RealTalk MS

I've invited a very special guest to talk about the subject that I've received -- by far -- the most requests to discuss on the podcast, and that's sexual function and MS.

We're also talking about the International Progressive MS Alliance's just-announced future strategies, World MS Day, and we're giving away an Amazon Dot!

The RealTalk MS podcast is coming to you from the Sheraton Centre Hotel in Toronto, Canada, where the International Progressive MS Alliance is holding its 3rd Scientific Congress. The theme of the event is Making a Difference Through Rehabilitation & Symptom Management.

Yesterday's session included a presentation on how some of the insights from stroke rehabilitation can be transferred to MS rehabilitation. There were detailed presentations on some of the key areas impacting translational strategies in progressive MS, conversations about comorbidities, cognition, exercise, and functional recovery. There were experts talking about managing fatigue, creating a greater sense of resilience, and a novel strategy for bladder management.

In this episode, we're talking to Dr. Karen Lee, Director of Research for the MS Society of Canada, Bernadette Porter, a Consultant Nurse at the National Hospital for Neurology and Neurosurgery in the U.K. with an innovative approach to bladder management designed to tame UTI's, and Levie Hofstee, a tech entrepreneur who has developed a new app that will automatically - and virtually invisibly - track your MS fatigue.

We have a lot to talk about! And we're talking about it live from the International Progressive MS Alliance Scientific Congress in Toronto, Canada. So...are you ready for RealTalk MS?

The International Progressive MS Alliance Scientific Congress wrapped up with a commitment to raising the bar when it comes to MS rehabilitation & symptom management.

We're talking to Dr. Karen Lee, Director of Research for the MS Society of Canada, Bernadette Porter, a Consultant Nurse at the National Hospital for Neurology and Neurosurgery in the U.K. with an innovative approach to taming UTI's, and Levie Hofstee, a tech entrepreneur who has developed a new app that will invisibly track MS fatigue.

Today -- and every day this week -- the RealTalk MS podcast is coming to you from the Sheraton Centre Hotel in Toronto, Canada, where the International Progressive MS Alliance is holding its 3rd Scientific Congress. The theme of the event is Making a Difference Through Rehabilitation & Symptom Management. The first day of the Scientific Congress featured amazing presentations, insightful panel discussions, world-renowned MS researchers, and even a couple of robots! Topics included how brain rehabilitation techniques for people who have suffered a stroke might be translated into rehabilitation techniques for people living with progressive MS, some amazing insights that were gained through external brain stimulation for managing depression, PTSD, and other mental health issues, and how socially assistive robots can aid people living with progressive MS by picking up some of the caregiver burden. The day featured a presentation and panel discussion all about understanding the perspectives of people living with progressive MS, there was a deep dive into how to best use exercise therapy for people living with progressive MS, and a presentation on cognitive rehabilitation. And in this episode, we'll talk to Dr. Lisa Melton, the Head of Research for MS Research Australia, robotics engineer Shane Saunderson, and two MS researchers will walk us through their research studies. We have a lot to talk about! And we're talking about it live from the International Progressive MS Alliance Scientific Congress in Toronto, Canada. So...are you ready for RealTalk MS?

The first day of the Scientific Congress featured amazing presentations, insightful panel discussions, world-renowned MS researchers, and even a couple of robots!

In this episode, we'll talk to Dr. Lisa Melton, the Head of Research for MS Research Australia, robotics engineer Shane Saunderson, and two MS researchers will walk us through their research studies.

Today -- and every day this week -- the RealTalk MS podcast is coming to you from the Sheraton Centre Hotel in Toronto, Canada, where the International Progressive MS Alliance is holding its 3rd Scientific Congress. The theme of the event is Making a Difference Through Rehabilitation & Symptom Management. In today's podcast, you'll hear from a renowned progressive MS researcher who is leading an international team of experts in a 3-year research study. You'll also hear from a trio of rehabilitation experts as they discuss some of the challenges they currently face in MS rehabilitation. And we're breaking down the sessions and presentations that will be taking place throughout the day. We have a lot to talk about! And we're talking about it live from the International Progressive MS Alliance Scientific Congress in Toronto, Canada. So...are you ready for RealTalk MS?

The RealTalk MS podcast is coming to you from Toronto, Canada, where the International Progressive MS Alliance is holding its 3rd Scientific Congress. The theme of the event is Making a Difference Through Rehabilitation & Symptom Management.

You'll hear from a renowned progressive MS researcher who is leading an international team of experts in a 3-year research study. And we're talking to a trio of rehabilitation experts as they discuss some of the challenges they currently face in MS rehabilitation.

Today -- and every day this week -- the RealTalk MS podcast is coming to you live from the Sheraton Centre Toronto Hotel in Toronto, Canada, where, tomorrow, the International Progressive MS Alliance kicks off its 3rd Scientific Congress. The theme of the event is Progressive MS -- Making a Difference Through Rehabilitation & Symptom Management, and on today's podcast episode, we're previewing some of what the attendees will be seeing and hearing. We're also talking about several MS rehabilitation research studies that examine mindfulness meditation and well-being, virtual reality as an effective tool for gait & balance rehabilitation, and how a history of depression might stop people with MS from doing physical exercise. We'll also tell you how you can use social media to share your ideas about next-generation mobility devices. We have a lot to talk about. And we're talking about it live from the International Progressive MS Alliance Scientific Congress on MS Rehabilitation & Symptom Management, at the Sheraton Centre Hotel in Toronto, Canada. ____________

FDA Files Suit Against 2 Stem Cell Clinics 1:03

Mindfulness Meditation Creates Short-Term Well Being for People Living with MS 3:32

Virtual Reality as Effective as Traditional Rehabilitation for Gait & Balance in MS 5:03

Depression as a Barrier to Physical Exercise for People Living with MS 6:55

#MyMobilityUnlimited Is the Hashtag that Lets You Help Design the Future of Mobility Devices 9:34

International Progressive MS Alliance Scientific Congress: Progressive MS -- Making a Difference Through Rehabilitation & Symptom Management 11:24

___________

LINKSIf your podcast app doesn't show these links, you'll find them in the show notes at www.RealTalkMS.com

Mindfulness Meditation Improves Short-Term Well Being in MS

Virtual Reality Effective in Treating Gait & Balance Impairment in MS

Lower Aerobic Endurance Linked to History of Depression in MS

#MyMobilityUnlimited Seeks Ideas From Wheelchair Users

The International Progressive MS Alliance

The RealTalk MS Podcast Alexa Skill

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 33 Hosted By: Jon Strum

Tags: MS, MultipleSclerosis, Mindfulness, Depression, MyMobilityUnlimited, MSRehabilitation, Rehabilitation, AllianceCongress2018, RealTalkMS

The RealTalk MS podcast is live from the Sheraton Centre Toronto Hotel in Toronto, Canada, where, tomorrow, the International Progressive MS Alliance kicks off its 3rd Scientific Congress. The theme of the event is "Progressive MS -- Making a Difference Through Rehabilitation & Symptom Management," and on today's podcast episode, we're going to preview some of what the attendees will be seeing and hearing.

Living your best life while you're living with MS means learning how to manage and overcome the physical and psychological limitations that MS tries to impose. This week's guest, Dr. Kathleen Zackowski, Senior Director of Patient Management, Care, and Rehabilitation Research for the National MS Society, takes us on a deep dive into MS rehabilitation & symptom management. We're also talking about the FDA approval of Gilenya for treating Pediatric MS, President Donald Trump's announced "blueprint to lower (prescription) drug prices," and next week's International Progressive MS Alliance Scientific Congress on Rehabilitation & Symptom Management. And...we're announcing some very special podcast episodes coming your way next week!! We have a lot to talk about! Are you ready for RealTalk MS? ____________

The RealTalk MS Podcast & Alexa 1:35

FDA Approves Gilenya For Pediatric MS 3:13

President Trump Announces His Prescription Drug Strategy 4:30

MS Rehabilitation & Symptom Management 6:37

International Progressive MS Alliance Scientific Congress 9:35

Special Upcoming Podcast Episodes 10:32

Interview with Dr. Kathleen Zackowski 11:21

___________

LINKSIf your podcast app doesn't show these links, you'll find them in the show notes at www.RealTalkMS.com

The RealTalk MS Podcast Alexa Skill

FDA Approves Gilenya for Pediatric MS

The International Progressive MS Alliance

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 32 Guest: Dr. Kathleen Zackowski Hosted By: Jon Strum

Tags: MS, multipleSclerosis, Alexa, Gilenya, MSRehabilitation, Rehabilitation, AllianceCongress2018, RealTalkMS