RealTalk MS

The annual health insurance open enrollment period has begun! And a lot of people tend to get through open enrollment on autopilot, assuming that the health insurance that they had last year will continue to serve them well next year. But policies change. Physician networks change. And prescription drug formularies change. If you're living with MS, you can't afford to be on autopilot when it comes to making health insurance decisions. Those decisions can cost you -- in time, money, and unnecessary heartache.

Every year during open enrollment, the National MS Society's MS Navigators help a lot of people make the best health insurance decisions for themselves and their families. So, I'm thrilled to be talking about all the things you want to carefully consider during open enrollment with MS Navigator Nicole Vasquez.

We're also talking about a study that illustrates how the social determinants of health play a significant role in creating healthcare disparities among members of minority communities who are living with MS.

We'll tell you about two companies that are partnering to test the effectiveness of an AI-powered app at predicting MS progression by tracking eye movement.

You'll hear about the biopharmaceutical company that's hoping to treat relapsing-remitting MS with an ingredient used in ancient Chinese medicine.

We'll remind you that Big October 2021 is happening right now, and you still have time to participate.

And we'll share the Top 10 Best and Worst Cities in the U.S. for People with Disabilities.

We have a lot to talk about! Are you ready for RealTalk MS??!

Social determinants of health impact healthcare disparities among members of minority communities who are living with MS 2:34

Novartis Canada teams up with Innodem to test innovative tech that may predict MS progression 5:44

Medsenic is hoping to treat relapsing-remitting MS with an ingredient used in ancient Chinese medicine 7:43

The 10 Best and Worst Cities in the U.S. for People Living with Disabilities 9:32

Big October 2021 is happening now! Are you registered? 12:18

Nicole Vasquez tells us what we need to be thinking about during open enrollment 13:22

Share this episode 28:49

Catch Episode 6 of The MS Caregiver Conundrum 29:10

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/216

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com

STUDY: Health Disparities, Inequities, and Social Determinants of Health in Multiple Sclerosis and Related Disorders in the US: A Reviewhttps://jamanetwork.com/journals/jamaneurology/article-abstract/2784442

2021's Best and Worst Cities for People with Disabilities https://wallethub.com/edu/best-worst-cities-for-people-with-disabilities/7164

Register for Big October 2021 https://cvent.me/0Kbo4e?rt=FHc6yg95SUyNOD1m6wi5iw&RefId=Attendee

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 216 Guest: Nicole Vasquez

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

After reviewing evidence on the use of autologous hematopoietic stem cell transplantation (aHSCT) for the treatment of multiple sclerosis, the National MS Society has concluded that aHSCT is a good treatment option for some people living with MS.

Dr. Jeffrey Cohen, the Director of the Cleveland Clinic's Mellen Center for Multiple Sclerosis Treatment and Research, joins me this week to share all the details about aHSCT and explain who is and who isn't an ideal candidate for this treatment.

We'll also tell you about the National MS Society's mini-site that's dedicated to aHSCT.

We have more good news to share about a new category of disease-modifying therapy.

There's a new study that may solve some sleep problems associated with MS. We'll tell you how you can participate!

And we'll explain why it looks like the National MS Society is now part of the Marvel Universe!

We have a lot to talk about! Are you ready for RealTalk MS??!

We're in the top 1.5%!! :22

National MS Society launches stem cell therapy mini-site 1:39

Recruitment completed for Evobrutinib Phase 3 clinical trial 5:16

How you can participate in the iSleepMS study 13:53

Has the National MS Society entered the Marvel Universe??? 8:05

Dr. Jeffrey Cohen discusses stem cell therapy for MS 9:49

Share this episode 31:03

Catch Episode 5 of The MS Caregiver Conundrum 31:24

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/215

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com

National MS Society aHSCT Mini-Site https://nationalmssociety.org/aHSCT

iSleepMS Online Screening Form https://tinyurl.com/iSleepMS

Darkhawk Issue #2https://www.amazon.com/Darkhawk-2-5-Kyle-Higgins-ebook/dp/B097QHWVVD

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 215 Guest: Dr. Jeffrey Cohen

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Stemcells, RealTalkMS

Getting a good night's sleep is often easier said than done. About half of the people living with MS experience sleep disorders. Dr. Abbey Hughes is joining me to talk about how sleep and lack of sleep affects MS, and she'll share some specific strategies that you can use to better manage sleep difficulties and get the rest that your mind and body require.

We're also sharing a very encouraging update on ATA 188, Atara Biotherapeutics experimental stem cell therapy.

Investigator Dr. Anthony Traboulsee joins me to share an update on the Phase 2b clinical trial for Tolebrutinib, one of a new class of disease-modifying therapies.

We're also talking about the plans to add accessible gym equipment to Planet Fitness locations throughout the U.S.

And we'll give you the details and tell you how to register for all the CAN DO MS programs being offered throughout the month of October.

We have a lot to talk about! Are you ready for RealTalk MS??!

Update on ATA 188 stem cell therapy 1:21

Investigator Dr. Anthony Traboulsee with an update on Tolebrutinib clinical trial 4:02

Planet Fitness is adding accessible gym equipment 12:06

Can Do MS October programs 13:53

Dr. Abbey Hughes discusses overcoming sleep disorders in MS 16:03

Share this episode 29:27

Catch The MS Caregiver Conundrum 29:48

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/214

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com

Can Do MS Program Info and Registration https://cando-ms.org/programs

Register for Big October 2021https://cvent.me/0Kbo4e?rt=FHc6yg95SUyNOD1m6wi5iw&RefId=Attendee

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 214 Guest: Dr. Anthony Traboulsee and Dr. Abbey Hughes

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century.

It's often said that MS doesn't just affect individuals, it affects families. And in this special episode of RealTalk MS, we're talking about family involvement in MS care with Dr. Alice Laroni and Trishna Bharadia.

Dr. Laroni is a neurologist with over 18 years of experience providing clinical care to MS patients and more than 13 years of experience in neuroimmunological research. Dr. Laroni is also an Assistant Professor of Neurology at the University of Genova.

Trishna Bharadia was diagnosed with MS in 2008, at the age of 28. She's a multi-award-winning health advocate and patient engagement advisor dedicated to raising awareness and finding solutions for people living with MS.

Both Trishna and Alice are active members of the MS in the 21st Century initiative. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com.

If you're on an MS disease-modifying therapy and you're concerned about how effective your COVID-19 vaccination might be, or you aren't sure whether having MS qualifies you as being immunocompromised and cleared to receive a third dose of the COVID-19 vaccine, or you can't begin to figure out whether you qualify to receive a COVID-19 booster, then this podcast episode is for you.

Joining me to help us make sense of the flurry of recent announcements by the CDC and provide us with an update on his lab's work in looking at the immune response to COVID-19 vaccines among people living with MS who are on b-cell depleting therapies is the Chief of the Division of Multiple Sclerosis and Related Disorders and the Director of the Center for Neuroinflammation and Experimental Therapeutics at the University of Pennsylvania, Dr. Amit Bar-Or.

If you're living with MS in the U.K., we'll update you on your eligibility to receive a COVID-19 booster.

If you're living with MS in the European Union, we'll update you on the EMA's recommendation of Vumerity, an oral disease-modifying therapy for adults with relapsing-remitting MS.

We'll tell you about a drug that's been on the market for over a decade that's been shown to help manage overactive bladder among people living with MS.

Imagine having your phone send you an email or text letting you know that you're showing early signs of depression or cognitive dysfunction. We're talking about potentially game-changing technology that Apple is developing for the iPhone.

And we'll share the details of Episode 3 of The MS Caregiver Conundrum, which debuts Thursday, September 30th. Parenting includes its own set of caregiving responsibilities. Imagine adding the additional responsibilities that go with caring for a child with MS. In Episode 3, of The MS Caregiver Conundrum, we'll meet two remarkable moms, each of whom is not only a parent but a caregiver for a child living with pediatric MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

Vaccine booster shots for people with MS in the U.K. 2:04

Vumerity for people with MS in the European Union? 3:48

Drug helps treat overactive bladder among people with MS 4:30

Apple is developing tech to identify depression and cognitive decline 6:11

Dr. Amit Bar-Or updates us on who gets a COVID-19 vaccine booster, who gets a 3rd dose, and all the rest 8:37

Share this episode 26:50

Catch The MS Caregiver Conundrum 27:10

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/213

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com

STUDY: Efficacy of Fesoterodine Fumarate (8 mg) in Neurogenic Detrusor Overactivity Due to Spinal Cord Lesion or Multiple Sclerosis: A Prospective Studyhttps://onlinelibrary.wiley.com/doi/10.1002/nau.24790

Register for Big October 2021https://cvent.me/0Kbo4e?rt=FHc6yg95SUyNOD1m6wi5iw&RefId=Attendee

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 213 Guest: Dr. Amit Bar-Or

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Early in your MS journey, it's not uncommon to experience minor walking and gait issues. And people living with advanced MS often face more serious mobility challenges. The good news is that rehabilitation can help people on either end of the "mobility spectrum" improve. But different mobility challenges require different approaches to rehabilitation.

Joining me to talk about mobility rehabilitation for people who are more recently diagnosed with MS as well as rehabilitation for people living with advanced MS are experts Dr. Herb Karpatkin and Cinda Hugos.

RealTalk MS is celebrating its 4th birthday today and we wouldn't be here without you. So before we get too far into this episode, I want to say thank you!!

The Black MS Experience Summit gets underway tomorrow. If you haven't yet registered, we'll tell you how.

And we'll share the details of Episode 2 of The MS Caregiver Conundrum, which debuts Thursday, September 23rd. When your spouse or partner is the person who's living with MS, you have your role as their caregiver but you also have your role as their significant other -- their partner in the relationship. For a lot of caregivers, trying to balance those two roles can be challenging. In Episode 2 of The MS Caregiver Conundrum, we'll meet a couple who has not only met that particular challenge, but they've overcome it in amazing fashion.

EJ Levy, the Founder and President of MS Hope for a Cure, joins us with a preview of Big October 2021. This month-long event is designed especially for people affected by MS, and this year, Big October is bigger and better than ever. We'll be sure to tell you how to register for this free event.

The National MS Society recently announced an $8.7 million dollar investment in 29 new research training fellowships, early career awards, and other special initiatives. We'll show you how all of these projects align with the MS Society's Pathways to Cures roadmap. We'll even tell you how you can get your own copy of the Pathways to Cures roadmap!

We have a lot to talk about! Are you ready for RealTalk MS??!

It's our birthday! :22

Get the details about the Black MS Experience Summit 4:04

The MS Caregiver Conundrum Episode 2 debuts Thursday 9/23 4:51

EJ Levy gives us a preview of Big October 2021 6:46

How the National MS Society's new $8.7 million dollar investment aligns with the Pathways To Cures roadmap 21:18

Dr. Herb Karpatkin and Cinda Hugos discuss mobility rehabilitation early and late in your MS journey 24:25

Share this episode 42:53

Catch The MS Caregiver Conundrum 43:14

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/212

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com

The National MS Society Black MS Experience Summit https://nationalmssociety.org/blackmsexperience

Register for Big October 2021https://cvent.me/0Kbo4e?rt=FHc6yg95SUyNOD1m6wi5iw&RefId=Attendee

National MS Society New Research Summer 2021 https://nmsscdn.azureedge.net/NationalMSSociety/media/MSNationalFiles/Research/New-Research-Summer-2021.pdf

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 212 Guest: EJ Levy, Dr. Herb Karpatkin, and Cinda Hugos

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Having a job matters. Most obviously, employment provides the economic resources that people need to more easily manage every other aspect of their lives. Perhaps less obviously, we tend to define ourselves through our work. And without work, we not only face potential economic hardship, we sometimes lose that inner sense of purpose or identity...of understanding who we are.

The majority of people living with MS are diagnosed between the ages of 20 and 45. And these are the years when you're often focused on building a career and increasing your earning power. Many people living with MS decide to leave the workforce prematurely because they aren't aware of all their employment-related options. Like so many other aspects of living with multiple sclerosis, managing your employment requires a strategy.

My guest is employment and disability expert Dr. Phillip Rumrill, and we're devoting this entire episode of RealTalk MS to talk about the many aspects of unemployment that people living with MS need to know about.

We have a lot to talk about! Are you ready for RealTalk MS??!

(If you'd like a little more to talk about, don't miss Episode #1 of The MS Caregiver Conundrum. This week's guest is Kate Washington, author of Already Toast: Caregiving and Burnout in America.)

The MS Caregiver Conundrum podcast premieres in 2 days! :22

Dr. Phillip Rumrill discusses employment and MS 2:11

Share this episode 38:52

Catch The MS Caregiver Conundrum 39:13

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/211

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

The National MS Society Black MS Experience Summit https://nationalmssociety.org/blackmsexperience

The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com

National MS Society: Employment and MS https://www.nationalmssociety.org/Living-Well-With-MS/Work-and-Home/Employment

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 211 Guest: Dr. Phillip Rumrill

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Caregiving RealTalkMS

Cognitive issues affect a majority of people living with MS and experts often recommend a cognitive assessment as the first step in managing cognitive dysfunction. But what's that cognitive assessment all about?

Patient advocate Cathy Chester has been living with MS since 1986 and she just recently underwent her own 3-hour cognitive assessment. Cathy is joining me to walk us through her experience. And if you're wondering what a cognitive assessment is all about and how it might help you, you won't want to miss our conversation.

We're also sharing all the details about our new special 8-episode podcast series, The MS Caregiver Conundrum. Episode 1 premieres on September 16th, and you're hearing about it first!

We'll get you up to speed on the National MS Society's upcoming Black MS Experience Summit.

And we'll tell you about the results of a study that shows how living with both depression and MS can become a matter of life and death.

We're also talking about newly published study results that could mean good news for people on anti-cd20 disease-modifying therapies about the efficacy of the COVID-19 mRNA vaccines.

We'll tell you about a study that compared the two strategies for choosing your first disease-modifying therapy (and we'll tell you which strategy led to better patient outcomes).

And we'll let you know how you can participate in MS research without leaving the comfort and safety of your own home and you might even win a $100 Amazon gift card!

We have a lot to talk about! Are you ready for RealTalk MS??!

Introducing The MS Caregiver Conundrum podcast 1:32

Get the details about the Black MS Experience Summit 3:34

Study shows that MS + Depression = seriously bad news 4:29

Study reveals robust T-cell response to mRNA vaccines among people on anti-cd20 disease-modifying therapies 9:04

Study offers evidence in the induction vs escalation DMT debate 11:33

A study is looking at complementary and alternative treatments for MS and you can participate 16:20

Cathy Chester shares the details of her cognitive assessment 19:09

Share this episode 32:25

Catch The MS Caregiver Conundrum 32:46

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/210

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

The National MS Society Black MS Experience Summit https://nationalmssociety.org/blackmsexperience

STUDY: Interface of Multiple Sclerosis, Depression, Vascular Disease, and Mortality: A Population-Based Matched Cohort Study https://n.neurology.org/content/early/2021/09/01/WNL.0000000000012610

Discordant Humoral and T-Cell Immune Response to SARS-Cov-2 Vaccination in People with Multiple Sclerosis on Anti-CD20 Therapy https://www.medrxiv.org/content/10.1101/2021.08.23.21262472v1

Treatment Escalation vs Immediate Initiation of High-Efficacy Treatment for Patients with Relapsing-Remitting Multiple Sclerosis: Data from 2 Different National Strategies https://jamanetwork.com/journals/jamaneurology/fullarticle/2783261

iConquer MS https://iconquerms.org

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 210 Guest: Cathy Chester

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Madison Copot was diagnosed with MS about 9 years ago, just before turning 13. And when she received her diagnosis, Madison was also told that she was too young to be seen by an MS specialist. Today, Madison is a 21-year old young woman, and if you want to hear what a real-life superhero sounds like, you won't want to miss my conversation with Madison.

While we're on the subject of superheroes, we'll tell you about Darkhawk, who debuted last week as the first Marvel superhero to be diagnosed with MS.

We're sharing the American Academy of Neurology's COVID-19 vaccine guidance. And we have a very specific message to share with anyone living with MS who is still on the fence about being vaccinated.

You'll learn about new NIH-funded research that may extend our understanding of how MS happens.

We'll also tell you about a clinical trial getting underway in the U.K. that's exploring whether Mavenclad can slow the worsening of hand and arm function in people with progressive MS.

And we'll share the line-up of no-cost CAN-DO MS virtual programs taking place throughout the month of September.

We have a lot to talk about! Are you ready for RealTalk MS??!

Darkhawk returns...and this time, he has MS :22

AAN issues its formal COVID-19 vaccine guidance 2:34

NIH-funded research will examine cell communication in the central nervous system 6:59

CHARIOT-MS clinical trial launches in the U.K. 9:54

CAN-DO MS September programs focus on staying in charge of your life 11:28

My conversation with Madison Copot 13:43

Share this episode 26:52

Download the free RealTalk MS app for your iOS or Android device 27:13

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Just copy this link & paste it into your text or email: https://realtalkms.com/209

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

Darkhawk (2021) Issue 1 https://www.amazon.com/Darkhawk-1-5-Kyle-Higgins-ebook/dp/B095836W91/

COVID-19 and Vaccination in the Setting of Neurologic Disease: An Emerging Issue in Neurology https://n.neurology.org/content/early/2021/07/29/WNL.0000000000012578

ChariotMS Clinical Trial https://www.mssociety.org.uk/research/explore-our-research/research-we-fund/search-our-research-projects/can-cladribine-slow

Can-Do MS September Programs https://www.cando-ms.org/programs

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

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RealTalk MS Episode 209 Guest: Madison Copot

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, COVID-19, Marvel, RealTalkMS

The FDA has authorized a third dose of the COVID-19 mRNA vaccines. What does this mean for people living with MS? Are you eligible for a third dose now? Are you eligible in September? How will your disease-modifying therapy effect that third dose? What if you received the Johnson & Johnson vaccine? And who is that Regeneron monoclonal antibody cocktail for?

Dr. Nancy Sicotte joins me with an update on vaccines, variants, boosters, and antibodies, explaining how they all may impact people living with MS. Dr. Sicotte is a professor and Chair of the Department of Neurology at Cedars-Sinai Medical Center in Los Angeles, where she is the Women's Guild Distinguished Chair in Neurology and Director of the MS and Neuroimmunology Program. Dr. Sicotte also Chairs the MS Society's National Medical Advisory Committee and leads its COVID-19 Vaccine Advisory Group.

We're also talking with Victoria Holmes, a nurse practitioner who is living with MS. Like some others who are living with MS, Victoria was initially hesitant to get vaccinated. Victoria is joining me to talk about what changed her mind and she has a message to share with others who may still be vaccine-hesitant.

We have a lot to talk about! Are you ready for RealTalk MS??!

Dr. Nancy Sicotte updates us on COVID-19 vaccines, variants, boosters, antibodies, and more :22

Victoria Holmes talks about her vaccine hesitancy 29:18

Share this episode 39:13

Download the free RealTalk MS app for your iOS or Android device 39:33

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/208

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 208 Guest: Dr. Nancy Sicotte and Victoria Holmes

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, COVID-19, RealTalkMS