Two Disabled Dudes

By The DudesBusiness Education Self-Improvement Non-Profit

Two Disabled Dudes episodes

February 15, 2017 006 – Nicole Boice, CEO Global Genes
The knowledge and diagnosis of a rare disease can be a frightening time in anyone’s life. However, through education and through connecting to others, support - and hope - is abundant.

“When I started looking at the stats and facts about Rare Disease...that was my catalyst to say, ‘This is the largest disease community on the planet, more than all cancers and AIDS combined, 30 million people here in the US, 350 million people worldwide.’ My big question marks were, ‘Why in the heck isn’t anyone talking about it? Why aren’t we hearing about it in mainstream media? Why aren’t there more resources available for these families?'” - Nicole Boice.
47 min
February 13, 2017 005 – Rare Disease Day Special Guests
In the rare disease community, strength is in unity and supporting one another.

February 28th is globally recognized as Rare Disease Day.

In this episode we talk about what is meant by “rare diseases” and how rare they really are.

This episode contains snippets of three interviews that will be released in their entirety later in the month. Nicole Boice, the CEO of Global Genes, speaks about the importance of knowledge in the rare disease community; only by knowing all we can about whatever disorder we may face can we successfully move forward. In the second snippet, Max Bronstein of the Everylife Foundation for Rare Diseases reminds us of the importance of policy issues when seeking treatments for rare diseases. Finally Paul Melmeyer from the National Organization of Rare Disorders (NORD) emphasizes the benefits of recognizing Rare Disease Day, and what that has done for the rare disease community overall.
23 min
February 13, 2017 005 - Focus on Rare Disease Day with Special Guests: Nicole Boice, Max Bronstein, and Paul Melmeyer
In the rare disease community, strength is in unity and supporting one another.

February 28th is globally recognized as Rare Disease Day. Since Friedreich’s ataxia, the disease shared by us Dudes, is considered a rare disease, five episodes will come out in February, instead of one episode every other week, as normal. We explain what is meant by “rare diseases” and how rare they really are. This episode contains snippets of three interviews that will be released in their entirety later in the month. Nicole Boice, the CEO of Global Genes, speaks about the importance of knowledge in the rare disease community; only by knowing all we can about whatever disorder we may face can we successfully move forward. In the second snippet, Max Bronstein of the Everylife Foundation for Rare Diseases reminds us of the importance of policy issues when seeking treatments for rare diseases. Finally Paul Melmeyer from the National Organization of Rare Disorders (NORD) emphasizes the benefits of recognizing Rare Disease Day, and what that has done for the rare disease community overall. On February 27, the day before Rare Disease Day, our interview with Ron Bartek, the president and cofounder of the Friedreich’s Ataxia Research Alliance, will be released. The Two Disabled Dudes invite you to help us spread awareness this month.
23 min
January 30, 2017 004 – Travel Gone Wild – How to conquer anxiety during travel with a disability.
There is a lot of anxiety that comes along with travel, especially when also factoring a disability into the situation. There a few important things that help us battle that anxiety including a strong game plan informed by the experiences of others, and the emotional flexibility to roll with challenges and continue to move forward. In this episode, Kyle and Sean share insights from listener feedback and personal stories of their travels.
49 min
January 30, 2017 004 – Travel Gone Wild – How to conquer apprehension during travel with a disability.
There is a lot of apprehension that comes along with travel, especially when also factoring a disability into the situation. There a few important things that help us battle that apprehension including a strong game plan informed by the experiences of others, and the emotional flexibility to roll with challenges and continue to move forward. In this episode, Kyle and Sean share insights from listener feedback and personal stories of their travels.
49 min
January 16, 2017 003 – Travel and Mobility
Travel is freedom. On the surface disability seems to limit that freedom. But it’s not limited, just different. However you need the right mindset to overcome obstacles. Join us as we share a conversation about what informs our approach to travel.
59 min
January 16, 2017 003 - Travel and Mobility
Travel is freedom. On the surface disability seems to limit that freedom. But it’s not limited, just different. But you need the right mindset to overcome obstacles. Join us as we share a conversation about what informs our approach to travel.
59 min
January 02, 2017 002 – Self Image
What is self image and why is it important? Join us as we discuss self image and things we can think about to help promote a healthy one.
45 min
January 02, 2017 002 - Self Image
What is self image and why is it important? Join us as we discuss self image and things we can think about to help promote a healthy one.
45 min
December 19, 2016 001 – Life Is About How We React
Life happens and many things are out of our control. What is in our control is how we react to those situations. Our reactions often define the outcome of a situation - good, bad, and anywhere in between. In this episode we talk about our reactions to challenging circumstances. We also give a few examples of people that have had a positive and productive reaction to challenging circumstances.
53 min

About Two Disabled Dudes

From the publisher's feed

The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast.