RealTalk MS

Today, we're re-visiting my favorite conversation of the entire year and it seems that you and I agree! You've made it this year's most downloaded and listened-to episode.

In this episode, Dr. Bruce Bebo, the Executive Vice-President of Research at the National MS Society, briefs us about some of the most interesting and important research shared at ECTRIMS 2021, the largest MS research conference in the world.

We have a lot to talk about! Are you ready for RealTalk MS??!

Wishing you a happy and healthy new year! :22

ECTRIMS 2021 research review with Dr. Bruce Bebo: :32

Share this episode 33:24

Have you downloaded the free RealTalk MS app??? 33:46

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Just copy this link & paste it into your text or email: https://realtalkms.com/226

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 226 Guests: Dr. Bruce Bebo

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

I've always believed that the holiday season is an ideal time for reflection. For looking back and looking ahead. And in that spirit, today we're re-visiting two of the most important conversations that we've had this year on RealTalk MS.

When you consider the nearly one million people living with MS in the United States, you might conclude that MS doesn't discriminate – it impacts people of all ages, sexual orientations, and ethnic backgrounds.

However, when you drill down a bit further and look at things like having access to quality MS care and even the course of the disease itself, it becomes apparent that MS is not an equal-opportunity disease.

My conversation with Dr. Mitzi Joi Williams about racial and ethnic disparities in MS underscores some of the systemic inequities that can produce significant burdens for members of minority communities.

Then, we'll switch gears and drop in on my conversation with Samantha Singer and Dr. Richard Ransohoff, the CEO and the Chief Medical Officer at Abata Therapeutics, a biotech startup that's working on a novel cell therapy for treating progressive MS. This therapy is designed to stop progression and it may, in fact, set the stage for remyelination to occur.

Abata seems to check all the boxes when you think about taking the best & brightest and putting them to work on solving progressive MS. This is a company that may be creating the future when it comes to effectively treating progressive MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

Happy Holidays! :22

Racial and Ethnic Disparities in MS with Dr. Mitzi Joi Williams: 1:09

A Potentially Transformational Treatment for Progressive MS with Samantha Singer and Dr. Richard Ransohoff 18:33

Share this episode 29:52

Have you downloaded the free RealTalk MS app??? 30:13

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Just copy this link & paste it into your text or email: https://realtalkms.com/225

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 225 Guests: Dr. Mitzi Joi Williams, Dr. Richard Ransohoff, and Samantha Singer

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

The 2021 holiday season is underway, and the availability of the COVID-19 vaccines means that this year, many of us are getting caught up in cooking, eating, drinking, shopping, and connecting face-to-face with family and friends. For some of us, it also means having that important but sometimes-awkward conversation about vaccine status.

For too many people, 'tis the season....to feel stressed. Stress can feel overwhelming and make everyday life challenging for anyone, but it can be especially challenging if you're living with an unpredictable disease like multiple sclerosis.

Returning to the podcast to share strategies that we can use to identify and manage stress when it strikes is advanced registered nurse practitioner, Megan Weigel. Megan specializes in neurological care, and she brings a unique integrative medicine and holistic nursing perspective to her practice.

We'll also share results of a study that shows you may already have everything you need to help reduce MS-related fatigue.

We'll tell you about research that shows that a low-cost over-the-counter product is effective in helping people living with MS get more and better-quality sleep.

We'll share the details of a new report that explains how systemic inequities have a direct effect on caregivers in minority communities.

And we'll give you the details about a new service from Amazon that turns your Alexa device into a caregiver's best partner.

We have a lot to talk about! Are you ready for RealTalk MS??!

A study reveals a simple non-pharmaceutical method to help reduce MS-related fatigue 1:06

This over-the-counter remedy has been shown to help you get more and better quality sleep 2:56

The National Alliance for Caregiving issues a new report identifying the systemic challenges facing caregivers in minority communities: 5:54

The new Amazon Together service can be an MS caregiver's best partner 7:23

Megan Weigel shares tips and strategies for reducing stress during the holiday season...and beyond 10:33

Share this episode 24:35

Have you downloaded the free RealTalk MS app??? 24:55

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Just copy this link & paste it into your text or email: https://realtalkms.com/224

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

First Coast Integrative Medicine https://firstcoastintegrativemedicine.com

STUDY: Effects of Exercise on Fatigue in Multiple Sclerosis: A Network Meta-Analysis Comparing Different Types of Exercisehttps://archives/pmr.org/article/S0003-9993(21)01417-9/fulltext#%20

National MS Society: Exercise and Physical Activity Recommendations for ALL People with MShttps://nationalmssociety.org/About-the-Society/News/Exercise-and-Physical-Activity-Recommendations-for

STUDY: Effects of Melatonin on Sleep Disturbances in Multiple Sclerosis: A Randomized, Controlled Pilot Studyhttps://journals.sagepub.com/doi/10.1177/20552173211048756

Caregiving in a Diverse America: Beginning to Understand the Systemic Challenges Facing Family Caregivers https://www.caregiving.org/wp-content/uploads/2021/12/NAC_AmgenDiverseCaregiversReport_FinalDigital-112121.pdf

Amazon Together https://amazon.com/Alexa-Together/b?ie=UTF8&node=21390531011

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 224 Guests: Megan Weigel, DNP

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

If you're living with MS, you know by now that quitting smoking, getting exercise, and making smart food choices have all been shown to improve your physical health and your quality of life. There's one more tool that, when necessary, can be a game-changer.

Joining me to talk about how assistive technology can help people living with MS maintain their independence and improve their quality of life are assistive technology experts Alex Burnham and Bill Binko.

We'll also share one more reason why your most important preparation for the holiday season this year is making sure you're fully vaccinated.

We'll tell you about the International Progressive MS Alliance's proposal for coordinating global progressive MS research.

We'll share the results of a study that shows a significant percentage of older people living with MS who discontinue their DMT experience disease worsening and progression.

We'll tell you about a new grant that's been awarded to study adherence to MS oral disease-modifying therapies.

And you'll hear about the results of a study that shows an association between low levels of vitamin D and cognitive dysfunction at the onset of MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

There's a new reason to be vaccinated! 3:43

International Progressie MS Alliance's proposal for a global progressive MS research agenda 6:57

My goodbye to the Progressive MS Alliance Scientific Steering Committee 8:16

A study shows that older people who discontinue DMTs suffer disease worsening and progression 9:56

Researcher receives $100,000 to study MS oral DMT adherence 12:39

A study shows low levels of Vitamin D are associated with cognitive dysfunction at the onset of MS 15:22

Alex Burnham and Bill Binko discuss how assistive technology can be a difference-maker for people living with MS 18:51

Share this episode 37:47

Have you downloaded the free RealTalk MS app??? 38:08

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/223

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

Charting a Global Research Strategy for Progressive MS -- An International Progressive MS Alliance Proposal https://journals.sagepub.com/doi/10.1177/13524585211059766

STUDY: Discontinuation of Disease-Modifying Therapies is Associated with Disability Progression Regardless of Prior Stable Disease and Agehttps://www.msard-journal.com/article/S2211-0348(21)00673-8/fulltext

STUDY: Real World Adherence To, and Persistence With, Once- and Twice-Daily Oral Disease Modifying Drugs in Patients with Multiple Sclerosis: A Systematic Review and Meta-Analysishttps://bmcneurol.biomedcentral.com/articles/10.1186/s12883-020-01830-0

STUDY: Serum Vitamin D as a Marker of Impaired Information Processing Speed and Early Disability in Multiple Sclerosis Patientshttps://www.mdpi.com/2076-3425/11/11/1521/htm

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

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RealTalk MS Episode 223 Guests: Alex Burnham and Bill Binko

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Tamara Kaye Sellman is a poet, short story writer, journalist, and essayist. So, when she was diagnosed with MS in 2013, Tamara did what she does best -- she began writing about it. That writing turned into Intention Tremor, a book of poetry and prose written over the five years following Tamara's diagnosis.

In this special episode, we'll talk with Tamara about how she chose to artistically interpret being diagnosed with MS. We'll discuss why she's quite literally invested in MS research. And Tamara will even share some of her poetry with us.

We have a lot to talk about! Are you ready for RealTalk MS??!

Welcome to a special episode! :22

My conversation with Tamara Kaye Sellman 1:18

Share this episode 34:03

Give RealTalk MS a rating and review 34:26

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/222

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com

Intention Tremor by Tamara Kaye Sellmanhttps://tksellman.com/intention-tremor

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 222 Guests: Tamara Kaye Sellman

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Eating well is an important part of a wellness plan. At first glance, making healthy food choices seems simple. But with so much conflicting information and opinion masquerading as fact on websites and in social media, what do you believe and where do you begin?

Joining me to separate fact from fiction and share smart strategies that will get you started on solid nutritional footing is my guest, Mona Bostick. Mona is a registered dietician-nutritionist and a multiple sclerosis certified specialist who has been living with relapsing-remitting MS since 2008.

We'll also remind you about why your most important preparation for the holiday season this year is making sure you're fully vaccinated.

We'll tell you how cutting-edge genome-editing technology was used to identify a potential new drug target for treating and, perhaps, preventing MS.

We'll explain what digital biomarkers are, and we'll tell you why including them in the Phase 3 clinical trial for Tolebrutinib is a very good thing.

We have a lot to talk about! Are you ready for RealTalk MS??!

Some of the things I'm thankful for :22

Prepare for the holidays -- make sure you're vaccinated! 1:43

CRISPR used to identify new MS drug target 5:44

Tolebrutinib Phase 3 clinical trial will include digital biomarkers 8:09

Mona Bostick discusses the importance of making smart food choices if you're living with MS 11:31

Share this episode 25:50

Have you checked out The MS Caregiver Conundrum? 26:10

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/221

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com

MTHFD2 Is a Metabolic Checkpoint Controlling Effector and T Cell Fate and Functionhttps://www.sciencedirect.com/science/article/abs/pii/S1074761321004489

Tolebrutinib Phase 3 Clinical Trial Online Screenerhttps://mymstrials.com/screener

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 221 Guests: Mona Bostick, RDN

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Before the availability of MRI technology in the 1980s, MS was frequently misdiagnosed or even missed completely. Today, an MRI exam is a valuable tool in diagnosing MS, following disease progression, and evaluating someone's response to their MS treatment.

Recently, a team of international experts updated the MRI recommendations for people living with MS. Dr. Scott Newsome, a member of that expert panel, is joining me today to talk about some of those recommendations and to help us understand how the new recommendations will impact your next MRI exam.

We're also talking about building a pediatric MS community with Emily Blosberg, the creator of Oscar the MS Monkey.

We'll tell you how you can catch the replay of the International Progressive MS Alliance webcast about fatigue in progressive MS. (They're sharing some excellent tips and resources for managing fatigue!)

And we'll tell you why the announcement of a study to identify the MS prodrome is very exciting news!

We have a lot to talk about! Are you ready for RealTalk MS??!

Progressive MS Alliance hosts a webcast about fatigue in progressive MS 2:03

About our show notes: 2:36

Meet Emily Blosberg and find out about her friend, Oscar the MS Monkey 4:18

Study of the prodromal phase of MS announced 13:59

Dr. Scott Newsome explains new MRI recommendations for MS 16:52

Share this episode 38:57

Have you checked out The MS Caregiver Conundrum? 39:18

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/220

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com

International Progressive MS Alliance Webcast: Fatigue in Progressive MS https://www.youtube.com/watch?v=v99I56RCdAc

Oscar the MS Monkeyhttp://www.mroscarmonkey.org/

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 220 Guests: Emily Blosberg and Dr. Scott Newsome

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

We met Dr. AJ Joshi, Chief Medical Officer at Atara Biotherapeutics, at ECTRMS 2019, when he gave us our first update on ATA 188, Atara's investigational cell therapy for MS.

This is the third year in a row that we've connected with Dr. Joshi during ECTRIMS for an update on the progress of ATA 188. This year, he's also sharing news about an unexpected discovery that investigators encountered during their Phase 1 clinical trial (HINT: It's a pretty interesting discovery!)

We'll get an advocacy update from Bari Talente, the National MS Society's Executive Vice-President of Advocacy and Healthcare Access as we discuss the benefits that the Build Back Better Act could deliver to people affected by MS.

November is National Caregivers Month and, in today's episode, we'll also meet Monica and Stan Wilson, a couple who are amazing examples of how teamwork can overcome some of the challenges of life with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

It's National Caregivers Month :22

Bari Talente, Executive Vice-President of the National MS Society, talks about how the Build Back Better Act delivers real benefits to people affected by MS 6:05

Monica and Stan Wilson share how they work together as a team 14:24

All the info on this month's Can Do MS Programs 25:06

Dr. AJ Joshi gives us an update on ATA188 26:24

Share this episode 39:22

Download the free RealTalk MS app 39:42

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/219

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com

National MS Society: aHSCT in MS https://nationalmssociety.org/ahsct

Can Do MS Program Information and Registration https://www.cando-ms.org/programs

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 219 Guests: Bari Talente, Monica and Stan Wilson, Dr. AJ Joshi

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Just a couple of weeks ago, 9,000 MS research scientists and clinicians from 100 countries gathered virtually for the annual meeting of the European Committee for Treatment and Research in Multiple Sclerosis, otherwise known as ECTRIMS. The largest MS research conference in the world lived up to its name, featuring 200 speakers and 1,700 research abstracts.

In what has become an annual RealTalk MS tradition, Dr. Bruce Bebo, the Executive Vice President of Research at the National MS Society, joins us to share his thoughts about the research presented at ECTRIMS that will lead to treatments designed to stop MS progression, restore lost function, and end MS forever.

We have a lot to talk about! Are you ready for RealTalk MS??!

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/218

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 218 Guests: Dr. Bruce Bebo and Dr. AJ Joshi

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, ECTRIMS2021, RealTalkMS

Research shows that more than 50% of the people living with MS will experience another chronic health condition in their lifetime. These additional health conditions, known as comorbidities, have been shown to negatively affect disability progression and health-related quality of life. In other words, living with comorbidities makes living with MS more challenging than it has to be.

Joining me to talk about living with MS while managing and even avoiding comorbidities is Dr. Alissa Willis, Chair of the Department of Neurology at the University of Mississippi Medical Center.

I'm also sharing my take-aways after watching Introducing, Selma Blair, the documentary film that portrays Selma Blair's MS journey and her stem cell therapy treatment.

You'll hear some thoughts about why including patients in conference presentations about the patient perspective might just be a good idea.

You'll meet MS patient advocate Julie Stamm when we talk with Julie about her new children's book, SOME DAYS: A Tale of Love, Ice Cream, and My Mom's Chronic Illness. (And we'll tell you how you can win your own copy of Julie's book!)

And we'll share completely different outcomes from two mesenchymal stem cell clinical trials.

We have a lot to talk about! Are you ready for RealTalk MS??!

Some thoughts about the documentary film, Introducing, Selma Blair 1:12

Don't forget the patients in presentations about the patient perspective 9:14

MS patient advocate Julie Stamm talks about her new children's book, SOME DAYS: A Tale of Love, Ice Cream, and My Mom's Chronic Illness 11:25

Two Mesenchymal Stem Cell clinical trial outcomes 19:49

Dr. Alissa Willis discusses living with MS while managing and even avoiding comorbidities 23:01

Share this episode 37:16

Catch Episode 7 of The MS Caregiver Conundrum 37:37

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com

National MS Society: aHSCT in MS https://nationalmssociety.org/ahsct

STUDY: Safety, Tolerability, and Activity of Mesenchymal Stem Cells Versus Placebo in Multiple Sclerosis (MESEMS): A Phase 2 Randomised, Double-Blind Crossover Trial https://www.sciencedirect.com/science/article/pii/S147444222100301X?dgcid=coauthor

STUDY: Central Nervous System Atrophy Predicts Future Dynamics of Disability Progression in a Real-World Multiple Sclerosis Cohort https://onlinelibrary.wiley.com/doi/epdf/10.1111/ene.15098

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RealTalk MS Episode 217 Guests: Julie Stamm and Dr. Alissa Willis

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS