The Greta Eskridge Podcast

Trials, Grief, Faith and Hope: Parenting a Child with Special Needs with Sue Lee


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Episode 92 

What a thrill to have my friend Sue Lee back again. Last time we talked about Madam Lee’s French classes for home schoolers. And that was wonderful. You can listen to that episode right here. Today, though, we are talking about another part of Sue’s life and that is raising her son Marcus, who was diagnosed at 4 months with an extremely rare genetic disorder called Joubert syndrome. Joubert syndrome is characterized by a variety of neurological and developmental abnormalities. After diagnosis, the Lee family just had to wait and see how Marcus’s brain and body would be affected by this syndrome. 

 

Sue vulnerably shares her story in this episode. From the moment of Marcus’s diagnosis and the early years of sleepless nights and endless therapies, the Lee’s realized they had to cling to the truth that Jesus is better. Jesus is better than what we thought we’d have in this world, better than comfort or no suffering. And they have clung to that truth through the rest of Marcus’s life thus far. Through deciding to home school him and helping him follow his passion for music and now applying for college, they have clung to the truth that God is with them in this and He allows trial but He also provides grace to get through it. 

 

Sue doesn’t sugarcoat the hard, but she also doesn’t deny that God has been with them through every bit of this lifelong trial Marcus and the Lee family have walked through. 

Sue’s story, but especially her reminders to cling to  faith in God during times of suffering will be an encouragement to anyone walking through trial and especially the trail of raising kids with special needs. You are not alone in this. 

 

Resources mentioned in this episode: 

2 Corinthians 1:3-4 “Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, 4 who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.” 

Online Seminar update: Unfortunately my online seminar, Parenting in the Age of Pornography, had to be postponed due to problems with my website. I’ll be rescheduling for a Thursday evening in early December. I will keep you posted on the details here on the podcast, on Instagram and via my email newsletter. Make sure you are following along in those places so you don’t miss out! Thanks for being excited this resource. I promise it will be worth the wait! 

Women’s Walking Retreat in the Cotswolds: Our retreat is live and open for registration! You can get all the info right here

 

Where to find Sue 

Find Sue’s website here 

Find Sue’s French classes here 

Find the essay Sue wrote about this journey here 

Find Sue on Instagram here 

The Greta Eskridge Podcast is a part of the Christian Parenting Podcast Network. For more information visit www.ChristianParenting.org

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The Greta Eskridge PodcastBy Greta Eskridge & Christian Parenting

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