Two Disabled Dudes

By The DudesBusiness Education Self-Improvement Non-Profit

Two Disabled Dudes episodes

April 09, 2018 039 – How to Ward Off Decrepitude with Aimee Lyons
Today we are happy to bring to you a conversation we had with Aimee Lyons, Kyle’s Crossfit coach and the owner of CrossFit King of Prussia, Pennsylvania. Aimee talks to us about the importance of functional fitness - a fitness program designed to enhance our ability. This is the root of her goal as a physical trainer, and it’s essential to those of us with physical disabilities. Maintaining our functionality is key to us living longer and healthier lives - as is the case for everyone!
46 min
April 09, 2018 How to Ward Off Decrepitude
Aimee Lyons of CrossFit KOP
46 min
March 26, 2018 038 – Overcoming Invisible Circumstances with Ilana Jacqueline
We are excited to talk to Ilana Jacqueline - chronic disease patient, advocate and author of the new book Surviving and Thriving with an Invisible Chronic Illness.

Living with invisible chronic conditions can be frustrating and overwhelming - you often have to explain “why” in the face of skepticism and doubt - and that’s in addition to managing your symptoms, treatments and therapies.

Ilana has two autoimmune diagnoses- PIDD and autonomia. If you are unfamiliar with what those are, you are not alone. As she share in this episode, a greatly beneficial action for her is to keep a binder on her at all times, one with the basic requirements she needs, that may not be obvious from looking at her, but may wind up saving her life.

Because after all, she is the expert on living within her body, not the medical professionals.

Another topic she discusses with us is the subject of dating. When do you tell your dating partner that you have a disability?

Ilana hopes that her book is not seen as a depressing story of enduring disability, but a hopeful and humorous take on the subject. And based on our conversation with her, we believe it is!

Check out her book Surviving and Thriving with an Invisible Illness at Amazon or at chronicillnesssurvivor.com and check out more of her writing at Let’s Feel Better blog.

A couple other resources Ilana mentioned:

TV Show: Behind the Mystery of Rare and Genetic Diseases

FDNA Genomics Collaborative: http://www.genomicscollaborative.com/

Invisible Disability Association: https://invisibledisabilities.org/

Ilana's social media:

Instagram: https://www.instagram.com/ilana_jacqueline/

Twitter: https://twitter.com/IlanaJacqueline

Facebook: https://www.facebook.com/LetsFeelBetter/

56 min
March 21, 2018 038 - Ilana Jacqueline
Surviving & Thriving with an Invisible Chronic Illness.
56 min
March 12, 2018 037 – Rare Disease Week On Capitol Hill & The Ataxian
A panel discussion of FARA and the film The Ataxian at Rare Disease Week on Capitol Hill 2018.
1 hr 1 min
March 12, 2018 037 - RDW Panel For The Ataxian
Q & A sessions following a screening of The Ataxian at RDW in Washington, DC.
1 hr 1 min
February 26, 2018 036 – Patient Advocacy – Live at Reata Pharmaceuticals
We are proud to present the second half of our interviews at Reata Pharmaceuticals, this time with Kara Eichelkraut, who is responsible for Patient Advocacy at Reata Pharmaceuticals.
41 min
February 21, 2018 036 Patient engagement live at Reata
With Kara Eichelkraut
41 min
February 12, 2018 035 – Drug Development – LIVE at Reata Pharmaceuticals
We’re excited to bring you the first of two episodes about the drug development process we recorded LIVE at Reata Pharmaceuticals headquarters in Irving, TX. In this episode, we talk to Warren Huff, the founder and CEO, and Dr. Collin Meyer, Chief Medical Officer.
47 min
February 06, 2018 LIVE at Reata Pharmaceuticals
A brief summary of this episode
47 min

About Two Disabled Dudes

From the publisher's feed

The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast.