On the Deb & Detty Episode Deb let’s her rip and really goes in deep into talking about FND in depth, gives hints and tips to Jess and Maggie from the Jjsegment and Maggies Corner. Our lovely Deb updates us and talks all things FND.  This episode has been recorded earlier in the month so some information of covid news will be outdated.

What is Ehlers Danlos Syndrome or EDS?

https://www.ehlers-danlos.com/what-is-eds/

‘What is Dercums Disease?

https://rarediseases.org/rare-diseases/dercums-disease/

Lite N Easy meals information click the link below : prepared meals 

https://www.liteneasy.com.au/

To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: 

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

MY FND APP is another great tool that can be downloaded at any App Store which can help you monitor your FND symptoms and document it so you can see it for yourself long term and keep a log. Also it can be great to take along for appointment. 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FND Nead and US  check them out on Facebook 

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND. 
 

We talk to it’s me it’s me it’s FND Jake ( hello how are you!) and talk all things FND this week we talk about Finances and what financial stress has the impacts it has on our lives, how it flows into our families, we talk about weddings, and life with FND in general and ideas that we’d like to bring in this segment. Join us on this episode of Uniting FND.

follow him on Instagram on @punkchef41 and his podcast  it’s me it’s me it’s fnd

click here for Apple podcast

 https://podcasts.apple.com/au/podcast/toxic-people-can-make-your-fnd-so-much-worst-ep24/id1557148347?i=1000527867893

and for Spotify:

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=AYZJ06XxRvOG2eBbO3bfAg&dl_branch=1

links to check out or talked about :

what on earth did Jake send detty that she’s laughing at? this week it’s extreme ironing

https://youtu.be/7fd6NBQ8ego

To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: 

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

MY FND APP is another great tool that can be downloaded at any App Store which can help you monitor your FND symptoms and document it so you can see it for yourself long term and keep a log. Also it can be great to take along for appointment. 

Other FND podcasts/blogs/Media to check out 

Youtube: functionally Lenny

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks

follow on Instagram @ Meg.jacks_

TicTok: @megjacks

FND Nead & Us on Facebook 

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND. 

On this episode of the JJ segment Jess explores the talk that is going around media and the community about vaccines and the Pfizer. She also has some updates and news to present and exploring what you’re passionate about in life even with FND.

LINKS AND INFORMATION TO CHECK OUT:

Vaccines and FND?

https://www.sciencealert.com/videos-of-severe-reactions-to-covid-19-vaccines-aren-t-what-they-seem-scientists-say

To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks

follow on Instagram @ Meg.jacks_

TicTok: @megjacks

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND. 
 

In this episode victoria just got out of lockdown 5 and Sydney is in lockdown. However as we uploading this episode victoria has entered lockdown 6. We talk about how we coped with lockdown previously and ways that we coped. Stay safe and kind to yourself and each other .

 Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative

To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below I have already added Get Happy by Ella Fitzgerald.  

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

LINKS AND INFORMATION TO CHECK OUT:

recommended by detty and Maggie :

the game What remains of Edith Finch: an easy quick play exploring a family history which is full of twists and turns fairly interactive 

https://www.theguardian.com/technology/2017/apr/26/what-remains-of-edith-finch-review-giant-sparrow
 

Nothing Much Happens : Bedtime stories for sleep  click below to a video 

https://youtu.be/Oai8PDONPPo

Bedtime stories for adults!

amplifying an amazing podcast :  their description : the imperfects We're all imperfect. On this podcast, Hugh van Cuylenburg, founder of The Resilience Project chats to a variety of interesting people who are willing to make themselves vulnerable, by sharing their own struggles and imperfections. Hugh and good friend Ryan Shelton then discuss some valuable take aways we can all apply to our own imperfect lives. Such a great listen !

https://podcasts.apple.com/au/podcast/the-vulnerabilitea-house-ryan-shelton/id1476501557?i=1000530681678

AMPLIFYING:
Nina Tame aka the lunch lady! https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/

She’s a single mum who’s disabled and a disability advocate. Parenting with disability  she’s just awesome. 

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks

follow on Instagram @ Meg.jacks_

TicTok: @megjacks

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND. 
 

On this episode our ever wonderful Deb is being her wonderful supportive self. she helps Detty with Centrelink talks about what’s going on especially with her Durcums Disease and the importance of having the supports in place and speaking up not only for yourself but for others and having an advocate for you. 

‘What is Dercums Disease?

https://rarediseases.org/rare-diseases/dercums-disease/

How to make a complaint : several avenues to go:

The Australian Practitioner Regulation Agency: How are complaints or concerns managed?

https://www.ahpra.gov.au/Notifications/How-to-submit-a-concern.aspx

Human Rights Commission : How to make a complaint

https://humanrights.gov.au/complaints

Commonwealth Ombudsman making a complaint: what they do

https://www.ombudsman.gov.au/How-we-can-help

here’s a great guide on how to advocate for yourself or others 

http://www.sa.agedrights.asn.au/files/19_how_to_advocate_yourself_and_others.pdf

If you need someone to advocate for you and you are disabled there is the disability advocacy finder:

Disability advocacy is acting, speaking or writing to promote, protect and defend the human rights of people with disability. The Australian Government, and some state and territory governments, fund independent advocacy to help people with disability who face complex challenges or are unable to advocate for themselves, and do not have family, friends or peers who can support them as informal advocates, to access advocacy support.
To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: 

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

MY FND APP is another great tool that can be downloaded at any App Store which can help you monitor your FND symptoms and document it so you can see it for yourself long term and keep a log. Also it can be great to take along for appointment. 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND. 
 

We talk to it’s me it’s me it’s FND Jake ( hello how are you!) and talk all things FND from dissociative seizures family life with fnd and even tattoos.  It’s fnd United.

follow him on Instagram on @punkchef41 and his podcast  it’s me it’s me it’s fnd

click here for Apple podcast

 https://podcasts.apple.com/au/podcast/toxic-people-can-make-your-fnd-so-much-worst-ep24/id1557148347?i=1000527867893

and for Spotify:

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=AYZJ06XxRvOG2eBbO3bfAg&dl_branch=1

links to check out or talked about :

what on earth did Jake send detty that she’s laughing at? What is a she we?

https://shewee.com.au/

but on a serious note dissociative episodes and information :

https://www.neurosymptoms.org/en_US/symptoms/fnd-symptoms/dissociative-non-epileptic-attacks-blackouts/

If you’re in the Uk and considering therapy for yourself go speak to your gp and have the chat

https://www.nhs.uk/mental-health/talking-therapies-medicine-treatments/talking-therapies-and-counselling/nhs-talking-therapies/

again if you’re in Australia do have the chat with your gp.

To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: 

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

MY FND APP is another great tool that can be downloaded at any App Store which can help you monitor your FND symptoms and document it so you can see it for yourself long term and keep a log. Also it can be great to take along for appointment. 

Other FND podcasts/blogs/Media to check out 

Youtube: functionally Lenny

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks

follow on Instagram @ Meg.jacks_

TicTok: @megjacks

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND. 
 

On this episode Jess answers the questions that was given to her and a few more from a newly diagnosed FNDer. If you have any more questions please pass them on her way!  
Follow Jess on Instagram  @functionallyjess for educational information / slides / posts about FND

LINKS AND INFORMATION TO CHECK OUT:

Chronic pain and Fnd

https://www.neurosymptoms.org/en_US/symptoms/common-associated-symptoms/pain/

To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks

follow on Instagram @ Meg.jacks_

TicTok: @megjacks

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND. 
 

On this episode Maggie is back in Melbourne and out of quarantine. We talk about her travel experience coming back home  and all things fnd.  Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative

To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below I have already added Get Happy by Ella Fitzgerald.  

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

LINKS AND INFORMATION TO CHECK OUT:

Listenable podcast: amazing podcast to listen to ! Here are some more to also listen to in regards to disability and travelling too 

https://www.travelwithoutlimits.com.au/podcasts-about-disability-and-travel/

If you are looking to travel here are some links to consider but please do your research on what each of your airlines offer for example heres what Qantas offers https://www.qantas.com/au/en/travel-info/specific-needs.html 

Here’s some other Links on travelling with disabilities 

https://www.smartraveller.gov.au/before-you-go/health/disability

https://www.flightcentre.com.au/flights/planning-your-flight/disabilities

https://www.scopeaust.org.au/blog/disability-advice/tips-for-travelling-with-a-disability/
 

Tip of the tongue

https://www.verywellmind.com/lethologica-tip-of-the-tongue-phenomenon-4154947

Example of the 5 second game 

https://youtu.be/tffTbQMErQk

AMPLIFYING:
Julian Gavino (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation. Follow him on Instagram  @thedisabledhippie 

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks

follow on Instagram @ Meg.jacks_

TicTok: @megjacks

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND. 
 

In this episode Deb explains what happened in her last review with her service. What she raised was good points about why it’s important to have an advocate if you need it to support you through these meetings, that all the little details matter in your care and to speak up. 

To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: 

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

MY FND APP is another great tool that can be downloaded at any App Store which can help you monitor your FND symptoms and document it so you can see it for yourself long term and keep a log. Also it can be great to take along for appointment. 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND. 
 

We talk to it’s me it’s me it’s FND Jake ( hello how are you!) and talk all things FND about how he’s been invited to talk on a podcast in relation to the covid vaccine reaction and fnd , covid and fnd how it’s affected us in general, and fnd in life. 

follow him on Instagram on @punkchef41 and his podcast  it’s me it’s me it’s fnd

click here for Apple podcast

 https://podcasts.apple.com/au/podcast/toxic-people-can-make-your-fnd-so-much-worst-ep24/id1557148347?i=1000527867893

and for Spotify:

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=AYZJ06XxRvOG2eBbO3bfAg&dl_branch=1

links to check out or talked about :

Dr.Joshua Wolrich on Instagram @drjoshuawolrich is who Jake is goino to be interviewed with. 
Dr. Wolrich has a podcast himself ( the author of food isn’t medicine) which Jake will be featured in soon. Check it out   https://open.spotify.com/show/3dwIX3SPIHVwCv4v4gQyVf?si=PDu8P4KARHSjGJQB4sDahg&dl_branch=1

To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: 

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

MY FND APP is another great tool that can be downloaded at any App Store which can help you monitor your FND symptoms and document it so you can see it for yourself long term and keep a log. Also it can be great to take along for appointment. 

Other FND podcasts/blogs/Media to check out 

Youtube: functionally Lenny

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks

follow on Instagram @ Meg.jacks_

TicTok: @megjacks

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND.