John Dystel Prize for MS Research. Joining me on today's podcast is this year's recipient of the Dystel Prize, Professor Xavier Montalban.

We're also talking about how the COVID-19 pandemic has affected MS research and clinical care.

We're sharing encouraging news about two potential disease-modifying therapies.

And we'll share some of the over-arching themes that kept popping up in a number of different meetings, presentations, and conversations during the AAN annual meeting.

We have a lot to talk about! Are you ready for RealTalk MS??!

The impact of the pandemic on MS research and clinical care :53

Results of Phase 2 extension study show Evobrutinib effective in reducing relapse rates in relapsing forms of MS 4:53

Results of Ublituximab Phase 3 post-hoc analyses announced 7:16

Dr. Stephen Hauser receives the Scientific Breakthrough Award 9:25

The importance of making complex science easy to understand for people affected by MS 10:29

The importance of increasing clinical trial participation among members of minority communities 12:48

The importance of caring for the caregiver 14:04

John Dystel Prize for MS Research awarded to Prof. Xavier Montalban 15:40

My conversation with John Dystel Prize recipient Professor Xavier Montalban 16:25

Share this episode 24:51

Have you downloaded the RealTalk MS app? 25:12

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/241

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 241 Guests: Professor Xavier Montalban

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Research has shown that hypnosis is an effective treatment for managing chronic pain, including pain associated with MS.

My guest, Dr. Mark Jensen, is a Professor and Vice-Chair of the Department of Rehabilitation Medicine at the University of Washington. Dr. Jensen has devoted his career to developing effective treatments for pain and is an expert on hypnotic interventions.

We're also talking about a research team that may have learned how to successfully penetrate the blood-brain barrier (and why that could be great news for people living with MS!).

We'll share the results of a 10-year study in France that showed very positive outcomes for people living with highly active relapsing-remitting MS.

We'll tell you about 66 research projects that have just been funded by the MS Society of Canada.

And we'll share results from a survey that identify pandemic-specific depression and anxiety among people living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

Researchers may have found a way through the blood- brain barrier 1:17

10-year study reveals surprising results 4:19

MS Society of Canada announces funding for 66 research projects 8:07

Researchers identify pandemic-related depression among people living with MS 9:11

Dr. Mark Jensen discusses treating MS-related chronic pain with hypnosis 12:43

Share this episode 30:58

Have you downloaded the RealTalk MS app? 31:19

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/240

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

STUDY: Endothelial Unc5B Controls Blood-Brain Barrier Integrity https://www.nature.com/articles/s41467-022-28785-9

STUDY: Ten-Year Follow-Up After Mitoxantrone Induction For Early Highly Active Relapsing-Remitting Multiple Sclerosis: An Observational Study of 100 Consecutive Patients https://sciencedirect.com/science/articles/abs/pii/5003578722000431

MS Society of Canada Research Funding Announcement https://mssociety.ca/information-for-researchers/funding-announcements

National MS Society MS Navigator Contact Info Phone: (800) 344-4867 Email: [email protected]

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 240 Guests: Dr. Mark Jensen

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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A decade ago, the International Progressive MS Alliance didn't exist. Today, it can be credited with changing the global conversation about progressive MS research, elevating the progressive MS research agenda and moving the work forward. A few weeks ago, the Alliance announced the details of an ambitious strategic plan that will guide their work over the next 3 years.

Joining me to talk about the new goals that were set by the Alliance, and what that means for people affected by progressive MS, is the Chair of the Alliance's Scientific Steering Committee, Dr. Robert Fox.

The MS International Federation conducted a survey and we're wondering whether the responses have raised a larger question?

We're also talking about a study that showed how an online mindfulness program significantly improved depression for people living with MS.

We're sharing study results that show your nose knows when your DMT is working well for you.

We'll also share the details about an exciting undertaking at the University of Colorado that may lead to treating people so that they completely avoid the symptoms of MS.

And we'll tell you about a small trial that demonstrated the effectiveness of an experimental stem cell therapy as a potential treatment for progressive MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

International Progressive MS Alliance unveils a new 3-year strategic plan :22

Survey results raise a larger question -- How do we share MS research news with people affected by MS??? 1:04

Online mindfulness provides significant improvement for managing depression among people with MS 16:14

Using your nose to determine the efficacy of your disease-modifying therapy 8:33

NeuroGenesis cell therapy shows promise as a potential treatment for progressive MS 14:14

Dr. Robert Fox discusses what's next for the International Progressive MS Alliance 17:28

Share this episode 28:07

Have you downloaded the RealTalk MS app? 28:27

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/239

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

International Progressive MS Alliance https://progressivemsalliance.org

STUDY: A Randomized Controlled Trial of a Web-Based Mindfulness Programme for People With MS With and Without a History of Recurrent Depression https://journals.sagepub.com/doi/10.1177/13524585211068002

STUDY: Olfactory Threshold Predicts Treatment Response in Relapsing Multiple Sclerosis https://journals.sagepub.com/doi/10.1177/1354285221079744

STUDY: Effects of Mesenchymal Stem Cell Transplantation on Cerebrospinal Fluid Biomarkers in Progressive MS https://academic.oup.com/stcltm/article/11/1/55/6528889

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 239 Guests: Dr. Robert Fox

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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The Pathways to Cures initiative is focused on stopping MS progression, restoring lost function, and ending MS forever. This bold initiative has already been endorsed by more than 20 MS research and patient organizations around the world. And now, the publication of the Pathways to Cures Research Roadmap has brought us to a pivotal moment in the history of MS research.

Joining me in this episode of RealTalk MS are two very special guests, Dr. Carol Whitacre and Professor Alan Thompson. We're taking a close look at what Pathways to Cures is all about, where we are on the Pathways to Cures Research Roadmap, and what this initiative means for people affected by MS.

Dr. Whitacre is the former Senior Vice-President of Research at The Ohio State University, and the current Chair of the National MS Society's Scientific Advisory Committee.

Professor Thompson is a clinician scientist who has been the recipient of virtually every high honor and award that's given in the field of multiple sclerosis research, including the John Dystel Prize for MS Research in 2017, the Sobek Research Prize in 2020, and the 2021 Charcot Award, which recognizes a lifetime of achievement in outstanding research into understanding and treating MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

The Pathways to Cures Research Roadmap :22

Dr. Carol Whitacre discusses the significance of the Pathways to Cures initiative 3:34

Prof. Alan Thompson reviews the status of MS research to stop progression, restore lost function, and end MS, then looks ahead to next steps in the Pathways to Cures research roadmap 16:14

Share this episode 33:52

Have you downloaded the RealTalk MS app? 34:12

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Just copy this link & paste it into your text or email: https://realtalkms.com/238

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

RealTalk MS Episode 125: The Pathways to Cures Think Tank https://realtalkms.com/125

Pathways to Cures https://pathwaystocures.org

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 238 Guests: Dr. Carol Whitacre and Prof. Alan Thompson

Tags: MS, MSAwareness MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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It's MS Awareness Week and my guest is Marti Hines. Marti is a successful event producer, entrepreneur, film producer, and director. She was diagnosed with MS in 2018, and Marti has been very transparent in sharing the highs and lows of her MS journey on her social channels.

Like so many people living with MS, Marti has an amazing energy and a seemingly endless supply of resilience. You're going to enjoy meeting her.

We're also talking about why increasing diversity in clinical trials is so vital. And we're highlighting the Consensus Statement on Health Equity in Clinical Trials and Real-World Evidence Data Collection that was released by the National MS Society's Corporate Healthcare Roundtable.

You'll learn about the Cost Plus Drug Company, billionaire Mark Cuban's effort to disrupt the prescription drug market by offering generic drugs that truly are affordable.

And we'll share the results of a study that shows that a keto diet may be beneficial for people living with relapsing MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

It's MS Awareness Week! :22

MS Society Corporate Healthcare Roundtable issues a consensus statement on health equity in clinical trials 1:03

Mark Cuban Cost Plus Drug Company is compassionate capitalism in action 5:59

Keto diet shows benefits for people with relapsing MS 11:18

Marti Hines talks about why sharing her MS journey is important 14:51

Share this episode 26:08

Have a minute? Leave a rating and review for RealTalk MS! 26:28

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/237

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society MS Awareness Week https://nationalmssociety.org/msawareness

National MS Society Corporate Healthcare Roundtable Consensus Statement on Health Equity in Clinical Trials and Real-World Evidence Data Collection https://nmsscdn.azureedge.net/NationalMSSociety/media/MSNationalFiles/Documents/Corporate-Healthcare-Roundtable_Consensus-Statement-on-Health-Equity-in-Clinical-Trials-and-Data-Collection-(2).pdf

National MS Society Public Policy Conference Replay https://nationalmssociety.org/ppc

Mark Cuban Cost Plus Drug Company https://costplusdrugs.com

STUDY: Ketogenic Diet as a Strategy for Improved Wellness and Reduced Disability in Relapsing Multiple Sclerosis https://index.mirasmart.com/aan2022/PDFfiles/AAN2022-000622.html

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 237 Guests: Marti Hines

Tags: MS, MSAwareness MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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If you're living with MS, there's a good chance that, at some point, you're going to deal with depression, cognitive issues, or both of these common MS symptoms.

We're taking a deep dive into how these symptoms can impact your everyday life at home and at work with the author of Mind, Mood, and Memory: The Neurobehavioral Consequences of Multiple Sclerosis, Dr. Anthony Feinstein.

We're also highlighting some of the MS research that was presented two weeks ago at the ACTRIMS Forum, the annual meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis.

You'll hear how artificial intelligence is being used to predict how someone will respond to different disease-modifying therapies.

You'll learn about the efficacy of stem cell therapy in treating aggressive MS.

And we'll share the results of a research project designed to calculate the economic burden of MS in the United States.

We have a lot to talk about! Are you ready for RealTalk MS??!

Thanks for participating in the Public Policy Conference! :22

Why we talk about depression and cognitive issues on this podcast :47

AI helps predict treatment response in primary progressive MS 3:02

Stem cell therapy shows benefits in treating aggressive MS 6:28

Study measures the economic burden of MS 8:32

Dr. Anthony Feinstein discusses how mind, mood, and memory impact MS 12:31

Share this episode 28:34

Download the RealTalk MS app for your iOS or Android device 28:56

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/236

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

"Mind, Mood, and Memory: The Neurobehavioral Consequences of Multiple Sclerosis" on Amazon.com https://www.amazon.com/Mind-Mood-Memory-Neurobehavioral-Consequences-ebook-dp-B099NXZMMS/dp/B099NXZMMS/ref=mt_other

STUDY: A Comprehensive Assessment of the Total Economic Burden of Multiple Sclerosis in the United States https://ectrims2021.abstractserver.com/program/#/details/presentations/557

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 236 Guests: Dr. Anthony Feinstein

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Privacy Policy

I've always believed that the things people affected by MS want most -- things like access to quality healthcare, affordable prescription medications, and funding for MS research -- are all functions of public policy. The people who decide whether we get those things are our elected officials at both the state and federal level. That's why advocacy is a priority.

The National MS Society's Public Policy Conference is taking place on March 7th. Joining me with a preview of what we can expect to see and hear at this year's conference, as well as how you can register to participate, is the MS Society's Executive Vice-President of Advocacy and Healthcare Access, Bari Talente.

Last week, the America's Committee for Treatment and Research in Multiple Sclerosis convened the 2022 ACTRIMS Forum, their annual research conference.

One of the highlights of the ACTRIMS Forum is the presentation of the Barancik Prize for Innovation in MS Research. This year's recipient of the Baranick Prize is Dr. Amit Bar-Or, who was recognized for his pioneering work in uncovering how the immune system drives MS and his cutting-edge research focusing on precision medicine to achieve long-term remission and, ultimately, prevent MS progression.

Dr. Bar-Or also joins me on this episode of the podcast to talk about his innovative work aimed at improving outcomes for people living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

Why talking about MS advocacy is so important :22

Greetings from the 2022 ACTRIMS Forum 1:47

My conversation with Dr. Amit Bar-Or 3:54

We're just days away from the PPC 12:43

Bari Talente discusses the value of MS advocacy and the legislative issues that we'll be talking about at the Public Policy Conference 13:19

Share this episode 27:25

Download the RealTalk MS app for your iOS or Android device 27:49

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/235

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Register for the MS Society's Public Policy Conference Text "PPC" to 52886 or visit https://nmss.6connex.com/event/PPC/login

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 235 Guests: Bari Talente and Dr. Amit Bar-Or

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, ACTRIMS2022, RealTalkMS

Privacy Policy