Two Disabled Dudes

In this episode, we are not interviewing a circus act, like Kyle thought. After an update from Sean on how the first hike to conquer the 14 tallest mountains in California went (more info here), we are excited to interview two guests representing the organization Miracle Flights.

We talk to Mark Brown, CEO, who tells us about Miracle Flights and the 700 monthly flights it facilitates for families. For 33 years now, their service has provided children facing any sort of illness, the resources to fly for the purpose of medical help, when necessary. Sometimes, the doctor they need to visit is far away, and neither the child nor their families have the means to get there. Miracle Flights exists to help in these situations. Although there are general eligibility requirements, Mark tells us they understand extenuating circumstances and do everything they can to help folks on a case-by-case basis when possible. Mark encourages everyone to explore their service by submitting an application online or simply calling 800-359-1711 to discuss eligibility.

 

Our other guest, Levi Krystosek, is known as @GoLittleLevi on Instagram. As we discovered, this twelve-year-old has the biggest personality ever! His zest and love for life are contagious. He was born with a rare form of dwarfism, Jansen's Metaphyseal Chondrodysplasia and was the patient traveling with Miracle Flights as they hit their 100,000 miles donated! Levi steals the show with his bright personality, and may be Sean's new co-host from now on. (#TeamSean #KyleWho?)

 

To join Mark & Levi at their annual golf social and fundraiser in Las Vegas on September 27, 2018, Swings For Wings, please click here for more info.

Luke Rosen is a former actor, founder of KIF1A.org, and 2018 Rare Champion of Hope Honoree, who talks to us about the “We Need a Mouse” campaign.

Barry Rice is a past recipient of the Ataxian Athlete Initiative and the founder of Cycle Ataxia, a bike ride fundraiser in Ireland benefiting Friedreich's ataxia (FA). Barry joins us from his home in Ireland, where he lives with his wife and two daughters.

No guests this week; just us two dudes, and we want to get some things off of our chest.

Shira Strongin lives with multiple rare diseases, She is the founder of Sick Chicks, a support network of strong chronically ill and disabled young women who choose to make a positive difference in the world.