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Two Disabled Dudes
Two Disabled Dudes episodes
- 024 – Rare Disease Parent Perspective with Tom HamiltonTom Hamilton spent 25 years on Wall Street and when his daughter was diagnosed with Friedreich's ataxia (FA), he started using all his knowledge and expertise to fight Rare Disease. Tom is on the Board of Directors for the Friedreich's Ataxia Research Alliance (FARA), he is a founding Board Member for Chondrial Therapeutics, he is Executive Producer of The Ataxian, and co-founder of the CureFA Foundation.51 min
- 024 - The Parent Perspective with Tom Hamilton
Tom Hamilton spent 25 years on Wall Street and when his daughter was diagnosed with Friedreich's ataxia (FA), he started using all his knowledge and expertise to fight Rare Disease. Tom is on the Board of Directors for the Friedreich's Ataxia Research Alliance (FARA), he is a founding Board Member for Chondrial Therapeutics, he is Executive Producer of The Ataxian, and co-founder of the CureFA Foundation.
51 min - 49 min
- 023 – How The Challenged Athletes Foundation is Changing LivesOne of the ways we manage life with a disability is to stay as active as we can. But staying active when you have a disability looks a lot different than it does for able-bodied people. Whether traveling to an accessible location, finding equipment that we can use, or locating a coach ready and able to help us stay active - it becomes more complicated with a disability.We hope to encourage any of our listeners with disabilities to apply for a grant through CAF. Both Sean and Kyle can attest to the unbelievable medicine that is staying active, despite disability. Do not let the word “Athlete” in the organization’s title intimidate you. Their grants are for people at all levels of activity- whether you are looking for an adaptive machine or a gym membership for the first time or whether you are a trained Paralympic athlete.49 min
- 48 min
- 022 – The Psychology of Disability with Dr. Dan GottliebDan Gottlieb is a practicing psychologist and therapist with more than 40 years of experience. Best known as the host of "Voices in the Family," a weekly radio program heard for more than 30 years on WHYY-FM, Philadelphia’s NPR affiliate. Dan recently retired from the weekly radio program, and now produces and hosts six specials each year.35 min
- 023 - The Psychology of Disability with Dr. Dan Gotlieb
Dan Gottlieb is a practicing psychologist and therapist with more than 40 years of experience. Best known as the host of "Voices in the Family," a weekly radio program heard for more than 30 years on WHYY-FM, Philadelphia’s NPR affiliate. Dan recently retired from the weekly radio program, and now produces and hosts six specials each year.
Dr. Gotlieb suffered a spinal cord injury at the age of 33 and he joins us to talk about how disability has touched his life and how we can all work to be better human beings.
35 min - 021 – rideATAXIA Europe, Le Peloton de l’EspoirrideATAXIA Europe - Le Peloton de l'Espoir was a 450 mile ride from Strasbourg, France to Lyon, France during July 1-8, 2017. There were 20 riders from the US and 30 riders from France. The purpose of the ride was to bring together the French and US FA communities as one united FA community, moving to the finish line together. Join us as Sean "interviews" Kyle about the ride.42 min
- 021 - rideATAXIA Europe, Le Peloton de l'Espoir
rideATAXIA Europe - Le Peloton de l'Espoir was a 450 mile ride from Strasbourg, France to Lyon, France during July 1-8, 2017. There were 20 riders from the US and 30 riders from France. The purpose of the ride was to bring together the French and US FA communities as one united FA community, moving to the finish line together. Join us as Sean "interviews" Kyle about the ride.
42 min - 020 – LIVE at Horizon PharmaJoin us for a discussion about patient engagement in rare diseases with Horizon Pharma. This is our first recording in front of a live audience!40 min
About Two Disabled Dudes
From the publisher's feed
The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast.
Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM). Their RAAM journey is the subject of an award winning documentary called The Ataxian. Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch.
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