Upfront About Breast Cancer

Episode 10: The Inevitable: Death, Dying and Mortality 

We recommend that listeners exercise self-care when listening to this podcast, as some may find the content upsetting. BCNA’s Helpline provides a free confidential telephone and email service for people diagnosed with breast cancer, their family and friends. Our experienced team can help with your questions and concerns and direct you to relevant resources and services. Call 1800 500 258 or email [email protected] 

*Please note that this episode is an unscripted conversation and does not reflect the full spectrum of experience of end-of-life. It is suggested that you exercise self-care when listening and for more information on personal circumstances seek the guidance of your medical professional. 

Let’s be upfront about death, dying and mortality. 

End of life is something people often don’t want to speak or think about, usually because of the uncertainty that surrounds the death and dying experience and the fear of not being here, however, having the tough conversations early can really help to support you and your loved ones. 

In this episode, Charlotte speaks frankly about the process of dying, common thoughts and feelings about death, and mortality vulnerabilities, and why confronting some of this can be helpful. 

This podcast was recorded in February 2023 

RESOURCES: 

• Sign up to My Journey and access a range of resources  
• Visit our Online Network to connect with people going through a similar experience 
• Charlotte Tottman’s end of life preferences discussion prompts. 

Upfront About Breast Cancer is a production of Breast Cancer Network Australia. Our theme music is by the late Tara Simmons and this episode is proudly brought to you by Sussan. 

Produced by Dr Charlotte Tottman and BCNA. 

Engineered and edited by Jane Nield at SEN Studios. 

Want to get in touch? Visit our website at www.bcna.org.au, email us at [email protected], or call our Helpline on 1800 500 258 

We recommend that listeners exercise self-care when listening to this podcast, as some may find the content upsetting. BCNA’s Helpline provides a free confidential telephone and email service for people diagnosed with breast cancer, their family and friends. Our experienced team can help with your questions and concerns and direct you to relevant resources and services. Call 1800 500 258 or email [email protected] 

Welcome to the end of What You Don’t Know Until You Do: Unlimited with Dr Charlotte Tottman. 

In this wrap up, Charlotte and Kellie reflect on season 2, share some of their highlights and take the opportunity to thank the people that made this podcast possible. 

Charlotte discusses how privileged she feels to be able to work with BCNA on this podcast and share her story to help others. Thank you for listening. 

This podcast was recorded in February 2023 

RESOURCES: 

• Sign up to My Journey and access a range of resources  
• Visit our Online Network to connect with people going through a similar experience 

Upfront About Breast Cancer is a production of Breast Cancer Network Australia. Our theme music is by the late Tara Simmons and this episode is proudly brought to you by Sussan. 

Produced by Dr Charlotte Tottman and BCNA. 

Engineered and edited by Jane Nield at SEN Studios. 

Want to get in touch? Visit our website at www.bcna.org.au, email us at [email protected], or call our Helpline on 1800 500 258 

We recommend that listeners exercise self-care when listening to this podcast, as some may find the content upsetting.

Let’s be Upfront about men who are diagnosed with breast cancer. Breast cancer is often thought as a disease that only affects women, however, in Australia in 2022 it is predicted that 212 men will be diagnosed. As this diagnosis is less common, men who are diagnosed with breast cancer often feel a range of emotions, including feeling isolated and alone and being unsure who they can speak to or what to do next.

Joining us for this In Conversation episode are Harry and Pieter.

Harry was diagnosed with early breast cancer in 2005 and had chemotherapy, after which he was cancer-free. In 2018, at a routine appointment with his GP, he had a series of blood tests, and his cancer was found to have returned. Harry was diagnosed with metastatic breast cancer at that time.

Pieter was diagnosed with triple-positive grade 3 breast cancer, which had spread to a sentinel lymph node, in 2021. He underwent a mastectomy and axillary node clearance and then started four rounds of chemotherapy. Pieter lost his wife to breast cancer in 2017.

During this candid conversation between Harry and Pieter we’ll hear their stories, their initial reaction to their diagnosis, the biggest challenges they face, who they went to for support and why they want to help spread awareness of the disease for other men. 

This podcast was recorded in May 2022.

RESOURCES:

- Sign up to My Journey and access a range of resources for men diagnosed with breast cancer

- Visit our Online Network to connect with other men going through a similar experience

Upfront About Breast Cancer is a production of Breast Cancer Network Australia. Our theme music is by the late Tara Simmons.

If this episode helped you or someone you know, you can support the show in the following ways to allow us to continue to be upfront with you and reach more people through meaningful content. Subscribe to ensure you never miss an episode, download so you always have an episode ready to listen to, leave a rating and review and tell us what you liked about the episode. 

Want to get in touch? Visit our website at bcna.org.au, email us at [email protected], or call our Helpline on 1800 500 258

 We recommend that listeners exercise self-care when listening to this podcast, as some may find the content upsetting.

Let’s be Upfront about working after breast cancer and tackling the difficult conversations you may need to have with your employer. Some people feel comfortable discussing their diagnosis and treatment, and find that their employer is understanding, supportive and compassionate, allowing them to focus on their health and recovery. Others, however, may find negotiating changes and voicing challenges with their employer difficult, making an already hard situation worse.

Joining us for this episode of Upfront are Greg Smith and Lisa Edgar. Greg has more than 20 years’ experience in executive coaching, mentoring and human resources consulting and has successfully led major organisational change programs in large organisations. Lisa is a BCNA member and had been working as an HR manager for three years when she was diagnosed with breast cancer in 2012 and stopped work to focus on her recovery. Unfortunately, Lisa did not receive the support she needed from her employer.

We hear about how best to approach your employer to discuss your diagnosis and treatment and the impact it may have on your ability to work, what support you should expect from your workplace, challenges you may face when working after a diagnosis and what you can do if your employer is not supportive of you. 

This podcast was recorded in June 2022.

RESOURCES:

·       Sign up to My Journey to access a range of resources on work and breast cancer

·       Visit the Work and Breast Cancer hub on BCNA’s website

·       Learn about BCNA’s Workplace Giving program

·       Visit our Online Network to connect with people going through a similar experience

Upfront About Breast Cancer is a production of Breast Cancer Network Australia. Our theme music is by the late Tara Simmons, and this episode is proudly brought to you by Sussan.

If this episode helped you or someone you know, you can support the show in the following ways to allow us to continue to be upfront with you and reach more people through meaningful content. Subscribe to ensure you never miss an episode, download so you always have an episode ready to listen to, leave a rating and review and tell us what you liked about the episode. 

Want to get in touch? Visit our website at bcna.org.au, email us at [email protected], or call our Helpline on 1800 500 258

We recommend that listeners exercise self-care when listening to this podcast, as some may find the content upsetting.

Let’s be Upfront about living in a rural area following a breast cancer diagnosis. For people living in rural areas there can be additional stress and challenges, which may include limited, or no, local cancer treatment centres, having to travel long distances for treatment and the resulting financial impact, and having to leave family at home while you are away for treatment.

Joining us for this In Conversation episode are Tania and Fiona.

Tania was diagnosed with breast cancer in 2005 when she was 32 and living in a rural community 100kms from Adelaide. After her diagnosis she had to travel to Adelaide for tests, surgery, chemotherapy and radiotherapy.

Fiona was diagnosed with breast cancer in 2021 and lives on a farm in southwest Victoria. She had a mastectomy, four and half months of chemotherapy, radiotherapy and has recently commenced hormone blocking medication.

During this candid conversation between Tania and Fiona we hear their stories, the challenges they faced, how they coped with the hardship of travelling for treatment and the financial impact, where they found support and the advice they have for those diagnosed with breast cancer living in a rural area.

This podcast was recorded in April 2022.

RESOURCES:

• Sign up to My Journey and for a range of resources on living in a rural or regional area with breast cancer including Breast cancer information for people in rural areas, Questions to ask if you live in a remote or rural area and Financial support for people with breast cancer in rural and remote areas
• Cancer Australia Women in rural areas
• Visit our Online Network to connect with people going through a similar experience

Upfront About Breast Cancer is a production of Breast Cancer Network Australia. Our theme music is by the late Tara Simmons, and this episode is proudly brought to you by Sussan.

This episode was engineered and edited by Jane Nield at SEN Studios.

If this episode helped you or someone you know, you can support the show in the following ways to allow us to continue to be upfront with you and reach more people through meaningful content. Subscribe to ensure you never miss an episode, download so you always have an episode ready to listen to, leave a rating and review and tell us what you liked about the episode and complete the survey that you’ll find in the show notes. This survey will help us to tailor and create content that is relevant to our members and their breast cancer diagnosis.  

Want to get in touch? Visit our website at bcna.org.au, email us at [email protected], or call our Helpline on 1800 500 258

We recommend that listeners exercise self-care when listening to this podcast, as some may find the content upsetting.

Let’s be Upfront about living with metastatic breast cancer. Metastatic breast cancer is breast cancer that has spread beyond the breast to other parts of the body. It is an incurable disease, requiring lifelong treatment. Currently, there are advances being made in treatment, which means some people are living for many years. 

Joining us for this In Conversation episode are Kala and Emily.

Kala was diagnosed with stage 4 de novo metastatic breast cancer in her spine and liver in 2018. Following her treatment, she received a complete response. However, in 2019, Kala developed brain metastases and sadly she died in June 2022. She recorded this podcast for us in the hope that it would support other people living with metastatic disease

Emily was diagnosed with early breast cancer in 2019. She underwent treatment and surgery and was in remission. In 2021, after feeling something wasn’t right, Emily had scans which showed that the breast cancer had spread to her pelvic bone and liver. Emily has since undergone further treatment and surgery.

During this candid conversation between Kala and Emily we’ll hear their stories, biggest challenges, how they coped with their diagnosis, what resources they found helpful, how they have adjusted to lifelong treatment, the financial impact and the advice they have for those diagnosed with metastatic breast cancer.

This podcast was recorded in April 2022.

RESOURCES:

• Sign up to My Journey and access a range of resources on metastatic breast cancer including living life with metastatic breast cancer
• Cancer Australia Metastatic Breast Cancer
• Visit our Online Network to connect with people going through a similar experience

Upfront About Breast Cancer is a production of Breast Cancer Network Australia. Our theme music is by the late Tara Simmons, and this episode is proudly brought to you by Sussan.

This episode was engineered and edited by Jane Nield at SEN Studios.

If this episode helped you or someone you know, you can support the show in the following ways to allow us to continue to be upfront with you and reach more people through meaningful content. Subscribe to ensure you never miss an episode, download so you always have an episode ready to listen to, leave a rating and review and tell us what you liked about the episode and complete the survey that you’ll find in the show notes. This survey will help us to tailor and create content that is relevant to our members and their breast cancer diagnosis.  

Want to get in touch? Visit our website at bcna.org.au, email us at [email protected], or call our Helpline on 1800 500 258

We recommend that listeners exercise self-care when listening to this podcast, as some may find the content upsetting.

Let’s be upfront about LGBTIQ+ communities that are affected by breast cancer. We know that cancer doesn’t discriminate and depending on who you are, and how you identify, your experience can be different.

Joining us for this episode is Mel Krollig and her partner Riki Owens-Bennett.

Mel was diagnosed with breast cancer in 2016 at the age of 36 and has had fertility treatment, a single mastectomy, chemotherapy, and radiotherapy. Riki works as a community worker for the LGBTIQ+ communities in South Australia and has been by Mel’s side during her breast cancer journey. Riki and Mel have been together for 19 years, and despite a few COVID-19 related delays, married in 2021 in a celebration surrounded by family and friends.

We’ll hear about Mel’s experience of breast cancer, how Riki supported her, the challenges the couple faced together and how they navigated the system as a LGBTIQ+ couple.

This podcast was recorded in August 2021.

RESOURCES:

• Sign up to My Journey and access a range of resources on LGBTIQ+ couples
• Visit our Online Network to connect with people going through a similar experience
• Cancer Connect – 131 120
• National LGBTIQ+ Health Alliance – (02) 8568 1123
• Switchboard Victoria – 1800 184 527
• Living Proud – 1800 184 527
• QLife – 1900 184 527

Upfront About Breast Cancer is a production of Breast Cancer Network Australia. Our theme music is by the late Tara Simmons, and this episode is proudly brought to you by Cancer Australia.

If this episode helped you or someone you know, you can support the show in the following ways to allow us to continue to be upfront with you and reach more people through meaningful content. Subscribe to ensure you never miss an episode, download so you always have an episode ready to listen to, leave a rating and review and tell us what you liked about the episode and complete the survey that you’ll find in the show notes. This survey will help us to tailor and create content that is relevant to our members and their breast cancer diagnosis. 

Want to get in touch? Visit our website at bcna.org.au, email us at [email protected], or call our Helpline on 1800 500 258

We recommend that listeners exercise self-care when listening to this podcast, as some may find the content upsetting.

Let’s be Upfront about the extra challenges and different needs of LGBTIQ+ people when diagnosed with breast cancer. LGBTIQ+ communities have unique requirements and additional concerns and anxiety when dealing with a breast cancer diagnosis, including whether to disclose their sexuality to their medical team, whether they will be able to find the support they need, and anxiety surrounding discrimination and their treatment being negatively impacted.

Joining us for this episode of Upfront is Jane Ussher and Natalie Halse. Jane is a Professor of Women’s Health Psychology in the Translations Health Research Institute at Western Sydney University and is the lead researcher in the recent ‘Out with Cancer’ Study. Natalie is a registered nurse and a BCNA consumer representative with lived breast cancer experience of a LGBTIQ+ person.

We hear about some of the key findings of the ‘Out with Cancer’ study and its key learnings, discuss disclosure including how to do it safely, the positive benefits, and why some people are reluctant and also discover what to do if you experience a negative reaction from a health care professional and the support available.

This podcast was recorded in January 2022.

RESOURCES:

· Sign up to My Journey and access a range of resources on for LGBTIQ+ communities

· Visit and join our LGBTIQ+ Online Network to connect with people going through a similar experience

· Cancer Connect – 131 120

· National LGBTIQ+ Health Alliance – (02) 8568 1123

· Switchboard Victoria – 1800 184 527

· Living Proud – 1800 184 527

· QLife – 1800 184 527

· Acon – 1800 063 060

Upfront About Breast Cancer is a production of Breast Cancer Network Australia. Our theme music is by the late Tara Simmons, and this episode is proudly brought to you by Cancer Australia.

If this episode helped you or someone you know, you can support the show in the following ways to allow us to continue to be upfront with you and reach more people through meaningful content. Subscribe to ensure you never miss an episode, download so you always have an episode ready to listen to, leave a rating and review and tell us what you liked about the episode and complete the survey that you’ll find in the show notes. This survey will help us to tailor and create content that is relevant to our members and their breast cancer diagnosis.  

Want to get in touch? Visit our website at bcna.org.au, email us at [email protected], or call our Helpline on 1800 500 258

We recommend that listeners exercise self-care when listening to this podcast, as some may find the content upsetting.

Let’s be Upfront about being a young woman and experiencing a breast cancer diagnosis. Breast cancer is the most diagnosed cancer in young women in Australia and it’s estimated nearly 1,000 young women will be diagnosed each year, meaning 3 women under 40 years old will be diagnosed every day.

Young women with breast cancer face a unique set of practical, physical and emotional challenges including premature menopause, sexuality and fertility issues, caring for young children, financial and career issues.

Joining us for this In Conversation episode is Shananne and Kate. Kate was diagnosed with stage 3 triple negative breast cancer when she was 26 years old and 28 weeks pregnant. Shananne was diagnosed with hormone receptor positive breast cancer in 2018 when she was 37 years old and pregnant with her third child.

During this candid conversation between Shananne and Kate we’ll hear about their reaction on being told they had breast cancer, the treatment they received, the challenges they faced and continue to face, coping strategies they used and advice they have for other young women.

This podcast was recorded in February 2022.

RESOURCES:

• Sign up to My Journey and access a range of resources on for young women and breast cancer including Early breast cancer information for young women
• Cancer Australia Let’s talk about breast cancer in young women
• Visit our Online Network to connect with people going through a similar experience

Upfront About Breast Cancer is a production of Breast Cancer Network Australia. Our theme music is by the late Tara Simmons, and this episode is proudly brought to you by Sussan.

This episode was engineered and edited by Jane Nield at SEN Studios.

If this episode helped you or someone you know, you can support the show in the following ways to allow us to continue to be upfront with you and reach more people through meaningful content. Subscribe to ensure you never miss an episode, download so you always have an episode ready to listen to, leave a rating and review and tell us what you liked about the episode and complete the survey that you’ll find in the show notes. This survey will help us to tailor and create content that is relevant to our members and their breast cancer diagnosis.  

Want to get in touch? Visit our website at bcna.org.au, email us at [email protected], or call our Helpline on 1800 500 258

We recommend that listeners exercise self-care when listening to this podcast, as some may find the content upsetting.

Let’s be upfront about the side effects of hormone-blocking therapies for the treatment of hormone receptor positive breast cancer.

About 70% of breast cancers are hormone receptor positive, meaning that the breast cancer cells use these hormones to grow.

Hormone-blocking therapy is usually prescribed as part of the treatment as works by lowering the amount of oestrogen in the body or blocking the oestrogen receptors on the cancer cells, depriving them of the hormones they need to grow, with the aim of reducing the risk of breast cancer coming back, or new breast cancer developing.

In this episode we’re joined by Debbie Packham who was diagnosed with early breast cancer in 2016 and 4 weeks later was diagnosed with oligometastatic breast cancer and has been on hormone-blocking therapy for 4 years, Ro Woods who was diagnosed with breast cancer in 2020 and has been on hormone-blocking therapy for 5 months and Lisa Sheeran who has worked with breast cancer patients for over 21 years and has been a breast care nurse for 9 years.

We’ll hear about the different types of hormone-blocking therapies, the common side effects and impacts on quality of life, the key benefits, effective strategies and the support available to help you manage your treatment.

Resources:

·       Sign up to My Journey and access a range of resources on hormone-blocking therapy for early breast cancer and managing the impacts of hormone-blocking therapy for the long term

·       Visit our Online Network to connect with people going through a similar experience

·       Watch our hormone-blocking therapy webcast

To help us continue to develop podcasts that are relevant to our members and their breast cancer diagnosis, we ask for your feedback via our online survey.

Upfront About Breast Cancer is a production of Breast Cancer Network Australia. Our theme music is by the late Tara Simmons, and this episode is proudly brought to you by Dry July.

Want to get in touch? Visit our website at bcna.org.au, email us at [email protected], or call our Helpline on 1800 500 258