This week Dr. Daniel Correa sits down with amyotrophic lateral sclerosis (ALS) advocates and I AM ALS co-founders, Brian Wallach and Sandra Abrevaya. Brian—who was diagnosed with ALS in 2017 at 37 years old—and his wife and care partner Sandra share their family’s experience with ALS and how they have utilized their skills from working on legislation and political campaigns to become effective advocates and raise awareness about this neurodegenerative disease. Next, Dr. Correa speaks with Dr. Jinsy Andrews, neurologist and associate professor of neurology in the Division of Neuromuscular Medicine and director of Neuromuscular Clinical Trials at Columbia University. Dr. Andrews discusses the advances in treatment for ALS, the evolution of clinical trials in recent years, and how these trials benefit research for other neurodegenerative conditions.

 

Learn more about Brian and Sandra’s advocacy work and find out how you can watch their documentary No Ordinary Campaign by visiting www.NoOrdinaryCampaign.com.

Additional Resources

• Learn more about ALS
• Brain & Life Books series: Navigating Life with Amyotrophic Lateral Sclerosis (ALS)
• Read more about ALS on Brandandlife.org: at Musician John Driskell Hopkins Turned an ALS Diagnosis into a Mission to Help Others
• Listen to the Brain & Life Podcast: Hop on a Cure for ALS with John Driskell Hopkins
• https://www.synapticure.com/
• https://iamals.org/

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

• Record a voicemail at 612-928-6206
• Email us at [email protected]

Social Media:  

Guest(s): Brian Wallach @bsw5020 (Twitter); Sandra Abrevaya @sabrevaya (Twitter); Synapticure @synapticure (Twitter); I AM ALS @iamalsorg (Twitter)