Two Disabled Dudes

Two Disabled Dudes

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Two Disabled Dudes episodes

  • 181 - Every Person Matters with Tom Hamilton

    Tom Hamilton is a changemaker in the FA and Rare Disease Communities.  He works tirelessly to promote treatment progress.  He is also a father and is constantly balancing between protection, and encouragement of his daughter Annie and all those in the FA community.  Listen as Tom shares his perspective on parenting, advocating, and working toward a treatment.

    52 min
  • 180 - The Not So Dark Side with Amy Grover
    Amy Grover has spent more than a decade in the rare disease space - cultivating her passion for helping others in the nonprofit world until recently. Now, Amy is using her expertise and heart of gold to bring patients and industry together in pursuit of better outcomes. As the newly appointed Senior Director of Patient Advocacy with Catalyst Pharmaceuticals, Amy is well-positioned to help meet the needs of patients while advancing treatments and services within the for-profit arena. Amy joins us for a casual conversation touching on the Niners vs. Rams, motherhood, and her work at Catalyst Pharmaceuticals.
    44 min
  • 179 - Keep Your Eye On The Ball

    Completing tasks is about focus.  If we take our eye off the ball, that's when we get off track.  Listen as the Dudes talk about how this principle applies in their life.

    Participate in Disability Book Week, April 23-29.

    35 min
  • 179 – Keep Your Eye On The Ball
    Completing tasks is about focus.  If we take our eye off the ball, that's when we get off track.  Listen as the Dudes talk about how this principle applies in their life.



    --



    Check out Disability Book Week, April 23-29.
    35 min
  • 178 - Man Turning Into Stone - Joe Sooch

    Joe Sooch points out that we only have one life to live so we better make the most of it.  He has a rare disease called Fibrodysplasia ossificans progressiva (FOP) - a genetic disorder that causes soft tissues to transform permanently into bone. 

    Joe uses a wheelchair and FOP has limited his physical abilities in many other ways.  However he is determined to make the most of the time he's been given.

    Find Joe Sooch on YouTube or Instagram.  

    Listen to Joe interview us on his podcast Two Mics, One Joe Sooch.

    47 min
  • 178 – Man Turning Into Stone – Joe Sooch
    Joe Sooch points out that we only have one life to live so we better make the most of it. He has a rare disease called Fibrodysplasia ossificans progressiva (FOP) - a genetic disorder that causes soft tissues to transform permanently into bone.

    Joe uses a wheelchair and FOP has limited his physical abilities in many other ways. However he is determined to make the most of the time he's been given.
    47 min
  • 177 - The only thing to fear is...

    Some fears are healthy and they keep us from getting hurt. Some fears are totally legit but they may keep us from enjoying the little things in life. Some fears are a little ridiculous and silly.

    44 min
  • 177 – The only thing to fear is…
    Some fears are healthy and they keep us from getting hurt. Some fears are totally legit but they may keep us from enjoying the little things in life. Some fears are a little ridiculous and silly.








    https://youtu.be/_7vML9C3PZk
    44 min
  • 176 - Rare Disease Symptoms - The Devil You Know

    Promising treatments for many rare diseases are on the horizon.  As they start to become a reality, it's important for us to adjust our expectations of what symptoms could potentially be relieved.  

    Listen as the dudes discuss their symptoms and show appreciation for friends and family who are deeply committed to traveling this rare disease journey.

    27 min
  • 176 – Rare Disease Symptoms – The Devil You Know
    Promising treatments for many rare diseases are on the horizon.  As they start to become a reality, it's important for us to adjust our expectations of what symptoms could potentially be relieved.  







    Listen as the dudes discuss their symptoms and show appreciation for friends and family who are deeply committed to traveling this rare disease journey.
    27 min

About Two Disabled Dudes

From the publisher's feed

The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast.

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