Lupus Podcast – Lupus and Family
1. Explaining lupus to others
A network of friends and neighbours can give the same kind of valuable support as family members: lending a helping hand with chores and errands, offering a sympathetic ear or a comforting shoulder. But in order to give support, friends need to have some understanding of the nature of lupus.
· A good way to start to explain lupus is to make clear what lupus is not
· You can then talk about what lupus is
2. Ten things you must sure you to tell your friends about lupus
3. Develop A Speech to explain lupus
4. Make adjustments as a family
5. Take time for yourself
6. Find the support you need
Tools You can use to explain lupus top family and friends
· The Spoon Theory
https://youtu.be/PCm4FUpJ72M
· Lupus Basics Video
https://youtu.be/cGQG0bi806I
· Your Lupus Speech Worksheet
https://www.lupus.org/sites/default/files/public/Doc%20%20PDF/NRCL/Create_your_about_lupus_speech.pdf
· Lupus symptom images for fridge
https://images.app.goo.gl/BXb9wKGyfTM186WA9
https://images.app.goo.gl/X4wGjHbtHbKbZK3e9
https://images.app.goo.gl/dB5tL5MHRsaHtrvR9
https://images.app.goo.gl/h5CQQwBPTrr9G5hK6
Resources
https://www.lupus.org/resources/explaining-lupus-to-others
https://www.lupus.org/sites/default/files/public/Doc%20%20PDF/NRCL/Create_your_about_lupus_speech.pdf
https://www.lupus.org/resources/ten-things-to-tell-your-friends-about-lupus
https://www.lupus.org/resources/coping-with-lupus-guide