RealTalk MS

Episode 223: Assistive Technology for People with MS with Alex Burnham and Bill Binko


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If you're living with MS, you know by now that quitting smoking, getting exercise, and making smart food choices have all been shown to improve your physical health and your quality of life. There's one more tool that, when necessary, can be a game-changer. 

Joining me to talk about how assistive technology can help people living with MS maintain their independence and improve their quality of life are assistive technology experts Alex Burnham and Bill Binko. 

We'll also share one more reason why your most important preparation for the holiday season this year is making sure you're fully vaccinated.

We'll tell you about the International Progressive MS Alliance's proposal for coordinating global progressive MS research.

We'll share the results of a study that shows a significant percentage of older people living with MS who discontinue their DMT experience disease worsening and progression.

We'll tell you about a new grant that's been awarded to study adherence to MS oral disease-modifying therapies.

And you'll hear about the results of a study that shows an association between low levels of vitamin D and cognitive dysfunction at the onset of MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

There's a new reason to be vaccinated!  3:43

International Progressie MS Alliance's proposal for a global progressive MS research agenda   6:57

My goodbye to the Progressive MS Alliance Scientific Steering Committee  8:16

A study shows that older people who discontinue DMTs suffer disease worsening and progression  9:56

Researcher receives $100,000 to study MS oral DMT adherence  12:39

A study shows low levels of Vitamin D are associated with cognitive dysfunction at the onset of MS  15:22

Alex Burnham and Bill Binko discuss how assistive technology can be a difference-maker for people living with MS   18:51

Share this episode  37:47

Have you downloaded the free RealTalk MS app???  38:08

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

Charting a Global Research Strategy for Progressive MS -- An International Progressive MS Alliance Proposal https://journals.sagepub.com/doi/10.1177/13524585211059766

STUDY: Discontinuation of Disease-Modifying Therapies is Associated with Disability Progression Regardless of Prior Stable Disease and Agehttps://www.msard-journal.com/article/S2211-0348(21)00673-8/fulltext

STUDY: Real World Adherence To, and Persistence With, Once- and Twice-Daily Oral Disease Modifying Drugs in Patients with Multiple Sclerosis: A Systematic Review and Meta-Analysishttps://bmcneurol.biomedcentral.com/articles/10.1186/s12883-020-01830-0

STUDY: Serum Vitamin D as a Marker of Impaired Information Processing Speed and Early Disability in Multiple Sclerosis Patientshttps://www.mdpi.com/2076-3425/11/11/1521/htm

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 223 Guests: Alex Burnham and Bill Binko

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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RealTalk MSBy Jon Strum

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