The MEN1 Mosaic

Is Big Pharma really helping us heal—or just keeping us dependent?

In this episode, I speak with Cass, a former strategist in global pharma and biotech, who’s now mentoring leadership teams across the industry. She brings a rare, honest perspective from the inside—one that challenged how I think about conventional medicine, drug pricing, and rare disease treatment.

We cover:

• What’s really driving decisions inside pharmaceutical companies
• Why prescription costs are so high (and where the money goes)
• The challenge of developing drugs for rare diseases like MEN1
• What patients often don’t see when it comes to profit vs care
• Why the alternative vs conventional medicine debate is flawed

This episode blends strategic expertise with a deep belief in human potential, especially powerful if you’re navigating rare disease as a patient and trying to make sense of the system.

About Our Guest

Cass began her career in pharma sales and strategy before moving into global consulting. Today, she coaches leadership teams in £10M–£100M pharmaceutical and biotech companies, helping to drive purpose-led growth while improving wellbeing and retention. She’s also a yoga teacher and firm believer in the power of self-determination and conscious health.

More about Cass here

Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click here

Disclaimer
I share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

What would you do if life kept throwing one health crisis after another your way?

For Jane, it started with an undiagnosed burst appendix that nearly killed her—only to be followed by an aggressive breast cancer diagnosis. But instead of following the conventional route, Jane took matters into her own hands.

In this episode, she shares her powerful story of healing, the radical changes she made, and how she’s now cancer-free six years later.

Key Takeaways:

•  How Jane went from intensive care to cancer-free
•  The holistic approach she took, even when professionals called her reckless
•  Why food, environment & inner-work are critical in keeping Jane's health stable

ABOUT OUR GUEST
Following a burst appendix in May 2016, a triple positive breast cancer diagnosis in November 2017, and a few other health issues, Jane began to question whether there was a deeper connection between her health and how she was living. Her research into both conventional and holistic healing approaches led her to a radical shift in how she approached wellness—one that transformed her life.

This journey inspired her to create The Breathing Space programme: a practical guide to help others explore diet, lifestyle, emotional patterns, and environmental factors to support healing and prevent chronic illness. Jane is passionate about helping people feel good—especially when it means breaking free from the patterns that no longer serve them. Work with Jane:

The McCourt Method
@themccourtmethod

Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click here

Disclaimer
I share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

"You’ve got 20 years to live."

That’s what Brad was told after major pancreatic surgery. But instead of giving up, he chose to live—with intention, grit, and his own version of hope.

In this deeply personal conversation, Brad shares his MEN1 journey from childhood diagnosis through multiple surgeries, isolation, and unexpected setbacks. With honesty and warmth, he opens up about how he rebuilt his life—mentally, emotionally, and practically—after being told that work might never be possible again.

This episode is for anyone navigating MEN1 or a long-term health condition… especially those wondering if things can get better. Brad’s story reminds us that they can—and often in ways we don’t expect.

In this episode:

• How Brad defied the odds after a devastating prognosis
• The hidden emotional cost of living with MEN1
• Why trusting yourself can change the entire course of your health journey
• What helped Brad stay grounded through life-altering challenges
• The quiet power of resilience, even when you feel like giving up

Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click here

Disclaimer
I share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

What if your symptoms weren’t just physical?

In this episode, Dylan Ayaloo and I explore how stress, emotions and inner beliefs can show up in the body. We talk breathwork, movement, nervous system healing and the power of story work to shift your health from the inside out.

We cover:

• The link between stress, emotions and disease
• How movement and breath can unlock healing
• A simple practice to regulate your nervous system

Dylan is a transformation teacher using yoga, meditation and inner work to help people live with more peace, freedom and vitality.

Connect with Dylan here 

More on Dylan’s work here

Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click here

Disclaimer
I share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

What if the key to healing wasn’t just medical advice—but trusting yourself? 

In this episode, Kate shares how she navigated her complex health journey, the power of intuition, and how community helped her detect her condition early.  

Key Takeaways:
✔️ Why listening to your intuition is crucial in rare disease care  
✔️ How community support can lead to life-changing discoveries  
✔️ The mindset shift that helped Kate take control of her health  

Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click here

Disclaimer
I share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

What happens when doctors dismiss your symptoms—until an MRI reveals a golf-ball-sized tumor?

In this episode, Kate shares her shocking MEN2A diagnosis, the unexpected discovery of multiple tumors, and how she’s navigating life after a whirlwind of surgeries and genetic testing.

Key Takeaways:
✔️ The subtle symptoms that led to a life-changing diagnosis
✔️ The emotional impact of finding out her child also carries MEN2A
✔️ The importance of self-advocacy in rare disease care

Join the conversation!
Connect with our community for support & discussions: https://lizziedunn.ck.page/jointhecommunity

Reach out to Kate here for her (wedding) floristry work and here to keep up with her MEN2a.

Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click here

Disclaimer
I share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

Doctors told Teresa she had no choice but to take medication for her autoimmune disease—but she chose a different path. 

In this episode, she shares how she reversed her rheumatoid arthritis naturally, the mindset shifts that changed everything, and why true healing goes beyond just diet and lifestyle.

CONNECT WITH TERESA here

EPISODE RESOURCES
Brandy Gilmore

Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click here

Disclaimer
I share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

Many MEN1 patients don’t realise how much high calcium is draining their energy—until after surgery.

In this episode, Stella shares her journey with MEN1, from her family history in Greece to navigating healthcare in the UK. She opens up about her recent parathyroid surgery, the unexpected boost in energy, and how her work in cell therapy research has shaped her perspective on cancer and MEN1.  

We also discuss the challenges of getting diagnosed, the importance of trusted medical sources, and why life expectancy statistics can be misleading.  

If you're looking for insight, reassurance, and a refreshing take on managing MEN1, this one's for you.  

ABOUT OUR GUEST

Stella LOVES cats, yoga, cells & controversial, spicy chats! Reach out to Stella here.

Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click here

Disclaimer
I share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

When do you take action with MEN1, and when do you wait?

In this episode, we dive into the tough decisions MEN1 patients face—balancing symptoms, surgery, and long-term health. Justin shares his personal journey, the challenges of navigating uncertainty, and the mindset shifts that changed everything.

Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click here

Disclaimer
I share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

"On my birthday, I ended up in the hospital, barely conscious. Doctors assumed I was drunk—but the truth was far more serious."

In this episode, MEN1 Patient, Kinga, shares:

🔹 The unexpected symptoms that led to her diagnosis
🔹 The biggest mistakes she made at the start
🔹 How she found support & learned to advocate for herself
🔹 What she wishes she knew back in 2019

If you or a loved one are navigating MEN1—or any rare condition—this episode is for you. 💛

📌 Join My MEN1 Community: https://lizziedunn.ck.page/jointhecommunity

⏳ Timestamps:
00:00 Intro
00:30 The night everything changed
04:15 Getting diagnosed with MEN1 Mosaicism
07:40 Learning to advocate for herself
10:55 Managing MEN1 across different countries
14:20 What she wishes she knew sooner
16:00 Advice for anyone facing a rare disease

Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click here

Disclaimer
I share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.