Surfing the MASH Tsunami

S5 - E18.4 - The Future Of HOPE: Expanding the Support Community for Patients Who Have Harmed Their Bodies Through Alcohol Use Disorder


Listen Later

Send us a text

Sober Livers leaders Jenn Jones and Beth Lehman join Roger Green to discuss HOPE, their new support community for people who have harmed themselves through AUD (Alcohol Use Disorder). This conversation focuses on plans and hopes for the future.

Roger starts this conversation by sharing a story from his own experience about the pressure caregivers struggle with and asks how HOPE (Healing Others with Peers and Education) will address caregivers and their needs. Beth acknowledges that this need is legitimate and that caregivers for these people may need a program of their own. The group wrestled with this issue when considering their original offering, but decided the organization needed to meet the needs of people living with this situation before offering services to caregivers. Jenn elaborates that the reason not to include caregivers in the initial group population is that it may limit the items and issues that HOPE's core constituency is willing to discuss. She says that creating a parallel caregiver program will be a pivotal next step once the target group is up and running. 

Next, Roger asks what else Sober Livers would like to implement over time to enhance the program. Jenn notes that the organization plans to create benchmarks and conduct qualitative and quantitative research to ensure that “this is an effective community that’s actually helping people.” They will share this data and a resulting strategic plan with HOPE’s WHAC (Whole Health Advisory Council) and prospective sponsors, including one healthcare products company that has already committed to a starter grant.

In practical terms, Jenn mentions starting a second meeting at a different time of day, possibly one more suitable for West Coast residents with jobs. They plan to recruit transplant centers to make information available so that appropriate patients will enroll and even make initial contact during first hospitalization. They would like to educate the people living with disease on options they might not have considered and scientific advances.  At one point, Beth mentions a desire for in-person meetings in cities with major transplantation centers.  

In terms of education, Jenn mentions liver perfusion and finding a living donor as two areas Sober LIvers would like to provide support.

...more
View all episodesView all episodes
Download on the App Store

Surfing the MASH TsunamiBy SurfingNASH.com

  • 3.8
  • 3.8
  • 3.8
  • 3.8
  • 3.8

3.8

23 ratings


More shows like Surfing the MASH Tsunami

View all
JAMA Editors' Summary by JAMA Network

JAMA Editors' Summary

140 Listeners

Planet Money by NPR

Planet Money

30,738 Listeners

Freakonomics Radio by Freakonomics Radio + Stitcher

Freakonomics Radio

32,140 Listeners

The Jesse Chappus Show by Jesse Chappus

The Jesse Chappus Show

1,535 Listeners

Pod Save America by Crooked Media

Pod Save America

86,826 Listeners

The Curbsiders Internal Medicine Podcast by The Curbsiders Internal Medicine Podcast

The Curbsiders Internal Medicine Podcast

3,335 Listeners

Pod Save the World by Crooked Media

Pod Save the World

24,617 Listeners

The Daily by The New York Times

The Daily

111,150 Listeners

Up First from NPR by NPR

Up First from NPR

56,007 Listeners

Today, Explained by Vox

Today, Explained

10,157 Listeners

The Readout Loud by STAT

The Readout Loud

323 Listeners

The Peter Attia Drive by Peter Attia, MD

The Peter Attia Drive

8,098 Listeners

Docs Who Lift by Docs Who Lift

Docs Who Lift

387 Listeners

The Rest Is Politics: US by Goalhanger

The Rest Is Politics: US

2,194 Listeners

Expose MASH [Formerly NASH] by Novo Nordisk

Expose MASH [Formerly NASH]

10 Listeners