January 09, 2024

The Rush Family (Andrew Danner & Brook Cooper). Living in the Limbo of Hospice for their Twin Babies and Anticipating the End While Hopefully Researching.

1 hour 17 minutes

Indianapolis transplants met as kids, but they didn't become a serious couple until Andrew rescued Brook from a traumatic relationship. This heroic foundation of care and love is ever present in this interview as Brook looks to Andrew for the medical details and Andrew looks to Brook for unconditional support.

Listen as the parents of four explain their identical twin boys D-bifunctional protein deficiency diagnosis. Simply put, they can't digest long-chain fatty acids. Tragically put, they are put in the "failure to thrive category." The longest child has lived with this diagnosis for 4 years and 1 month, with the average child living only two years. They openly discuss the decision to opt out of tracheostomies, the high cost of, well, everything, Andrew's 1 a.m. work schedule, the genetic probability with their current pregnancy **SPOILER**, not having any family close and the support from their church and school. If you want to help this deserving family, message me OR Venmo @Brook-Cooper-5 OR gofundme.com/f/eyubx7

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