The Skies We’re Under

Grief comes in all shapes and sizes, be that anticipatory, or following the death of a child. In Rachel’s authentic and resonant conversation with Gabriella Walker, she reflects on how grief can be made more complex, and more difficult when the services she worked for failed to support her daughter and family in a way she needed.

In one of our broadest episodes to date, we cover how it feels to work within a system you thought would be there to catch you but doesn’t, and how hard it is when you realise you’ve been failed by something you believe in. You can find out about the fantastic work Gabriella is doing to support families on her website https://irisfamilysupport.org

We also talk about;

Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here.

We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly.

You can leave a message with us in a number of ways:

 (Please note calls need to be limited to 90 seconds)

Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) .

Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. 

We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…  

Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

We’re delighted to be joined by Rhiannon Gogh, SEND finance expert, mum to a boy with complex autism, trainer, presenter and award winning Financial Advisor. Rhiannon talks us through all the things we need to think about (even if it's difficult!) and helps explain terms like trustees, with informed, positive and helpful advice.

You can find more about Rhiannon and her work at  Carers Academy and SENDA.

Rhiannon’s Book is available for order Planning With Love: A Guide to Wills and Trusts for Parents of Children With Special Needs

Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here.

We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly.

You can leave a message with us in a number of ways:

 (Please note calls need to be limited to 90 seconds)

Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) .

Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. 

We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…  

Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

Welcome to a TSWU Raincheck. While you wait for new content, here is a short extract from earlier episodes to tide you over. 

This week "Ableism". 

Extracts are from:

Season 3 Episode 19

Season 2, Episode 12

Season 3, Episode 8

We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly.

You can leave a message with us in a number of ways:

 (Please note calls need to be limited to 90 seconds)

Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) .

Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. 

Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

To finish our mini series of 'world changers' we’ve tried to squeeze in as many as we can manage into a mix tape, to celebrate the people who’ve genuinely changed the world for us and our listeners!

We start the podcast with a tribute to Sarah’s Parents John and Liz Goldsmith, two people who have transformed the lives of disabled people, the families who love them and the professionals who support them. Simple Stuff Works - Our History

We also hear from:

We also hear from our listeners, who share their world changers, from teachers, to schools to Nina Tame.

Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here.

We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly.

You can leave a message with us in a number of ways:

 (Please note calls need to be limited to 90 seconds)

Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) .

Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. 

We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…  

Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

We’re thinking about the times of transition, from starting to use equipment or bringing carers into your home for the first time. Who and what helped us in the times where we need to think with both our heads and our hearts.

The trio share the things that have made those transitions easier*, and the impact that changes have on us both emotionally and practically.

We also cover consistent naming conventions for genitalia, how on earth you could ever predict when someone’s birthday might be (?!) and the general challenges and joys that life throws at us.

You can find Lucy’s Go Fund Me page for Brecon here.

*Rachel's tip - Uribags (available on prescription)

*Sarah’s video - Not Friends, Not Family - By Dave Hingsburger

Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here.

We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly.

You can leave a message with us in a number of ways:

 (Please note calls need to be limited to 90 seconds)

Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) .

Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. 

We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…  

Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

As a bonus episode, to coincide with Dying Matters Week we bring you an insightful conversation with Dr Tim Wright (GP), and Lucy (Paediatric Sister), members of Rachel’s family who both work in the local children’s hospice. This beautiful, tender and raw conversation has the reality of both sides of the bed. Providing care for families of children who have life-limiting conditions and at end of life, as well as loving someone with a life-limiting condition.

Dying Matters is a campaign run by the charity, Hospice UK. Hospice UK work with organisations, decision makers and the public to make things better for people who are dying or grieving. The hardest conversations are often the most important and here we talk about some of the jargon you might come across, having a take-away at a hospice and the ‘brutiful’ (beautiful and brutal) reality of fighting for a good death. The tech wasn’t to the standard we would typically aim for but the conversation was real and raw.

CONTENT WARNING

We realise that these will be tricky topics for some, so please be aware this episode will contain discussions around Death, Dying, End of Life Care and DNACPR.

You can find further support and help at: Hospice UK; and Together for Short Lives

Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here.

We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly.

You can leave a message with us in a number of ways:

 (Please note calls need to be limited to 90 seconds)

Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) .

Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. 

We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…  

Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

We’re going back to school - and thinking about those people who demonstrated innate humanity and kindness, and really ‘got’ our children.

Rachel and Sarah reflect on their experiences with school days, from those scary first days of school to college days. The need to trust, and build relationships with the many people who are involved in supporting disabled children in education settings.

In addition, Sarah is trying to exercise some self compassion, and Rachel has been creating waterfalls (quite literally) in her home…

Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here.

We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly.

You can leave a message with us in a number of ways:

 (Please note calls need to be limited to 90 seconds)

Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) .

Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. 

We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…  

Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

CONTENT WARNING - CONTAINS DISCUSSIONS RE: DIAGNOSIS/DIAGNOSES, CHILDHOOD CANCER AND TRAUMATIC BIRTHS.

Today we’re remembering diagnosis, and the people who made a difference, the people that genuinely changed our world when it got flipped upside down.

We reflect on the people who have helped us hear the news we don’t want to, as we continue to receive diagnoses, which never get easier to hear, no matter how ‘used to it’ we are.

Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here.

We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly.

You can leave a message with us in a number of ways:

 (Please note calls need to be limited to 90 seconds)

Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) .

Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. 

We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…  

Join Rachel, Sarah and Lucy as we celebrate those people who change the world, be it campaigning for the right to medical treatment, supporting other parents, breaking down barriers, or just making a nuisance of themselves to get the voices of disabled people heard.

On this week’s episode we open up by reflecting on some of the world changers we know*, and reflect on why and how this is different for the disability community.

Rachel is then joined by Hannah Deacon, whose dedication to campaigning for patients' rights succeeded when the law changed on 1 November 2018, which led to cannabis becoming legal as a medical treatment. Her successful campaign on behalf of son Alfie Dingley, who lives with a rare and severe form of epilepsy, led to his doctors receiving the first schedule one license to prescribe whole-plant cannabis in the UK.

You can find more about Hannah and her work at her website.

*As promised - Sarah’s World Changers:

The Trio also discuss Single Case Experimental Design which you can find more about here or by watching this video.

Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here.

We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly.

You can leave a message with us in a number of ways:

 (Please note calls need to be limited to 90 seconds)

Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) .

Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. 

We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…  

Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

Welcome to a TSWU Raincheck. While you wait for new content, here is a short extract from earlier episodes to tide you over.

This week the hot topic of Help. When someone says, How can I help? It can feel like another thing we need to do, give someone a job. But how can we as parent carers feel more at home taking help, and enable the people who want to help us give it.

Extracts are from:

Season 1 Episode 11; and

Season 2 Episode 15; 

We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly.

You can leave a message with us in a number of ways:

 (Please note calls need to be limited to 90 seconds)

Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) .

Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. 

Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.