RealTalk MS

Many of our local, state, and national leaders seem to be declaring that the pandemic has ended and it's back to business as usual. But if you're living with MS, how comfortable are you with the idea of being out in a world where everyone isn't fully vaccinated, and mask mandates have been cancelled?

Dr. Meghan Beier and Emily Reilly join me to discuss how to manage your fear and anxiety, build resilience, and deal with the emotional impact of living life in a world where COVID-19 is considered an endemic virus.

Dr. Beier is an Assistant Professor of Physical Medicine and Rehabilitation and Johns Hopkins University School of Medicine and a psychologist with specialized training in health psychology, neuropsychology, and multiple sclerosis.

Emily Reilly is a certified physical trainer and a National MS Society staff member on the Advocacy and Healthcare Access Team. Emily lives with MS, and we'll talk with Emily about how her life has been impacted by the pandemic and how she's found ways to cope with some challenging but all too familiar situations.

We'll also share details of the new 3-year strategic plan unveiled by the International Progressive MS Alliance.

We'll tell you about new investments in MS research in the U.K.

You'll hear about how iConquer MS is expanding its outreach to include kids and teens living with MS and their parents.

And we'll share our plans for attending the first MS research conference in person as the ACTRIMS Forum 2022 gets underway this week.

We have a lot to talk about! Are you ready for RealTalk MS??!

The ACTRIMS Forum 2022 begins this week 2:33

International Progressive MS Alliance Unveils a 3-Year Strategic Plan 5:38

iConquer MS expands to include pediatric MS 8:25

About our show notes 9:47

U.K. MS Society invests $1.5 million in new research 11:55

Dr. Meghan Beier and Emily Reilly discuss dealing with the emotional impact of the pandemic 14:13

Share this episode 31:12

Download the RealTalk MS app for your iOS or Android device 31:33

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Managing MS and Comorbidities with Dr. Ruth Ann Marrie https://realtalkms.com/232

International Progressive MS Alliance https://progressivemsalliance.org

iConquer MS Survey for Kids and Teens Living with MS https://survey.alchemer.com/s3/6663544/Pediatric-Survey-Kids-Teens

iConquer MS Survey for Parents of Kids or Teens Living with MS https://survey.alchemer.com/s3/6665289/Pediatric-Survey-Parents-Guardians

iConquer MS Survey for Researchers and Healthcare Providers Working with Kids or Teens Living with MShttps://survey.alchemer.com/s3/6677381/Pediatric-MS-survey-HCPs-and-researchers

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 234 Guests: Dr. Meghan Beier and Emily Reilly

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

With hospital rates starting to decline and mask mandates being lifted in several states there seems to be a general sense that we're seeing COVID-19 becoming an endemic virus. And we have to wonder what that means for people living with MS.

Dr. Nancy Sicotte joins me to talk about the preventative treatments for COVID-19 that are available today for people who are living with MS, the importance of receiving 4 doses of the COVID-19 mRNA vaccines if you're living with MS, and some of the things we should be thinking about as we begin this transition from pandemic to endemic.

Dr. Sicotte is a professor and Chair of the Department of Neurology at Cedars-Sinai Medical Center in Los Angeles. Dr. Sicotte also Chairs the MS Society's National Medical Advisory Committee and leads its COVID-19 Advisory Group.

Evidence shows that MS impacts Black people differently. Evidence also shows that Black people face additional challenges and burdens as they attempt to access the healthcare system. We're also talking with Dr. Jacqueline Rosenthal about the unique challenges of MS in the Black community.

We have a lot to talk about! Are you ready for RealTalk MS??!

Dr. Jacqueline Rosenthal discusses how MS impacts Black people differently 1:38

COVID-19 from pandemic to endemic, Dr. Nancy Sicotte looks at what's ahead for people living with MS 12:53

Share this episode 34:23

Download the RealTalk MS app for your iOS or Android device 34:43

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/233

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 233 Guests: Dr. Jacqueline Rosenthal and Dr. Nancy Sicotte

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Research shows that about 50% of the people living with MS will develop another chronic health condition, or comorbidity, in their lifetime. Whether it's high blood pressure, diabetes, or something else, living with comorbid conditions adds extra challenges to living with MS.

Joining me to discuss how comorbidities affect people living with MS and what you can do to avoid developing some of those comorbidities is one of the leading experts on the subject, Dr. Ruth Ann Marrie.

We're also talking about why a Phase 2 clinical trial for a prospective MS disease-modifying therapy got a do-over.

We'll share some very encouraging news about how the enrollment for a new study turned out.

We'll also share results from a study in the U.K. that remind us why everyone living with MS needs to be vaccinated and boosted.

We'll give you the registration info for this year's series of First Descents (no cost!) outdoor adventures for young adults living with MS.

And we'll tell you how to register for the National MS Society's virtual 2022 Public Policy Conference.

We have a lot to talk about! Are you ready for RealTalk MS??!

GeNeuro completes Phase 2 clinical trial for Temelimab -- again! 1:29

The CONNECT study connects with all the right participants 3:56

U.K. study results provide one more reason for everyone with MS to be vaccinated 5:57

Registration is now open for First Descents outdoor adventures for young adults living with MS 7:56

MS Society opens registration for this year's virtual Public Policy Conference 9:32

Dr. Ruth Ann Marrie discusses comorbidities and MS 11:56

Share this episode 28:10

Download the RealTalk MS app for your iOS or Android device 28:30

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/232

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

National MS Society Public Policy Conference Registration https://nmss.6connex.com/event/PPC/login

STUDY: Recovery from COVID-19 in Multiple Sclerosis: A Prospective and Longitudinal Cohort Study of the United Kingdom Multiple Sclerosis Register https://nn.neurology.org/content/9/1/e1118

First Descents Program Information https://firstdescents.org/programs/ms-programs/

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 232 Guests: Dr. Ruth Ann Marrie

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Now that Harvard researchers have presented compelling evidence that MS is triggered by the Epstein-Barr Virus (EBV), what does it mean in terms of ending MS in the world? What does it mean for people already living with MS? And how will this announcement impact MS research?

Joining me to unpack the details and implications of this research breakthrough is the Executive Vice-President of Research for the National MS Society, Dr. Bruce Bebo.

We're also talking about new research from Stanford University that shows how EBV triggers MS.

We'll share the results of a study that shows cognitive dysfunction can increase the risk of death for people living with MS.

We'll give you the details of the $600,000 grant that was awarded to develop a behavioral therapy intervention designed to improve the quality of life for people living with MS.

And if you'd like to be able to say, "I helped develop a cure for MS," we'll tell you how.

We have a lot to talk about! Are you ready for RealTalk MS??!

A Stanford research team discovers how EBV triggers MS 1:18

A biotech company announces they will develop a therapy to kill EBV-inifected cells in people living with MS 4:03

Study shows cognitive dysfunction increases risk of death for people living with MS 5:34

$600,000 awarded to develop a behavioral therapy intervention that will improve quality of life for people living with MS 8:44

Now is the perfect time for you to get involved with iConquer MS 10:58

Dr. Bruce Bebo discusses the implications and next steps following the presentation of evidence showing EBV triggers MS 13:04

Share this episode 28:35

Download the RealTalk MS app for your iOS or Android device 28:56

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/231

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

STUDY: Clonally Expanded B Cells in Multiple Sclerosis Bind EBV EBNA1 and GlialCAM https://nature.com/articles/s41586-022-04432-7

STUDY: Cognitive Dysfunction and Mortality in Multiple Sclerosis: Long-Term Retrospective Review https://journals.sagepub.com/doi/10.1177/13524585211066598

iConquer MS https://iconquerms.org

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 231 Guests: Dr. Bruce Bebo

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Fatigue is one of the most common symptoms of MS. It just gets in the way of fully engaging in life, making fatigue one of the most bothersome symptoms of MS. And because MS fatigue is one of the main causes of early withdrawal from the workforce, fatigue is an MS symptom that can impose a hefty financial penalty on a household.

Joining me to talk about managing and even reducing MS fatigue is Dr. Elizabeth Gromisch, a neuropsychologist at the Mandell Center for Multiple Sclerosis in Hartford, Connecticut.

We'll also share the results of a UCSF study that show how artificial intelligence may be able to predict MS in an individual years before they experience any typical MS symptoms.

We'll tell you about two different experimental treatments for progressive MS that are showing some early promise.

We'll give you the details of how you can join a virtual support group with a focus on using positive psychology for people living with MS.

And we'll give you a reminder that MS Got Talent is being live-streamed this Saturday....and Jon's performing magic!

We have a lot to talk about! Are you ready for RealTalk MS??!

Did you catch last week's episode about EBV & MS? :22

Wait....Jon does magic???! 2:08

Study shows AI may predict MS years before it can be diagnosed 3:43

Study shows Hydroxychloroquine slows disability progression in primary progressive MS 7:28

Second patient receives Foralumab as treatment for secondary progressive MS 9:13

How you can join a virtual support group that focuses on using positive psychology for people living with MS 11:08

Dr. Elizabeth Gromisch discusses strategies for managing and even reducing MS fatigue 13:04

Share this episode 27:42

MS Got Talent is live streaming this Saturday 28:03

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/230

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

STUDY: Embedding Electronic Health Records Onto a Knowledge Network Recognizes Prodromal Features of Multiple Sclerosis and Predicts Diagnosis https://academic.oup.com/jamia/advance-article/doi/10.1093/jamia/ocab270/6463510#323650259

STUDY: Hydroxychloroquine for Primary Progressive MS https://onlinelibrary.wiley.com/doi/10.1002/ana.26239

Positive Psychology Virtual MS Support Group Study Contact Info Email: [email protected] Phone: (919) 638-0889

MS Got Talent LIVE on Jan. 29th at 7PM Eastern/4PM Pacifichttps://mssociety.donordrive.com/participant/msgottalent or https://twitch.tv/mssociety

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 230 Guests: Dr. Elizabeth Gromisch

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century.

In this special episode of RealTalk MS, we're talking with Pieter van Galen and Amanda Montague about that sometimes-challenging conversation with your healthcare provider about MS progression.

We're also highlighting My MS Roadmap, a free tool designed to make conversations with your healthcare provider easier by offering clear and easy to understand definitions of the complex language used to describe multiple sclerosis.

Amanda Montague is the Chief Mission Officer for the Multiple Sclerosis Association of America and Pieter van Galen is a freelance trainer and consultant based in Belgium. Pieter has been living with MS since being diagnosed in 2006.

Both Amanda and Pieter are active members of the MS in the 21st Century initiative. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com.

Last week, a research team at the Harvard T.H. Chan School of Public Health presented compelling evidence that the Epstein-Barr Virus (EBV) triggers multiple sclerosis. So, we're taking a deep dive into the role of EBV and MS.

We'll review the breakthrough results of this research and we'll re-share our conversation with one of the researchers in this game-changing study.

We'll review the status of an experimental cell therapy that's designed to remove the EBV virus from infected b-cells in people with progressive MS.

And we'll update you on a clinical trial that's underway to test an EBV vaccine.

We have a lot to talk about! Are you ready for RealTalk MS??!

Researchers at Harvard present compelling evidence that Epstein-Barr Virus (EBV) triggers MS :22

Dr. Kassandra Munger discusses EBV and MS 4:41

What else do we still need to know? 13:28

ATA-188, EBV, and MS 14:06

Dr. AJ Joshi discusses what scientists are learning from the ATA-188 clinical trial 14:49

What about an EBV vaccine? 27:21

What??? Magic??? 28:33

Share this episode 30:23

Be sure to catch MS Got Talent 30:43

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/229

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

STUDY: Longitudinal Analysis Reveals High Prevalence of Epstein-Barr Virus Associated with Multiple Sclerosis https://science.org/doi/10.1126/science.abj8222

MS Got Talent LIVE on Jan. 29th at 7PM Eastern/4PM Pacifichttps://mssociety.donordrive.participant/msgottalent or https://twitch.tv/mssociety

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 229 Guests: Dr. Kassandra Munger,

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, EBV, EpsteinBarr, RealTalkMS

This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century.

Cognitive impairment affects more than 50% of the people living with MS. In this special episode of RealTalk MS, we're talking with Dr. Sarah Morrow and Paola Kruger about how people living with MS can work together with their healthcare providers to develop a constructive dialogue about cognition and MS.

Dr. Sarah Morrow is an Associate Professor of Neurology in the Department of Clinical Neurological Sciences at Western University. Dr. Morrow is also the founder of the first MS Cognitive Clinic in London Ontario, and the director of the London Ontario MS Clinic in Canada.

Paola Kruger is a patient advocate who was diagnosed with MS in 2010. Since her diagnosis, Paola has worked with the Multiple Sclerosis Centre in Rome, focusing on projects related to patient engagement while also developing new clinician/patient approaches to managing MS.

Both Dr. Morrow and Paola are active members of the MS in the 21st Century initiative. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com.

You're invited to take the MS in the 21st Century survey on the impact of cognitive symptoms on daily life and employment here.

For some people, getting a headache means experiencing mild discomfort. For others, it can mean debilitating pain, compromised vision, and other serious effects. You don't have to be living with MS to experience a headache. But research has shown that people living with MS are more likely to experience headaches than people who don't have MS. And there's some evidence to suggest that headaches may be one of the earliest symptoms of MS.

Meagan Adamson is a nurse practitioner who specializes in treating headache and multiple sclerosis. She's joining me this week to share tips and strategies for treating and even avoiding your next headache.

We'll also tell you about 13 research projects that were just funded by the National MS Society. All these projects are focused on detecting MS before obvious symptoms appear. And we'll explain how these projects advance the MS Society's Pathways to Cures initiative.

The phase 3 clinical trial for Masitinb has just received approval from the French Health Authority. We'll give you the details and explain why this is very good news for people living with progressive MS.

We'll share an article written by two leading experts who believe that your neurologist should be prescribing exercise and connecting you to the exercise resources you'll need.

We'll tell you about a study that showed that a combination of cognitive-behavioral therapy and cognitive-targeted exercise improved MS-related fatigue in just 4 weeks.

And if you're living with MS and experiencing depression or anxiety, we'll tell you how you can participate in a study that can help.

We have a lot to talk about! Are you ready for RealTalk MS??!

National MS Society invests almost $7 million funding 13 new research projects 1:38

Phase 3 clinical trial for Masitinib receives approval 4:47

Is your neurologist prescribing exercise? 7:43

Study shows CBT plus Cognitive-Targeted Exercise improve MS fatigue 12:33

Experiencing depression? Participate in a study that can help 16:02

Nurse Practitioner Meagan Adamson shares strategies for treating and avoiding your next headache 19:14

Share this episode 28:03

Have you downloaded the free RealTalk MS app yet??? 28:24

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/228

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

National MS Society Commits Nearly $7 Million Dollars for Targeted Research Projects and Rescue Funds for Those Disrupted by COVID-19 https://nmsscdn.azureedge.net/NationalMSSociety/media/MSNationalFiles/Research/New-Research-Fall-2021.pdf

Positive Top-Line Phase 2B/3 Results for Masitinib in Progressive Forms of MS http:/ab-science.com/years/2020/188-positive-top-line-results-for-masitinib-in-progressive-forms-of-ms

STUDY: The Added Value of Cognition-Targeted Exercise Versus Symptom-Targeted Exercise for Multiple Sclerosis Fatigue: A Randomized Controlled Pilot Study https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0258752>

National MS Society: Exercise and Physical Activity Recommendations for ALL People with MS https://nationalmssociety.org/About-the-Society/News/Exercise-and-Physical-Activity-Recommendations-for

eSupport Health CONNECT Study https://esupporthealth.com/connectstudy

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 228 Guests: Meagan Adamson, DNP, FNP-BC, MSCN

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

We're four days into 2022 and, for a lot of us, that means that we're four days into a new diet, four days into a new exercise regimen, or four days into some other life-changing behavior. Making healthy lifestyle changes is good for everyone and there's plenty of evidence that shows these kinds of behavioral changes can be especially beneficial if you're living with MS.

But too often, we see the well-intentioned resolutions that we make in January fade into distant memories by March. It doesn't have to be that way. Joining me to share strategies designed to help us maintain those new lifestyle choices throughout the year is Dr. Brooks Wingo, an Associate Professor at the University of Alabama Birmingham in the Department of Occupational Therapy and the Principal Investigator and Director of the Health Behavior and Disability Lab.

We're also taking a look back at some of the important MS research milestones that we talked about in 2021.

And we're taking a deep dive into understanding the patient's role in shared decision-making with their neurologist and why that makes where you look for information about MS more important than ever before.

We have a lot to talk about! Are you ready for RealTalk MS??!

Our look back at 2021 2:25

Where are we getting our information? 8:43

Dr. Brooks Wingo shares tips and strategies for keeping our New Year resolutions throughout the year...and why that especially matters if you're living with MS 17:49

Share this episode 32:48

Have you downloaded the free RealTalk MS app yet??? 33:08

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/227

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

National MS Society: Exercise and Physical Activity Recommendations for ALL People with MShttps://nationalmssociety.org/About-the-Society/News/Exercise-and-Physical-Activity-Recommendations-for

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RealTalk MS Episode 227 Guests: Dr. Brooks Wingo

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS