RealTalk MS

Episode 243: The Economic Burden of MS with Dr. Bruce Bebo and Bari Talente


Listen Later

Living with MS is expensive. And if you're curious about how expensive living with MS is, why it's so expensive, and what can be done about it, then you're going to be interested in the results of a study that was commissioned by the National MS Society.

Joining me to talk about what this study revealed and what it means to individuals and families affected by MS are Dr. Bruce Bebo, the Executive Vice-President of Research at the National MS Society, and the MS Society's Executive Vice-President of Advocacy and Healthcare Access, Bari Talente.

We're also talking about a study that reveals a connection between MS severity and geography.

Have you ever wondered why some people develop severe MS while others don't? We're sharing the details of a study that's hoping to answer that question.

And if you're a caregiver for someone who's living with MS, or you're a healthcare provider who interacts with MS caregivers, or you're a researcher interested in MS caregivers, we'll explain why iConquer MS would like just a few minutes of your time.

We have a lot to talk about! Are you ready for RealTalk MS??!

Measuring the financial impact of MS :22

A study shows MS severity correlates to geographic latitude 1:47

A new study will try to understand why some people develop severe MS while others don't 4:13

iConquer MS is expanding to include MS caregivers but first they need your help 7:26

Dr. Bruce Bebo and Bari Talente break down the results of a study that focused on the cost of living with MS 9:56

Share this episode 29:04

Download the RealTalk MS app for your iOS or Android device 29:25

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/243

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

STUDY: Economic Burden of Multiple Sclerosis in the United States: Estimate of Direct and Indirect Costs https://n.neurology.org/content/early/2022/04/13/WNL.0000000000200150

STUDY: Association of Latitude and Exposure to Ultraviolet B Radiation With Severity of Multiple Sclerosis: An International Registry Study https://n.neurology.org/content/early/2022/04/11/WNL.0000000000200545

University at Buffalo Multiple Sclerosis Research Challenge: Contribute to the CASA-MS Study https://crowdfunding.buffalo.edu/project/29733

iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers

iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 243 Guests: Dr. Bruce Bebo and Bari Talente

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Privacy Policy
...more
View all episodesView all episodes
Download on the App Store

RealTalk MSBy Jon Strum

  • 4.7
  • 4.7
  • 4.7
  • 4.7
  • 4.7

4.7

144 ratings


More shows like RealTalk MS

View all
The Lazy Genius Podcast by Kendra, The Lazy Genius

The Lazy Genius Podcast

6,686 Listeners

Everything Happens with Kate Bowler by Everything Happens Studios

Everything Happens with Kate Bowler

5,108 Listeners

The MS Trust podcast by MS Trust

The MS Trust podcast

15 Listeners

Start Here by ABC News

Start Here

6,436 Listeners

The Dr. Hyman Show by Dr. Mark Hyman

The Dr. Hyman Show

9,225 Listeners

Living Well with Multiple Sclerosis by Overcoming MS

Living Well with Multiple Sclerosis

51 Listeners

Can Do MS Podcast by Can Do Multiple Sclerosis

Can Do MS Podcast

32 Listeners

MS Living Well: Key Info from Multiple Sclerosis Experts by Barry Singer, MD

MS Living Well: Key Info from Multiple Sclerosis Experts

124 Listeners

The Art of Being Well by Dear Media, Will Cole

The Art of Being Well

1,452 Listeners

ReThinking by TED

ReThinking

634 Listeners

The MSing Link by Dr. Gretchen Hawley  PT, DPT, MSCS

The MSing Link

114 Listeners

Wiser Than Me with Julia Louis-Dreyfus by Lemonada Media

Wiser Than Me with Julia Louis-Dreyfus

11,416 Listeners

UNCOVERED by MeidasTouch Network

UNCOVERED

1,154 Listeners

MeSsy with Christina Applegate & Jamie Lynn Sigler by Wishbone Production

MeSsy with Christina Applegate & Jamie Lynn Sigler

3,601 Listeners

Health Wanted by WABE

Health Wanted

166 Listeners