RealTalk MS

As technology advances at an ever increasing rate, it's speeding up the pace of scientific discovery. This week, we're looking at new tech tools - smartphone apps, desktop programs, and mobile technology - that will change the way you manage MS fatigue, anxiety, foot drop, MS rehab, and more. 

And you'll meet Jayce Riley, an MS Road Warrior who is preparing to ride his bike 3,785 miles across the United States to raise money for MS research.

We have a lot to talk about! Are you ready for RealTalk MS?

My podcast guest Stephanie Buxhoeveden was diagnosed with MS when she was 25 years old, working as a neurosurgical ICU nurse. Today, Stephanie is a board-certified Multiple Sclerosis Nurse, she is a Nurse Practitioner and she is the Co-Director of the MS Comprehensive Care Center where she has also been a patient. Stephanie will share some of her experiences and observations from the dual perspective of someone who is a medical specialist who treats patients with MS, and also someone who lives with MS. We're also talking about the results of the very first clinical trial to demonstrate a slowing in the progression of disability in secondary progressive MS. We'll tell you about a new Canadian study that shows a clear connection between depression and physical disability in MS. And we'll talk about the kind of information that California's new prescription drug price transparency bill is revealing. ____________

:18 MS Awareness -- It's A 12-Month Campaign

3:01 New Drug Slows Disability Progression in Secondary Progressive MS

4:09 Study Shows Depression Impacts MS Physical Disability

6:42 Drug Price Transparency Law in California Begins to Reveal Real Information

8:49 Interview with Stephanie Buxhoeveden

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LINKSIf your podcast app doesn't show these links, you'll find them in the show notes at www.RealTalkMS.com

Articles & Videos by Stephanie Buxhoeveden

GPS For Your MS: Initiating Your Wellness Journey

Emergency Preparedness

Facing the Emotional Symptoms of MS Together

TedX Talk: Thriving In The Face of Adversity

MS Path 2 Care

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For more RealTalk MS, follow us on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 26 Guests: Stephanie Buxhoeveden, MSCN, FN-BC, MS Activist Hosted By: Jon Strum

Tags: MS, multiple sclerosis, Stephanie Buxhoeveden, Siponimod, MS and depression, MS prescription drug prices, prescription drug price transparency, MS podcast, RealTalk MS

Podcast guest Stephanie Buxhoeveden was diagnosed with MS when she was 25 years old, working as a neurosurgical ICU nurse. Today, Stephanie is a board-certified Multiple Sclerosis Nurse, she is a Nurse Practitioner and she is the Co-Director of the MS Comprehensive Care Center where she has also been a patient. Stephanie will share some of her experiences and observations from the dual perspective of someone who is a medical specialist who treats patients with MS, and also someone who lives with MS.

March is MS Awareness Month, and tomorrow we'll be observing the first ever Progressive MS Day, which is being celebrated by several MS advocacy groups and state governments around the United States.

My guests on the podcast are Dan and Jennifer Digmann. Jennifer was diagnosed with Progressive MS in 1997, and Dan was diagnosed with relapsing-remitting MS in 2000. Dan & Jennifer met at a National MS Society event in 2002, and they were married in 2005.

Together, Dan & Jennifer write an award-winning MS blog, they host the A Couple Takes On MS podcast on the MS & ME Radio Network, they've co-authored a book entitled, Despite MS, to Spite MS, and in 2015, they were inducted into the National MS Society Volunteer Hall of Fame for Advocacy.

We'll talk with Dan & Jennifer Digmann and get their thoughts about Progressive MS Day, and on what life is like when both partners in a marriage have been diagnosed with multiple sclerosis.

____________ 1:42 Managing MS Pain Through Mindfulness 4:50 Improving Cognitive Processing By Walking On a Treadmill 6:11 The Importance of Sleep in MS Symptom Management 9:57 Progressive MS Day With Dan & Jennifer Digmann ____________ LINKS If your podcast app doesn't show these links, you'll find them in the show notes at www.RealTalkMS.com Association Between Pain & Mindfulness in Multiple Sclerosis Guided Mindfulness Meditation for Pain Relief by Jon Kabat-Zinn Treadmill Walking & Brain Function in Multiple Sclerosis Poor Sleep in Multiple Sclerosis Importance of Sleep in Multiple Sclerosis Dan & Jennifer Digmann A Couple Takes On MS Podcast Despite MS, To Spite MS ____________ For more RealTalk MS, follow us on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 25 Guests: Dan & Jennifer Digmann Hosted By: Jon Strum Tags: Progressive MS Day, MS, multiple sclerosis, Dan and Jennifer Digmann, MS pain, Mindfulness, MS and cognition, MS and sleep, MS podcast, RealTalk MS

My guests on the podcast are Dan and Jennifer Digmann.  Jennifer was diagnosed with Progressive MS in 1997, and Dan was diagnosed with relapsing-remitting MS in 2000. Dan & Jennifer met in 2002, and they were married in 2005. 

We're talking about Progressive MS Day with Dan & Jennifer, and about what life is like when both partners in a marriage have been diagnosed with multiple sclerosis.

We're also talking about MS symptom management that you can do at home -- without any drugs!

Depression affects over one million people around the world who are living with MS. And when you fail to treat depression, every other aspect of life seems to get worse - and that can include your MS symptoms.

My guest on this week's podcast is Dr. Athena Robinson, the Chief Clinical Officer at Woebot Labs, and we're talking about Woebot -- a breakthrough app that lives on your smartphone and has been proven to be effective in treating depression.

We're also talking about a robotic arm brace that restores the use of paralyzed limbs due to MS, ALS, and stroke. And you'll hear all about 2 new MS research studies taking place at the University at Buffalo. We'll even tell you where you can sign up to test-drive a smartphone app that's been developed to help your neurologist fine-tune your MS treatment and better personalize your MS symptom management. We have a lot to talk about! Are you ready for RealTalk MS?

Depression affects about 50% of people who are living with MS. That's over one million people around the world. And when you fail to treat depression, every other aspect of life seems to get worse.  My guest on this week's podcast is Dr. Athena Robinson, the Chief Clinical Officer at Woebot Labs, and we're talking about Woebot -- a breakthrough app that lives on your smartphone and has been tested and proven to be effective in treating depression.

The Accelerated Cure Project for Multiple Sclerosis is a national non-profit organization dedicated to accelerating advances toward a cure for MS. My guests on this week's podcast are Dr. Robert McBurney, the President & CEO of the Accelerated Cure Project for MS, and David Gwynne, who manages their Alliances & Collaborations. We're talking about some of their major initiatives, their recent announcement about a new collaboration, and you'll even learn how you can be a part of MS research.

We're also talking about amazing research being done at Cambridge, where they're successfully repairing myelin in the lab using a patient's skin cells. And we're re-capping the National MS Society's Public Policy Conference and Day on Capitol Hill in Washington, D.C.

We have a lot to talk about! Are you ready for RealTalk MS?

The Accelerated Cure Project for Multiple Sclerosis is a national non-profit organization dedicated to accelerating advances toward a cure for MS. My guests on this week's podcast are Dr. Robert McBurney, the President & CEO of the Accelerated Cure Project for MS, and David Gwynne, who manages their Alliances & Collaborations. We're talking about some of their major initiatives, and you'll even learn how you can be a part of MS research.

To kick off MS Awareness Month, we'll go inside a private VIP research briefing where you'll hear 3 award-winning MS research scientists tell us how their work is impacting our understanding of multiple sclerosis.

Then, you'll meet my special guest, Emily Blosberg, founder of Oscar, the MS Monkey. Emily is an amazing young lady who's making life better for some of the youngest folks who are living with MS today and their families.

We have a lot to talk about! Are you ready for RealTalk MS?