Disclosing MS: One Advocate’s Journey from Private to Public – Episode 188

In this episode, host Stephanie Buxhoeveden talks with Kenneth Bandler, a longtime communications professional and MS advocate, about his deeply personal journey with multiple sclerosis and the decision to disclose his diagnosis—first to close family, and years later, to his workplace. Ken shares how he kept his MS private for over a decade, the emotional and professional considerations behind his decision, and the pivotal moment when he finally told his boss. He also reflects on the support he received, the power of storytelling, and how going public ultimately brought relief and connection. This conversation offers insight and encouragement to anyone navigating career and disclosure decisions with MS.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program.

Taking the Next Step With Confidence: Navigating Foot Drop and Mobility with MS – Episode 187 – Transcript

In this episode, we are joined by physical therapist Samantha Balistreri and orthotist Spencer Van Wagenen to break down what foot drop is, what devices like AFOs and FES can do for you. Then we will deep dive into how PTs and orthotists work together to find the right support—without sacrificing style or independence.

From early signs to energy-saving tips, supportive shoes and where to get them, this episode is full of practical guidance, encouragement to advocate for your mobility and explaining that using a support is not giving up.

Link from episode:  Equipment Distribution Program

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Facing MS: From First Symptoms to First Steps– Episode 186 – Transcript

In this episode, we explore how the landscape of being newly diagnosed with multiple sclerosis (MS) has transformed over the last decade. Thanks to advances in MRI technology, biomarkers, and updated diagnostic criteria, more people are being diagnosed earlier.  We break down how diagnosis and treatment options have improved across the board.  We also dive into why getting a diagnosis can still take time, and why accuracy is so crucial, even when emotions are high. You’ll hear practical tips on building a strong relationship with your MS care team, how to know when it might be time for a second opinion, and how to navigate that often overwhelming first treatment decision

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Finding Your Calm: Mindfulness and MS– Episode 185 – Transcript

In this powerful and insightful episode, host Stephanie welcomes mindfulness expert Robert Simpson to explore the vital connection between stress, mindfulness, and multiple sclerosis.  They also dive into self-compassion, the stress care partners face, and how mindfulness can foster empowerment and deeper connection. Whether you’re new to mindfulness or looking for fresh insights, this episode offers practical takeaways and hope for anyone navigating life with MS.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Living Well With MS While Managing Pain– Episode 184 – Transcript

In this episode, we explore how to manage the different types of pain associated with multiple sclerosis.  We discuss the role of behavioral interventions like Cognitive Behavioral Therapy, mindfulness, and behavioral activation in reducing pain’s impact and improving quality of life. We also share practical tips for people who don’t have access to a CBT therapist and offer a brief relaxation exercise to try together. Tune in to learn how to take control of your pain and reconnect with what matters most, even in the face of MS.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

My MS Story– Episode 183 – Transcript

In this episode we join our host Stephanie Buxhoeveden and special guest Ashley Ratcliff Lundy as we dive into the personal journeys of living with Multiple Sclerosis (MS) as we share unique stories of diagnosis, the emotional rollercoaster that follows, and how perspectives on life have shifted since that moment. From the first signs of MS to the life-changing diagnosis, our guest speaks about challenges, the feelings of uncertainty, fear, and hope, while hearing the lessons they’ve learned along the way. With honesty and resilience, we discuss how to redefine goals, priorities, and outlook on life, offering valuable advice to those newly diagnosed. Tune in for an inspiring conversation on adapting to change, embracing strength, and finding a renewed sense of purpose in the face of MS.

A special thank you to our generous sponsor Novartis.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any service, or diet associated with the content of this program.

Navigating Pediatric MS – Challenges, Treatment, and Hope for the Future– Episode 182 – Transcript

In this episode, we join our host Stephanie Buxhoeveden and two special guests Emily Blosberg with Oscar the Monkey and Harvard Neurology professor Tanuja Chitnis. Together we explore the complexities of pediatric multiple sclerosis and how it differs from the adult form of the disease. We’ll dive into when pediatric MS is typically diagnosed and highlight the early signs that parents and what to watch for. Beyond medical treatment, managing MS as a child can be particularly challenging. We share valuable advice for families on navigating school, sports, and social life, while emphasizing the importance of emotional support and accommodations. We take a look at the future of pediatric MS research, discussing advancements in clinical trials, potential new therapies, and ongoing studies to improve outcomes for children and teenagers with MS.

Tune in for an informative and hopeful discussion about pediatric MS, its challenges, and what’s ahead for young patients.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Debunking Myths and Crafting Sleep Strategies for MS– Episode 181 – Transcript

In this episode we join our host Stephanie Buxhoeveden and special guest Areti Vassilopoulos, we dive into the challenges of managing sleep with multiple sclerosis. From debunking common myths to exploring practical, real-life strategies, we provide insights on how to improve your sleep quality. Whether you’re struggling with fatigue, or simply looking for a routine, we offer tips to help you create a sleep routine that supports your health and well-being. Tune in for expert advice and personal stories to help you navigate the connection between MS and sleep.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Debunking Myths and Crafting Sleep Strategies for MS– Episode 181 – Transcript

In this episode we join our host Stephanie Buxhoeveden and special guest  Areti Vassilopoulos, we dive into the challenges of managing sleep with multiple sclerosis. From debunking common myths to exploring practical, real-life strategies, we provide insights on how to improve your sleep quality. Whether you’re struggling with fatigue, or simply looking for a routine, we offer tips to help you create a sleep routine that supports your health and well-being. Tune in for expert advice and personal stories to help you navigate the connection between MS and sleep.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Aging with MS: Navigating the Journey– Episode 180 – Transcript

In this episode we join our host Stephanie Buxhoeveden and special guest Le Hua as we explore the unique experiences of living with multiple sclerosis as we age.  Whether you’re newly diagnosed or have been living with MS for years, this episode provides the support, inspiration, and knowledge you need to embrace the journey ahead. Tune in as we navigate the road to growing older with MS.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.