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“It’s a wonderful life; it’s just a different life.”
We interview Paul Avery, CEO of World of Beer; former COO of the parent company of Outback Steakhouse, father of two daughters diagnosed with FA; and a member of the board of directors at FARA.
The transition from being in the business of running successful restaurants to becoming forefront in the research and treatment of a rare disease was a sudden and unexpected change: but not a shift Paul hesitated to make. For him, his love for and concern of the well-being of his daughters, diagnosed with FA, made his decision to join the research and development of a treatment of FA a natural fit.
And in Paul’s willingness lies a lesson for all of us. We ourselves may not have a background in medicine, biology, or genetics. We may get overwhelmed at becoming part of whatever team is calling to us.
Paul was able to use his economic and negotiating skills to become a powerful voice in FARA. Not to mention the unbelievable benefits Outback Steakhouse and other companies under his authority have provided at FARA events.
What is your calling in life? Could the fact that your background seems unrelated to that be not a weakness, but a strength?
We want to thank Paul Avery for reminding us that strength and accomplish comes from everyone bringing their diverse skills to the table.
This Episode features Kyle & Sean facilitating a panel of three others living with FA, Kate (14), Michael (17) and Jean (54). This live recording took place in Tampa, Florida in September 2017, leading up to the FARA Energy Ball.
In this episode, we get back to the basics. No guest, just the 2 Dudes hanging out and talking about a topic very important to us: self-discipline.
Living with a disability is often frustrating. Maybe that’s an understatement. When so many normal daily activities are impossible, or at least difficult, to do independently, we are tempted to develop a victim’s mindset.
But that’s not who we are, and that’s not who you are. The key to unlocking your own greatness is self-discipline.
Sean has a great way of visualizing self-discipline. He imagines that our ideal self asks us if doing whatever we are doing at the moment, helps us advance to where we want to be. An example he uses is if we want to look great for the summer, will eating whatever we’re going to eat or skipping the next workout or going to the gym right now help us get there?
Kyle talks about a great book he recently read called Living with a SEAL. In it, an ordinary man trains with a Navy SEAL for a month, after seeing the SEAL compete in an ultra-marathon. In the harsh cold of winter, the book details the grueling training sessions, mixed in with a lot of laughs. The book serves as a perfect example of what it looks like to behave according to self-discipline.
There are many areas that both of us want to be better in - so as we get close to the one-year anniversary, we invite you to join us in trying to better ourselves!
Self-discipline is all about making your future self proud of the actions you are taking now. So, no time for excuses. Be the best version of yourself right now!
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