One of the things that people affected by MS seem to worry about every year is the flu vaccine. And the question is always the same -- is it safe for someone with MS to get a flu shot?  This year, that question and its accompanying anxiety are compounded by the COVID-19 pandemic. Is it safe for someone with MS to get a flu vaccination during the pandemic? Is it safe for someone with MS to get a COVID-19 vaccination when one becomes available? And what about the impact of MS disease-modifying therapies on the effectiveness of any vaccination?     My guest is Dr. John Ciotti, a board-certified neurologist and clinical fellow at Washington University in St. Louis, Missouri. Dr. Ciotti is with us to answer those important questions. We're talking about flu shots and other vaccinations, and we're even talking about how a COVID-19 vaccine -- which doesn't exist today -- is likely going to affect people with MS who are on disease-modifying therapies. This is a conversation you don't want to miss because the perfect antidote to worrying is getting your hands on good, credible information.   We're also talking about the very positive outcomes of two clinical trials comparing ofatumumab to Aubagio. It's likely that next month, ofatumumab (Arzerra) is going to receive FDA approval for treating MS, so these clinical trial results are something you'll want to know about.   We'll share the results of a study that should give you the most important reason yet to include exercise as part of your regular routine and we'll point you toward the new exercise resources that have been created especially for people living with MS.    The National MS Society conducted a survey to measure how the COVID-19 pandemic was affecting people living with MS. We'll share some of the highlights from the survey and we'll even remind you where to find the resources that were requested most by survey respondents.   And we'll tell you about the very first study to measure the incidence of MS in China.    We have a lot to talk about! Are you ready for RealTalk MS??!

National MS Society survey measured the impact of the COVID-19 pandemic on people living with MS  1:54

Clinical trial data shows ofatumumab outperforms Aubagio  4:08

Research shows that exercise preserves key areas of the brain among people with MS   6:53

Research team is first to report the incidence of MS in China  10:00

My Interview with Dr. John Ciotti  12:55

Share this episode  28:25

Please leave a rating & review  28:48

DUNK MS is happening Saturday!  29:01

Please Support the National MS Society COVID-19 Response Fund  29:40

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

Effects of MS Disease-Modifying Therapies On Responses to Vaccinations: A Review

RealTalk MS Episode #148: Updated guidance on COVID-19 and each of the available disease-modifying therapies

STUDY: Ofatumumab vs Teriflunomide in Multiple Sclerosis

STUDY: The Importance of Physical Activity to Preserve Hippocampal Volume in People with Multiple Sclerosis: A Structural MRI Study

National MS Society Recommendations for Exercise & Physical Activity For ALL People with MS

VIDEO: Stretching Tips for MS

VIDEO: Aerobic Exercise Tips for MS

VIDEO: Breathing Exercise Tips for MS

STUDY: Incidence of Multiple Sclerosis in China: A Nationwide Hospital-Based Study

National MS Society COVID-19 Response Fund

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RealTalk MS Episode 154 Hosted By: Jon Strum Guests: Dr. John Ciotti

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Vaccinations, COVID-19, RealTalkMS

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MS patients experience better treatment outcomes when they actively participate in their own care. And that requires high health literacy. One of my guests is health literacy expert Dr. Kalina Sanders and we're talking about how being an informed patient can have a significant impact on the healthcare you receive.

 

A well-rounded MS treatment plan will include wellness practices like making smart food choices and adding exercise to your routine. But making changes to our health behaviors is challenging for everyone -- and maybe more challenging if you're already trying to manage a chronic illness like MS. My second guest is wellness coach Kate Costello and we're talking about how changing your health behaviors can be a lot easier when you have someone supporting you every step of the way. 

We're also talking about the new guidelines for diagnosing and treating MS in Canada. We'll tell you about a 10-year study that shows that when motor skills decline, walking takes the first hit. Find out where to apply for the CAN-DO MS two-day Take Charge program for young adults and their support partners. And we'll tell you how (and why!) to share your voice about MS advocacy issues.    We have a lot to talk about! Are you ready for RealTalk MS??!

Canadian MS Working Group issues new MS diagnosis & treatment guidelines  2:14

When motor skills decline, walking takes the first hit  4:14

The importance of health literacy with Dr. Kalina Sanders   6:33

CAN-DO MS announces two-day Take Charge program for young adults living with MS and their support partners  17:10

Add your voice to the National MS Society's public policy survey   19:16

My Interview with wellness coach Kate Costello  20:55

Share this episode  32:40

Leave a rating & review for RealTalk MS  32:59

Please Support the National MS Society COVID-19 Response Fund  33:15

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email:  https://realtalkms.com/153

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

Kate Costello at Wildcrafted Wellness

Treatment Optimization in Multiple Sclerosis: Canadian MS Working Group Recommendations

STUDY: Ten Year Disease Progression in Multiple Sclerosis: Walking Declines More Rapidly than Arm and Hand Functioning

CAN-DO MS Take Charge Program for Young Adults

National MS Society Public Policy Survey

National MS Society COVID-19 Response Fund

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RealTalk MS Episode 153 Hosted By: Jon Strum Guests: Dr. Kalina Sanders, Kate Costello

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Cognitive decline and depression are two of the more common invisible symptoms of multiple sclerosis, impacting at least half of all the people living with MS.    My guest is Dr. Meghan Beier, an Assistant Professor of Physical Medicine at the Johns Hopkins University School of Medicine, and a Rehabilitation Neuropsychologist. Dr. Beier specializes in cognitive rehabilitation and neuropsychological assessment and intervention, and she's going to share some specific strategies that you can use to best manage MS-related cognitive problems and depression.     We're also talking about the newly announced $16 million dollar investment from the National MS Society that will support 50 new MS research initiatives.   We'll tell you about a small pilot study that suggests that ketamine may be effective in treating MS fatigue. And if you're contemplating using a CBD product to help manage your MS, you'll want to hear what the FDA discovered when they checked the labels on 147 different CBD products.   We're even sharing a new, super-easy way for you to add your rating and review of RealTalk MS (and we'd love it if you would!).   We have a lot to talk about! Are you ready for RealTalk MS??!

Announcing the easiest way ever to leave a rating and review for RealTalk MS  :29

The National MS Society just invested $16 million in new MS research  3:14

Study shows that ketamine may be an effective treatment for MS fatigue   5:14

The FDA checked the labels of 147 CBD products  7:37

My Interview with Dr. Meghan Beier  13:31

Share this episode  30:57

Please Support the National MS Society COVID-19 Response Fund  31:16

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/152

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

National MS Society's New MS Research Investments

STUDY: Pilot Randomized Active-Placebo-Controlled Trial of Low-Dose Ketamine for the Treatment of Multiple Sclerosis-Related Fatigue

Report to the U.S. House Committee on Appropriations and the U.S. Senate Committee on Appropriations: Sampling Study of the Current Cannabidiol Marketplace to Determine the Extent That Products are Mislabeled or Adulterated

Contact an MS Navigator:      On The Web     By Phone: (800) 344-4867      By Email: [email protected]

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

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RealTalk MS Episode 152 Hosted By: Jon Strum Guests: Dr. Meghan Beier

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Pain and fatigue are two of the most common and challenging symptoms of MS. These are the symptoms that can stop you from fully engaging in your life at work, at home, with friends, or family.   My guest is Dr. Heidi Maloni. Dr. Maloni is a nurse practitioner and the National Clinical Nursing Director for the Multiple Sclerosis Center of Excellence East at the Veterans Affairs Medical Center in Washington, DC. And Dr. Maloni is an expert on treating pain and fatigue in MS.     Dr. Maloni will share some best practices for managing MS-related pain, we'll talk about some specific medications that can help manage MS-related pain, and we'll also get into the effectiveness of cannabis-based products for managing pain.   And when we talk about fatigue with Dr. Maloni, we'll talk about how to get your friends and family to stop telling you that you're probably just tired, and a nap will fix everything.   We're also talking about why access to affordable healthcare isn't shouldn't be a partisan political issue and what gets lost in the conversation when it is.   If you happen to be an African-American or Hispanic MS patient and you'd like to have a voice in the design of an important MS research study, we'll tell you how you can be a part of that study's Patient Advisory Group. It's an opportunity for the patient perspective to be part of the planning for this study. And it's an opportunity for you to be paid for your participation in that planning.   We'll also tell you about Sidecar, a dramatic short film from SHIFT-MS that illustrates the physical and emotional burden that accompanies MS progression.   And if you're an MS caregiver who would like to contribute to MS research, or you know someone who is, we'll tell you about an online survey just for you.   We have a lot to talk about! Are you ready for RealTalk MS??!

Your access to healthcare shouldn't be a partisan issue, right?  2:25

Join the Patient Advisory Group for the CHIMES study  8:32

DUNK MS is going virtual and raising funds for MS research   10:24

SHIFT-MS debuts Sidecar, their latest short film  20:03

Are you an MS caregiver? There's an online survey for you  20:59

My Interview with Dr. Heidi Maloni  22:19

Share this episode  42:06

Please Support the National MS Society COVID-19 Response Fund  42:26

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Just copy this link & paste it into your text or email: https://realtalkms.com/151

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

National MS Society COVID-19 Response Fund

CHIMES Study Patient Advisory Group questionnaire

DUNK MS

SIDECAR: A SHIFT-MS film about the misapprehensions of advanced multiple sclerosis

Accelerated Cure Project for MS Survey: Caregiver Relationships with Healthcare Providers

Join the RealTalk MS Facebook Group

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Give RealTalk MS a Rating and Review

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RealTalk MS Episode 151 Hosted By: Jon Strum Guests: Dr. Heidi Maloni, Blake Arnet

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, DunkMS, RealTalkMS

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Conversations about MS almost always get around to the high cost of MS disease-modifying therapies. Joining me on the podcast is the CEO of Genentech, Alexander Hardy. Genentech is a biotech company that many of you know as the manufacturer of Ocrevus, the first approved disease-modifying therapy that treats both relapsing-remitting MS and primary progressive MS.   During our wide-ranging conversation, Alexander and I get into the cost of MS prescription medications, the real costs of bringing a new drug to market, racial disparities in clinical trials, inequities in our healthcare system, and more. It's a conversation that you won't want to miss.     We'll also tell you where you can get a FREE copy of Dr. Brandon Beaber's book, Resilience in the Face of Multiple Sclerosis, and where to sign up for the next series of Virtual Jumpstart programs from CAN-DO MS. We'll even share the details about this Sunday's Longest Day of Golf,  a creative (and very successful!) DIY fundraising event for the National MS Society.   We're also talking about a newly published study that shows that most relapsing-remitting MS disability accumulation is progressive and not tied to relapses.   And we'll tell you about another study that shows that most people living with MS want to discuss the cost of their treatment with their neurologist, but very few do. We'll even share our thoughts about how we can begin to fix this.   We have a lot to talk about! Are you ready for RealTalk MS??!

It's Our 150th Episode!  :22

Get in Touch with RealTalk MS  1:36

Get Your Free Copy of Resilience in the Face of Multiple Sclerosis    3:34

CAN-DO MS Virtual Jumpstart Programs  4:43

The Longest Day of Golf Fundraising Event for the National MS Society  5:38

Study Finds Most Relapsing-Remitting MS Disability Accumulation Is Progressive and Not Tied to Relapses   7:29

Survey Shows Most MS Patients Want to Discuss the Cost of MS Care...But Don't  9:50

"Patients" are Customers!  11:31

My Interview with Alexander Hardy  13:09

Share this episode  29:31

Please Support the National MS Society COVID-19 Response Fund  29:50

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email:  https://realtalkms.com/150

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

National MS Society COVID-19 Response Fund

To receive a free copy of Resilience in the Face of Multiple Sclerosis, just jump onto Twitter, and request your copy by sending a Tweet to the author, @Brandon_Beaber.

CAN-DO MS Virtual Jumpstart Programs

Longest Day of Golf Fundraising Event for the National MS Society

STUDY: Contribution of Relapse-Independent Progression vs Relapse-Associated Worsening to Overall Confirmed Disability Accumulation in Typical Relapsing Multiple Sclerosis in a Pooled Analysis of 2 Randomized Clinical Trials

STUDY: Perceptions and Experiences of Multiple Sclerosis Patients Regarding Out-of-Pocket Costs of Care Discussions

Join the RealTalk MS Facebook Group

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RealTalk MS Episode 150 Hosted By: Jon Strum Guests: Alexander Hardy

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Genentech, Ocrevus, Resilience, RealTalkMS

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The International Progressive MS Alliance is about to publish a paper that recommends advancing research on a specific biomarker to predict MS progression, and we're getting a pre-publication preview of what that paper is all about.   My guests are Dr. Robert Fox, a neurologist and Vice-Chair for Research at the Cleveland Clinic Neurological Institute, and Caroline Sincock, who lives with progressive MS. Both Doctor Fox and Caroline are members of the International Progressive MS Alliance Scientific Steering Committee and are among the authors of the new paper that we're going to preview.      We're also talking about the results of a study that show how increasing the energy in cells damaged by demyelination may stop MS progression.   We'll tell you why Mayzent failed to gain approval to treat active secondary progressive MS in England. We'll introduce you to the winner of the first Novartis Innovation Prize for Assistive Tech for Multiple Sclerosis. And we'll discuss study results that show that a protein in the blood called neurofilament light chain may predict MS progression.   We have a lot to talk about! Are you ready for RealTalk MS??!

The 2020 ACTRIMS-ECTRIMS Virtual Conference  3:10

Boosting cellular energy at sites of myelin loss may stop MS progression  4:18

Why NICE failed to approve Mayzent to treat active secondary progressive MS    6:29

Novartis Innovation Prize awarded to AccessNow  9:04

Elevated neurofilament light chain may predict risk of MS progression  10:02

My Interview with Dr. Robert Fox and Caroline Sincock  11:27

Share this episode  42:11

Please Support the National MS Society COVID-19 Response Fund  42:30

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email:  https://realtalkms.com/149

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

National MS Society COVID-19 Response Fund

International Progressive MS Alliance

STUDY: Enhanced Axonal Response of Mitochondria to Demyelination Offers Neuroprotection: Implications for Multiple Sclerosis

AccessNow

STUDY: Plasma Neurofilament Light Levels are Associated with Risk of Disability in Multiple Sclerosis

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RealTalk MS Episode 149 Hosted By: Jon Strum Guests: Dr. Robert Fox and Caroline Sincock

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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The guidance for using MS disease-modifying therapies during the COVID-19 pandemic has been updated. My guest is Dr. Aaron Miller, the Chair of the National MS Society’s National Medical Advisory Committee, the Medical Director of the Corinne Goldsmith Dickinson Center for Multiple Sclerosis, and a Professor of Neurology at the Icahn School of Medicine at Mount Sinai, and we're talking about the new guidance for each and every MS disease-modifying therapy that's currently available.     Last week, in the middle of the night, protections for people with pre-existing health conditions came under attack. We'll let you know what it all means and what's at stake for every person in the U.S. living with MS.   We're also talking about the results of a study that show more people than ever are exploring alternative medicine in managing their MS symptoms. And we'll tell you about a new online MS Treatment Adherence Resource Center.   In last week's International Progressive MS Alliance global webcast, 3 top MS experts shared very encouraging news about the development of new life-changing treatments for progressive MS. We'll let you know where to find the video replay of the webcast. And while you're checking online video replays, we'll let you know where you can find a replay of the Consortium of Multiple Sclerosis Centers' virtual Patient Education Program.   We have a lot to talk about! Are you ready for RealTalk MS??!

In a late-night brief, the Trump administration asks the Supreme Court to invalidate Obamacare and eliminate protections for people with pre-existing health conditions  1:24

Catch the video replay of the International Progressive MS Alliance global webcast  6:04

Catch the video replay of the CMSC Patient Education Program    7:34

Survey says...Alternative medicine is widespread among people living with MS  8:19

MS Treatment Adherence Resource Center is launched  11:03

My Interview with Dr. Aaron Miller  13:06

Share this episode  23:26

Please Support the National MS Society COVID-19 Response Fund  23:45

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/148

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

National MS Society COVID-19 Response Fund

Video Replay: International Progressive MS Alliance Webcast

Video Replay: Consortium of MS Centers Patient Education Program

STUDY: Cross-Sectional Survey of Complementary and Alternative Medicine Used in Oregon and Southwest Washington to Treat Multiple Sclerosis: A 17-Year Update

MS Treatment Adherence Resource Center

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 148 Hosted By: Jon Strum Guests: Dr. Aaron Miller

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, COVID19, RealTalkMS

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Integrative medicine combines evidence-based alternative medicine with conventional medicine. My guest is Dr. Allen Bowling, an internationally renowned neurologist who specializes in integrative medicine for MS.      When it comes to care and treatment for MS, Dr. Bowling has published over 100 articles in clinical and basic science journals. He's been involved in research related to nutrition, dietary supplements, and other non-pharmacologic therapies for the past 30 years. And our conversation covers CBD and other cannabis products as potential treatments for MS symptoms, we'll talk about diet and exercise, over the counter supplements, maintaining your emotional health, and lots more.   An international committee of distinguished experts has just issued an important clarification in the terminology used to describe the status of a person with MS (including "active" secondary progressive, "worsening", and "progression"). We'll tell you all about this clarification and explain how it affects everything from recruiting for clinical trials to providing access to current MS disease-modifying therapies.   We're also talking about a new Cleveland Clinic study that shows that neurological function deteriorates more quickly in depressed MS patients. We'll tell you about a study that underscores the importance of screening and treating people living with MS for anxiety along with depression. And you'll hear about a new web-based tool designed to help manage your emotional wellness.   We have a lot to talk about! Are you ready for RealTalk MS??!

Expert panel clarifies terms used in describing MS disease status  2:33

COVID-19 in people with MS being treated with Ocrevus  7:45

Study shows neurological function deteriorates quicker in depressed MS patients    10:44

Anxiety & Depression in MS -- Study measures impact on quality of life  13:34

MS Trust & Biogen launch ACT MySelf web-based emotional wellness tool  16:06

My Interview with Dr. Allen Bowling  19:19

Share this episode  43:18

Please Support the National MS Society COVID-19 Response Fund  43:41

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/146

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

National MS Society COVID-19 Response Fund

Dr. Allen Bowling: Neurology Care

The 2013 Clinical Course Descriptors for Multiple Sclerosis: A Clarification

COVID-19 in Persons with Multiple Sclerosis Treated with Ocrelizumab -- A Pharmacovigilance Case Series

STUDY: Depression in MS is Associated with Worsening Neuroperformance, Relapses, and New Brain Lesions

STUDY: Anxiety and Depression in Multiple Sclerosis (MS): Antecedents, Consequences, and Differential Impact on Well-Being and Quality of Life

ACT MySelf

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RealTalk MS Episode 146 Hosted By: Jon Strum Guests: Dr. Allen C. Bowling

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Over the past several weeks, the United States has been forced to re-visit, re-examine, and reconsider its own history of racial inequality. This difficult but necessary national conversation has been driven by instances of racial injustice that have their origins in much broader systemic or institutional racism. Our conversations on RealTalk MS typically focus on multiple sclerosis research and multiple sclerosis care. So how does the subject of racial inequality find its way onto today's episode?

 

 

My guest is Dr. Jackie Bhattarai, a clinical psychologist and Assistant Professor of Physical Medicine and Rehabilitation at Johns Hopkins School of Medicine. Dr. Bhattarai's research is focused on identifying and understanding the causes of racial disparities in multiple sclerosis care. I think you'll find our conversation thought-provoking, maybe surprising and, I hope, concerning.    We're also inviting you to this week's International Progressive MS Alliance global webcast when an international panel of MS experts will share the progress being made to speed the development of life-changing treatments for progressive MS. Our experts will also update us on the experiences of people living with MS who have contracted COVID-19, and how people with MS can minimize their risks during the pandemic.   We'll tell you about a new National Institutes of Health grant aimed at determining the reliability of a proposed biomarker for MS. And we'll share the sobering results of a new study about MS and depression.   We have a lot to talk about! Are you ready for RealTalk MS??!

Don't miss the International Progressive MS Alliance Webcast  1:30

Cleveland Clinic receives NIH grant to study MS diagnostic biomarker  3:58

Depression is 2-3 times more likely in MS patients  6:23

My Interview with Dr. Jackie Bhattarai  9:21

Share this episode  26:35

Please Support the National MS Society COVID-19 Response Fund  26:54

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email:  https://realtalkms.com/147

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

National MS Society COVID-19 Response Fund

International Progressive MS Alliance Webcast Registration

STUDY: Incident Depression in Patients Diagnosed with Multiple Sclerosis: A Multi-Database Study

Join the RealTalk MS Facebook Group

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Give RealTalk MS a Rating and Review

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RealTalk MS Episode 147 Hosted By: Jon Strum Guests: Dr. Jackie Bhattarai

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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MS changes as we age and it follows that managing MS should change, too. We're talking about managing MS through different stages of life with Dr. Jennifer Graves, an associate professor of neuroscience at UC San Diego Health, Director of the UC San Diego Neuroimmunology Research Program, and the Director of the Rady Children’s Hospital Pediatric MS Clinic.  

There's also lots of news to share about MS disease-modifying therapies including the availability of a newly-approved DMT, an extended FDA review of a potential DMT that was expected to be approved this month, encouraging news about yet another potential DMT that's currently in development, and a change in an already-approved DMT.

We have a lot to talk about! Are you ready for RealTalk MS??!

An important message from National MS Society President & CEO, Cyndi Zagieboylo  :21

Did you catch our special bonus episode recapping the Consortium of MS Centers Annual Meeting?  2:32

Zeposia, a new MS disease-modifying therapy is now available in the U.S.  4:33

FDA Extends its review of Ofatumumab  5:51

EMD Serono Shares Encouraging Data from its Phase 2 Clinical Trial of Evobrutinib  6:59

EMA Approves Shorter Infusion Time for Ocrevus  7:52

My Interview with Dr. Jennifer Graves  9:07

Share this episode  25:26

Please Support the National MS Society COVID-19 Response Fund  25:50

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/145

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

National MS Society COVID-19 Response Fund

Special Episode: CMSC 2020 Annual Meeting Recap

Zeposia Patient Information

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Download the RealTalk MS App for Android

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 145 Hosted By: Jon Strum Guests: Dr. Jennifer Graves

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Privacy Policy