Breast Cancer Conversations

Love the episode? Send us a text!

Katrece's journey began in her late 30s, a time when many women may not consider themselves at risk for breast cancer. With no known family history of the disease, she was caught off guard when she noticed a physical change in her body—one breast appeared larger than the other. This seemingly benign observation led her to seek medical attention, a decision that would prove to be pivotal in her healthcare journey. The initial visit to her family doctor, although met with some skepticism regarding the urgency of her symptoms, highlighted the importance of being proactive. Despite not feeling a lump during a self-exam, Katrece’s instincts pushed her to pursue further evaluation, demonstrating that awareness and self-advocacy are crucial components of health management.

You can listen to Katrece's full story with IBC in episode 242. Today we go beyond diagnosis and treatment to survivorship! Katrece shares her story 11+ years from that initial call informing her she had breast cancer. Today she is living with no evidence of disease!

SURVIVINGBREASTCANCER.ORG

Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events

Follow us on Instagram
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/

About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.

Support the show

Love the episode? Send us a text!

I had the privilege of speaking with Katrece Nolen, a breast cancer survivor from Northern Virginia. We had such a lovely and long conversation that I ended up producing this episode in two parts. Today we dive into Katrece’s compelling story with inflammatory breast cancer (IBC). 

Diagnosed in her late 30s, Katrece's story began with a simple observation of asymmetry in her breasts, which led her to seek medical attention. Despite initial challenges in getting timely appointments, her persistence paid off when she was diagnosed with IBC, a rare and aggressive form of breast cancer.

Katrece detailed the rigorous treatment process, which included chemotherapy, surgery, and radiation, emphasizing the importance of having knowledgeable doctors and advocating for oneself. She also highlighted the emotional and logistical challenges of managing a cancer diagnosis while raising three young children, and the critical role of community and family support.

Katrece's story is a powerful reminder of the importance of self-advocacy, the need for specialized knowledge in treating rare cancers. In part II (EPS 423), we celebrate Katrece’s survivorship of 11+ years and what survivorship and surveillance look like for those diagnosed with breast cancer. 

SURVIVINGBREASTCANCER.ORG

Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events

Follow us on Instagram
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/

About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.

https://www.survivingbreastcancer.org/takeahike

Support the show

Love the episode? Send us a text!

In today's episode, we delve into the world of PET scans and other imaging modalities crucial for accurate diagnosis and staging of breast cancer. We are joined by two incredible guests: Dr. Kiser, the Medical Director of Molecular Imaging for Carilion Clinic, and Pam Kohl, a patient advocate living with metastatic breast cancer.

Dr. Kiser provides an in-depth explanation of PET scans, particularly focusing on FDG and FES (also known as Cerianna) PET scans. FDG-PET scans use radioactive glucose to highlight cancerous tissues, while FES-PET scans target estrogen receptors, making them highly specific for ER-positive breast cancer. Dr. Kiser emphasizes the revolutionary impact of these imaging techniques in both diagnostics and therapeutics.

Pam shares her personal experience with breast cancer, highlighting the importance of advocating for oneself. Diagnosed with early-stage breast cancer in 2009, Pam experienced a recurrence in 2017, which led to a stage 4 metastatic diagnosis. Her story underscores the critical role of PET scans in detecting metastasis early and informing effective treatment plans. Pam's experience with FES-PET scans has been particularly transformative, allowing her medical team to tailor her treatment precisely to her cancer's characteristics.

SURVIVINGBREASTCANCER.ORG

Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events

Follow us on Instagram
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/

About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.

https://www.survivingbreastcancer.org/takeahike

Support the show

Love the episode? Send us a text!

In this episode of Breast Cancer Conversations, we delve into the critical topic of nuclear medicine and its role in breast cancer diagnosis and treatment. As a breast cancer survivor and advocate, I understand the anxiety that comes with scans involving radioactive tracers. Today, we aim to demystify this process and highlight its importance.

I am joined by Dr. Kiser and Pam Kohl, who provide insights from both medical and patient advocate perspectives. We discuss the safety and precautions associated with nuclear medicine tests, particularly focusing on the issue of extravasation—when the radioactive material leaks into surrounding tissues instead of staying in the vein.

Throughout the episode, we stress the importance of patient advocacy and being informed about the procedures and technologies available. We hope this conversation empowers our listeners to ask the right questions and seek the best possible care.

SURVIVINGBREASTCANCER.ORG

Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events

Follow us on Instagram
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/

About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.

https://www.survivingbreastcancer.org/takeahike

Support the show

Love the episode? Send us a text!

In this episode we are joined by Dr. Katherine Benedict, a Clinical Psychologist at Stanford University, along with patient advocates Delta James and Roxana Guerrera, to discuss the topic of dating, sex, and love after a breast cancer diagnosis. We highlight the importance of normalizing the challenges and complexities of intimacy post-diagnosis. Tune in for insightful advice and empowering stories from survivors, those living with MBC, and patient advocates.

SURVIVINGBREASTCANCER.ORG

Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events

Follow us on Instagram
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/

About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.

https://www.survivingbreastcancer.org/takeahike

Support the show

Love the episode? Send us a text!

In this episode of Breast Cancer Conversations, we had the pleasure of speaking with Dr. Laura James, a naturopathic oncologist based in Washington State. Dr. James provided a wealth of information about the role of naturopathic oncology in breast cancer care, emphasizing the importance of integrative medicine. She clarified the distinctions between integrative, complementary, and alternative care, and highlighted the collaborative approach she takes with conventional medical teams to support patients through their cancer journey.

We discussed the critical role of the "four cornerstones" of health—diet, exercise, sleep, and stress management—in supporting overall well-being and reducing the risk of cancer recurrence.

We also delved into the emotional and psychological aspects of a breast cancer diagnosis, particularly the societal pressures and internalized guilt that many women face. Dr. James emphasized the need for setting boundaries and practicing real self-care, which she defines as self-preservation; it is not selfishness. 

Throughout our conversation, Dr. James highlighted the importance of building a comprehensive care team and the challenges of integrating naturopathic oncology into conventional cancer care. She shared her experiences in developing relationships with conventional doctors and the ongoing effort to gain acceptance for integrative approaches.

This episode is a must-listen for anyone looking to understand the holistic approach to breast cancer care and the importance of addressing both the physical and emotional aspects of the disease. Dr. James's expertise and compassionate approach offer valuable insights for patients, caregivers, and healthcare providers alike.

You can check out Dr. Laura James and all of her events and programs at:  www.laurajamesnd.com/events.

She is also offering a 10% discount on her product line. Use code BCConvo10 when shopping here: www.bestforbreast.com

You can follow her at:
IG @doctorlauraND and
FB (Laura A. James, ND, FABNO).

SURVIVINGBREASTCANCER.ORG

Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events

Follow us on Instagram
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/

About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.

https://www.survivingbreastcancer.org/takeahike

Support the show

Love the episode? Send us a text!

In today's episode, host, Laura Carfang speaks with breast cancer survivor Briana Rickertsen. Briana was diagnosed with invasive ductal carcinoma in July 2020 at age 35. She underwent chemotherapy, surgery, radiation, and additional treatments due to a HER2 positive tumor. Briana discovered she has a BRCA2 mutation, leading to further preventive measures, including ovary removal.

Pre-Diagnosis, Briana was an active person, engaging in activities like yoga, cycling, hiking, and running.  During Treatment Briana used the Peloton app daily for mental health and physical activity, adapting her routine based on her energy levels and treatment schedule. Post-Treatment, Briana emphasizes the importance of movement in managing fatigue and overall well-being, advocating for small, consistent efforts.

Timestamps: 

[00:03:23] Breast cancer diagnosis in 30s.

[00:09:44] Bone health and treatment decisions.

[00:11:45] Discussing fertility options during treatment.

[00:14:17] Genetic testing and surprises.

[00:19:01] Coping through daily exercise.

[00:23:41] Exercise in cancer treatment.

[00:25:18] The power of walking during treatment.

[00:29:15] Exercise dosing in cancer treatment.

[00:34:24] Strength training for beginners.

[00:38:06] Lymphedema and strength training.

[00:41:13] Weightlifting and health journey.

[00:45:03] Finding joy in exercise.

[00:45:53] Reframing approach to daily activities.

https://www.survivingbreastcancer.org/takeahike

Support the show

Love the episode? Send us a text!

Meet the SBC Early Stage Leadership Team: Meghan Staskal-BradtJ, ulie Cottrill, Carol Collins, Meghan Aycock, Pooja Jain & & Marcee Raffel

The team is a powerhouse of volunteers who have been instrumental in driving various projects and initiatives at survivingbreastcancer.org.

Today's episode provides an opportunity for you to meet these volunteers and hear their personal stories of being diagnosed with breast cancer and advice for those newly diagnosed or dealing with survivorship.

From finding lumps to navigating treatments, weight gain, and post-treatment challenges, our panelists share candid insights into life after a breast cancer diagnosis. Join us as we discuss the highs and lows of survivorship and the importance of self-care.

https://www.survivingbreastcancer.org/takeahike

Support the show

Love the episode? Send us a text!

In this episode of Breast Cancer Conversations, I had the pleasure of speaking with Jessica Balidad, a remarkable woman who has turned her personal experience with breast cancer into a powerful advocacy platform. Jessica, a five-year survivor of stage 2B invasive ductal carcinoma, shared her journey from diagnosis to becoming a passionate advocate for women's health.

Jessica's story is both inspiring and educational. She discovered her cancer through a self-breast exam, a practice she had been diligent about since having a benign tumor removed in college. Despite her family history of breast cancer, she faced challenges in getting her concerns taken seriously by medical professionals, highlighting the importance of self-advocacy and awareness.

Jessica's experience led her to create the Feel For Your Life app, a free mobile application designed to educate women on how to perform self-breast exams, track changes and set reminders for regular checks. The app also includes a new AI feature, Breastfriend AI, which helps users understand their medical reports and prepare questions for their doctors, making the often overwhelming medical information more accessible and less intimidating.

We also discussed the broader implications of breast cancer awareness and education, particularly among younger populations. Jessica has been instrumental in legislative efforts to include self-exam education in high school curriculums in Tennessee, aiming to empower the next generation with the knowledge to take control of their health.

Additionally, Jessica shared insights into navigating the complexities of medical insurance, offering practical advice on how to handle claim rejections and advocate for necessary treatments.

This episode is a testament to the power of turning personal pain into a purpose-driven mission. Jessica's work through Feel For Your Life is making a significant impact, providing essential tools and support for those affected by breast cancer.

Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events

Follow us on Instagram
Laura and Will: https://www.instagram.com/laura_and_will/
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/

About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.

https://www.survivingbreastcancer.org/takeahike

Support the show

Love the episode? Send us a text!

Listening to your body is crucial, especially during times of illness or recovery. In today's episode, Michelle Sandlin talks about her unexpected diagnosis despite leading a very healthy lifestyle.  We discuss the significant role of genetic testing in Michelle's life, revealing her BRCA1 gene mutation and its implications not only for her but also for her family members, including her daughter who chose to take preventive measures. Michelle shares how writing helped her process her experience, manage her emotions, and connect with others. Her book, Cancer Don't Care,  aims to inspire and support others going through similar challenges and can be found on  Amazon, available in hardback, paperback, and Kindle editions. For more inspiring stories, stay tuned to Breast Cancer Conversations.

Note: The information shared in this podcast is based on personal experiences and is not intended as medical advice. Always consult with your healthcare provider for medical guidance.

Thank you for tuning in, and don't forget to subscribe to our newsletter at survivingbreastcancer.org/subscribe for more updates and inspiring stories. Keep thriving, and see you in the next episode!

Topics Covered:
[00:10:36] Being diagnosed with cancer.

[00:13:55] Exercise and cancer benefits.

[00:19:24] Meditation during cancer journey.

[00:22:41] Genetic testing and family impact.

[00:29:02] Making decisions about surgeries.

[00:32:22] Michelle's journey with writing.

[00:39:29] Choosing positivity during adversity.

Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events

Follow us on Instagram
Laura and Will: https://www.instagram.com/laura_and_will/
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/

About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.

https://www.survivingbreastcancer.org/takeahike

Support the show